Dawn

[31071918]

Hi my name is Dawn I have had pd since sept 2012 , I would like to talk to others who have the same every day problems that I have.

[M_rosew]

Hello Dawn - 2012 was my diagnosis year too. PD was not a club I'd planned to join, but never mind!

M

[31071918 in reply to M_rosew]

Do you live in the uk.

[M_rosew in reply to 31071918]

Yes indeed I do!

[Hidden]

I was diagnosed November 2012. You and I had this disease many years before it raised its head in the most visible symptom. Go to my Profile and catch up.

[Hidden]

what are your symptoms and problems you have

thanks

[31071918 in reply to Hidden]

I have freezing a lot and dyskinesia, shakes not too bad at the moment. Realy feeling down and fed up at the moment. Still there are people worse off than me. Dawn

[Hidden in reply to 31071918]

dyskinesia is not a symptom of PD but a side affect of the meds you are taken talk to you Dr. about reducing of changing your meds. If you are not in a exercise program please get into one. Exercise helps with all aspects of PD. Including depression and your mood. The exercise should be tasking and demanding and varying. Include cardio and strength and stretching.

A group program works best for me but don't limit it to a PD group.

Crossfit works for me.

With exercise and meds i am almost PD free.

What meds are you taken.

[laglag]

Hi Dawn. Welcome. I was diagnosed in 2003 & I am 58 yrs. old. I feel, & research has found, forced exercise is the key to the least amount of progression. There are several supplements that help also, as you will discover by reading the posts on this website. It's important to remember, we are all different & what works for some, may not work for all, but this website is great for getting some useful ideas.

[Pelley]

Welcome Dawn:

This is a great place to find friends with similar issues. You have to remember what ever works for you is still the best course. That said it's a great place to learn about alternatives too. I was diagnosed in 2004 and have not let it beat me yet!

[soup]

Hi Dawn, where do you live? I am in Cornwall, UK.

[31071918 in reply to soup]

I live in northamptonshire

[soup in reply to 31071918]

We got a lot of support from local younger onset Parkinson's groups. Do you have one near you?

[31071918]

Yes, but it's on a Saturday morning it's a bit to far to go,

[FlicEden]

My partner has had it since 2006 he is incapacitated everyday for short periods but he definately recommends excercise and I often play tennis with him which we both like,he has the stiff kind not the shakey sort and he has ropinerole ,stalevo and an apo go pen as medicine.what kind do you have?

[Coblrman]

Watch your supplements carefully. I've found what works for others creates problems for me (especially if I take them and don't make the connection). For example vit D is very beneficial to some while it tends to knock out my medicine for a while. Finding that melatonin (which has done the same as Vitamin D) can be helpful if I take it in very small amounts.

[redean]

Pleased to meet you Dawn. I share your every day problems and I am always open to chatting and offering support or let's hope a laugh here and there. I am 55 and have had symptoms for 5 yrs diagnosed about a year ago. Robyn

[samealbertnotbefore]

Hello Dawn , I was diagnose last December at Edgware Hospital London. I do Tai Chi once a week, they say it's good for PD , only just started doing it. Everybody I have met at Parkinson club says exercise is important. I go for walks around London with my freedom pass and swimming three times a week ,but still have a slight tremor on my right arm .I am 64 soon to be 65. albert