14 December 2022 – First observations of wide ranging symptom relief with New Formula Broccoli Seed Tea. This degree of symptom relief has not been observed since the introduction of levodopa.
In this 2-minute video, members of the Broccoli and Sulforaphane Research Group who prepared a new formulation of Broccoli Seed Tea containing Sulforaphane, share their thoughts on how it has dramatically attenuated their symptoms and improved their Quality of Life in just a few weeks.
They describe relief from chronic constipation, fatigue, urinary urgency, brain fog and tremor, accompanied by a stronger voice, renewed appetite for life and having a feeling of light-heartedness. And this wasn’t limited to early-stage Parkinson’s disease. Jane, who lives in London and was diagnosed 13 years ago, speaks of how brain fog was dissipated, “A veil has lifted” and “chronic constipation, for years and years, disappeared entirely.” Even more strikingly, she talks enthusiastically about how her legs are regaining their strength: “My Osteopath was amazed (and you can hear her amazement)… I was kicking twice as high, lifting my legs twice as high. She’s never seen that in me before.” Unable to stand or walk for many years, Jane is delighted to show us the exact moment when, for the first time in years, she took “One small step… ” – and then another – starting a journey which we hope to transform into “…one giant leap” in the treatment of Parkinson’s disease. This is a preview of the effects of this new formulation, more will be posted soon.
Hi Parky, we can't just put this out for unregulated use. When you make this tea according to the latest protocol, what I now call New Formula Broccoli Seed Tea, it is extremely potent, many times more potent than we previously thought. You can easily overdose on it and get pretty sick. We now know the signs. The effective dose is very small indeed. We were able to define it because the tea quality is very reproducible. To get the info, you have to join the group and learn more about it. We only take very committed people.
I am just learning about BST and Sulforaphane, actually following up on a pointer from my acupuncture /TCM doc who was quite enthusiastic about it. Sounds very promising and I also find the mechanism you outlined, of oxidative stress leading to a cascade of mitochondrial damage and neuronal degeneration, quite plausible.
However, from these threads on BST, I seem to receive the impression and message that there is no commercially available supplement containing Sulforaphane that should actually provide a benefit? And the only way to get a product that reliably works would be through joining the 'home brew club'? Is that correct? If not, what would be your recommendation for respective supplements being available in Europe?
Given that B1 and Sulforaphane likely have two different methods of action, I wonder if they might have synergy in some people? Sulforaphane also is thought to potentially normalize the gut microbiome, which might explain the loss of constipation reported in your video.
Hi Art, I just briefly looked at both articles. The list of symptoms affected by HDT is very long. We haven't got such a long list yet. However I found that HDT didn't work after some months so I gave up on that.
NF- BST still works for me after 3 years and keeps on improving. Also with BST, the effective dose is a few mg only and the current dose frequency we are using is once per week.
As for gut microbiome , you have to be careful when referring to older publications. Some used sprouts or the the precursor molecule glucoraphanin and the myrosinase enzyme and calculated the theoretical quantity of sulforaphane. I now consider such studies to be rubbish. They were not delivering sulforaphane at all, but mostly GR and the enzyme. The production of Sulforaphane under those conditions would have been minimal. However, GR feeds gut microbiome and maybe helps restore the gut profile.
I think SFN works on constipation by restoring the intestinal muscle function through the autonomous nerve function. I.e. neuronal recovery not microbiome recovery. It occurs within 24 hours.,
Wriga, there is a dual layered tablet designed to deliver myrosinase and glucoraphanin separately to allow them to combine in the digestive system. Have you seen it and do you have an opinion on it?
Partitioned Encapsulation Technique
"To obtain broccoli’s cellular health benefits, you have to get the active compounds in broccoli to metabolize into the health-promoting compound sulforaphane inside your digestive system. We’ve separated myrosinase from glucoraphanin (sulforaphane’s precursor) in a dual-layered tablet to optimize glucoraphanin-to-sulforaphane conversion. By keeping the two apart until ingested, this formula optimizes the amount of sulforaphane you can get from your broccoli supplement."
The conditions in the gut are light-years away from those that optimise the production of SFN, but since you don't know the conditions that do optimise the yield of SFN, you cannot challenge this statement. As a marketing line for "life extension" it's perfect, but it's false. As a statement for a therapy for a medical condition it would be illegal.
