Hi - I have a form of dystonia which makes my jaw clench. It's worse at night. It came on about 6months after a stroke but also just after starting sertraline (for anxiety). I finally got my GP to take it seriously after several visits and got 3 separate shots of Botox from a consultant. I came off sertraline about 3minths ago and at first thought it was getting better. Unfortunately it is now getting worse again. Has anyone got any ideas?
Mandibular dystonia after stroke - Dystonia Society
Mandibular dystonia after stroke
Written by
Gilldy
To view profiles and participate in discussions please or .
Read more about...
7 Replies
•
i have the same and get you maybe need regular botox. I should get mine every 3 months but with covid has been delayed. It takes a few sessions to see if it is suitable and works for you
Thanks for the quick reply. Yes - getting Botox seems the only way forward. The consultant in Leeds would only give me three shots then said I'd be ok - obviously wrong!I was just hoping someone would know of some other cure - wishful thinking probably.
Thanks - I'll speak to my GP about getting referred again. Sigh!!!
Yes the consultant said it was definitely dystonia. Not that I trust him particularly. What are the other reasons?
Stress is main one. Have you seen a dentist?. They can feel the muscle and advise. My dentist was interested in my condition
Not what you're looking for?
You may also like...
Oral/Mandibular dystonia
Is there anyone here who has oral dystonia caused by a tooth injury (dentist or somehow else)? What...
Hi! Post-Stroke Dystonia patient here
into better treatments for people with post-stroke dystonia.
Despite my condition, I've been able...
Coping with dystonia
Does anyone out there have dystonia in both legs as feeling really frustrated and feel I'm letting...
Help with Cervical Dystonia please
Cervical Dystonia after being unsuccessfully treated for a head tremor caused by MS. I received...
Trial for dopamine- responsive Dystonia?
even closed my shop & stopped sewing after 26 years.)
I tried Botox twice and I decided I would...