Posts - CLL Support | HealthUnlocked

Many us have what is called Secondary Antibody Deficiency. It can be diagnosed via low Total IgG (ImmunoGlobulin G), and often low IgA and IgM, too, as well...

Administrator•2 months ago

9 Replies

Canadian SCIG and IVIG study

Many us have what is called Secondary Antibody Deficiency. It can be diagnosed v...

SeymourB

•5 months ago

14 Replies

Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)

In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR...

In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/ritu...

I've often observed that our immediate response when we are diagnosed with CLL, is to re-evaluate our diet (good) and look at how we can extend our time before...

Administrator•9 months ago

23 Replies

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Further evidence that even moderate exercise is good for your long term health - particularly when you have CLL!

I've often observed that our immediate response when we are diagnosed with CLL, ...

Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the...

Administrator•9 months ago

27 Replies

Calquence / acalabrutinib and Brukinsa / zanubrutinib Adverse Event Comparison for Chronic Lymphocytic Leukaemia / CLL from clinical trials

Now that we have a growing choice of BTK inhibitor treatment options, naturally ...

Do herbal supplements contain what they say on the label?...

Administrator•11 months ago

4 Replies

UK herbal remedy ingredient check by UCL School of Pharmacy: Many poor quality products, though those with the THR label fare better

Today, the Doherty Institute in Melbourne, Australia, released a statement about a research study that shows that blood cancer patients highly benefit from...

Administrator•11 months ago

27 Replies

Research shows blood cancer patients generate strong T cell immunity after SARS-CoV-2 vaccination

Today, the Doherty Institute in Melbourne, Australia, released a statement about...

"More or Less" Do fungi kill three times as many people as malaria? https://www.bbc.co.uk/sounds/play/w3ct3k63?partner=uk.co.bbc&origin=share-mobile...

Administrator•1 year ago

22 Replies

Fungal infections cause 3 x the number of deaths caused by malaria... really!? This 9min podcast explains.

"More or Less" Do fungi kill three times as many people as malaria? https://www...

JigFettler

Volunteer•1 year ago

4 Replies

Recent research report

one section of a recent research report covered CLL and it included several topics including the favorable results of vitamin D. Now I can’t find the...

one section of a recent research report covered CLL and it included several topi...

BobTerry62

•1 year ago

A 13-year-old girl who relapsed with a particular type of blood cancer is now leukaemia-free after a world-first use of what scientists have described as the...

Teenager Leukaemia free after a world-first use of sophisticated cell engineering.

A 13-year-old girl who relapsed with a particular type of blood cancer is now le...

Juliette02

•1 year ago

1 Reply

Miracles of science and hope for us

https://www.bbc.com/news/health-63859184 Per Juliette02's introduction, with an alternative report: Teenager Leukaemia free after a...

https://www.bbc.com/news/health-63859184 Per Juliette02's introduction, with a...

nuji

•1 year ago

17 Replies

Fine-Tuning the Wave of Innovation in CLL

ASH2022 is happening in New Orleans, right now. Yesterday, there was a great webinar hosted on the PeerView platform that covered Personalized Models for...

ASH2022 is happening in New Orleans, right now. Yesterday, there was a great w...

SeymourB

•1 year ago

5 Replies

Off patent drug possibility for Covid. Ursodeoxycholic acid (UDCA), an approved liver disease drug, reduces ACE2 levels on lab-grown cells

There seems to be a deal of excitement in certain media areas about research involving UK, European and US researchers on a covid treatment drug. The one in...

There seems to be a deal of excitement in certain media areas about research inv...

Eucalyptus22

•1 year ago

1 Reply

Mexican sarsaparilla ( Smilax aristolochiifolia) for anaemia, CLL

Has anyone heard about this herb for anemia or blood cancer

Family2017

•1 year ago

5 Replies

The failing effectiveness of COVID-19 monoclonal antibodies against BA.1, BA.4-5, BA.4.6, BA.2.75, BJ.1 and BQ.1.1

This post is in response to a couple of recent posts highlighting concerning changes in the effectiveness of our monoclonal antibody armament against new...

This post is in response to a couple of recent posts highlighting concerning cha...

Administrator•1 year ago

The latest edition of the journal Blood has two articles that highlight the issue of cardiotoxicity in patients treated with acalabrutinib. The cardiotoxicity...