Bravo to you and your committed following wriga I believe in the power of Sulforaphane and have been using BROQ under the brand name Prostaphane® for 2 years. Dr. Fahey endorsed it to have 20 mg of sulforaphane per 2 capsules. Can you comment on this form of supplementation?
Hi Missy, that's a well-stated question. I don't know Prostophane personally, but one of our members tried it for several months with no improvement whereas broccoli seed tea has improved his symptoms significantly.
Prostophane is a type of stabilised sulforaphane. The stabilisation clearly affects its bioavailability. You mention a dose of 20 mg of sulforaphane in Prostophane. Compare this with what we find for sulforaphane in NF-BST.
Regular effective dose range; 4 to 6 mg of SFN.
Clear signs of overdose: 8.0 mg SFN and above. That is for a single dose taken just once per week. The daily dose would be much lower, but we don't think daily dosing is desireable since the effects last at least 5 days. So we are clearly not talking about the same thing.
Wriga, many thanks for sharing! The non-motor improvement is astounding but even the motor symptoms outcome is amazing given the slippery-slope nature of PD! I would love to do join a trial and have already sourced organic broccoli seeds.
GeoffMu, if you wish to join, you must sign up on the website. When you are up to speed on the technical and safety issues, you will be invited to join a testing group. You will have to demonstrate commitment to the project because many people drop out before starting due to apathy as a result of Parkinson's disease. We don't have the resources to run after them. We supply enough very high quality seeds to each active member for research purposes to ensure consistency .
Is there a tab somewhere on the healthunlocked website, that I sign up on? FYI, I do not find it difficult sticking to a protocol - even fasting and eating a restrictive (keto) diet.
Re Thiamine HCL, did you try the lipid soluble version, Bentfotiamine? I have taken it for over a year now, but cannot cite any particular improvements, in spite of trying various doses.
The single most beneficial treatment I've found for PD is full body photobiomodulation.
We need more data before we can answer that. I have cut my own PD meds by half. I have been taking various types of broccoli tea for 3 years with mixed results. Sometimes it was very good, sometimes had little effect and sometimes it made my symptoms worse. This may have been due to dosing variations. At that time we did not know how much SFN was in the tea and most likely it varied with each brew. With New Formula Broccoli Seed Tea, the quantity of SFN is almost the same every time. By drinking only part of a brew, you can adjust the dose and find what works for you. When the dose is just right, the good effects after each dose last for up to a week. When the dose is too high, the bad effects last for up to 10 days. It is important to start very low and gradually increase the dose until you hit the sweet spot. More is definitely not better.
TL 500, I will try to answer your 3 questions in one post.
Temporary Relief: As far as I know, this is not a cure for PD, but when one dose gives major symptom relief for up to a week, that is well worth taking. Think of PD as a fire in your brain. Sulforaphane (SFN) is the fire service. It can put out that fire or at least calm it down. After a week it starts to flare up again, so you send in more SFN. If you do this often enough, you might just put it out altogether and get remission from the fire for weeks. I have experienced that. At that point you don't need more SFN, all is calm. But several things remain. The damage caused by the fire is severe. In time, some recovery or regrowth may occur, but part of your brain is damaged forever. But more damage is stopped, at least for now. The brain will have to find a solution to work around the damaged part. That solution won't be as good as before the damage occurred, but will be better than if the fire was still raging. That's why you still need meds. The conditions that allowed the fire to start in the first place have not changed. Without constant suppression, the fire will flare up again sooner or later. Constant surveillance and maintenance is needed. A lower, maintenance dose of SFN may be useful. At the first signs, the fire must be rapidly extinguished.
I'm not sure that it will ever become a marketable product. SFN cannot be patented. This is a research project to prove that SFN can at least partially reverse Parkinson's, and may also stop Alzheimer's disease too. After that it's up to those with the power and the money to decide what to do with that information.
Fantastic report and great video! I am truly so interested in trying the broccoli tea myself. I have the seeds. When I do try the tea, I will report my findings and essentially perhaps be part of a phase 2 group for this trial. My only excuse is that I moved and have been totally preoccupied with the changes going on in my life at present. As things calm down, I will focus again on my health. Cheers and well done!
