I have just been told that I need 4 teeth removed and that the infections are pretty extensive. So like a good parkie I went to google. Here is what I found. google.com/search?q=can+bad...
I searched HU for teeth and tremor, and found zilch. So I am curiious how manny of us HU parkies have any issues with our teeth, particularly chronic infections. I have had this kind of thing since I was little. Being raised in the Ukraine didn't give me a very good start.
There's a UK dentist w PD on Twitter (now X). He uses the handle @Dr_SF_Hussain. I'm not sure you'll find what you need, but maybe you'll find something useful. Tremor & teeth - I double up on my C/L before an appt. It's worked for me so far.
a dentist recently told me that carbidopa/levodopa causes periodontal problems. She did not elaborate but said that since I haven’t been eating gluten, my gums were not inflamed. Whatever that means, I don’t know but hope it helps. (Gluten and sinemet are both bad for gums?)
I don't take CL but I do sometimes eat gluten.
glutin causes inflammation
Gluten causes leaky gut which causes all sorts of problems
Is there an alternative to C/L to avoid this problem? Thanks
thats a great question for your neurologist! There are many medications, but supposedly, C-L is the standard.
Never heard about connection between Parkinson's and teeth problems. My dad gets regular check ups and cleanings. If you are under the dental care and have regular cleanings, was the infection missed for so long, that you need your teeth pulled? Try getting a second opinion before pulling your teeth. I know what you mean about not great dental care in Ukraine. Same here.
I was managing the infections with regular cleanings, and actively avoiding going to the dentist. I have a lot of dental trauma since I was little. So yeah, I was told, I just have been scared.
This has worked for others - Mastic powder
Open the 500mg capsule empty contents into glass add water
Take 3 times a day 8 hours apart on empty stomach for 2 months.
Within 3 days you will notice a difference
The first thing you might notice is the bad taste in your mouth has gone.
Some like to do another round a couple of months later to ensure the bugs are not regrowing
Swish first few mouthsful around your mouth before swallowing at will heal from the mouth down.
Do not eat for at least 20 minutes
It’s incredible how many conditions we have that stem back to leaky gut .
Do your own due diligence with GP or Dr Google
I take several powders in the am, so am wondering if this might interact. I take ascorbic acid, and magnesium carbonate and inulin all in a glass of water with lemon in it. Maybe the acids are also not good for my teeth?
This gentleman’s review was well put .
Our gut is key , when we suffer from inflammation it means are guts are leaking . So the acids you are taking are making you worse .
At this time the acids you are taking are doing harm because they are not contained and leaking into your entire body. You can look at going back onto after your treatment. You can still have your magnesium at a different time.
Depending on where you live Im certain sure you will find some good brands on Iherb or Amazon .
These 2 products will kill the bad bacteria and seal the leaks in your gut which starts at our mouth to our anus . That’s why it’s important open capsules so you are killing the mouth bacteria all the way down. Leaky gut also causes leaky brain.
Mastic gum is the sap from a tree similar to pistachio tree.
You can buy mastic gum mouthwash
Mastic and slippery elm are truly the best gut healers on the planter they have been used for thousands of years as antibiotics. Mastic is so powerful that it treat tuberculosis.
You will feel results within days
Once you have completed 8 weeks you feel you have healed you can cease the mastic and continue the slippery elm and add a probiotic.
I would certainly do a second round of therapy of mastic gum after 6 weeks or longer if you are still 100 percent you may wait 3 to 4 months .
Remember empty stomach is important.
Now I don’t know your circumstances but this will really sped things up .
Blue and red light therapy 10 to 20 minutes then into hyperbaric chamber this has changed my life.
If you are in a position to and you have access these treatments you won’t look back.
YouTube there is so much information this subject.
Do you suffer from reflux ?
I hope this helps , let me know about reflux and if the link opens
Mastic gum and slippery elm both are very safe however you should always do your own research.
