C/l dosage

[Smittybear7]

My neurologist started me on c/l 1/2 pill(25-100) twice a day 8 hours apart .after 13 days switched me to 1/2 pill 3 times a day. Up to that point I had been taking 1000mg of b1. My tremors became more frequent and intense.,jittery, some involuntary jerking movements . I stopped taking b1 temporarily because someone said it could be a side effect of too much b1. I have not noticed any improvement since starting c/l and cutting b1. The neurologist is trying the medication to determine if I have Parkinson's not Parkinsonism. How long does it take to determine this? What is considered a high dose of c/l.my family thinks that I have stronger voice and PT thinks that I am a little less rigid. Should I go back on b1,when and how much should I take?

Any suggestions for tremors. I'm trying cinnamon at about 2tsps per day in applesauce..Any and all suggestions would be appreciated. Thanks

[park_bear]

Very important to make the distinction between tremors, which are regular shakes several times per second, and dyskinesias, which are involuntary jerks at a lower repetition rate. Dyskinesias are the result of too much levodopa, which is especially prone to happen with the immediate release version of C/L, which is likely what you have.

See here for the difference between immediate release and controlled release C/L:

healthunlocked.com/cure-par...

I do recommend weighing out the cinnamon for best control over dosage. It does not cause tremors or dyskinesias to the best of my knowledge.

[Smittybear7 in reply to park_bear]

Thanks what is the cinnamon good for? My hand shakes not just my thumb and pointer finger. The left hand sometimes shakes too.

[park_bear in reply to Smittybear7]

If you have not seen it already my report on cinnamon is here:

healthunlocked.com/cure-par...

It improved my motor impairment noticeably but did not seem to affect my tremor.

[Smittybear7 in reply to park_bear]

Thanks

[PDConscience]

On the topic of cinnamon for PD: sitn.hms.harvard.edu/flash/...

[M-o-ggy]

Some people need to take a good quality multi vitamin such as EmergenC with the B1 to enable it to work properly

[Hidden]

C/L 25/100mg, Instant Release.The recommended maximum single dose is three and one-half tablets.

You titrate up until you get relief of symptoms. You back down to the lowest dose that works

[Smittybear7 in reply to Hidden]

Thanks

[Smittybear7 in reply to Hidden]

31/2 tablets how many times a day? I'm taking 11/2 am,I eight hours later, another 1 eight hours after. It is c/l (25-100) I think it is instant release

[Hidden in reply to Smittybear7]

Doses not less than 4 hrs apart.

[Hidden in reply to Smittybear7]

Try lower single dose. As little that still keeps symptoms controlled

[Smittybear7 in reply to Hidden]

Thanks

[Hidden]

Hi Smitty:

I strongly recommend you stop "doing stuff" (ie, starting new supplements, changing the dose of supplements, stopping supplements) until you neurologist is done "trying the medication to determine if I have Parkinson's not Parkinsonism".

It shouldn't take too long. It depends on when/if you respond, and if you don't, at what dose does she/he stop the test...

[Smittybear7 in reply to Hidden]

Is there a typical dose when the issues go away? My neurologist looked at the list of supplements and said to continue. The only change I made was stopping the b1. He is adjusting the dosage of c/ l .what is considered a high dose of c/l ?Thanks for your help and advice

[Hidden in reply to Smittybear7]

"Is there a typical dose when the issues go away?"

No. Everyone is different, but since you are just starting out, I take a guess that you will not need more than 1 x 25/100 c/l tablet 3 times a day.

"What is considered a high dose of c/l ?"

Dr. Ahlskog has never seen a patient that needed more than 3 x 25/100 c/l tablets per dose.

[Smittybear7 in reply to Hidden]

Thanks so much! I'm scared and trying my best to be positive. Do you take b1?

[Hidden in reply to Smittybear7]

No I do not take it. IMHO, the only way you can effectively deal with PD is with PD meds.

[Smittybear7 in reply to Hidden]

Thanks and good luck to you on this journey

[Nitro53 in reply to Hidden]

Do you mean 3 tablets at a time or 3 over the course of a day. 3 tabs a day is not much

[Hidden in reply to Nitro53]

per dose (I updated the text)

"Dr. Ahlskog has never seen a patient that needed more than 3 x 25/100 c/l tablets per dose."

[Nitro53 in reply to Hidden]

That makes sense

[Missy0202]

I started taking ½ tabs for quite a while until I could tolerate full tabs. at 3 x 25/100 tabs a day after about 2 - 3 months my tremors were very controlled.