Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for November 2023

enlarged lymp node

I had a ct scan yesterday and got the results today. I have enlarged left axillary lymph nodes, largest measuring 19x14 mm, previously subcentimeter and...

I had a ct scan yesterday and got the results today. I have enlarged left axilla...

DianeSH

•6 months ago

4 Replies

Cytoxin Storm prevention?

I'm a lymphoma survivor, and I get horrible rashes all over my body(mostly on delicate areas like knees, elbows, face, and neck) periodically. I'm wondering...

I'm a lymphoma survivor, and I get horrible rashes all over my body(mostly on d...

sunsetssr

•6 months ago

2 Replies

Aussie Internet fail.

See here _ https://www.bbc.co.uk/news/world-australia-67340901 _ If this means that AussieNeil can't censor me any longer, its a good thing!!! This is a...

See here _ https://www.bbc.co.uk/news/world-australia-67340901 _ If this mean...

andysnat

•6 months ago

5 Replies

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Shingrix Side Effects

I just had my second vaccine. Day two my side effects included: muscle pain where the injection went in, migraine, and nauseous. I didn’t have those symptoms...

I just had my second vaccine. Day two my side effects included: muscle pain wher...

Katie-LMHC-Artist

•6 months ago

23 Replies

Acalabrutinib headaches

I’ve been on Acalabrutinib for almost a year and continue to have morning headaches. A cup of coffee in the morning seemed to work to manage the morning...

I’ve been on Acalabrutinib for almost a year and continue to have morning headac...

Katie-LMHC-Artist

•6 months ago

10 Replies

drug holiday

I’m looking for some experiences please about taking an ibrutinib holiday. I see there have been some posts about clinical trials either stopping or reducing...

I’m looking for some experiences please about taking an ibrutinib holiday. I see...

Zoethedog

•6 months ago

18 Replies

Rx for Hyperimmune Egg?

Functional doc recommends taking hyper immune chicken egg powder to bolster my immune system. I'm 70, have CLL and on w&w since 2015. Never needed treatment....

Functional doc recommends taking hyper immune chicken egg powder to bolster my i...

Hidden

•6 months ago

5 Replies

obinutuzumab

I have started the Obinutuzumab Ventoclax regime. Had my 4 obinutuzumab infusions so haven’t got to the tablets till next week. It is a lot of work initially...

I have started the Obinutuzumab Ventoclax regime. Had my 4 obinutuzumab infusion...

Farleytiff

•6 months ago

2 Replies

Have COVID - should I get Paxlovid/

I have CLL and in W&W and also have ET. I am 67 yrs old, fully vaccinated and otherwise in good health Tested positive yesterday for COVID. Day three of my...

I have CLL and in W&W and also have ET. I am 67 yrs old, fully vaccinated and ot...

Lambo1

•6 months ago

15 Replies

V + O and elevate blood pressure, A1C and tricglyerides

My blood pressure and triglycerides were all in outstanding form a year ago. I started V + O 8 months ago and my most recent labs showed A1C up from 4.1 to...

My blood pressure and triglycerides were all in outstanding form a year ago. I ...

skipro

•6 months ago

17 Replies

Shingrex

Hi All, to continue my 'Shingrex' saga, My Haematologist arranged for me to have the 'Shingrex' vaccine and I was supposed to have it at the same time as...

Hi All, to continue my 'Shingrex' saga, My Haematologist arranged for me to hav...

Vindicatrix

•6 months ago

6 Replies

Eight measures that can slow ageing by up to six years - healthy sleep and regular exercise may slow pace of body’s biological ageing

The Guardian : https://www.theguardian.com/science/2023/nov/06/scientists-name-eight-measures-that-can-slow-ageing-by-up-to-six-years Scientists name eight...

The Guardian : https://www.theguardian.com/science/2023/nov/06/scientists-name-...

lankisterguy

Volunteer•6 months ago

6 Replies

Chillblains

I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link...

I have SLL and recently have had a few occurrences of Chillblains, my son is a C...

GerryPL

•6 months ago

23 Replies

Covid, strange beast.

I find Covid a bizarre virus. I have had 3 times , hospitalised once. I am in remission after stage 4 diagnosis in 2020. My wife last returned from a company...