I’m looking forward to good news from you
Ps I’m in Australia
I am going to try it. Not all of them are vegan though. Which brand have you been getting? I have seen some of the posts on HU about supplements coming from sprayed plants, or not even plants, or not even being what they say they are. So I want to be real careful what I buy.
Tooth problems, and particularly gums, are a huge contributor to inflammation.
yup, exactly, lesson learned
If you haven't tried any already, try a nano remineralizing toothpaste, please.
Got any examples? Do you use one?
Yes, AAMOF, Premio with Apagard, for about 3 years now.
OMG there are so many. Would you be willing to share a link to your specific one? Are you in the US or UK?
U.S., Anchorage Alaska to be specific. If you can try Premio Apagard , it's what I've been using for quite some time.
But please, let me make an addendum, I've never been diagnosed for PD , but I lead an ( allegedly 
extraordinary life, and obviously would prefer to do so from here on out , as everybody here as well.
Wish you, and all of us, the best !
Thank you. What is extraordinary about your life? If you feel like sharing of course ...
Do you know if that interferes with other supplements and medication!
Thanks
Someone like this?
youtu.be/dU4lYcN6zEY?si=xuu...
This was a joking response to the question 'what is HHU?'
The question has been deleted by the poster. 😆😆
I have to admit, I was taken aback by a fellow Parkie questioning that kind of typo. Thank you for the laughs.
We all are same boat i took very good care of my teeth but now it is hard. So that is way infection showing g up
I would like to respond to everyone on this topic. I was so drawn into the theory that low-level symptomatic or asymptomatic oral infections could be a "root" cause of PD. I myself am diagnoised with prodromal PD & possible DLB. I had two root canals that had infections. I have had them removed. No one has looked into a possible connection between root canals and PD, so I started my research. I surveyed 200 PD patients and over 70% had root canals before being diagnoised with PD with an additional 15% having tooth extraction because of infections. These numbers are crazy but when you understand the business of root canals you will understand why no one will research this area. In the USA alone endodontists perform upwards of 30 million procedures per year with upwards of a 10% failure rate. Not good if you suffer from gut dysbiosis and are exposed to toxins. There are a lot of questions that arise: Could these infections be the cause of the dysbiosis, Could these infections cause misfolding of proteins? The science says they could and maybe when the combination is right they do cause PD. The mystery - by correcting the infection, could you slow, stop, or reverse PD in conjunction with other complementary therapies? I would like to hear everyone's opinion. Also, you can find the survey I posted on my website whyRBD.com
Bolt_Upright have you seen this website? I highly recommend everyone take a look. WhyRBD can you say more about the butyrate please and what type of test is needed?
I have used for the past 4 years a test from what was Great Plains Labratory called complete stool test. I measures total SCFA and the three primary: Butyrate, Proponate and Isonate. From my research, our issue revolves around LOW BUTYRATE, mine was such that I had three ischemic strokes and a subarachnoid brain hemmorage (all i say caused by low buytrate - I am an ultra distance athlete with ZERO cardio issues). Every needs to test because low butyrate leads to leaky gut - low butyrate is the result of a dysbiotic gut caused by? Well toxins - chemical, organic, bacterial. Note to all. I have been very lax on keep my site up to date regarding the latest research as I compile white paper support to our effort daily. In the next few weeks, I just might put a link to my rough notes where I clip research papers that are relivant to our conditions: PD, DLB, iRBD, Constipation, Orthostatic hypotension, anosmia (loss of smell). I would really like to hear from everyone in regards to butyrate testing - is any one testing regulary or even been tested at all?
Is butyrate a blood test as well, or stool only? I'm planning to do microbiome testing starting asap. So will make sure the lab I choose tests butyrate level too.
Following
I just had a GI map test done.Haven’t gotten results yet.Ill let you know if those were tested.Thanks for the info.
share what company you used
Not to brag, but I've talked to WhyRBD before. I think we met on FB. He has a great website and is a fellow lectin avoider. Hi WhyRBD ! How are you doing? I learned you can pressure cook black beans, potatoes, and tomatoes and greatly reduce the lectins.
