Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

25,550 members • 26,870 posts

All posts for June 2023

Australia approves ecstasy and magic mushrooms for medical use

Earlier this year, researchers raised eyebrows when Australia's traditionally conservative medicines regulator approved the use of psychedelics to assist...

Earlier this year, researchers raised eyebrows when Australia's traditionally co...

Kia17

•10 months ago

1 Reply

Help Congress END our disease! Participate in a 1-on-1 meeting with this Congresswoman

I have great news for you. Our team has secured a 30-minute virtual meeting with staff from the office of your U.S. Representative, Rep. Maxine Waters, to...

I have great news for you. Our team has secured a 30-minute virtual meeting with...

PDWarrior1900

•10 months ago

12 Replies

falling asleep while walking - need suggestions

My mother falls asleep while she is walking. She has Parkinson’s but not on any medications for that. She has dementia which is not Alzheimer’s in that her...

My mother falls asleep while she is walking. She has Parkinson’s but not on an...

Astrojupiter

•10 months ago

10 Replies

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No silver bullet Zoom Session - with speaker from Cue1 Monday July 17 at 730pm London time

I received an email update from Cue1 about a Zoom Session. Here is the information: ============================== "Dear NoSilverBullet4PD community, We...

I received an email update from Cue1 about a Zoom Session. Here is the informati...

LindaP50

•10 months ago

1 Reply

Devices for logging events?

hi, can anyone suggest apps or devices for logging time, date, and type of those small, but significant, events that happen during the day? This would help me...

hi, can anyone suggest apps or devices for logging time, date, and type of those...

ZebraDoodle

•10 months ago

8 Replies

Looking for a good neurologist in Italy

Hello everyone, I'm looking for an excerpt and above all open, empathetic and helpful neurologist in Italy, preferably in central Italy. Thank you .

Hello everyone, I'm looking for an excerpt and above all open, empathetic and he...

Axter

•10 months ago

7 Replies

b1 e alcol

Salve,Ho iniziato da poco la terapia b1 nella forma sublinguale. Ho una domanda specifica che riguarda l'alcol: avendo saputo che l'alcol distrugge la...

Salve,Ho iniziato da poco la terapia b1 nella forma sublinguale. Ho una domanda...

mariacas

•10 months ago

5 Replies

Is 'losing time' a PD symptom?

Last night I went to bed at 1AM and was up at 5AM. Then had Tai Chi class at 8AM. Then came home and worked on the motorbike for a few hours. Then took...

Last night I went to bed at 1AM and was up at 5AM. Then had Tai Chi class at...

kaypeeoh

•10 months ago

5 Replies

In defence of meds!

Hey gang. Ever since I’ve been a Parkie, I’ve noticed how so many members of the community are strongly focused on either reducing or phasing out drugs...

Hey gang. Ever since I’ve been a Parkie, I’ve noticed how so many members of the...

jeeves19

•10 months ago

106 Replies

Question….

It seems to me there was a post not too long ago about the Vitamin B complex, low in B6, to use with the high dose Vitamin B1 protocol. I thought I saved it...

It seems to me there was a post not too long ago about the Vitamin B complex, lo...

GrandmaBug

•10 months ago

7 Replies

cue1 info

has anyone tried the Neurotech cue1 device

Biff69

•10 months ago

4 Replies

A cross in the sand

Does anyone else find this explanation helpful -- ? Imagine yourself sitting on the beach and you draw a cross in the sand like an 'x'. The first stroke...

Does anyone else find this explanation helpful -- ? Imagine yourself sitting on ...

Meg024

•10 months ago

6 Replies

Neuropathy with PD

Has anyone had "neuropathy," in hands/legs? Over the last few weeks I have noticed numbness and tingling. Here we go....another "thing" to deal with. Good ol'...

Has anyone had "neuropathy," in hands/legs? Over the last few weeks I have notic...

cjCardio53

•10 months ago

21 Replies

FMT? Has anyone seen positive outcomes?

Following on from the posts about gut health, has anyone tried FMT and what were the results?Thanks for sharing.

Following on from the posts about gut health, has anyone tried FMT and what were...

Norman6

•10 months ago

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update on hubby

Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe...

Hubby was feeling very bad earlier in the year from what turned out to be overdo...

LAJ12345

•10 months ago

22 Replies

Laptop causing pain?

I spend much of my day with a laptop in my lap. After a couple hours my left hip begins to ache. Never the right hip or leg. I sit in a rocker/recliner...

I spend much of my day with a laptop in my lap. After a couple hours my left h...

kaypeeoh

•10 months ago

12 Replies

BlueRock the first company to report initial success treating Parkinson's disease in humans using an experimental stem cell therapy

https://www.reuters.com/business/healthcare-pharmaceuticals/bayer-phase-i-trial-results-parkinsons-cell-therapy-positive-2023-06-28/

https://www.reuters.com/business/healthcare-pharmaceuticals/bayer-phase-i-trial-...

