My mama has had PD for over 15 years and a fall a few years ago , with a C2 fracture put her on bed .
The thing is that the doctors gave up on her. She had a nasal tube for 4 months which messed up her swallowing and hence her speech . I remember even after the accident in the hospital she was talking away .. but no they said the fracture will never get better. Put her on hospice , but guess what no doctor is bigger than the than the big guy up there and her fracture did heal. But due to the fact she was on bed , she developed contractures and so we have been suffering thru so many things which could perhaps have been avoided .. but such is life.
I moved my parents here two years ago, but the contractures were already formed , so the damage was done . I do have the caregivers give her a massage and do her light stretching - and i do it whenever i can too. I even have a speech therapist come home to give her stim therapy to improve the vocal chords.
My ques is, how do folks find good at home therapists , it has to be more like neuro therapist ? Any idea ?
There is also a component of depression. Of course for someone who was bubbly and sorrounded by people all her life, if not in person then via the phone , its a completely diff life. My dad is wonderful but not a talker and i work during the day , I think she is already taking something for depression , but do you think we should up that or take an alternative route?
I am giving her NAC, ALA, ALC - got a blood test by my neuro and he said to up the vitamin D . Of course I understand that the main reason for the depression is the state in which she is and her inability to communicate , Covid created isolation and my 3 level house (where we cant bring her down without any help did not help).
What should i do ?> Please advise .. it breaks my heart to see her this way .
Thank you
-j