Has anyone had their “tendon cut” to relieve toe dystonia/unrelenting spasm?

[Manypony]

if so how is the relief? What else can you share. For me it’s my second toe but affecting my foot and walking. I can only wear YogaSandals. My toes are excruciating in a nervy way. It’s exhausting my brain just dealing with my toes 🤪

[Birdshot]

OMG I have the same toe problem as well

[Manypony in reply to Birdshot]

so sorry!! It’s crazy making!! I’m ready to make a sacrifice

[Astra7]

I think Jeeves had something like that done.

[Thal]

Was able to fix most of my toe dystonia by going barefoot. Hope something works for you.

[Manypony in reply to Thal]

I do walk barefoot as much as possible, rarely wear shoes, almost never, only YogaSandals. Thank you!

[Manypony]

Jeeves ❣️ Anyone else had “tendons cut” or any other toe surgery?

[House2]

Before you get the surgery, try several different metatarsal arch supports. Sometimes upwards pressure on the metatarsal bones will provide some relief

[House2 in reply to House2]

globalsources.com/product/m...

[Manypony in reply to House2]

thank you, I’ve ordered something that looks promising. I wear a product called correcttoes when I’m not wearing YogaSandals that I would not want to live without 🙏🏼

[JewelryGal]

Yes! I had four toes surgically cut (tendons) in an Outpatient Surgery Center. It worked beautifully My toes were curling under and I had great trouble walking normally. Non of my shoes fit either. A Podiatrist did the procedure. I am a retired RN who researched every option and this was the best permanent thing to fix them. They are straight now and I am very happy with the outcome. I was asleep during the surgery ( light anesthesia ). The post operative pain was minimal. I maybe took 1 to 2 pain pills afterward. If you do Botox injections to relax those tendons.... you have to keep doing it, because it eventually wears off in a few months I would do this surgery again in a heartbeat ! I had tried toe spreaders and special socks and every sandal out there.... they do NOT fix the underlying problem

[Manypony in reply to JewelryGal]

thank you so much! This sounds promising 🙏🏼

[Manypony in reply to JewelryGal]

was it to cut the tendons on all 4 toes?

[JewelryGal in reply to Manypony]

Yes, the tendon behind those toes were cut to stop them from curling. I can still spread my toes but not curl them. It does not effect the way I step on the foot or walk... not problem at all

[Nnicko in reply to JewelryGal]

So interested to read your post JewelryGal. I too suffer from painful curling toes and was getting to the point that it effected my everyday activities. I finally went to my local GP and he said "No problems I can fix that". Unfortunately he failed to address the situation correctly and when the time came he proceeded to cut the tendons on top of my toes, the middle three at least. As it turned out he was used to operating on mainly women feeling the affects of high heeled shoes. Not my situation at all. From there I was referred to a surgeon by my local podiatrist. It was determined that my toes were partly effected by my heels being out of kilter. To cut a long story short I had my left heel broken and straightened , then my left big toe and finally a month ago the remaining toes on my left foot. I haven't quite recovered yet but there is definite improvement and I'm happy to be able to walk pain free on at least one foot.

What intrigues me is that right from the start I always felt that cutting the tendons under the toes would have to benefit the situation. It seemed a no brainer to me but I couldn't get anyone to agree with me and I thought 'Oh well they're the experts.' I still have my right foot to be rectified however and I'm gonna push for this procedure. I'll be sure to let you know how I get on.

[JewelryGal in reply to Nnicko]

The tendons UNDER your toes are the ones the cause the curling contractions. A GP does not know how to do that kind of surgery. I used to work in surgery and have worked with many Podiatrists.... not all are created equal. I have a great Podiatrist who works with a huge Orthopedic group. Breaking bones sounds like excessive overkill.... So sorry

[Manypony]

has anyone had a toe tendon surgery? No one here?

[Sydney75]

Wonder if you should start with botox first and then go with the surgery when needed.

[JewelryGal in reply to Sydney75]

You will have to have it repeated when the Box wears off....

[Debgiffen]

I had tenotomy performed on 3 of my toes on my left foot which is my PD afflicted side. For several years before my PD diagnosis I has severe gripping of my toes caused by balance issues. Any time I felt unsteady my toes would grip like a monkey grabbing a tree branch. Every step was so painful so I had the tenotomy to relieve the pain. It did help with the pain from gripping but I had already damaged the toe joint so ended up joints removed and had screws inserted about 6 months later. 

That was about 8 years ago. I don't have floppy toes but I need to keep toenails cut short because they tend to point upward a bit. I can move my toes up and down but I can't curl them under. Neither procedure has slowed me down. After having great success with high dose thiamine, I now hike/walk 4-5 miles several times a week, garden, climb ladders, do yoga,etc. Occasionally I have pain in one or more toes but I think that's more related to the screws then the tenotomy.

More discussion on this post: healthunlocked.com/cure-par...

[PDsux_10]

My husband suffers with his big toe. He had a cortisone injection which helped, but the pain is back sadly. Asked the neuro re botox, but he ignored the request for some reason. I'm gonna see if his GP will recommend tendon surgery, this sounds brilliant!

[JewelryGal]

Go to a Podiatrist or Orthopedic Surgeon.