Anyone have tips on fighting freezing epi... - Cure Parkinson's
Anyone have tips on fighting freezing episodes? Even using a walker doesnt help
Depends where you find yourself at the time. The more you fight it, I find it makes me more immobile. I use the double movement trick...in that I say to myself, I happy here, then before The Darkside realises I move swiftly to my target, a car door, a chair, an exit etc. I believe the disease stops me deliberately when I want to go somewhere or do something, so I use the above to fool it...sounds like I am mad, but it works for me.
Do you find that doorways are our enemies? my stress levels go up in public doorways. of course the freezing then gets more intense when someone says to me you can go now..I can get through a doorway if I dont have to stop for anyt reason but very frustrating..
hi yes it usworse when a lif tor doorway si there
if i am iwht myk carer and hav eliked arms she waits until i have said my 1 2 and then i can mov eagain usually
people r great and say take your item and htey mean it but lfie si quite slow in this part fo the world
lold JIll
:
Service Dog / Mobility Assistance Dog / Parkinson's Walker Dog
BRILLIANT!
I would love a service dog!!!! ... any info on how to apply and qualifications to get one?
I'm getting mine through Paw Pals Assistance Dogs.(Google Assistance Dogs). It takes almost 2 years to train a service dog so I won't get "Charlie" until late next year.
I have been a Service Dog puppy raiser / foster mum for many years. Best 'job' (I volunteer my time) ever. Joyful tears every time one is assigned to their partner.
I wish Charlie and you many years of mobility freedom.
Carry on strong.
Start a search online depending on your area... It depends on what you want the dog for, how much you will depend on the the dog. Sometimes you can have a dog trained for your specific needs but you have to find the right dog and the right trainer which can be time consuming.. I used to train dogs In general then my Mom had PD and started freezing I trained my dog to be her service dog for freezing, pick up phone, balance, and other needs but it takes dedication. (both have passed on) I now have PD and will start looking for a service dog before I desperately need one. I will let you know if I narrow down my search soon. So far I have found a lot of dogs for the deaf, seizures, and of course the blind... the new thing is allergies.. So hopefully PD dogs will become popular. PS my dogs name was Cabo thus my sign in....
Ditto
Hi ,
This happens to me almost every day , what i do is focus on my feet and picture a small wall , or a hurdel, i then try to lift one leg over the wall then the outher , works some times ,outher times i just stand like a statue and shake, especialy in door frames ,
hope this helps
Al
One nurse told me to count when you get to a trouble spot. It works quite well. And I haven't frozen once while walking my new puppy, he keeps me moving!
My hubby has this happen to him occassionally and our doctor said to try a laser pointer or try getting him to march like he's in the army. Sometimes it works, other times it doesn't and we just have to wait for the epidsode to wear off which usually doesn't take too long.
Thank you for the great tips... i have tried counting and also since my left foot triggers the freezing i try to concentrate on taking bigger steps with this foot. a cart in the grocery store helps but i still freez in doorways.. once it was a 5 minute freeze.. my husband is so patient not trying to rush me because that only makes it worse.. Most people behind me are patient too but it is very embarrassing
Sometimes i can shuffle out of the way of the doorway but that looks ridiculous and a woman imitated me last week... awkward!!!....
Marching also works for me sometimes..I appreciate any help... has he fallen from freezing? i have a few times... Scary..
I got your fix to your freezing dear. And you don't have to clean you the poop after it. I have been working with my Dr at the Mayo Clinic on this device and it is the answer. Just watch the video and if you want to know more just message me. I get nothing from this but to help people like me. Search YouTube for Mayo Clinic MobiLaser. That is me and it really works!!
I often freeze trying to get through a doorway. I have found that if I sing (to myself) I usually start moving again. Row, row, row your boat seems to work well!
It will cure all your problems honey!!!! If you want to know more let me know.
Playing music, especially my favorite rock and roll songs helps me start moving.
Try kicking a football inside your walker . I find this helps!
DBS
Does DBS actually stop freezing episodes?
Thankfully this doesnt happen to me yet. Have you read any of the information sheets around? Here is one. parkinsons.org.uk/Docs/is_f...
Seems to give some helpful suggestions.
I find the more I fight the freezing feeling the worse it gets, but I have 1 1.2 lbs weights that I use on my ankles and on my wrists, seems my brain is more worried about the weights then about my arms or legs moving and yes I can move. As for doorways depends where you are at I just go backwards works like a charm it works, if you dare close your eyes or just look away from your feet, seems that helps more I try to will my feet to work it is worse if I look at them. hope this helps some, God bless us parkies, we are the hardest working bunch of people just making our daily lives work!! We are the true BRAVE HEARTS!! Life is so hard we score a 100 for just getting out of bed.
michaeljfox.org has some great tips to help with thawing out frozen feet..lol.. anything is worth trying..
Entering any narrow space may cause a PWP to freeze. Several things have helped me greatly. In the morning I do an exercise where I step sideways; one foot over the other for about one minute. I found that this prevents most freezes for the day. When I do freeze, I try stepping sideways to get free. This seems to work most of the time. Also, looking at the point on the other-side of the room you want to go to helps. Balancing my meds though trial and error making just very slight changes can help. The book "Parkinson's Disease and the Art of Moving" has great reviews on how it helps people with movement and speech problems (Used $3.65, New $19.77). Hope this helps many PWP.
