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CLL Support

22,673 members • 38,919 posts

All posts for February 2024

Debilitating Stomach Pain

Hello everyone, I am at my wits end with suffering from stomach pains and swelling since I first started my treatment 4 years ago on ibrutinib, along with 3...

Hello everyone, I am at my wits end with suffering from stomach pains and swell...

MorganHardy

•4 months ago

50 Replies

Sinus issues

https://uk.lignosus.com like a fair few CLLers I suffer with sinus issues and mucus build up almost constantly. How can I possibly produce this much snot and...

https://uk.lignosus.com like a fair few CLLers I suffer with sinus issues and mu...

Shooey

•4 months ago

35 Replies

Skin Rash

Can receiving Covid-19 and Flu vaccines at the same time be a cause of skin rash for CLL patient? (I remember reading something in that effect last fall). I...

Can receiving Covid-19 and Flu vaccines at the same time be a cause of skin rash...

Champlain

•4 months ago

4 Replies

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Neutrophilya and Shingrex

Hi I was contacted today to take 2nd Shingles jab Shingrex. I know it's not live but have read it can still affect immunity so decided to postpone for a couple...

Hi I was contacted today to take 2nd Shingles jab Shingrex. I know it's not live...

Guinness4822

•4 months ago

19 Replies

Fake scientific papers - part two: the journals fight back

A little over a week ago I posted extracts from an article about the burgeoning publication of bogus science online. This reply mentioned some of the...

A little over a week ago I posted extracts from an article about the burgeoning ...

bennevisplace

•4 months ago

4 Replies

which is best the pill for life or the iv treatment for remission

larrcow

•4 months ago

25 Replies

Everlasting Cold

I am on day 20 of this cold that just doesn’t seem to go away. Not Covid, grateful for that but the amount of mucus I produce is never ending. Not running a...

I am on day 20 of this cold that just doesn’t seem to go away. Not Covid, gratef...

Alex830

•4 months ago

26 Replies

Hip Replacement while on treatment??

My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of...

My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replace...

laurieq

•4 months ago

15 Replies

Acalabrutinib v Zanubrutinib side effects

Can anyone suggest why, given the results of a published meta analysis shown here, Zanubrutinib treatment should be preferred to Acal treatment? I understand...

Can anyone suggest why, given the results of a published meta analysis shown her...

Fogey

•4 months ago

36 Replies

Latest COVID-19 guide for immunocompromised blood cancer patients from the International COVID-19 Blood Cancer Coalition (ICBCC)

The latest Patient Impact Statement has been released by the International COVID-19 Blood Cancer Coalition (ICBCC). Titled "Navigating a post-pandemic...

The latest Patient Impact Statement has been released by the International COVID...

CLLerinOz

Administrator•4 months ago

10 Replies

arrhythmia and the flu and Covid vaccine

Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout...

Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Cov...

CoCoLuna11

•4 months ago

20 Replies

Platelets and WBC

Went to my Hematologist this week and she said I'd probably need treatment within a year because my platelets were down to 125. They have been sliding down...

Went to my Hematologist this week and she said I'd probably need treatment withi...

johnliston

•4 months ago

11 Replies

Bruising and rashes

I've been taking Calquence (Acalabrutinib) for CLL for 4 months now. So far few side effects apart from fatigue. I developed a kaleidoscope of bruises on my...

I've been taking Calquence (Acalabrutinib) for CLL for 4 months now. So far few ...

balconygirl

•4 months ago

19 Replies

LFTs and new variants

I have seen some rumours in the media that the current LFTs (UK) are not detecting some of the new covid variants. Has anyone else heard this and is it true?

I have seen some rumours in the media that the current LFTs (UK) are not detecti...

Floxxy

•4 months ago

2 Replies

Devastated

I find this forum so supportive and informative. I am devastated that it is going to be closed. What will we do now?

I find this forum so supportive and informative. I am devastated that it is goin...

Floxxy

•4 months ago

14 Replies

Mood changes on zanubrutinib

I have been on a zanubrutinib drug trial for the last four years. The drug is working well and my blood counts are back to normal. In recent weeks I have been...

I have been on a zanubrutinib drug trial for the last four years. The drug is wo...

CorbetCat

•4 months ago

5 Replies

CLL and Root Canals

Hi CLL family, I am curious to know (for my own data) if any/all of you that have been diagnosed with CLL have had or have a root canal? The reason I ask is...

Hi CLL family, I am curious to know (for my own data) if any/all of you that hav...

