Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for December 2023

Medicare Part D question

Newly diagnosed. I've always been extremely healthy and never had to take medications, so when I went on Medicare, I opted for a weak/less expensive Part D. (I...

Newly diagnosed. I've always been extremely healthy and never had to take medica...

Living_and_Learning

•5 months ago

24 Replies

New Treatment Guidelines to Chronic Lymphocytic Leukemia (CLL): Latest advances and emerging treatments.

The Leukemia & Lymphoma Society of Canada recently presented this webinar that I thought was well done and would be of interest to members of this group. To...

The Leukemia & Lymphoma Society of Canada recently presented this webinar that I...

Northland

•5 months ago

3 Replies

venetoclax and obinutuzumab treatment for cll

Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?

Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now ha...

dellkota

•5 months ago

18 Replies

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Update

Well this is a long story,Mick started loosing weight In February. We then went too the GP in March,who did a blood, when I rang up they said it was...

Well this is a long story,Mick started loosing weight In February. We then went...

very

•5 months ago

23 Replies

Immunocompromised?

Hi everyone I have looked at some pinned articles and still wanted to put this question out there. As a person who is Stage 0, is in W&W who has healthy...

Hi everyone I have looked at some pinned articles and still wanted to put this...

Audioblender

•5 months ago

11 Replies

Season's Greetings!

On behalf of CLL Support, we would like to wish everyone wherever you are - members, our Volunteers and Administrators, a very happy festive season, and...

On behalf of CLL Support, we would like to wish everyone wherever you are - memb...

pkguk2

Partner•5 months ago

19 Replies

First six-month blood test, and my lymphocytes have gone down!

I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my...

I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocyt...

Jazzandblues

•5 months ago

6 Replies

Haven’t posted for a while 😊

Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them...

Well I have a a hard time these past couple of months I had my mother in law in ...

Eirinik

•5 months ago

4 Replies

Why is early-stage chronic-lymphocytic-leukemia-treatment delayed

I found this article interesting, since I am in the active surveillance camp…...

I found this article interesting, since I am in the active surveillance camp….....

Edalv

•5 months ago

8 Replies

Venclexta & Obinutuzumab not working?

I am getting ready for my 6th infusion, all my bloodwork is practically normal. I am Trisomy 12 with notch 1, NRAS, ATM and MITF. Before I started treatment my...

I am getting ready for my 6th infusion, all my bloodwork is practically normal. ...

Corgidad

•5 months ago

17 Replies

Gods gift of a breath taking sunset shared with my son, his wife and our 4 grandchildren

and here is Gods gift of s spectacular sunset we enjoyed together

skipro

•5 months ago

14 Replies

happened to see this article In a news feed regarding B and T cells, Covid and antibodies…

I have wondered why if we don’t make antibodies by getting vaccinated, then why bother. This article gives me some hope that we are protected more than I...

I have wondered why if we don’t make antibodies by getting vaccinated, then wh...

Curling123

•5 months ago

15 Replies

hu CAR-T 19 IL-18 4th Generation Clinical Trial 90 Day Check-up With All of My Favorite Tests

It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my FCR treatment. All of the other treatments didn't require...

It's been a long time since I have received a MRD negative diagnosis, 13 years t...

steve5441

•5 months ago

20 Replies

ASH 2023

https://www.patientpower.info/chronic-lymphocytic-leukemia/ash-2023-unveils-a-new-gold-standard-for-cll-treatment

https://www.patientpower.info/chronic-lymphocytic-leukemia/ash-2023-unveils-a-ne...

MovingForward4423

•5 months ago

8 Replies

Skin Rash

I have developed a skin rash all over my body for over a month now. I finished my second round of treatment; rituximab at the end of August 2023 and I have...

I have developed a skin rash all over my body for over a month now. I finished ...

Champlain

•5 months ago

7 Replies

cancer in blood 6 months after STC

Hi everyone, Goodness me a lot has happened in the 2 years since my last post. In April 2022, I was finally diagnosed with MF. It is my MPL gene that is...

Hi everyone, Goodness me a lot has happened in the 2 years since my last post....

PiperAlfie

•5 months ago

3 Replies

VENETOCLAX-RITUBIMAX SIDE EFFECTS

Has anyone experienced neurological side effects, like some loss of vision, feeling shaky, chills, and poor coordination while writing, after the second...

Has anyone experienced neurological side effects, like some loss of vision, f...

unairdefamille

•5 months ago

7 Replies

Thanks

Once again thank you for all your kindness.I know we have a fight on our hands ,and I will give more details in the near future. Jenny uk

Once again thank you for all your kindness.I know we have a fight on our hands ,...

very

•5 months ago

1 Reply

New diagnosis - MBL or CLL?