Doing the best I can. Well for the normal person pressuring cooking can REDUCE the lectins but for those of us with iRBD, the reduction is not enough to eliminate nighttime events. I have tested over the years and feel my bean addiction might have been a major driver in my prodromal PD. I cut them all out and my nighttime events went down. Dr Gundry's recommendations are only recommendations for the general public. Through daily experimentation, I can only eat about 25% of what he calls lectin-free. I highly recommend a total elimination diet to see what level of sensitivity I may suffer from. Today I am experimenting with just coconut oil and pork - nothing else. The science says that lectins can stimulate the vagus nerve allowing it to transport proteins from the ENS to the CNS via prion action so if you have low-level toxins causing a misfolding and you have gut dysbiosis measured by low SFAC (you then have leaky gut) you just may come down with PD. iRBD is just a symptom of this movement that could take up to a decade to cause PD. I am working on trying to put all of this into a FREE ebook for everyone to benefit from - I hope to have done in the next few months.
Thanks. Interesting that you chose pork. I chose just ruminant meat. I figure those 4 stomachs are filtering things pretty well.
I have only had 3 mild episodes so far this year. That's a big improvement for me (knock wood).
Good luck. I look forward to reading your e-book.
Great job. It was a test as I isolated a specific meat and wanted to know how I would react. I normally have grass feed beef, grass feed goat, sardines or salmon. For most part, I made it through the night without and event. My camera did capture what might of been my body reacting to a caugh. My HRV was 72 with a pulse oof 47 and a breath rate of 11.6. Tonight is is salmon, coconut oil (salt and pepper) and avocados.
well the test was a big success (to be expected). For my daily food I ate (one meal) 1.5 lbs wild caught salmon (half was from a can), 2 avocados, and three table spoons coconut oil (one tablespoon was in my morning cofffee). ZERO iRBD events. Camera showed very little movement. HRV 76 - HR 45 - Respiration 12.4. Feel great - have energy - will continue my training (Running & HITT)
I don't doubt that reducing lectins has been beneficial for you, but not all cases of RBD are caused by, or even aggravated by lectins. My spouse with a 20 year history of RBD does not follow a low lectin diet, and currently experiences a mild episode once every 3 months or so. Foods consumed daily include tomatoes, seeds, nuts, barley, rye, oats, chickpeas, etc. I do agree that butyrate production in the gut is important, and worry that trying to cut out lectins could actually be counterproductive......by reducing the various fibers and polyphenols that allow the butyrate producing gut bugs to thrive.
Also, you said........."The science says that lectins can stimulate the vagus nerve allowing it to transport proteins from the ENS to the CNS via prion action so if you have low-level toxins causing a misfolding and you have gut dysbiosis measured by low SFAC (you then have leaky gut) you just may come down with PD."
Do you happen to have a source for the lectin/ vagus nerve claim? I'd be interested in reading about that.
Here is one study
sciencedaily.com/releases/2...
when asked, misfolded asynuclean propteins have a binding receptor allowing them to hitch a ride like paraquat. Now for the gut "food", I definately agree and suppliment wiith prebiotics and soluable fibers like inulin etc. Now in the case of your wife, if she was clincally diagnoised with iRBD, the degree of frequency and intensity could be dependent on her the following: Level of toxins, SCFA production. These factors could determine to what degree she has leaky gut and protein misfoldings. Yes everyone is different when all variables are combined. What does stay constant is the science for each specific process that takes place in the body. You can not have a healthy gut with out adiquate SCFA production etc.
What I know for certain with I go on extending multiday fast, my iRBD goes away. When I add food, the chances of a relapse increase depending on the food I eat with gulten (form of lecting) being the worst.
Following
By the way, what is DLB?