ASUgrad2021

•4 months ago

32 Replies

A potential game-changer for CAR T cell therapy: mutations in cancer engineered to beat cancer

CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion...

CAR T therapy has been successful in some acute blood cancers. Response rates, h...

bennevisplace

•4 months ago

4 Replies

Neutrophils (again)

Having tried to search this query out in other posts and failed, I am hoping someone can explain to me why, despite taking a G-CSF injection, my neutrophils...

Having tried to search this query out in other posts and failed, I am hoping som...

Steffi50

•4 months ago

28 Replies

CLL diagnosis

Hello all, I have just been diagnosed with CLL, because of a blood test in preparation for knee replacement surgery! I have a no symptoms other than mild...

Hello all, I have just been diagnosed with CLL, because of a blood test in prepa...

Tonightweride

•4 months ago

27 Replies

saw pimento

can you take saw pimento whilst on chemo Ibrutinib and Venetoclax? I use it fire enlarged prostate ?

can you take saw pimento whilst on chemo Ibrutinib and Venetoclax? I use it fir...

clifflee

•4 months ago

9 Replies

switching capsule acalabrutinib to tablet form promoted vomiting, migraine headache, anyone else?

switching capsule acalabrutinib to tablet promoted vomiting, migraine headache Recent posting about switching from capsules to tablet form for...

switching capsule acalabrutinib to tablet promoted vomiting, migraine headache...

234me

•4 months ago

21 Replies

Is a massage ok?

I've been given an Xmas present of a massage - I'm right in saying there are no problems for us CLL patients with that? Am in w and w. Thank you!

I've been given an Xmas present of a massage - I'm right in saying there are no ...

Research123

•4 months ago

9 Replies

Anyone with AF got any experience with taking either Zanubrutinib or R&V

Hi I have just returned home after a session with my CLL consultant. Initially my consultant was happy to start me on Zanubrutinib (Brukinsa) the following...

Hi I have just returned home after a session with my CLL consultant. Initially ...

Ageon

•4 months ago

19 Replies

Diagnosed at 10 am Today

Hi, I received my Flow results this morning and saw “Abnormal CD5+ B-cell population ( 88.9% of leukocytes) with a B-cell chronic lymphocytic leukemia/small...

Hi, I received my Flow results this morning and saw “Abnormal CD5+ B-cell pop...

Hidden

•4 months ago

69 Replies

Remission

Does CLL ever go into total remission where a person no longer has to take Acalabrutinib or is it referred to as medical remission. My oncologist has told me...

Does CLL ever go into total remission where a person no longer has to take Acala...

Vinweesel2023

•4 months ago

11 Replies

Fatigue

Hi All, I’m more than half way through my year on O&V and really can’t complain. Biggest issue is fatigue, now at the point where I find it difficult to...

Hi All, I’m more than half way through my year on O&V and really can’t complai...

Deilginis

•4 months ago

2 Replies

acalabrutinib and blood blisters in mouth

Hi eveveryone. This is my first post! I started acalabrutinib a couple of days ago and I have developed painless blood blisters in my mouth on the inside of my...

Hi eveveryone. This is my first post! I started acalabrutinib a couple of days a...

Tivi19

•4 months ago

25 Replies

and one more for good measure

the village when I finished

skipro

•4 months ago

19 Replies

Gods beautiful creations

Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing...

Last week I was able to ski with a bunch of my grandkids and all my pics were of...

skipro

•4 months ago

29 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2024

Debilitating Stomach Pain

Sinus issues

Skin Rash

Neutrophilya and Shingrex

Fake scientific papers - part two: the journals fight back

which is best the pill for life or the iv treatment for remission

Everlasting Cold

Hip Replacement while on treatment??

Acalabrutinib v Zanubrutinib side effects

Latest COVID-19 guide for immunocompromised blood cancer patients from the International COVID-19 Blood Cancer Coalition (ICBCC)

arrhythmia and the flu and Covid vaccine

Platelets and WBC

Bruising and rashes

LFTs and new variants

Devastated

Mood changes on zanubrutinib

CLL and Root Canals

A potential game-changer for CAR T cell therapy: mutations in cancer engineered to beat cancer

Neutrophils (again)

CLL diagnosis

saw pimento

switching capsule acalabrutinib to tablet form promoted vomiting, migraine headache, anyone else?

Is a massage ok?

Anyone with AF got any experience with taking either Zanubrutinib or R&V

Diagnosed at 10 am Today

Remission

Fatigue

acalabrutinib and blood blisters in mouth

and one more for good measure

Gods beautiful creations

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