Patch

Has anyone started the Neurpo patch ? Is it working for. You ?

[l1111irish]

I have been part of a study testing the rotigotine patch for the past year. The patch supplies a dosage that lasts for 24 HR.

I have noticed a considerable decline in my symptons.

I forgot to change patchs once and within two hours my symptons became severe. I will not repeat this error

[goose63058]

My neurologist put me on the patch last week.4mg I do not feel a difference at all We are trying to get me 1 hour more between carb/levo doses every three hours instead of two . Maybe I need a stronger patch.The adhesive makes the area itchie. Also it doesn't stick very well.

[l1111irish in reply to goose63058]

My neurolgist started me on the patch with a 2mg dose for one week. The second week was 4 mg and the third week at 6mg. On the forth week I was on 8mg. I was taken off the 8mg due to a bad reaction to the dosage.I was put back on 6mg. I had little or no change in my symptons until the sixth week using a 6mg dose.

The change in my symptons were suttle at first and now that I have been on the patch for 6 months I have only an occasional tremor. My ability to express my thoughts into speech has increased tremendously. I have not had a "frozen" experience since I have been on the patch.

I feel a gradual change in my symptoms near the end of the 24hr cycle, but I am dealing with it.

After removing the patch I apply baby powder to the exposed area of skin and I maintain six areas of my body to apply the patch in rotation. This gives the exposed area of skin used time to "dry" out.

I hope you have some success with yor dosage.

[Carrigan]

Is this available in UK would like some info on this please

[Hidden]

It is available in the UK. I was put on it about one month ago. The trouble seems they have problems getting hold of it, but eventually I got a supply.

I am at the moment on the lowest dose a 2mgm patch. Yes, I do feel like I have more energy at last.

At least I seem to get bursts of energy, then exhaustion, but at least with those bursts of energy I can get stuff done, My walking is also not as stiff .

I am at some point to go onto a higher dose until I am on 8 mgm, but for the time being I am happy to get this relief.

[Hidden in reply to Hidden]

Are you taking anything else with this ?

[Hidden in reply to Hidden]

Sorry I forgot to say I also take Madopar 125mgms x 3 daily

I notice a comment below mine mentioning itching the site of the patch does itch occasionally but that is fine to cope with.

I suppose many men may have this problem in that it has to go on smooth skin having a lot of body hair I find having to shave area's off to put on a patch. until you start to look like a chequer board. which causes much hilarity.

[CathyS]

I started using the patch for severe RLS shortly before they pulled it from the US market. It was the first reliable treatment after 20+ years of miserable. I cried & whined & begged my way into the trial program and have been using it for several years. It is a miracle for me. There are problems but the good outweighs the bad. It takes several hours to take effect, so as mentioned earlier - if you forget to change it you end up having a lot of trouble! That doesn't happen often because everybody reminds me. Apparently my family thinks I get a little cranky without it Also the itching.... It does get real bad at times, and I have scratched in my sleep till it bled. I feel though that it's far better to itch than twitch! I can sleep, go to the show, sit through church, watch TV, etc. It has given me SO much relief. I too feel more energetic - not sure if it's the patch or the fact that I can now sleep for more than a couple of hours/night. I highly recommend giving it a try!! Good luck.

[soniadakini]

DearAnthony,you can type in NEUPRO and you see lots of feedback on this site about neupro, including mine .i hope this useful . Soniadakini

[Jash]

Been on 2mg for just a week-- no side effects and I do think I have more energy. Going up to 4 mg next week. Thanks for bringing this question. I too was going to ask

[carolineb211]

I was on the patches, forgot to take it one day and didn't notice!!!!. Back on requip now (6 mg) and Azilect. This seems to work for me but then I am off work for the summer so that might be why my symptoms are easier at the moment.

We will see in September when I am back to work.