Supplements.: I have had PD for nearly ten... - Cure Parkinson's

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Supplements.

LinnyGee profile image
33 Replies

I have had PD for nearly ten years.

I am not a Coeliac.

I am trying supplements to see if they can improve my Leaky gut problems.

Does anyone else take supplements and do they have any contraindications with my PD meds. My local pharmacy are no help, and I have yet to meet a Dr who knows about nutrition. I particularly want to take a probiotic for the bloated tummy I get regardless of what I eat. I do not eat gluten as

this blows me up straight away. How can I find out what I can and cannot take. Vit D3, Vit C and

magnesium I already take but do not know how a Probiotic will affect my stomach.

Please can anybody help me or point me to someone who can help.

Thankyou.

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LinnyGee profile image
LinnyGee
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33 Replies
Bolt_Upright profile image
Bolt_Upright

Maybe you could join the Zoom calls MBAnderson is so nice to host. Lots of experience with supplements on these calls (and nice people. You will be welcomed):

us02web.zoom.us/j/833522248...

Thursdays, 7 PM – 8 PM-ish, US Central Daylight Time (GMT–6.)

Sundays, 11 am – 12 PM-ish, US CDT.

LinnyGee profile image
LinnyGee in reply to Bolt_Upright

Thankyou so much for your information, I will certainly follow it up.

TL500 profile image
TL500 in reply to Bolt_Upright

Is there a video or playback after the zoom? Because time doesn't suit me. I'm not in the US. Thanks

Bolt_Upright profile image
Bolt_Upright in reply to TL500

No playback. We have two different call times. 8 PM Eastern on Thu and 12 PM Eastern on Sunday. Neither works for you?

Hope-full1970 profile image
Hope-full1970

You are having an inflammation response to food sensitivity. One of my Drs. is a Naturopath who uses holistic medicine and natural supplements. Once you have leaky gut you have to repair it. Avoid gluten and dairy for about 6 months and take the best probiotic you can find. That will allow your gut to heal. Eventually you can try adding it in again slowly to see if you can tolerate it. If it causes any flare up, avoid it.

Any fermented foods would be really good for you, like kambucha, sourkrout or kimchi. Those all have probiotics. You don't need alot, Just a little each day a couple of times each day.

LinnyGee profile image
LinnyGee in reply to Hope-full1970

Thankyou for your reply, this sounds good advice.

Meramt profile image
Meramt in reply to Hope-full1970

Your reply to LinnyGee re avoiding gluten and dairy for 6 months, was extremely helpful for me and my bloated stomach. I’m 6 yrs in with PD and I take a good probiotic, but eat lots of bread and granola for breakfast. I’m curious to know what you eat in the morning? I plan to take your advice and will try to avoid gluten and dairy for the next 6 months. Thank you.

Hope-full1970 profile image
Hope-full1970 in reply to Meramt

I'm glad it helped! My daughter had to do it for years and now she can eat everything. I eat eggs and maple oatmeal with berries chai seeds and almond milk. I don't worry about traces of gluten, like if it was made in the same factory.

There is an abundance of gluten,dairy free options now.

I am dairy free and I can eat a little gluten and am fine now but was gluten free for many years.

For baking and dinners, I substitute dairy with canned coconut milk. I use it in pumpkin pie,Indian food and fish chowder, you can't tell the difference.

TL500 profile image
TL500 in reply to Hope-full1970

Is ordinary kimchi from the shops ok? Thanks

Hope-full1970 profile image
Hope-full1970 in reply to TL500

Yes,, definitely. That's how I would buy mine. It would be good to read the ingredients to make sure you know what's in it.

TL500 profile image
TL500 in reply to Hope-full1970

You buy yours from any shops? And doesn't have to be organic?

Hope-full1970 profile image
Hope-full1970 in reply to TL500

Organic is always best but for me as long as the ingredients are natural,I'm happy. I'm still buying groceries for a family of 5.Tempeh is healthy too. Fermented soybeans. Some of the Fermented foods are an acquired taste. Some people love it. I don't personally like Tempeh but it's very healthy for you.

