I have started to get sensitive soles of my feet. A bit like pins and needles or having walked barefoot on burning hot bitumen. Is this part of PD?
I fastwalk the dog along the beach barefoot for an hour every second day but the sand on the waters edge is certainly not hot.
Apart from that my tremors are not getting any worse so I'm hoping that my diet, NIR helmet, bionase, and scenar microcurrent protocol, are holding PD at bay. (Forgot to mention B1)
read this one.
???? Read what one?
Sound like neuropathy .This is exactly what I started with many years ago. Are you diabetic ? If yes your blood sugars need checking. I advise alpha lipoic acid to help .
Best wishes
Geoff
Thanks Geoff. Not diabetic. No health problems. Not overweight. Eat spinach, broc, brussel sprouts, carrots, peas, and sweet spud every night so should be getting enough ALA. Reasonably fit for 70. Just can't understand what is happening.
Alpha lipoic acid should not be taken if there is thyroid problem .
This might help if you have neuropathy: mayoclinic.org/diseases-con...
I would see a doctor to diagnose.
Thanks mate. Read the article through and it all sounds logical. I'm just not happy with what is going on as I eat well, exercise well etc etc. Just fighting it I suppose. Back to doc mid Jan. In meantime still looking for an integrative neurologist in SE Qld.
You have described Periphial Neuropathy perfectly, my lower legs and feet are now permanently in state of numbness which causes me to fall constantly and of course poor balance isnt helping.
Interesting! This was a symptom I had before my PD diagnosis. It would occur mainly at night and the only way to stop it was to rest the soles of my feet against something. I turned the bed around and had the foot of the bed against the wall so I could touch the wall when it started. When I started to research PD I discovered that many PD patient have a B6 deficiency. I started taking 300 mg B6 a day and within one month this symptom was gone. I kept up the B6 at that level for 1 yr and now take 50 mg a day. I hope it helps.
Great suggestion and I thank you sincerely. No harm in taking B6 so shall start today as soon as the shops open.
Getz,
The increased dose of B-6 can be a blessing in some and a major problem in others!
There are some people who have elevated levels of B-6 (pyridoxine) and this can result in neuropathy. Adding B-6 in such a case may be problematic. It would be safest to ask your doctor to test your pyridoxine level to make sure it is not already too high just in case you fall into this category!
Here is a link to a PubMed abstract that discusses this problem :
ncbi.nlm.nih.gov/pubmed/187...
and an article on one:
n.neurology.org/content/88/...
and another one :
n.neurology.org/content/90/...
Art
Thank you . I do admit to going off too quickly at most things. Was not aware of these potential problems but doubt if my B is too high as I only consume natural foods and certainly not energy drinks. If I can find a bulk billing doctor down round Coolum Beach I'll get checked out. Thanks for the warning.
Hi. My husband has PD, 52. We would love to talk with you regarding your health regime and the tools you are using. We have never heard of most of them. If you are interested in talking with us/him, his email address is: implacavel66@gmail.com. His name is Mike. Thanks.
Shall flick you an email.
Hi Getz
I would like to talk to you too 'Please my email is Hanifag53@gmail.com will really appreciate if we connect
Shall do but just warn you I have no idea about PD as it only started to get serious a couple of months ago. I have certainly been spending hours each day on Mr Google but so many great ideas have come from people in this forum. Shall flick you an email with what I'm doing so far but my biggest problem is I do so many things I wouldn't have a clue what works. I still have PD and the neuropathy has only just started so maybe nothing is working but on the positive side I can drink my latte with my right hand again.
Can you tell me about your NIR helmet? I am currently looking into photobiomodulation for my husband (Parkinson's) and myself (Aquired Brain Injury).
Many thanks
This whole medical problem is crazy. It seems that the way forward is a fight against establishment and there are procedures in place that make it almost impossible to take advantage of any new developments.
A chap called Max Burr was quizzing professors at Sydney University Neurology Dept about their work on near infra red treatment to the head to regenerate brain cells. He found that it had great success with mice and there appeared to be no downsides to the treatment. Human trials were due to start and would take about 10 years to complete but Max couldn't/wouldn't last that long so after getting the details he went and made his own helmet (bucket from Bunnings and strips of NIR leds). At 3 months his tremors had subsided and he was leading a normal life again.
