I HAVE BEEN DIAGNOSED WITH PARKINSONS IN 2018. I LOOKING TO GAIN KNOWLEDGE OF NEW TREATMENTS. CURRENTLY EVALUATING WHITE LIGHT AND RED LIGHT THERAPIES.
ANYONE USING THESE THERAPIES PLEASE SHARE YOUR EXPERIENCES.
I HAVE BEEN DIAGNOSED WITH PARKINSONS IN 2018. I LOOKING TO GAIN KNOWLEDGE OF NEW TREATMENTS. CURRENTLY EVALUATING WHITE LIGHT AND RED LIGHT THERAPIES.
ANYONE USING THESE THERAPIES PLEASE SHARE YOUR EXPERIENCES.
Red light therapy in various forms has been discussed quite a bit on this forum. The search feature found this :
healthunlocked.com/search/p...
Art
As for me the biggest improvements have been from High Dose Thiamine (B1) and exercise. I recommend Dap1948 ’s book and her Facebook Group.
Hi Alan
You can find videos on red light therapy (and high doses vitamins B1 - see comment from Gcf51) on our YouTube channel at youtube.com/@nosilverbullet...
I have personally been practicing both for quite a while and, together with exercise, nutrition and meditation, they are part of what I do to manage my symptoms and slow down progression. Given that red light is one of the many things that I do, it is difficult to attribute specific benefits to it but I think it’s worth making your own opinion about it and potentially giving it a try.
My HWP has had his red light hat for over 2 years and together with supplements, Cue 1, exercise and good nutrition, it definitely seems to help.
Doesn't work. Here's what works and we need an update from 4D pharma. They were bought and we would like to know status of the 4D product.
not sure when in 2022 this video took place compared to the link in these reports?
fiercebiotech.com/biotech/b...
finance.yahoo.com/news/4d-p...
-
doesn't sound too good for them
Hi Alan. I am sorry to tell you that there is no cure for PD or even one single medication that is able to slow down the progression of PD, other than MAO-b inhibitors, which have no lasting effect.
There is only one known way to reverse the symptoms of PD, which you may not want to do. That is tough! It is doing regular FAST WALKING, every second day, for one hour, for the rest of your life. Of course, this is very good for your overall health, but that does not appear to make it more acceptable to many people but, that is togh!
I have been doing it since 1994 and have lived a normal life, since 1997., medication-free!
Do yourself a favour and start doing FAST WALKING as soon as possible. To begin the walking, you walk as fast as you can for as long as you can, even if it is for only one minute. Do not try to walk for more than ten minutes at the beginning. Don't think for one moment that walking for longer, at a slower pace does any good. IT DOESN'T!
Contact me if you want to know more. Every person with PD, who has been shown how to walk properly, has been able to do so, even those in wheelchairs.
"You may believe that there is nothing that can be done to prevent or slow the progression of AD or PD. This is not true. What is true is that there is nothing proven to do these things." (Dr. Thomas Guttuso).
High Dose Thiamine and FMT (multiple treatments)... my mother has MSA, an aggressive form of Parkinsonism, and her MSA score (tested in a clinical trial) today is the same or lower than it was a year ago. Although she takes other things, these are in my opinion the most powerful approaches. I am also interested in hyperbaric oxygen, regular consumption of exogenous ketones, and possibly stem cell therapy or supplements, but none of these are easy to access. Good luck!
Robb,
Was your mom able to get FMT for MSA?
Art
Privately, with Taymount clinic. I'm intending to do a full post about it at some point, but check my post history if you want more info, replied to a couple of people about it already.
Was it FMT or WMT?
Art
New acronym for me, but I guess WMT is more accurate then, and concentrated. Check Taymounts site for more info on their process. My Mum's next treatment is tomorrow.
WMT is a newer version of FMT called "washed microbiome transplantation", which is purported to reduce pathogenic viral components and other potential pathogens which is said to result in less complications associated with FMT.
Art
This is the difference :
ncbi.nlm.nih.gov/pmc/articl...
Art
Understood, thanks. If I remember correctly Taymount remove the more inert waste matter, and screen samples, so WMT sounds more appropriate, but I cannot give more detail. The founder of the clinic is absolutely a subject matter expert though, I would not be surprised if they even pioneered this technique.
The price seems reasonable for the 10 applications. Do they repeat the process every so often?
Art
Am short on time, but just quickly - my understanding is that when they started the clinic, they spread those sessions out monthly or weekly, but that didnt work so well for people flying into the UK, so they changed to compress them all into a 10 day period. We were able to get spread treatments, monthly, due to the founder taking an interest in our case, but I cannot say how flexible they will be in general. Cannot comment on situation if you want additional "top up" treatments after the first 10!