Following! I go to the dentist 4times a year. I have a bridge that I have had for 40 years that is exposed due to a slight recession of the gums in that area. The dentist said there is decay starting behind it and it needs replaced. He also said that there may be a possibility of the need for a root canal depending on what they find. I also have osteoporosis . Not sure I have options. Any suggestions.
So is the infection the cause and is a root canal dangerous? Thanks
most scientist do believe a low level infection causing inflamation could be one of the contributing causes of prodromal and then finally PD. My research says it is a combination of factors that allow from this to happen. 80% from the gut and 20% direct to brain. The oral infection could contribute to both. What I do know is 85% of those with prodromal and finally PD have oral health issues long before they are diagnoised with PD. In my case I had one root canal with symptoms and I had one without symptoms and the abcess was only found using a 3D CT scan. This type of xray is not normal and I had to pay out of pocket. I had both root canals removed. After both removals and with an increase in my therapies, my gut score increased from a 2-6. I am now testing for SCFA levels. If anyone has a good lab for SCFA test, please share. I have used Great Plains and just looking for options
I tried to fill out the survey. You have one question about a stroke but there’s no place to check if you never had one so it wouldn’t let me submit my answers. Please advise thank you.
I will take a look. The reason I ask this question is the fact that low butyrate causes ischemic strokes. I had low butyrate (normal for prodromal PD) and I suffered from 3 ischemic strokes two years after being diagnoised with iRBD. I will let you know when I fix the question
Thanks
try it now, I think I have it fixed..it was a conditional logic issue
This is exactly what I was thinking. I stopped having root canals some years ago because I learned about this insane procedure of killing teeth and leaving them in the mouth to rot. I have had several "failed" root canals. Who wants to lose teeth, no one. I am so excited to peruse your survey. And I am absolutely convinced that this is a huge contributing factor. For me there was just a perfect storm of every kind of factor possible really. COVID was probably the final straw, but so much other crap happened to me. Neighbors mosquito spraying their yard above me, other neighbors using all sorts of round up on everything. A ton of other trauma all at once. Dental issues ALL MY LIFE. Isolation of COVID. It goes on and on ... and no in person support system. I think this can all be reversed, or addressed, but one needs the strength , will to live, and support to accomplish it.
Tooth decay due in large part by nightly breathing disorders and salivary dysfunction which changes the PH of the mouth mostly at night, promoting bad bacterial growth.. Get a sleep study done, show it to your dentist. tooth decay and PD go hand in hand. hang tough...
apdaparkinson.org/wp-conten...
I have adopted a mouth taping strategy to eliminate the issue of dry mouth and PH issues. I works.
I use Listerine Antiseptic Mouthwash every time I am in the washroom / lavatory (which is often ) especially before bed. Helps keep the chronic bacterial infection that lives up my nose and drips into my throat and the bacteria that live in my gums under control . Best stuff ever invented .
Please do not tell me how something else is more natural and therefore better. I tried everything else .
You definitely need a second opinion. Things to beware that harm, wheat and grains, not just gluten very much behind causing cavities, fluoridated water and toothpaste with fluoride, a neurotoxin more toxic than lead. Yes root canals another problem caused by a dental procedure . The inventor of this backpedaled when he realized he was wrong, but this cash cow will not be stopped by the endodentist ,much too lucrative for them. The only way to stop it is to say no.
This person is basically a fourth or fifth opinion at this point. The others thought I needed to remove two implants and needed a bunch more root canals. So this one is my best bet. She is kind, seems gentle, and into natural ways of healing. I cannot put this off any longer. I had a full body thermography and it showed a big old red and yellow flare where the implant is. My gum margin there is 10 ml!!!
You are on a dental journey that I can relate too. I had implants that failed and now living with a top denture. All that extra saliva is keeping it nice and tight. You've done your work finding the right dentist and treatment. Ozone therapy orally could help getting rid of the infections but then more time and expense. think of using red light therapy or PEMF to quicken healing. Good luck with this and follow your gut feeling.