Cardiotoxicity in patients treated with acalabrutinib

The latest edition of the journal Blood has two articles that highlight the issu...

An interesting publication offer relative to recent survival outcome data provided by CLL Society from ASCO 2022 -...

Administrator•1 year ago

43 Replies

Survival Outcome Observation

An interesting publication offer relative to recent survival outcome data provid...

Smakwater

•1 year ago

7 Replies

A class of targeted protein degraders offers a possible strategy to overcome BTK inhibitor resistance in chronic lymphocytic leukemia

A research article published in the journal Blood this week reports on a possible way forward for those with CLL who develop BTK inhibitor resistance...

A research article published in the journal Blood this week reports on a possibl...

Administrator•1 year ago

One of the triggers for starting treatment for CLL is haemoglobin dropping below 100. The most common use of donated blood is transfusions for those undergoing...

Breakthrough in laboratory production of red blood cells towards saving lives of those with Chronic Lymphocytic Leukaemia in the future

One of the triggers for starting treatment for CLL is haemoglobin dropping below...

The interim report of an ongoing survey of CLL patients demonstrates that over 60% of respondents were unaware of different CLL risk groups and that about 20%...

Administrator•1 year ago

5 Replies

Chronic Lymphocytic Leukemia patient survey points to a need for better patient education

The interim report of an ongoing survey of CLL patients demonstrates that over 6...

Postbiotics are essentially the by-products of our gut microbiota. In other words, your body produces postbiotics after digesting prebiotic and probiotic...

Administrator•1 year ago

12 Replies

Prebiotics, probiotics and now postbiotics. What they are and how can they improve our gut health?

Postbiotics are essentially the by-products of our gut microbiota. In other word...

Currently, Australia is going through a generational change in CLL treatments with the move to targeted therapies. If you've had your CLL treated, your...

Administrator•2 years ago

10 Replies

Aussies treated for their CLL - Paid Survey. Please help researchers explore treatment goals and provide opinions on treatment options

Currently, Australia is going through a generational change in CLL treatments wi...

Administrator•2 years ago

Knowing we have a much greater risk of Melanoma figured I’d share this news: “Moderna's messenger RNA vaccine is being studied in combination with Merck's...

Moderna and Merck Melanoma Vaccine

Knowing we have a much greater risk of Melanoma figured I’d share this news: ...

Rando21

•2 years ago

Community and Patient Preference Research (CAPPRE), on behalf of a pharmaceutical company, is conducting research with people living with CLL in...

Aussies and Kiwis with CLL - Your invitation to help researchers investigate what you value with respect to your care and management

Community and Patient Preference Research (CAPPRE), on behalf of a pharmaceutica...

Administrator•2 years ago

I've stated many times that we shouldn't take supplements to boost our immune system, because where there is any evidence that they might work, it's by...

Yet another disconcerting investigation into [b]Dietary Supplement Products [/b]

I've stated many times that we shouldn't take supplements to boost our immune s...

Administrator•2 years ago

A letter in "Cancer Cell" (sounds like a pretty malicious PP prison) from the Birmingham-based research team to whom we were sending blood. Topic: COVID-19...

Good news on vaccine efficacy for the 80%

A letter in "Cancer Cell" (sounds like a pretty malicious PP prison) from the Bi...

Me2AsWell

•2 years ago

A couple of papers published in Nature provide some encouraging indications of why a 'mix and match' strategy with vaccination boosters may broaden the...

The promise of Mix and Match COVID-19 vaccinations

A couple of papers published in Nature provide some encouraging indications of w...

Given time, ongoing mutation of the SARS-COV2 virus is likely to produce a super-lineage, at least as transmissible as the Delta variant and more resistant to...

Administrator•2 years ago

8 Replies

An unusual, potent antibody to SARS-CoV-2 variants is isolated from a recovered patient

Given time, ongoing mutation of the SARS-COV2 virus is likely to produce a super...

bennevisplace

•3 years ago

10 Replies

Chronic Lymphocytic Leukaemia (CLL) 2020 Australian Study by Centre for Community Driven Research has been published

With thanks to the many members of our community who contributed their time last year to this comprehensive survey of those living with CLL and their carers,...

With thanks to the many members of our community who contributed their time last...

Administrator•3 years ago