Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for April 2024

Bird flu virus in cattle - milk/cheese implications?

Neil recently wrote about risks from bacteria in kimchi and unpasteurised cheese.....

Neil recently wrote about risks from bacteria in kimchi and unpasteurised cheese...

•1 month ago

Recently started Acalabrutinib

Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His...

Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was di...

•1 month ago

Rise in WBC

Hello to all, My husband has CLL, he has also been treated for metastatic melanoma which from his latest CT scan is NED. He will receive his last...

Hello to all, My husband has CLL, he has also been treated for metastatic melan...

•1 month ago

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here we are again

my husbands blood work did not come back good after being great for over 5 years on Imbruvica. Oncologist ordered a Pet Scan since he has never had one. Just...

my husbands blood work did not come back good after being great for over 5 years...

•1 month ago

Allopurinol

On Allopurinol now and had three infusions of obin. I'm fine but now have constipation. Is this from the Allopurinol?

On Allopurinol now and had three infusions of obin. I'm fine but now have const...

•1 month ago

Any opinions on HMB?

I am wondering if anyone knows anything about HMB IE whether it's helpful, unhelpful or otherwise? They are tablets you take that help you exercise for longer...

I am wondering if anyone knows anything about HMB IE whether it's helpful, unhel...

•1 month ago

An update

It's been a long while for me to post my husband has been watch and wait for 12 years now but yesterday he was informed that his haemoglobin had gone down...

It's been a long while for me to post my husband has been watch and wait for 12 ...

•1 month ago

Watch & Wait - now enlarged spleen

Hello from B.C.! I was formally diagnosed in January 2024 with CLL and put on a watch and wait. I was informed it was stage 0. My next appointment is in 3...

Hello from B.C.! I was formally diagnosed in January 2024 with CLL and put on a...

•1 month ago

Almost to the point of despair. Sorry for this.

Hello, everyone. Today's post is more in the form of despair because, frankly, that's how I feel. I'm only a few days away from starting the Obinutuzumab...

Hello, everyone. Today's post is more in the form of despair because, frankly, t...

•1 month ago

Considering getting a few dental implants

Hi all, Its been quite a while since I have posted however I do jump in and out from time to time. I have been on Ibrutinib for about 5+ years. Most...

Hi all, Its been quite a while since I have posted however I do jump in and out...

•1 month ago

Holding Calquence (acalabrutinib) for epidural injection.

Recommendations seem to vary about the length of time to hold calquence for an epidural injection (L3-4 facet joint for my right sided sciatic pain) or other...

Recommendations seem to vary about the length of time to hold calquence for an e...

Bluesinthenight

•1 month ago

Question

If one responds well to rituximab/venetoclax w/o relapse, why stop the drug at two years? Thanks, Bud

If one responds well to rituximab/venetoclax w/o relapse, why stop the drug at t...

•1 month ago

Still uMRD 1 year later after fixed duration A&O combo

Happy to share that after finishing treatment 12 months ago, my new Clonoseq results still show zero residual clonal cells from a 3.4 million sample! Glad to...

Happy to share that after finishing treatment 12 months ago, my new Clonoseq res...

•1 month ago

Too Much Testing??

There has been numerous posts on Health Unlocked this week from younger, newly diagnosed CLL patients. There seems to be two type of people asking questions....

There has been numerous posts on Health Unlocked this week from younger, newly d...

•1 month ago

BCR/ABL - JAK2/CALR

Hello , december 2021 with flow cytometry i realized in report letters with BCR/ABL (Negative) and JAK2/CALR (Not detected)..... Not sure these are genes...

Hello , december 2021 with flow cytometry i realized in report letters with B...

•1 month ago

Alcalabrutinib and colonoscopy

Due for a colonoscopy after 5 years. Currently on acalabrutinib for past 16 nmonths withgood response ALC down from 56 to 2.31 after poor response from BR in...

Due for a colonoscopy after 5 years. Currently on acalabrutinib for past 16 nmo...

•1 month ago

CLL survival times ARE improving, thanks to BTK and BCL-2 inhibitors

Many of us were shocked after our CLL/SLL diagnosis when we googled for survival times. Hopefully we subsequently read that search engine information...

Many of us were shocked after our CLL/SLL diagnosis when we googled for survival...

Founder Admin•2 months ago

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