What is the alternative? If you’re told you need a root canal is there another way to go? I’m having a bridge replaced due to the DK behind it. There’s a possibility once they take that out that one of the other teeth may need a root canal. I’ve never had one so far. Thanks for your input.
is there an alternative to a root canal?
I did get all my root canals removed the last one was in 2016. It was on the bottom left, my lump disappeared and my smelly armpit also disappeared. When a root canal is removed the bone has to scraped and the ligament removed works like a sling. Options are implants, expensive, or a flipper, partial denture or full denture depending what teeth are missing. Not fun. Again ozone treatment could help. Using cloves in a water pick I've done, but it will affect the reservoir since it's made out of plastic.
Thanks
For the last 10 years or so, I have been using goldenseal every time I felt like there was an active infection. It's basically a natural antibiotic. But I don't think it works forever... so eventually the thing left to do is root canal or extraction sadly.
There are some bacteria that you can not kill because you can not get to it . The nasal system was designed for an animal that walks on all four legs and the teeth were never to last 70 to 80 years . A lion with no teeth is a very sad thing. I do not think it has anything to do with the Ukraine or PD. TRY it
This might interest you:
"Self-reported periodontitis association with impaired smell and taste: A multicenter survey":
There are also many studies out there that explore the role of Desulfovibrio bacteria (often found in PD) in the gums of people with periodontal.
"Sulfate-Reducing Bacteria of the Oral Cavity and Their Relation with Periodontitis—Recent Advances":
I can't recommend daily use of a Water-Pik enough! It flushes out bacteria from between teeth and gum pockets in a way that brushing and flossing just can't. I apologize for the grossness of this statement but.....if I don't use mine for a few days running, I can smell the difference. 🥴
Water-Pik seems to me to be an ideal tool, provided with water and the cleaning is not done by mouthwash. A sterile mouth is the last thing you want. Those bacteria are there for a reason. When you remove them, you also remove the good bacteria, which can increase the risk of heart and vascular diseases and disrupt your gut flora. It's similar to the action of antibiotics: it kills or inhibits the growth of all bacteria. This works well against infections, but it also works against good bacteria. This gives 'bad' bacteria the opportunity to thrive.
30 years ago a horse kicked me in the face, shattering my jaw. And I lost one molar. There was not enough solid bone for a bone plate to be used so instead the surgeon wired my jaw shut. I had to live on liquids for months. Also I couldn't brush my teeth because of the wire twists gouging my gums and snagging the toothbrush. Luckily since I lost a molar I was able to push the water pic into my mouth and flush my teeth from the inside.
I have had continued very good experience eliminating gum/tooth infections in myself and friends using colloidal silver (CS) as a form of topical antibiotic that has no taste. Wherever the infection is I use a half thickness of a cotton ball saturated with CS and place it between the cheek and the gum. I replace it every so often with a fresh saturated cotton ball. Usually 4 times per day. The infection is usually gone in two to three days. I once had a really bad infection that I kept putting off taking care of and that one took 4 days to clear.
Art
CS is good, works great on a sore throat. Gargling with it does a good job.
Thanks Art! I have the spray here. But this is a chronic infection that has been there for nearly a decade. Do you think it would still work? I tried goldenseal over that 10 year period. But that probably also killed good bugs.
If you have had an actual infection for a decade, there is a very good chance there could be damage to the jaw bone, but if you had that, you would definitely know it because the pain would reach an intolerable level. For such a lengthy infection, in my opinion you should have a dentist examine you and determine exactly what the problem is. While you wait for that appointment, you could try the silver if you want. It won't devastate the gut microbiome as some antibiotics are known to do because you are only swallowing a very small amount of the CS. Btw, how many parts per million (PPM) is your silver? I make my own via electrolysis and have used 20 ppm and 320 ppm for this purpose. The 20 ppm is very clear and yellow in color while the 320 ppm looks similar to dark coffee and seems a bit more effective for this purpose. These are silver nanoparticles as opposed to ionic silver, which is clear and colorless, like water.
