Posting here as it's so hard to talk to my mums' neurologist. Mum (96) is on Levodopa 125 three times a day and 125 half Sinemet at night. I believe she has been undermedicated for absolutely ages and has terrible drops every day. Neurologist has just given a prescription for 62mg to be added to her existing doses. BUT.....I thought he said add to each dose building up with a week apart.....(I'm not sure if he did!) Long story short mum's drops are so bad and she feels so terrible (weak, feels very unwell, mood terrible), that we've added in the extra dose to 3 out of 4 of her doses rather quickly. I thought it was all good but now I'm not so sure.....we've only been on the extra doses for around 2 weeks......have we added too much too soon? Today she said she felt dreadful, restless and can't get comfortable etc but she feels like that when her meds are running out. Should we have only added to one slot and then waited a week before adding to another slot etc? She so desperately needs something to get her through the day.
I hope this makes sense to someone. Sorry about the lack of detail on meds but I'm going from memory and don't have them in front of me.
PS Have written to the neurologist's secretary but I know that can take weeks.