Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for November 2023

RSV vaccination

hi: I just read a concerning message from Your Local Epidemiologist, a newsletter I subscribe to, about exponential growth of RSV infections in the US. My...

hi: I just read a concerning message from Your Local Epidemiologist, a newslette...

mbbinbrooklyn

•6 months ago

25 Replies

Zanubrutinib or O&V

The CLL specialist that we are seeing is giving my husband the choice between O&V and Zanubrutinib. We are trying to make the best decision, but struggling....

The CLL specialist that we are seeing is giving my husband the choice between O...

Cb1391

•6 months ago

58 Replies

SARS-CoV-2 Virologic Rebound With Nirmatrelvir–Ritonavir Therapy - An Observational Study, Annals of Internal Medicine, 14 November 2023.

This is a follow-up to CLLerinOZ's post 2 months back on Paxlovid guidelines - this time from research out of the US. It profiles a 1 in 5 incidence in...

This is a follow-up to CLLerinOZ's post 2 months back on Paxlovid guidelines - t...

cujoe

•6 months ago

2 Replies

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Premature cardiac risk

“20” percent of humans have elevated lipoprotein (a), putting them at risk for heart attack, stroke, and aortic stenosis. Unfortunately, only 3/10 of a percent...

“20” percent of humans have elevated lipoprotein (a), putting them at risk for h...

Yuck

•6 months ago

3 Replies

Don’t forget about your heart!

Since this topic has recently come up, here is a helpful link. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9482082/ Best to all! Yuck

Since this topic has recently come up, here is a helpful link. https://www.ncbi...

Yuck

•6 months ago

1 Reply

Ibrutinib resistance

Resistance to IB after 6 yrs.. mutations c481 & Plcg2. Still on IB until progression. 13q, zap 70. What's next? No definitive answers from Onco/Hema Doc...

Resistance to IB after 6 yrs.. mutations c481 & Plcg2. Still on IB until progre...

Rogerinhorn2015

•6 months ago

3 Replies

Paxlovid while on Calquence

I just tested positive and my GP is call in Rxfor Paxlovid, I’m currently taking Calquence. I read on here, I thought, that I may need to stop the Calquence...

I just tested positive and my GP is call in Rxfor Paxlovid, I’m currently taking...

Eedew

•6 months ago

10 Replies

Preventing COVID-19 & Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET

Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET /...

Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL Dur...

lankisterguy

Volunteer•6 months ago

4 Replies

maskless cancer hospital

I’m sitting in a waiting room in The Christie Hospital in Manchester, wearing my KN95 mask. I’ve been through the cafe, had bloods and walked around. I am the...

I’m sitting in a waiting room in The Christie Hospital in Manchester, wearing my...

Mandy56

•6 months ago

95 Replies

60 DAYS IN, QUICK UPDATE ON TODAY'S DR VISIT huCAR-T 19 IL-18 4th GENERATION CLINICAL TRIAL

60 days have gone by since I received my new T- Cells. I have been neutropenic, average ANC of about 1.0 for the last 2 months and my Fibrinogen levels...

60 days have gone by since I received my new T- Cells. I have been neutrop...

steve5441

•6 months ago

36 Replies

Amoxicillin and CLL

My husband had a tooth extracted and was prescribed amoxicillin to prevent infection. After 2 days, no infection but he has chills, icy aches and headaches....

My husband had a tooth extracted and was prescribed amoxicillin to prevent infec...

KLWC

•6 months ago

18 Replies

Update.

Recent blood counts. Hb = 135, Wbc = 10.6, Platelets = 223, Lymphocytes = 2.6. Slowly recovering from the bout of anemia that has been plaguing me. Started...

Recent blood counts. Hb = 135, Wbc = 10.6, Platelets = 223, Lymphocytes = 2.6. ...

Jacksc06

•6 months ago

32 Replies

clinical trial vyd222 monoclonal AB against covid update science 37

thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting...

thought i'd give an update on my experience with this study. i got my first infu...

bachplayer13

•6 months ago

12 Replies

Hip pain

I started V/O treatment in April of this year. Finished O in September, will take 4 V daily to end February. Oncologist says I’m in remission and bloodwork...

I started V/O treatment in April of this year. Finished O in September, will tak...

Cottager1989

•6 months ago

12 Replies

Looking for CLL Specialist

I am a new CLL diagnosis. I have been told by others with CLL that I must have a CLL specialist as part of my team. In trying to search for this I find...

I am a new CLL diagnosis. I have been told by others with CLL that I must have ...

farkmark

•6 months ago

7 Replies

Retuximab

I have had CLL for nearly 12 years. When I was first diagnosed I had chemotherpy for 4 months, then I went on Ibrutinib which gave me heart palpitations, but...

