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CLL Support

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All posts for December 2023

On Venetoclax, lymph node appeared

Trying not to worry but a lymph node in my armpit swelled up. I feel fine, no colds, fevers or recent vaccinations. Even did a Covid test because I have had...

Trying not to worry but a lymph node in my armpit swelled up. I feel fine, no co...

Alex830

•4 months ago

7 Replies

GAZYVA & VENCLEXTA…I thought it wasn’t working. Apparently it was, extremely well

Had PET scan yesterday, read the report today. I haven’t spoken to my Doc yet. But according to this report there are no signs of enlarged lymph nodes...

Had PET scan yesterday, read the report today. I haven’t spoken to my Doc yet. B...

Corgidad

•4 months ago

25 Replies

I got the sick in me

Today didn't work out as planned - a late Christmas lunch with my daughter, her husband and three kids. Yesterday I'd called to postpone, my mild cold having...

Today didn't work out as planned - a late Christmas lunch with my daughter, her ...

bennevisplace

•4 months ago

35 Replies

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Epcoritamab

Just wondering if there any UK CLLers that have started a clinical trial involving Epcoritamab and if so, how are they getting on with it?

Just wondering if there any UK CLLers that have started a clinical trial involvi...

Nicebaps

•4 months ago

10 Replies

Don't give up, Keep fighting

I began having severe sweats every night. Changed clothes 3 time every night and started sleeping on a plastic sheet as bedding was soaked also. Swelling in...

I began having severe sweats every night. Changed clothes 3 time every night an...

MCarter1954

•4 months ago

60 Replies

Very fast onset of Pneumonia! It’s a long story; are you comfortable…

My husband is on W&W for CLL, though he may start treatment soon. Well, he had a heavy cold (as did I) and though it lingered abit we weren’t too concerned....

My husband is on W&W for CLL, though he may start treatment soon. Well, he had a...

Tpdnotts

•4 months ago

15 Replies

Covid day four....U.K

Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now?...

Hi all. This sounds so stupid but I thought it was a regular cold. Just did a CO...

Basil01

•4 months ago

8 Replies

acute pericarditis

Just had the most horrendous chest pain, to the emergency room, overnight stay. Swift, great workup, no coronary disease, no pulmonary embolism, no Aortic...

Just had the most horrendous chest pain, to the emergency room, overnight stay. ...

Roll0verRover1

•4 months ago

4 Replies

Overseas vaccinations - CLL

HiI'm off to Barbados in February. I'm W and W but now wondering if I need any vaccinations because of my CLL. Any thoughts would be appreciated Thank...

HiI'm off to Barbados in February. I'm W and W but now wondering if I need any...

Fkatcake

•4 months ago

4 Replies

Helpless

Hubby had D&V for 48hrs beginning December, 2 days later lost vison in left side of left eye and had blurred vision, went to opticians, the referred him to A&E...

Hubby had D&V for 48hrs beginning December, 2 days later lost vison in left side...

Hidden

•4 months ago

21 Replies

Post Covid for a Cllier

Came down with Covid 7 days ago - like a horrid bout of flu. Managed to get anti virals sent by the hospital on the second day at 10pm- great service Chelsea...

Came down with Covid 7 days ago - like a horrid bout of flu. Managed to get anti...

Nucleusman

•4 months ago

15 Replies

online access to health records

Greetings both seasonal and personal to one and all. When I lurk here, I often wish I could post a message of hope and encouragement, that would fire up...

Greetings both seasonal and personal to one and all. When I lurk here, I often ...

Bribin

•4 months ago

12 Replies

Chest and right midel back pain

Hi everyone, I don't want to say the pain I have from car accident last year (October,19th 2022 I was hurting too much from that car accident but after two...

Hi everyone, I don't want to say the pain I have from car accident last year (Oc...

Karate

•4 months ago

12 Replies

Tested Positive for Covid today. On pirtobrutinib

Just tested positive for covid this morning. Have low grade fever, sore throat, cough, not constant, achey all over. I’m on pirtobrutinib, wrote my...

Just tested positive for covid this morning. Have low grade fever, sore throat, ...

ReneeSusan

•4 months ago

20 Replies

Out of remission.

After 16 years I had a lymph node appear 2 weeks ago. So I made an appointment with my Doctor this morning. My white blood is going up. I'm not surprised but I...

After 16 years I had a lymph node appear 2 weeks ago. So I made an appointment w...

Cocobuff

•4 months ago

6 Replies

Acalabrutinib to treat CLL & AIHA

I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic Anaemia, all admissions required blood...

I have been on W&W since 2018 but in this last year have had four admissions to ...

