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CLL Support

22,525 members • 38,687 posts

All posts for April 2024

do I need the spring Covid shot?

I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I...

I have had 7 covid shots since the start of Covid. On October 10 of 2023 I rece...

Claybuster

•1 hour ago

1 Reply

Latest results questions

I need help, does anyone understand these results. I am currently on the Bruin 321 clinical trial and am on 3rd cycle of Pirtobrutinib. So far things are going...

I need help, does anyone understand these results. I am currently on the Bruin 3...

rcusher

•7 hours ago

2 Replies

covid shot

hello , I just had another Covid shot, and each time I have had a large swollen lymph node I Under the arm where I had the injection, but this time I have two...

hello , I just had another Covid shot, and each time I have had a large swollen ...

Grandmajoanie

•15 hours ago

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Nattokinase

Does anyone take natto or vitamin k, and does it help with side fx of acalabrutinib? Thanks.

Does anyone take natto or vitamin k, and does it help with side fx of acalabruti...

Zabb

•17 hours ago

3 Replies

Acalabrutinib, venetoclax and obinutuzumab in relapsed CLL: Phase 2 CLL2-BAAG trial results from the German CLL Study Group

Some very encouraging news for those with unmutated IGHV and/or TP53 aberrations, who are wondering how they will fare with a subsequent treatment. This phase...

Some very encouraging news for those with unmutated IGHV and/or TP53 aberrations...

AussieNeil

Administrator•19 hours ago

7 Replies

CLL + nephrotic syndrome: furosemide problem

Hello, I'm here to share something with the community that may be important for those who have had nephrotic syndrome related to an infiltration of CLL in the...

Hello, I'm here to share something with the community that may be important for ...

BMFCDRW

•1 day ago

5 Replies

Reoccurring CLL

Hello Everyone I haven't been posted anything for a while. My father started venclyxto treatment last week he is doing ok at the moment he only complaining...

Hello Everyone I haven't been posted anything for a while. My father started ve...

agneshun

•1 day ago

4 Replies

CLL, Alcalabrutinib, Gout & Steroids

Hi I’ve Three years on Acalabrutinib, I’ve developed gout and had a few episodes, some are more severe than others. The doctor prescribed a course of...

Hi I’ve Three years on Acalabrutinib, I’ve developed gout and had a few episo...

Tomaljoe69

•1 day ago

35 Replies

Wendy

My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen...

My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years lat...

Fluxthecat10

•1 day ago

2 Replies

What is the longest remission that I can hope for?

I am wondering if there is any guide as to how long remission after modern treatments might last? For example V and O - are there any stats as to people who've...

I am wondering if there is any guide as to how long remission after modern treat...

Research123

•2 days ago

9 Replies

Understanding my Karyotype report

Hi all, I’m recently diagnosed and just got my most recent labs back for 1) IGHV, 2) Karyotype, and 3) Beta 2 Microglubin ————— For reference: IGHV -...

Hi all, I’m recently diagnosed and just got my most recent labs back for 1) IGHV...

CBSN

•2 days ago

3 Replies

Is Septrin (Co-trimoxazole) a lifelong medication

Greetings. Septrin was part of the medication I started at the commencement of Ibrutinib. I take 1 tab 960 mg evey alternate days. Have been on it for about 6...

Greetings. Septrin was part of the medication I started at the commencement of I...

Oldscores1

•2 days ago

23 Replies

Fish Panel Results/Husbands Passing

Fish Panel Results Tumor/ Prognostic Markers: CD38+ ZAP70+ IgVH unmutated Trisomy 12. My husband was diagnosed with CLL 5 years ago . His CLL doctor...

Fish Panel Results Tumor/ Prognostic Markers: CD38+ ZAP70+ IgVH unmutated T...

Debcap61

•2 days ago

7 Replies

anemia

I have been on watch and wait for three years, I mostly had SLL, with alot of lymph node involvement. The last couple of months my hemoglobin and hematocrit...

I have been on watch and wait for three years, I mostly had SLL, with alot of ly...

Gino23

•3 days ago

23 Replies

lymph node swelling

Hi Everyone, I haven’t posted in a while. I have cll diagnosed in 2019. Now with with decent labs but lately my arm pits have been super itchy with what...

Hi Everyone, I haven’t posted in a while. I have cll diagnosed in 2019. Now wi...

sbkris1

•3 days ago

6 Replies

WBC and Lymphocytes are increasing

Hello everyone, I am posting after a year. My wife was diagnosed with CLL in 2020. She is still in W&W form. Her WBC and Lymphocyte are climbing linearly....

Hello everyone, I am posting after a year. My wife was diagnosed with CLL in 20...

Sagarcanada

•3 days ago

10 Replies

Devastated

I went to my first three month blood test today. I am at Rai 0. I feel great. My WBC and Lymphocytes doubled in 3 months. I am starting V and O on Monday. I am...

I went to my first three month blood test today. I am at Rai 0. I feel great. My...