Art
Thanks Art. I already had several dentists take a look, and I am definitely losing bone structure. This is an implant, so I'm not feeling much there, but the gum is 10 ml away from bone, Not good at all. My CS is 500 ppm, store bought.
Is it very dark brown in color? At 500 ppm, you might want to dilute the portion you are going to use in half by adding an equal amount of distilled water in another container and then add an equal amount of CS to the distilled water in the other container which should now be 250 ppm. At 500 ppm, the CS can be harder on normal cells. So if you want to end up with and ounce of 250 ppm, put a half ounce in another container and add a half ounce of distilled water to it. That should be one ounce of 250 ppm that you can apply to the cotton ball.
Has the dentist not been able to kill the infection with antibiotics?
Art
I am trying to avoid antibiotics Art. That is the whole entire issue. I have been trying to avoid antibiotics for the last 6 or 7 years once I started seeing some really nasty gut symptoms, I did some research, and found that it's basically just as bad for my overall health. So I tried using goldenseal any time I felt any kind of twinge. Also an antibiotic, but maybe not as harsh as synthetic ones.
So if CS is yet another version of antibiotic, I don't know that it's going to help my ailing gut.
You don't drink the CS, you use it on a cotton ball or square cotton pad folded to fit appropriately between your gum and cheek. I have a friend who uses an antibiotic pill crushed up between his gum and cheek, but the antibiotic has a fairly strong taste to me that I don't like. He says it works every time for him, similarly to the CS. I think one to one against any individual antibiotic, the CS will kill a broader spectrum of pathogens, but that's just my opinion. The amount of CS on the cotton ball means only a very minimal amount goes to the gut, thus sparing the gut from dysbiosis. The idea is to apply as closely as possible to the problem area and allow the silver to reach very significantly higher local tissue levels than if you had drank it. Probably the same concept for the antibiotic that my friend uses, again sparing the gut from dysbiosis.
On a somewhat related note, I have a friend who drank 500 ml of 20 ppm CS each day for two years with no apparent gut issues.
Art
Wow, that's good to know. I will ask this dentist about it too when I'm there on Wednesday. I like that it's local, but I think I am realizing that nothing is really local. Anything that gets into your gut even a little, eventually leads to some issue or other. I think even my use of goldenseal was problematic. I would swish a whole bunch and hold it in my mouth, but the fistulas eventually appeared anyway. And actually, I had a hugely painful episode about a year before my tremor began too. So it's all coming together now.
You have to look at it as it relates to your whole body. The infection is raising your oxidative stress levels and inflammatory marker levels, all the time. These are two main driving forces in PD progression which also adds to your total oxidative stress burden as well as inflammatory marker levels and are major contributing factors to a multitude of other diseases. The amount of CS that will end up in your gut is miniscule, but stopping that infection will lower these two factors which are contributing to PD progression and ill health. If it stops the infection, the oxidative stress levels and inflammatory markers will begin to decline to safer less destructive levels. It may also save what is left of that jawbone. Context is important.
Art
amazon.com/gp/product/B0BX7...
When I was 5 or 6 I had to have 9 baby teeth removed. I was never told why. But it made me a life-long hypochondriac about my teeth. Now at age 68 I still have all my teeth except one molar that I lost when a horse kicked me in the face. I use ozone toothpaste. I don't wake up with a filmy plaque on my teeth. In fact as an experiment I went without brushing and found the plaque didn't reform til the fourth day.
Ozone is a potent antioxidant. It was used commonly until the discovery of penicillin in the 1930s.
Agree, works well for pain. I have an ozonated ointment, the only problem is the ozone smell.
I don't smell it much anymore. I assumed it was getting weak but a new tube smelled the same so probably I'm getting used to it.