Hello PalmSprings. I'm glad you liked the video. Unless you're already on our program under another name, in which case you would already know, I would like to point out a couple of things. We don't use ordinary broccoli seeds because they are too variable. We use a special batch of seeds with a constant glucoraphanin content for all our experiments worldwide. The people who make the tea, do so by following a unique and tested preparation technique which delivers the same sulforaphane content no matter who makes the tea. This means that we can compare results and compare doses across all people who make the tea and report their changes. Everyone in the video used exactly the same broccoli tea and adjusted very slightly the dose to find that which works best for them. This New Formula Broccoli Seed Tea is unlike any other and gives the good results we see because it is reproducible and enables people to find the dose that works best for them. Most people find the same dose within a very small range. If you want to test Broccoli Seed Tea under these good conditions, where everyone reports their findings in the same way and discusses what they observe in our regular Zoom meetings, then come and join our group. you will be most welcome. We will be starting 4 new programs in January, each one giving particular attention to a specific symptom, but nevertheless covering all symptoms. The symptom groups are Urinary Urgency, Chronic Fatigue, Speech Impairment and Tremor. You can sign in on the website.
Hi Albert, has this treatment ever restored your sense of smell? Even temporarily.
In my humble opinion, the improved sense of smell could be a first and immediate correlated good indicator, given the nature of the functions that the treatment is going to improve.
15% is an excellent result, whether on specific type of smell it is the norm.
hiposomia is actually a test almost as accurate as the dat-scan in the early diagnosis of PD.
An improvement in hyposomia is highly relevant as it is directly related to the neurological context of PD. A very precise indicator, congratulations for the improves.
Good question Oceangir. Frank Mundo takes care of all things to do with inscriptions, mailing lists etc., for the BS-RG, but just like many of us, he's been busy with other things this last 2 days. He told me he'll get back to you as soon as possible with a personalised reply since everyone is different, but he has a big list to get through. Obviously I don't want to put pressure on him at this time, so please be patient. We both have the full list of newly submitted inscription forms, so nobody will be forgotten.
Btw, If you have filled in a form entitled "Reflections" that a few of you have found on an old HU posting, we don't use that form any more. Although your inscription is still valid, we now use a new form that you can find on the "Contacts and Membership" page of the patientresearcher.com website. If you filled in that old "Reflections" form please repeat your inscription request using the new BS-RG form here: form.jotform.com/2219810060...
I have received a few comments about the "Commitments" statement on the web page, with some people saying they don't feel able to commit to the degree required. Let me explain why we have put this statement on the website. We now have a quite lot of experience of how People with Parkinson's respond to our program when we make an announcement like this one. Responders can be divided into 2 groups, those who want to observe more before committing to any action and those who are already convinced that they want to join the experimental section. For the "observer" group, we have created the Facebook page which we will use to keep people up to date with developments. This is free for them and relatively easy for us to manage. there is no committent required for people who join the Facebook group.
For those who want to go further and are already convinced that they want to take part in self experimentation, we have the Experimental Arm which is on the patientresearcher.com website. People who sign up for this become registered members and will be asked for information, for example about their symptoms, and invited to take part in discussions (Zoom meetings) to inform them about what they need to know in terms of safety with respect to existing medical conditions, and technical issues with respect to making BST and sulforaphane. Without this knowledge there is a risk of making mistakes when making the BST and more seriously, of aggravating existing medical conditions or provoking medical accidents. The BS-RG cannot give and does not give personal advice on medical issues. It is up to the members to ensure that they are fully informed about how sulforaphane can effect their health both for good and bad. We provide the framework for them to do that. For these reasons, we require members to commit to taking an active part in Zoom meetings where these issues are discussed and where we can question them. Only when we feel that new members have accumulated the basic safety and technical information, do we consider giving them access to the experimental program in a series of controlled stages. This process can take a few weeks or months and we experience considerable drop out as the weeks go by. This represents a great deal of wasted effort and investment on our part. We know that it is partly due to Parkinson's disease itself, but it greatly increases our workload. The success of the research program is dependent on having a low drop-out rate once people sign up to an experimental program which requires even more committent to follow the rules to the letter, record symptoms and report back. This is why we are now informing people of the degree of commitment required before they start. Anyone who is not yet fully committed, should not to join the Experimental Arm, but consider joining the Facebook group to monitor events. Thank you for your understanding.
My research suggests that non-motor symptoms should respond most and fastest. I didn't really expect much change in motor symptoms in the short term., but some people get a rapid reduction in tremor too. That's a bonus
Hi Gail,I'm doing fine thanks. The work on BST continues. We have now transformed it into a test to identify symptoms of PD that are caused by oxidative stress. This has led me to propose a new paradigm for Parkinson's Syndrome that takes into account all symptoms over the whole duration of the disease.
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