EastBayDad

•4 days ago

94 Replies

VJHemOnc - new interactive CLL case study w transcript

https://www.vjhemonc.com/feature/vj-in-practice-hempath-cll-case-study/?nl&utm_source=VJHemOnc+Newsletter+Subscribers&utm_campaign=c8dc3a45c5-EMAIL_CAMPAIGN_202

https://www.vjhemonc.com/feature/vj-in-practice-hempath-cll-case-study/?nl&utm_s...

db601

•5 days ago

7 Replies

A mother

Can anyone suggest a top hematologist in or near Pittsburgh? My daughter is moving from Florida where she has been seen at Moffit for CLL/SLL to Pittsburgh....

Can anyone suggest a top hematologist in or near Pittsburgh? My daughter is mo...

conjoy

•5 days ago

21 Replies

Haemophilus influenzae

Has anyone been able to get immunised against haemophilus influenzae? I've just had a bad infection which has been hard to shake off and I don't want it again....

Has anyone been able to get immunised against haemophilus influenzae? I've just ...

1234emc

•5 days ago

14 Replies

severe covid vaccine reaction, & ibuprofen

After 4 or 5 covid vaccines with very minimal side effects , the most recent vaccine left me sick with fever and several lymph nodes swelling up within a few...

After 4 or 5 covid vaccines with very minimal side effects , the most recent vac...

humaniquarian

•5 days ago

19 Replies

Another update

My husband is finally having treatment for his cll they are putting him on acalabrutinib his spleen is six times the size it should be his red cells are slowly...

My husband is finally having treatment for his cll they are putting him on acala...

Nikkij81

•6 days ago

7 Replies

Low vitamin d high serum ferritin

Hello My husband has been on watch and wait for 12 years. Due to a constant chronic cough he recently had a blood test which showed low vitamin D levels of 45...

Hello My husband has been on watch and wait for 12 years. Due to a constant chro...

Debs4

•6 days ago

12 Replies

nana1961

looks like I’m gonna be in a trial combo. Zanubrutinib and soronaclax. It’s about a year regimen. The other is Gazyva and ventoclax same time frames

looks like I’m gonna be in a trial combo. Zanubrutinib and soronaclax. It’s abou...

Nana1961

•7 days ago

4 Replies

Can eye of newt and toe of frog help cure my cll?

Double, double toil and trouble; Fire burn and caldron bubble. Fillet of a fenny snake, In the caldron boil and bake; Eye of...

Double, double toil and trouble; Fire burn and caldron bubble. Fillet of a fen...

cajunjeff

•7 days ago

44 Replies

Maybe we should start writing letters to politicians or otherwise putting pressure on the goons who are "scrutinizing the Chinese"

https://www.nytimes.com/2024/04/15/health/wuxi-us-drugs-congress.html this company apparently makes Imbruvica and is now being looked at ????

https://www.nytimes.com/2024/04/15/health/wuxi-us-drugs-congress.html this co...

GettinThruIt

•7 days ago

17 Replies

CLL Support is 20!

CLL Support is 20! The UK charity behind this forum was set up in 2004 by a small group of CLL patients, with the help and support of Prof Daniel...

CLL Support is 20! The UK charity behind this forum was set up in 2004 by a sma...

pkguk2

Partner•7 days ago

5 Replies

Feed news from my news feed: fruits and vegetables with the most pesticide risk (USA)

Which ones are relatively clean and which ones you need to check the label. Why going organic may not avoid the problem, while careful sourcing or...

Which ones are relatively clean and which ones you need to check the label. Why...

bennevisplace

•7 days ago

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Leeds HMDS Outreach

Has anyone else been referred to this monitoring service post treatment? I’m between Consultant and this and feel a bit adrift! Thanks

Has anyone else been referred to this monitoring service post treatment? I’m be...

carolly

•8 days ago

6 Replies

New diagnosis of CLL stage 0

I was recently diagnosed with Stage 0 CLL. I had elevated WBC and Lymph counts for the last year and was sent to a Hematologist. He diagnosed me with CLL....

I was recently diagnosed with Stage 0 CLL. I had elevated WBC and Lymph counts f...

LadyfromFlorida

•8 days ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2024

do I need the spring Covid shot?

Latest results questions

covid shot

Nattokinase

Acalabrutinib, venetoclax and obinutuzumab in relapsed CLL: Phase 2 CLL2-BAAG trial results from the German CLL Study Group

CLL + nephrotic syndrome: furosemide problem

Reoccurring CLL

CLL, Alcalabrutinib, Gout & Steroids

Wendy

What is the longest remission that I can hope for?

Understanding my Karyotype report

Is Septrin (Co-trimoxazole) a lifelong medication

Fish Panel Results/Husbands Passing

anemia

lymph node swelling

WBC and Lymphocytes are increasing

Devastated

VJHemOnc - new interactive CLL case study w transcript

A mother

Haemophilus influenzae

severe covid vaccine reaction, & ibuprofen

Another update

Low vitamin d high serum ferritin

nana1961

Can eye of newt and toe of frog help cure my cll?

Maybe we should start writing letters to politicians or otherwise putting pressure on the goons who are "scrutinizing the Chinese"

CLL Support is 20!

Feed news from my news feed: fruits and vegetables with the most pesticide risk (USA)

Leeds HMDS Outreach

New diagnosis of CLL stage 0

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