I have ozonated gel that has been in my fridge for probably a decade. Should I throw it out or use it?
A decade? Would you eat eggs that had been in the fridge for a decade? It can't be so costly that you can't afford fresh gel.
My HWP had a root canal at 16. I didn't realize he had a root canal and crown so early in life. When he was about 48 the dentist said he needed to have it removed and have an implant. He had no pain and no symptoms from it, so it just felt like the dentist wanted to do a $4k procedure. He waited about 4 years and then finally had it done. He was diagnosed with PD about a year before that, but of course realized the initial symptoms had been around at least 6+ years.
In reading about PD I learn that many of these diseases of the brain are from inflammation and the immune response of the brain producing plaques. His old root canal had been infected even though he didn't have pain/swelling/etc. It struck me then that the nerves in the teeth are part of the Trigeminal nerve, on of the cranial nerves that connects directly to the brain in stead of the spinal cord. Oral bacteria can access your brain via the nerves...
I have to wonder how many brain diseases might be the result of oral bacteria accessing the brain this way.
You are spot on -- I was thrown out of the University of Florida for making such suggestion. No one in the USA wants to touch this possibility. We must keep pushing for the connection because it is real. Do take my survey at whyrbd.com so I can keep everyone updated
Anything you inhale gets into the brain through the cribiform plate. But it still has to pass through the BBB---Blood Brain Barrier---first.
Yes, the BBB can keep blood born pathogens out of the brain. But the idea being posited is certain organisms ability to travel along nerves that go directly to the brain.
This is my first post. Regarding "Trigeminal nerve,” if you have any additional information about this and PD and the other information you just posted, please, please, please share with me. I have been living with a medical mystery that no medical professional has been able to resolve . Not only is there no resolution, I have found absolutely no one who has experienced my problem nor do they know anyone else who has. Here is a brief description. I have PD since 2014. Currently, I have predictable “On” and “Off” periods throughout the day and night with the same consistent problems for each. For my “On” periods, for feeling pretty normal, I have to pay by suffering through intense dyskinesias that are often so bad, I pull muscles and need to wear a neck brace. Now here is the medical mystery. The worst problem in my list of bad things during my nasty “Off” periods is “Trigeminal Neuralgia” (maybe) and it Only affects the center (of the three) Trigeminal nerves. I think it is called the Maxillary nerve. It is horrible pain—similar to Shingles pain only worse. It affects Only the entire up gums—not the lower jaw, not the teeth, not the eyes. It is the first problem to arrive (for my off time) and the last to leave. And, it Definitely is only related to my “off.” Never is during my “on.” When I am “on,” my mouth is normal and pain-free. There’s more details but that is enough for now. Would love to know if anyone has ever heard or read or have anything even similar to this. Thank you.
I know a little something about the Trigeminal Nerve. Also known as the Facial Nerve. It has three branches--Tri! Tri! Tri!--one goes to the temple, one to the corner of the eye and one to the lateral corner of the lips. In medical school neurology class the instructor told a story about the trigeminal nerve. A man had horrible pain, bad enough he opted to kill himself. So he shot himself in the head. But it was a low-calibur weapon that did not enter the brain case. Instead he survived and lived a normal life without no more nerve pain. At his death the autopsy showed a severed trigeminal nerve.
What I know is when I needed surgery for a shattered jaw the surgeon damaged my trigeminal nerve. For months my face was numb. Ultimately sensation returned everywhere except my temple. I'm still numb there. My only joke; I am literally a numbskull.
I guess my point is Trigeminal pain is real and serious and needs to be dealt with. In the final years of my veterinary practice I learned about ozone. This is a miracle drug and sometime works when nothing else does. There are websites where you can learn about self-treatment.
Good luck,
kevin
one tooth out... at least one more to go.
Did your external tremors 'start' as internal tremors?
Do Internal Tremors turn into Visible Tremors?
Vibration Plate for Tremors
PD or Essential Tremor?
Tremors 101
