Tingling in extremities : I am CkD 3. Last... - Early CKD Support

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Tingling in extremities

Margie5967 profile image
11 Replies

I am CkD 3.

Last GFR 57.

Creatine 1.24

BUN 14

I have been taking triametrene for 10 years.

I have been CKD for at least 5 years.

I also take Lisinopril for HBP.

I watch my sodium intake and protein.

My potassium is typically on the low end.

Prior to my diagnosis I was anemic.

I now take iron supplements.

Does anyone experience tingling or a feeling of tightness or tenderness in the lower extremity or feet?

I have a follow up in a couple of months and I will be sure to mention this. I am wondering if the diuretic may be a side effect.

Or is this just normal life for CKD patients.

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Margie5967 profile image
Margie5967
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11 Replies
MAS_Nurse profile image
MAS_Nurse

Hello Margie, muscle weakness and cramps can be a side effect of the diuretic but I haven't heard it described as tingling, tightness or tenderness. Perhaps, as you suggest mention to the Consultant when you next have your appointment or if you see your GP first. Have you suffered from any low back pain or sciatic pain in the past perhaps?

It is certainly worth mentioning though.

Take care,

MAS Nurse and Moderator.

Margie5967 profile image
Margie5967 in reply toMAS_Nurse

Yes, I have lower back pain. But it’s not pain that requires medicine.

I have never had sciatica nerve pain.

My Dr separated my Lisinopril from my diuretic meds.

I am going to see if it could possibly be the diuretic that is causing the side effect.

Zazzel profile image
Zazzel

Does the tightness and tingling include cramping of the foot or toes? Could be a Magnesium deficiency per my doctor. If I forget my evening Magnesium supplement, it gets worse.

Margie5967 profile image
Margie5967 in reply toZazzel

Yes.

Sometimes it does cause my toe to cramp.

I have been taking magnesium here and there.

Seems like it makes me achy.

I am trying to eat more greens to compensate for that.

RickHow profile image
RickHow

I think we all have a tendency to think everything unusual with ourselves is CKD related. Every ache, pain, twinge, etc., we immediately think "it's the CKD", "somethings wrong". I do it too. It's probably a normal reaction. But I doubt what you describe is the CKD. It was interesting to read you take a diuretic. I took one for years. The moment I was diagnosed as CKD the doctor said "no more diuretics". My urologist said the same thing. I was at the time taking the diuretic with 20mg of lisinopril (2 times a day). It caused me some troubles with my blood pressure to stop the diuretic. It went up. not to danger levels but certainly too high. upper 130s. It took about 3 to 4 months to bring things back under control, experimenting with different medications. Finally we ended up with a combination of amlodipine 2 times a day, lisinopril 2 times a day. This brought my pressure too low!. So we ended up cutting the lisinopril in to just 10mg once a day, and amlodipine 2.5 mg once a day. You might want to suggest to your doctor about stopping the diuretic and seeing if this sensation you have goes away.

Margie5967 profile image
Margie5967 in reply toRickHow

I monitor my sodium intake however my Dr.left me on the diuretic because I have edema.

However, I am going to stop my diuretic to see if that helps the side effect.

My Dr. did take me off the diuretic and I had very bad swelling.

Since you are off your diuretic do you have swelling?

Am I the only person that has CKD that also needs a diuretic?

RickHow profile image
RickHow in reply toMargie5967

no swelling without the diuretic. But the diuretic for me was initially prescribed simply for blood pressure control. Not because I was at that time experiencing swelling. With the CKD they advise me to drinkg 60 to 70 ounces per day of water (at least). There was initially concern this might cause swelling if I did not take the diuretic. But fortunately I have not had a problem so far. Certainly there are times, and yours may be one, where for other medical purposes (not because of CKD) you need the diuretic. If you do stop it, be sure to take your blood pressure 2 or 3 times daily (always at the same time of day) to ensure stopping it does not increase your pressure. And of course you will be monitoring if it causes swelling increase, in which case you will start the diuretic again.

Kikoman00 profile image
Kikoman00

Try to drink cat whisker tea, based on what I've 'read that it helps a lot to lower creatinine and to remove protein in urine.

Dangermom13 profile image
Dangermom13

Yes, I've had that problem with my feet for years now. Partial neuropathy, too. Nothing seems to help.

Sdtagoo profile image
Sdtagoo

I have those symptoms and the doctor said I have Restless Leg Syndrome and gave me Ropinrole to help. He said it wasn't related to my CKD.

Gorsemoor profile image
Gorsemoor

Tingling in the extremities is common and I take gabapentin it will solve your problem

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