I find Covid a bizarre virus. I have had 3 times , hospitalised once. I am in re...

stevesmith1964

•6 months ago

4 Replies

interesting report on covid complications for those with high blood pressure

https://www.msn.com/en-us/health/medical/keeping-your-blood-pressure-below-this-number-reduces-risk-of-severe-covid-study-finds/ar-AA13Vabl?ocid=hpmsn&cvid=9cdb

https://www.msn.com/en-us/health/medical/keeping-your-blood-pressure-below-this-...

craterlake

•6 months ago

8 Replies

CAR-T FOR A VERY YOUNG ALL PATIENT NOW A FRESHMAN AT UNIVERSITY OF PENN WHERE IT ALL BEGAN

https://pci.upenn.edu/emily-whitehead-the-first-child-to-be-cured-of-cancer-with-penn-invented-car-t-therapy-is-now-a-freshman-at-penn/...

https://pci.upenn.edu/emily-whitehead-the-first-child-to-be-cured-of-cancer-with...

steve5441

•6 months ago

8 Replies

stopping ibrutinib after 5 years

hi - just wondering if anyone else has stopped ibrutinib and how things are going for them? I stopped ibrutinib 12 months ago because of severe daily muscle...

hi - just wondering if anyone else has stopped ibrutinib and how things are goin...

Prettywombat

•6 months ago

38 Replies

Thoughts on Medicinal mushrooms and fermented foods.

Hi, I am interested in opinions regarding the benefits of medicinal mushrooms and fermented foods to support the immune system. I have recently been diagnosed...

Hi, I am interested in opinions regarding the benefits of medicinal mushrooms an...

JLD1969

•6 months ago

9 Replies

nutritional support/supplements for CLL

Hi we have just had recent diagnosis of CLL Any dietary or supplements tips? Have heard Green tea is helpful?

Hi we have just had recent diagnosis of CLL Any dietary or supplements tips? H...

kingfishermountain

•6 months ago

49 Replies

vaccines

hi everyone!! I’ve recently ( couple of weeks ago) been diagnosed with CLL waiting for bone marrow biopsy now as it’s not understood why I’m so poorly so no...

hi everyone!! I’ve recently ( couple of weeks ago) been diagnosed with CLL wai...

Dragonfly766

•6 months ago

63 Replies

Finished Obinutuzumab treatment!

Feeling great, I finished Obinutuzumab treatments today. I gained 10 pounds during the process. Hoping that is short lived. I will continue with daily...

Feeling great, I finished Obinutuzumab treatments today. I gained 10 pounds duri...

Wendy328

•6 months ago

21 Replies

Atorvastatin and Ibrutinib

Just look for any others on Atorvastatin and Ibrutinib? Been advised that I should go ahead after 5 years of delaying. I have put a question into my...

Just look for any others on Atorvastatin and Ibrutinib? Been advised that I sho...

RobertCLL

•6 months ago

12 Replies

UK Covid Enquiry

Well, the Public Enquiry is throwing up some interesting evidence. By definition, most of us with CLL are over 60 (not all, I know) and we are classed,...

Well, the Public Enquiry is throwing up some interesting evidence. By definiti...

SERVrider

•6 months ago

33 Replies

stopping Acalabrutinib

I have had to stop treatment twice now for 4-5 days. No problems at all and didn’t affect blood results

I have had to stop treatment twice now for 4-5 days. No problems at all and did...

1234-1234-1234

•6 months ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2023

enlarged lymp node

Cytoxin Storm prevention?

Aussie Internet fail.

Shingrix Side Effects

Acalabrutinib headaches

drug holiday

Rx for Hyperimmune Egg?

obinutuzumab

Have COVID - should I get Paxlovid/

V + O and elevate blood pressure, A1C and tricglyerides

Shingrex

Eight measures that can slow ageing by up to six years - healthy sleep and regular exercise may slow pace of body’s biological ageing

Chillblains

Covid, strange beast.

interesting report on covid complications for those with high blood pressure

CAR-T FOR A VERY YOUNG ALL PATIENT NOW A FRESHMAN AT UNIVERSITY OF PENN WHERE IT ALL BEGAN

stopping ibrutinib after 5 years

Thoughts on Medicinal mushrooms and fermented foods.

nutritional support/supplements for CLL

vaccines

Finished Obinutuzumab treatment!

Atorvastatin and Ibrutinib

UK Covid Enquiry

stopping Acalabrutinib

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