Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for March 2024

Progression Free Survival

Hi. Can someone explain Progression Free Survival (PFS)? Here is example. I am 54 years old. I start V + O. The average PFS for V + O is 72 months or 6 years....

Hi. Can someone explain Progression Free Survival (PFS)? Here is example. I am 5...

•2 months ago

Detected with CLL

Hi , i was detected with cll in march 2021 at that time my wbc was 30k but with no symptoms so i was on wait and watch,after few months i got brain hamerroage...

Hi , i was detected with cll in march 2021 at that time my wbc was 30k but with ...

•2 months ago

Acalabrutinib.. neutropenia and ? Once daily vs twice ?

Been on Acalabrutinib for 7 months. Was doing very well until 2 weeks ago my absolute neutrophil count went down from normal range to 0.59 , hgb up to 10.6 (...

Been on Acalabrutinib for 7 months. Was doing very well until 2 weeks ago my abs...

•2 months ago

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HI! I only joined today.

Unknown territory for me. I will start on Acalabrutinib in a couple of weeks. 😒

Unknown territory for me. I will start on Acalabrutinib in a couple of weeks. 😒...

•2 months ago

Solutions needed to manage nerve pains ( Post herpetic neuralgia ) after shingles .

I was diagnosed of CLL in 2021. Had FCR as first line treatment. Was on remission for about a year before relapse. Currently on Ibrutinib since 5 months now. I...

I was diagnosed of CLL in 2021. Had FCR as first line treatment. Was on remissio...

•2 months ago

Question about CLL & intestinal yeast/Candida

Since taking several strong antibiotics, I've had bad diarrhea/gas/bloating. I'm convinced the cause is Candida/yeast/fungus. Why? I was advised to eat an...

Since taking several strong antibiotics, I've had bad diarrhea/gas/bloating. I'...

•2 months ago

Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?

Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD...

Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was suc...

•2 months ago

Cll and Statins - Thank you for your responses

Hi All Had a Cholesterol test come back at 6.7 and automatically are suggesting statins. Seeing the Dr next week if I can get an appt to discuss. Any...

Hi All Had a Cholesterol test come back at 6.7 and automatically are suggesting...

•2 months ago

Cold Agglutinin

Another test in my continuing saga. I am now being tested for cold agglutinin. Dr's note below. "A prior DAT was negative, but a second one conducted on Feb....

Another test in my continuing saga. I am now being tested for cold agglutinin. D...

•2 months ago

Travel Insurance questions on Acalabrutinib

Trying to get travel insurance and when asked about medication I am having difficulties. I am on Acalabrutinib (monoclonal antibody as I understand it) but I...

Trying to get travel insurance and when asked about medication I am having diffi...

•2 months ago

Aciclovir as prevention for shingles

I wish to express my deepest thanks to all fellow members who have responded to my recent enquiry. There has been consensus in all replies confirming that...

I wish to express my deepest thanks to all fellow members who have responded to ...

•2 months ago

IGHV unmutated and trisomy 12

Hello everyone, My dad recently was diagnosed with CLL and started treatment. He's in the MAJIC trial and receiving V+O. He is IGHV unmutated and cells show...

Hello everyone, My dad recently was diagnosed with CLL and started treatment. He...

•2 months ago

Happy Friday!

I was going through my lab results from Wednesday while doing my usual chores at home. I have an appointment with my oncologist on Monday, and although he may...

I was going through my lab results from Wednesday while doing my usual chores at...

•2 months ago

Is it my spleen?

I have SLL, W&W , generalized lymphadenopathy but last dr visit 6 weeks ago doc said none were bigger than fingernail or so. Bloods not bad. Fatigue comes...

I have SLL, W&W , generalized lymphadenopathy but last dr visit 6 weeks ago doc...

•2 months ago

Not available to get emails

Hi group, for some reason I can’t get anyone your emails, don’t know, what happened.

Hi group, for some reason I can’t get anyone your emails, don’t know, what happe...

•2 months ago

Covid rebound

Hello I’ve just tested positive for Covid again, just finished a curse of Plaxoid Sunday gone. I took a test on the Tuesday it was clear. Still felt fatigued...

Hello I’ve just tested positive for Covid again, just finished a curse of Plaxo...

•2 months ago

acyclovir and kidney care

I have follicular lymphoma. I’m not interested in taking acyclovir as I was born with only one kidney. I’m wondering if anyone knows of an antiviral that...

I have follicular lymphoma. I’m not interested in taking acyclovir as I was born...

•2 months ago

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