Wen_dy

•4 months ago

14 Replies

cellulitis

Hello, Has anyone had cellulitis? I have had it for just over a week. I have just completed a 2 day course of Ciprobay 500 and it didn’t work then I had a 2...

Hello, Has anyone had cellulitis? I have had it for just over a week. I have j...

ANA4

•4 months ago

26 Replies

Short term stopping Acalabrutinib

As I have reported, I currently have Covid19. Last Friday I was prescribed and began taking Antivirals. The course is for five days. I was told by my...

As I have reported, I currently have Covid19. Last Friday I was prescribed and...

kitchengardener2

•4 months ago

42 Replies

Zanubrutinib and hair loss?

Hello and Happy Holidays to all! After almost 5 years post captivate trial, I will likely start Zanubrutinib in February or March. My specialist suggested...

Hello and Happy Holidays to all! After almost 5 years post captivate trial, I w...

fell

•4 months ago

4 Replies

Finished Venetoclax

I have finished venetoclax one month ago, just in time for Christmas. My gastrointestinal issues have subsided but still here and less frequent. The real...

I have finished venetoclax one month ago, just in time for Christmas. My gastro...

Big_Dee

•4 months ago

6 Replies

Happy Christmas!

To all who have this disease in their lives in some way, I want to thank you all for the support and love I have received from you since I discovered this site...

To all who have this disease in their lives in some way, I want to thank you all...

Psmithuk

•4 months ago

4 Replies

Christmas

Wishing you all a very Happy 🎄 and a prosperous New Year in 2024. Do hope you are well enough to enjoy it . I am now Covid free but still coughing , sounds...

Wishing you all a very Happy 🎄 and a prosperous New Year in 2024. Do hope you a...

Stavrou1

•4 months ago

3 Replies

Season Greetings

Merry Christmas + Happy New Year to one + all....Thankful for this site providing information, support + always being there ready to help ❤

Merry Christmas + Happy New Year to one + all....Thankful for this site providin...

maryjean0209

•4 months ago

10 Replies

112 days post SCT

Hi everyone - for those interested in my Stem Cell Tranplant journey so far, I finally came home after 4 months away in the big smoke -and survived COVID with...

Hi everyone - for those interested in my Stem Cell Tranplant journey so far, I f...

Billarina

•4 months ago

18 Replies

ITP secondary to CLL TX hi-dx dexamethasome Response

I was treated with 4 X 40 mg dexamethasome and had labs on day 5 (cbc, cmp). Platelet count went from 23 to 50 with a somewhat increase in lymphocytes. No...

I was treated with 4 X 40 mg dexamethasome and had labs on day 5 (cbc, cmp). Pl...

cyclist123

•4 months ago

11 Replies

Finished Venetoclax, then Covid

My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis,...

My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fi...

Healmenow

•4 months ago

21 Replies

Ibrutinib stopped working, what’s next

Morning all,a quick recap on journey so far, FCR treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently...

Morning all,a quick recap on journey so far, FCR treatment which kept things at ...

Stacky66

•4 months ago

9 Replies

Lymphocytic infiltration

As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first...

As some of you may know that for the last year I have been suffering raised less...

cartwheels

•4 months ago

4 Replies

Dog bite not on my Xmas list

So… today, while walking my Old English Sheepdog, three dogs escaped from their leashes and one of them bit my leg. They also tried to bite my dog but because...

So… today, while walking my Old English Sheepdog, three dogs escaped from their ...

CoCoLuna11

•4 months ago

14 Replies

Should I be worried?

Hi All, my Haemo Lady, just called me with my Bone Marrow Biopsy results, She, said they were heavily infiltrated with CLL. A recent body scan also showed a...

Hi All, my Haemo Lady, just called me with my Bone Marrow Biopsy results, She, s...

Vindicatrix

•4 months ago

17 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2023

On Venetoclax, lymph node appeared

GAZYVA & VENCLEXTA…I thought it wasn’t working. Apparently it was, extremely well

I got the sick in me

Epcoritamab

Don't give up, Keep fighting

Very fast onset of Pneumonia! It’s a long story; are you comfortable…

Covid day four....U.K

acute pericarditis

Overseas vaccinations - CLL

Helpless

Post Covid for a Cllier

online access to health records

Chest and right midel back pain

Tested Positive for Covid today. On pirtobrutinib

Out of remission.

Acalabrutinib to treat CLL & AIHA

cellulitis

Short term stopping Acalabrutinib

Zanubrutinib and hair loss?

Finished Venetoclax

Happy Christmas!

Christmas

Season Greetings

112 days post SCT

ITP secondary to CLL TX hi-dx dexamethasome Response

Finished Venetoclax, then Covid

Ibrutinib stopped working, what’s next

Lymphocytic infiltration

Dog bite not on my Xmas list

Should I be worried?

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