I do like sourkrout

Hope-full1970 profile image
Hope-full1970 in reply to TL500

A natural store might have a good choice. When I have bought it in the past my grocery store only had one choice but it was good, I can't remember the name

Fava-1 profile image
Fava-1 in reply to Hope-full1970

Amen gluten free/ sugar free for several months, eating cabbage and drinking the water it was cooked in, eating fermented foods for several months healed my gut, which I am sure was leaky, crampy, bloated all the time. I just started eating a little sourdough gluten bread that I make for my family....it has been 8 years since going gluten free. Now I am starting to have gas and bloating, so, I am going to stay gluten free.

Hope-full1970 profile image
Hope-full1970 in reply to Fava-1

Good for you! I'm glad you mentioned cutting down on sugar that's important in gut healing. The wheat has been genetically modified to produce grains of wheat that are harder for us to digest. That's why more people are gluten intolerant

Reetpetitio profile image
Reetpetitio in reply to Fava-1

Best to make sure it's pesticide-free cabbage if you're going to drink the boil water :)

Hope-full1970 profile image
Hope-full1970

My mom takes Zenwise digestive enzymes from Amazon. They have helped her alot.

LinnyGee profile image
LinnyGee in reply to Hope-full1970

Thankyou again for taking the time to help me, much apppreciated. I will look on Amazon.

LAJ12345 profile image
LAJ12345

this might be of interest

theenergyblueprint.com/opti...

This is Ari’s course on gut optimisation.

humanoptimization.com/all-c...

LinnyGee profile image
LinnyGee in reply to LAJ12345

Thankyou for your reply and I did look it up, it sounds good, but again its asking for money

and I am wary of handing over money unless I can trust the company.

LAJ12345 profile image
LAJ12345 in reply to LinnyGee

The first podcast was free though and was very interesting.

From what you describe you might have sibo. If I was you and didn’t want to pay for any testing I would cut any sugar and white rice and potatoes. You might have gluten hidden in some processed foods still so check all the labels and get rid of it if you can.

Once I had been on that diet about a month I would start taking berberine and allimed (Thorne is a good berberine which my husbands natural doctor practitioner advised).

She told him to take berberine 1x3 per day for 4 days then 2x3 per day for 3 days, then the next week she had him on a probiotic, then back to week 1. Listening to that podcast he stresses you need the right strain of probiotic as some will do nothing. Like different breeds of dog all look different even though they are the same species, so it is with bacterial strains. Pick one that has clinical trials run on the strain.

If you can do that for a while it should kill off large colonies of bacteria that might be in the wrong part of your digestive system, then slowly add prebiotics like beans, Chickpeas, onions leeks and see if you can tolerate them.

If you want to eat rice and potato cook them the day before and let them chill over night then eat them cold the next day. They turn into resistant starch.

LinnyGee profile image
LinnyGee in reply to LAJ12345

thankyou for your suggestions

MBAnderson profile image
MBAnderson in reply to LAJ12345

excellent video

111BANDIT profile image
111BANDIT

Are you lactose intolerant?

LinnyGee profile image
LinnyGee in reply to 111BANDIT

dont think so

kaypeeoh profile image
kaypeeoh

The ' bloated tummy' sounds like gastroparesis. The doc gave me a pill to swallow that would send signals through my GI tract. End result was no gastroparesis but constipation. Motegrity was prescribed and seems to help.

LinnyGee profile image
LinnyGee in reply to kaypeeoh

thankyou for your reply, will follow this up

Reetpetitio profile image
Reetpetitio in reply to LinnyGee

One test my naturopath had me do years ago to rule this out was to swallow a tablespoon of sweetcorn, and then see how long it took to come out the other end!

Sheggypetter profile image
Sheggypetter

Find a naturopathic doctor to help you navigate your supplements. It helped me alot!

LinnyGee profile image
LinnyGee in reply to Sheggypetter

thankyou for this information

Ashti profile image
Ashti

Here is a video on repairing leaky gut through diet. It mentions some supplements and also food-equivalents like Zinc found in a cup of lentils .

nutritionfacts.org/video/ho...

LinnyGee profile image
LinnyGee in reply to Ashti

Thankyou Ashti , will look into this .

Reetpetitio profile image
Reetpetitio

I think Functional Medicine Doctors and Naturopaths know the most about this.

It's not cheap though.... MBAnderson posted this video in a thread the other day which had fantastic info on leaky gut in it (and leaky blood brain barrier!) - stuff I didn't know and i'm pretty well informed.

youtube.com/watch?v=4nt1-Zo...

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