The 'Men's Shed' in his town heard of this so decided to make helmets similar to Max's and sell them to those wanting to trial it.
The helmet is therefore unresearched (as the research findings from Sydney Uni have not yet been finalised) and the whole exercise is based on hope and not science.
I am one of those that will give things a go, especially if there is no downside, and I bought a helmet from Dorset Community Men's Shed (Max's home town in Tasmania) and have been using it for nearly a month.
There is research on NIR light to support its potential health benefits but at this stage I haven't found specific research in humans to confirm it as a genuine treatment for PD. I bought my helmet for $300 plus postage and am using it in the hope that it will be a benefit.
Can I also say that Hyperbaric Oxygen could also be considered for brain problems. There are some wonderful videos on youtube showing its success for stroke and diabetes. If there was a chamber within cooee of here I would try it or if I hadn't just avoided bankruptcy I would have bought my own portable chamber as they are only around $18000 au and have so many benefits. Oxygen has so many benefits to our body.
I’ve heard of hyperbaric oxygen chamber therapy, have you ever heard of any good results for PD? Thanks!
Hi ConnieD, Have not come across any info on HBOT and PD but there is no downside to oxygenating the body's cells. Watched a youtube video of a young man with brain damage from a car accident. Could not talk or even get out of his wheel chair unassisted. After 6 months he was able to get out of his wheelchair as well as talk though was still difficult to understand.
Hi Getz. Do you find any difference since you ve started using the helmet?
Hi Munchy. I really have no idea but I am still leading a normal life. Whether this is due to the helmet I can't really say as I try just about anything that has potential but no downside.
Is it inconvenient to wear ie can you wander around with it on?? How long do you wear it each day ??
Munchy, the helmet is bigger than my head and they recommend you wear dark glasses but I need glasses to read so I went to a cheap shop and bought a cowboy hat, cut the brim off it,and tied the brim to the helmet. I am sitting here on my computer with the helmet going right now. I can walk around with it and have the battery in my pocket and I use my phone clock as a timer. 10 min each frequency
Why is the helmet so big? So can you war sun glasses with it? Does the wide brim mean you don’t need sunnies?
I don't wear it outside and the thought of sitting with sunnies on doing nothing for 20 mins twice daily didn't really appeal so I put the brim on it so I could wear my glasses and work on my computer or watch TV etc. I suppose its so big so it will fit all people and maybe the light needs to be a little away from the skin. I don't really know. PM the Men's Shed as they are the ones making them.
Forgot to say that the brim fits my head and the helmet is probably close to an inch larger all round my head so it sits on the brim and prevents any light escaping and perhaps damaging my eyes???
A lot of NIR research has been done here in Toronto. 2 businesses make the helmet at $2300 and up. My husband would need a gamma helmet and me an alpha helmet. Two at nearly $2.5k is unobtainable. I’m sure they are well calibrated but that seems like a huge markup. 🤨
Try the men’s shed in Tasmania! They are only 300$. !
These helmets would be professional and could well have different purposes. The Dorsett Men's Shed produce a very amateurish helmet with only the two NIR frequencies that Sydney Uni were trialing. Have no idea about alpha and beta. My faulty memory recalls the frequencies as 670nm and 810nm
Yes same frequencies.
So which is the alpha and which is the gamma frequency. The Men's Shed one has a switch and you run each frequency for 10 mins. My mind is running on here and I am wondering why they have different frequencies in each helmet. Does each frequency do something different? and you and your husband have different problems? I'm certainly curious. I know Max Burr started with the 670nm but added the 810nm later.
I found they do have a duo unit but again very expensive. from trianglehealing.com:
The 10 Hz pulse rate remains consistent with the pulse rate of the Vielight 810 and Vielight Neuro – which correlates with EEG alpha brain wave entrainment and cellular light absorption. This pulse rate differs from the 40 Hz pulse rate of the Vielight Neuro Gamma, which has a stronger effect on memory enhancement.
Should I get BOTOX shot in my feet for PD feet/toes curling?
Suffer pain in lower back and feet
Swollen Feet
Why do only humans get PD?