I have had CLL for nearly 12 years. When I was first diagnosed I had chemotherp...

flippingnora1

•6 months ago

9 Replies

Alternative Covid Jab

Hi All, I had my Sanofi Vaccine yesterday, which was given as an alternative to Pfizer which I had bad reactions to. In Scotland I had to get my Haematologist...

Hi All, I had my Sanofi Vaccine yesterday, which was given as an alternative to ...

Vindicatrix

•6 months ago

7 Replies

Covid vax and AFIB

just as an FYI, I had a Covid vaccination (Pfizer) a couple of days ago and I developed AFIB within a few hours. It did resolve itself overnight after I took...

just as an FYI, I had a Covid vaccination (Pfizer) a couple of days ago and I de...

Awksom

•6 months ago

2 Replies

Elevated LDH

Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other...

Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago...

leahleah

•6 months ago

22 Replies

Supportive wife

Hi there! My husband was diagnosed with CLL in 2015. He had zero issues, I was just concerned about esophageal issues (burping) and requested a 50-year full...

Hi there! My husband was diagnosed with CLL in 2015. He had zero issues, I was j...

Cb1391

•6 months ago

8 Replies

Vitamin C injections and supplements

I have CLL for seven years. My doctor does not think I will ever need treatments. I go to a local hematologist and to Moffitt once a year. But, I of course...

I have CLL for seven years. My doctor does not think I will ever need treatment...

Powey

•6 months ago

20 Replies

A new kid on the block? Nemtabrutinib

Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this...

Hi All, There is a new targeted drug in Clinical Trials that may offer a new tr...

Varney

•6 months ago

18 Replies

Need help

Report Corkyrissa profile imageCorkyrissaNewdawn 3 hours ago Hi Newdawn My name I use is Corkrissa , I’m female 79 dx with cll after having breast cancer...

Report Corkyrissa profile imageCorkyrissaNewdawn 3 hours ago Hi Newdawn My...

Corkyrissa

•6 months ago

4 Replies

symptoms

hello, I’ve had Covid vaccine last Friday and I still feel rubbish. Tired, nauseous , dizzy and forgetful. It’s like my brain doesn’t work properly. This is...

hello, I’ve had Covid vaccine last Friday and I still feel rubbish. Tired, naus...

Idalmis

•6 months ago

7 Replies

Glucosamine

I take Venetoclax for CLL. can I take Glucosamine to help with painful knees?

FranceMary

•6 months ago

9 Replies

Two articles with interesting new information on current treatments from Targeted Oncology and OncLive.

Lamanna Details Evolution of CLL Treatment Following ...

virdieblue

•6 months ago

1 Reply

Shingrex Backseat.

Hi All, and thanks you for the great response to my query re the 'Shingles' jab. However it has had to take a 'Backseat' for a while, as I had a phone call...

Hi All, and thanks you for the great response to my query re the 'Shingles' jab....

Vindicatrix

•6 months ago

9 Replies

stomach pains, on ibrutinib and ventoclax

morning all, wanted to ask has anyone else had problems with stomach issues whilst on ibrutinib and Ventoclax

morning all, wanted to ask has anyone else had problems with stomach issues whil...

Givemestrength23

•6 months ago

7 Replies

CLL consultation

It is a year ago since I posted to this wonderful site. I do look every day, sometimes for two minutes, sometimes for 20 minutes. The warmth, support and...

It is a year ago since I posted to this wonderful site. I do look every day, som...

Divisidero

•6 months ago

8 Replies

Evening walk in the snow

so I missed the peak of Fall colors but I will happily enjoy this walk in the forest in a snow storm in November. What a boost to my spirits! I should have...

so I missed the peak of Fall colors but I will happily enjoy this walk in the fo...

skipro

•6 months ago

30 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2023

RSV vaccination

Zanubrutinib or O&V

SARS-CoV-2 Virologic Rebound With Nirmatrelvir–Ritonavir Therapy - An Observational Study, Annals of Internal Medicine, 14 November 2023.

Premature cardiac risk

Don’t forget about your heart!

Ibrutinib resistance

Paxlovid while on Calquence

Preventing COVID-19 & Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET

maskless cancer hospital

60 DAYS IN, QUICK UPDATE ON TODAY'S DR VISIT huCAR-T 19 IL-18 4th GENERATION CLINICAL TRIAL

Amoxicillin and CLL

Update.

clinical trial vyd222 monoclonal AB against covid update science 37

Hip pain

Looking for CLL Specialist

Retuximab

Alternative Covid Jab

Covid vax and AFIB

Elevated LDH

Supportive wife

Vitamin C injections and supplements

A new kid on the block? Nemtabrutinib

Need help

symptoms

Glucosamine

Two articles with interesting new information on current treatments from Targeted Oncology and OncLive.

Shingrex Backseat.

stomach pains, on ibrutinib and ventoclax

CLL consultation

Evening walk in the snow

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