Hi everyone. I’ve had tinnitus for about…..I’d say 25 years.? Started in the left (high pitched but ignorable for the most part) but about 4 months ago went over to the right. This one is much more obtrusive and sounds like someone’s hosing down a yard. A real pain in the ass and intuitively I feel that it’s linked to PD progression. Anybody concur with this? Do I just have to put up with it or can anything be done?
Thanks gang.
Btw: DBS on the 23rd. Be interesting to see if this has any impact on it.
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jeeves19
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I believe tinnitus is linked to PD. Obviously "see your Doctor" is part of the advice. Glove man Peter Tass has used his "coordinated reset" theorums on tinnitus too, apparantly with success. But it's a long bike ride to Stanford, and I'm not sure DIY has arrived for tinnitus yet
But what is this? and wonder what became of it after the 2012 paper?…. “We used a model based desynchronization technique, acoustic coordinated reset (CR) neuromodulation”
My tinnitus started about 4 years before PD diagnosis which I guess means nothing.
There is no relief from hearing aids or any medication that I have found. It wakes me in the middle of the night, fire trucks and small girls screaming.
I have found that noises that do exist will be mimicked by the Tinnitus and the time when I have the least amount of Tinnitus occurs when the rest of the world is also quiet.
We purchased a high pitch noise maker that is supposed to drive all the mice away but only rodents can hear it. I swear I can hear it.
' The chi-square test showed that the effectiveness rate was 81.82% in the electroacupuncture group and 62.5% in the acupuncture group, with a significant difference between the two groups. It was indicated that electroacupuncture was superior to manual acupuncture for the treatment of tinnitus. '
Oh, that's hopeful! Thanks. I've had tinnitis my whole life--remember being taken to the doc because I'd asked my folks about the "whispering in the walls" when I was 3 : ) Now I've identified up to 17 different sounds going on simultaneously. I don't know what inner silence would be like. Thanks for info about electro-acupuncture! I'll look it up.
Yes I have tinnitus too. I link mine to hearing damage caused by a virus about 25 years ago. It flared up post DX and has settled down since, but still annoying. I’m now pretty deaf in one ear and adds to the total sh#t show.
I don't have PD but do have tinnitus. I found taking 25mg of zinc per day has helped mine a lot. But caution for long term use you may want to keep your use of zinc under 50mg a day as large doses may depleat your copper and harm your immune system.
I have tinnitus on the right along with deafness which is slowly creeping to the left. Neither has anything to do with PD which I also have. I would strongly urge you to ask your GP for a referral to an ENT specialist to get a diagnosis and possibly a hearing clinic that deals with tinnitus. Good luck!
I've long wondered this. Thank you for bringing it up. I got tinnitus 5 years prior to PD diagnosis. It started during a panic attack and never went away. The ENT I met with said there was nothing wrong with my ears, but with my brain. Fast forward to today, neurologists tell me there's no connection between tinnitus and PD.
Here's what my gut says. They are connected, both triggered by chronic stress. Both tinnitus and PD seem less bothersome when I control stress. Been meditating which improves everything.
With that said, I think most people have some degree of hearing loss.
Interesting, Jeeves. I have had a moderately severe hearing loss from childhood due to eustasian tube malfunctioning and I am wondering if that had any relation to Parkinson.
Would that be about vitamin D3 deficiency perhaps?
I've also read somewhere that chronic use of and said pain relievers and antihistamines has some influence, or maybe a lot of influence.
And then there's physical hearing damage from over exposure to loud noises or pressures. Too many Rock concerts, work that involves loud noises without significant protection, etc.
But that's all about causes, what to do is the question.
My tinnitus only kicks in when my Iron Ferretin levels are extremely low.I believe blood pressure and certain medications and obviously extreme loud noise can cause tinnitus.Also little is known re causes however one theory is the fine hairs cells in the cochlear ring like a tuning fork when activated but do not turn themselves of.
I've seen that theory, the theory also holds that as aging progresses the hairs fall out and then you go deaf from having those hairs fall out. Apparently they are an irreplaceable piece of the hearing signal chain... Like our dopamine producing cells. Once they're gone they're gone.
No what happens is the high frequency hair cells deteriorate first(known as the door mat effect)because they are first to be pressed against in the cochlear and hence vowels and constanants are masked and words mistaken.
We have a nephew who has tinnitus. The audiologist gave him special hearing aids to help and they have been helpful. This is in the US in Texas so not sure how widely available these special hearing aids would be.
Very curious how you solve that one because I've had it for about 15 years, very similar to yours. I'll read this with interest and see if I can think of anything too.
"We used a model based desynchronization technique, acoustic coordinated reset (CR) neuromodulation, to specifically counteract tinnitus-related neuronal synchrony thereby inducing an unlearning of pathological synaptic connectivity and neuronal synchrony."
Well gee, so glad for this, that's so easy I can just whip one of these up while I'm making chocolate fudge.
Let me offer the translation to the first paragraph: "we can help you, just pay $50,000 here now per treatment in my pocket.. I so love helping people."
hi Jeeves. I see that you are going to be getting your DBS done shortly. I was also approved after the extensive preop evaluations over several months. I chickened out at the last minute and shelved it for later.
I wanted to know your thoughts about the procedure and what convinced you to go for it.
My family is pushing me for it and suggest that I will be more independent as a result. I am not so sure. I am doing well with levodopa although it seems like a punishment every day but when it works I feel normal. Even if it's only for a few hours a day. I know what to anticipate and how to respond to peak dose or off periods. I have a few options depending on whether my self diagnosing leads me to believe whether it's anxiety or a true dopamine crisis. DBS is an unknown for me from this viewpoint.
I can only say that I seem to have too many crises these days. The meds becoming ridiculously unreliable and unpredictable. I almost daren’t leave the house any more due to not knowing if the meds are going to let me down. When they work I’m often waiting to come on or I’ve got too much and am dyskinetic. My trunk and neck dystonia is getting way out of line and is so disabling. Have I sold it yet?
Of course you always imagine that you’re going to be one of the success stories. One guy said after he’d had it done he didn’t take one drug for six years . That might be me or you?! 😮😎💪
This thread is a bit old, but I did some research previously on the coordinated reset techniques that are based on the same theory as the PD vibro-tactile gloves discussed elsewhere on the site. I have some tinnitus, most likely due to loud concerts in the past. I was working on it for a coworker who has terrible tinnitus. The articles I read used a frequency generator to determine what frequency the person's tinnitus was happening at, then calculated two frequencies above and two below the tinnitus frequency. They then generated tones at those frequency in the randomized group of four similar to the gloves. i.e. 2134 pause 1243 pause 3142 pause .... But much like the gloves I believe, initially at least, you had to listen to the tones for hours at a time.
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