Farooqji

•10 months ago

12 Replies

uncontrollable running

Does anyone share my problem of uncontrolled running? Walking the dog in the morning and find my steps get shorter and shorter and then I'm running, upper body...

Does anyone share my problem of uncontrolled running? Walking the dog in the mor...

grower

•10 months ago

11 Replies

Anyone Taking Both Sinemet and CR ?

When first diagnosed by my primary care physician he prescribed Sinemet CR 25/100 to be taken at 6 hour intervals 4 times daily , today I met with a...

When first diagnosed by my primary care physician he prescribed Sinemet CR 25/10...

BoomMate112055

•10 months ago

9 Replies

B1 Therapy question

Six months ago, my neurologist diagnosed me with early stage PD. My prominent symptoms included hand tremors and stiffness. I am on a low dosage of sinemet...

Six months ago, my neurologist diagnosed me with early stage PD. My prominent s...

jalapeno1

•10 months ago

10 Replies

Has Anybody's Condition Improved Since Starting Supplements or Alternative Protocols?

docjleonard55's question about supplements got me wondering. We have talked before about whether supplements are working, and if they do not seem to be...

docjleonard55's question about supplements got me wondering. We have talked befo...

Bolt_Upright

•10 months ago

74 Replies

Update on Annovis Buntanetap

Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other...

Update from Annovis We are excited to announce two significant advances in our ...

Imaparky

•10 months ago

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Is this optineurin info generally known?

https://newatlas.com/medical/unconventional-mechanism-underlying-parkinsons-disease-discovered/?utm_source=New+Atlas+Subscribers&utm_campaign=04e16a165d-EMAIL_C

https://newatlas.com/medical/unconventional-mechanism-underlying-parkinsons-dise...

Tripple

•10 months ago

2 Replies

Sleep Problems - Not enough sleep

I've started to have problems sleeping. I usually wake up 1 or 2 times a night. However, over the past few weeks, I've been getting 1 to 3 hrs of sleep. I...

I've started to have problems sleeping. I usually wake up 1 or 2 times a night. ...

Auro1

•10 months ago

2 Replies

Rytary… might stop??

After 6 days the following impressions… I do get about an hour longer ON per dose. I was on a four hour cycle with IR, with about 2-3.5 ON per dose, depending...

After 6 days the following impressions… I do get about an hour longer ON per do...

rebtar

•10 months ago

5 Replies

B1 Overdose

I need a bit of advise, pls. I think my HwP has overdosed on 500ml hcl daily after taking just 2 weeks. His symptoms are more noticeable especially his balance...

I need a bit of advise, pls. I think my HwP has overdosed on 500ml hcl daily aft...

GratefulHeart23

•10 months ago

11 Replies

Supplements working?

Been having these thoughts for a while. I have spent and continue to spend a lot of money on supplements. How do I know if they are working? I've tried things...

Been having these thoughts for a while. I have spent and continue to spend a lo...

docjleonard55

•10 months ago

10 Replies

Curated YouTube video collection for Parkinson patients

https://youtube.com/playlist?list=PLQoKTSMZFPn_L8fTrghKgEoCCPfv-jjV_&feature=sharea

https://youtube.com/playlist?list=PLQoKTSMZFPn_L8fTrghKgEoCCPfv-jjV_&feature=sha...

pdpatient

•10 months ago

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Decoding Neurological Mysteries. How Blood Triggers Brain Disease.

https://scitechdaily.com/decoding-neurological-mysteries-how-blood-triggers-brain-disease/ Maybe banged my head too often?

https://scitechdaily.com/decoding-neurological-mysteries-how-blood-triggers-brai...

Thal

•10 months ago

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GREAT NEWS! 6 month report card from Stanford 'glove' user

https://youtu.be/jq5f-oalRBQ

PDWarrior1900

•10 months ago

2 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for June 2023

Australia approves ecstasy and magic mushrooms for medical use

Help Congress END our disease! Participate in a 1-on-1 meeting with this Congresswoman

falling asleep while walking - need suggestions

No silver bullet Zoom Session - with speaker from Cue1 Monday July 17 at 730pm London time

Devices for logging events?

Looking for a good neurologist in Italy

b1 e alcol

Is 'losing time' a PD symptom?

In defence of meds!

Question….

cue1 info

A cross in the sand

Neuropathy with PD

FMT? Has anyone seen positive outcomes?

update on hubby

Laptop causing pain?

BlueRock the first company to report initial success treating Parkinson's disease in humans using an experimental stem cell therapy

uncontrollable running

Anyone Taking Both Sinemet and CR ?

B1 Therapy question

Has Anybody's Condition Improved Since Starting Supplements or Alternative Protocols?

Update on Annovis Buntanetap

Is this optineurin info generally known?

Sleep Problems - Not enough sleep

Rytary… might stop??

B1 Overdose

Supplements working?

Curated YouTube video collection for Parkinson patients

Decoding Neurological Mysteries. How Blood Triggers Brain Disease.

GREAT NEWS! 6 month report card from Stanford 'glove' user

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