Hello again - updated name and avatar. Previously Dogsta. Well, after a strange 3 or 4 weeks I finally was given a diagnosis of CLL by the Haematologist but...

Hello again - updated name and avatar. Previously Dogsta. Well, after a strange ...

Geoff_S

•5 months ago

10 Replies

Update-Covid antiviral

This evening I finally got the call from a consultant from , Stoke Mandeville hospital.Booked in for liver and kidney blood test and infusion .... what a...

This evening I finally got the call from a consultant from , Stoke Mandeville ho...

Stavrou1

•5 months ago

4 Replies

CLL Patients -- Venclexta

I am looking for CLL patients in the U.S. who have been diagnosed within 3-4 years and who are taking Venclexta as their treatment. I work with an...

I am looking for CLL patients in the U.S. who have been diagnosed within 3-4 yea...

AlexCam

•5 months ago

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Phosphoethanolamine

Does anyone know anything about this substance? A friend of mine is pushing it at me as a powerful anti-cancer drug with beneficial effects on the immune...

Does anyone know anything about this substance? A friend of mine is pushing it ...

hhk50

•5 months ago

19 Replies

Feeling scared

Thank you everyone for your kindness,I will give more details when I get my self together.Regards Jenny uk.

Thank you everyone for your kindness,I will give more details when I get my self...

very

•5 months ago

2 Replies

Thought for the day

If this helps anyone then I will post every day. “Be at least as interested in what goes on inside you as what happens outside. If you get the inside right,...

If this helps anyone then I will post every day. “Be at least as interested in ...

emailpat

•5 months ago

2 Replies

new NICE approved CLL treatment zanubrutinib TA931

https://www.nice.org.uk/guidance/ta931 You've probably already heard about this NICE recommended treatment - as always the devil is in the detail - not all...

https://www.nice.org.uk/guidance/ta931 You've probably already heard about this...

Random78

•5 months ago

10 Replies

3-Week Ibrutinib Holiday?

After five successful years on Ibrutinib, the only thing that I can do when I see my CLL doctor for a quarterly visit is to whine about the minimal side...

After five successful years on Ibrutinib, the only thing that I can do when I se...

hhk50

•5 months ago

23 Replies

Newbie-Question re. Mayo Clinic

I have just been diagnosed (official diagnosis yesterday when flow cytometry results came back), but me and Dr. Google were pretty sure I had CLL since my...

I have just been diagnosed (official diagnosis yesterday when flow cytometry res...

Living_and_Learning

•5 months ago

61 Replies

Chronic Lymphocytic Leukemia Therapy Guided by Measurable Residual Disease

From the New England Journal of Medicine 10th December 2023 "The CLL treatment landscape has been transformed by targeted drugs. Continuous BTK inhibitor...

From the New England Journal of Medicine 10th December 2023 "The CLL treatment ...

Jm954

Administrator•5 months ago

25 Replies

Feeling Sad and scared.

Mick has been diagnosed with pancreatic cancer which the Medics think has spread too the Liver.I will give more details when I feel that I can cope. Regards...

Mick has been diagnosed with pancreatic cancer which the Medics think has spread...

very

•5 months ago

52 Replies

New to an on line community

Never been evolved in an on line community before and not sure how to get the best out of it

Never been evolved in an on line community before and not sure how to get the be...

Geministars

•5 months ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2023

Medicare Part D question

New Treatment Guidelines to Chronic Lymphocytic Leukemia (CLL): Latest advances and emerging treatments.

venetoclax and obinutuzumab treatment for cll

Update

Immunocompromised?

Season's Greetings!

First six-month blood test, and my lymphocytes have gone down!

Haven’t posted for a while 😊

Why is early-stage chronic-lymphocytic-leukemia-treatment delayed

Venclexta & Obinutuzumab not working?

Gods gift of a breath taking sunset shared with my son, his wife and our 4 grandchildren

happened to see this article In a news feed regarding B and T cells, Covid and antibodies…

hu CAR-T 19 IL-18 4th Generation Clinical Trial 90 Day Check-up With All of My Favorite Tests

ASH 2023

Skin Rash

cancer in blood 6 months after STC

VENETOCLAX-RITUBIMAX SIDE EFFECTS

Thanks

New diagnosis - MBL or CLL?

Update-Covid antiviral

CLL Patients -- Venclexta

Phosphoethanolamine

Feeling scared

Thought for the day

new NICE approved CLL treatment zanubrutinib TA931

3-Week Ibrutinib Holiday?

Newbie-Question re. Mayo Clinic

Chronic Lymphocytic Leukemia Therapy Guided by Measurable Residual Disease

Feeling Sad and scared.

New to an on line community

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