Posts - CLL Support | HealthUnlocked

CLL Support

22,517 members • 38,675 posts

All posts for November 2023

FLC Serum

So I just got back my Free Light Chain Serum results and honestly, I can't figure out what this means. Kappa FLC, serum 20.84 (High) Lambda FLC - 7.89...

So I just got back my Free Light Chain Serum results and honestly, I can't figur...

Presto51

•5 months ago

7 Replies

Drugs.com FDA Investigating Serious Risk of T-cell Malignancy Following BCMA-Directed (CAR) T cell Immunotherapies

https://newsletters.drugs.com/l/HXdBAPWpNu8924jmwPHb3VvA/LQCEtlvhvlnyLNQoIP4Gfw/jLVV3dtGc2BI8hLRqrMq892g "Although the overall benefits of these products...

https://newsletters.drugs.com/l/HXdBAPWpNu8924jmwPHb3VvA/LQCEtlvhvlnyLNQoIP4Gfw/...

JerrysGirl3

•5 months ago

2 Replies

insect bite infections

As we know insect bites is something that plagues the entire CLL community. I was wondering if anyone has had prophylactic antibiotics when they travel to...

As we know insect bites is something that plagues the entire CLL community. I wa...

MovingForward4423

•5 months ago

27 Replies

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Hair Loss with Acalabrutinib

I have been taking this drug since March of this year and in the past month my hair has started to fall out drastically. I had long hair to my waist but cut it...

I have been taking this drug since March of this year and in the past month my h...

Vinweesel2023

•5 months ago

28 Replies

FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks

From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: FDA...

From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 2...

cujoe

•5 months ago

6 Replies

Results for fatty kidney

Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer...

Hi I have just received my results for my CT scan with contrast for a fatty lump...

Pekingese

•5 months ago

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Feeling very cold

Can anyone tell me if it's normal to feel very cold with CLL. It seems to be a new symptom, I have been like it for last 2 to 3 weeks. I'm wearing 2 jumpers...

Can anyone tell me if it's normal to feel very cold with CLL. It seems to be a n...

PusscatsGoodies

•5 months ago

57 Replies

Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 Data is starting to roll in on Covid-19 vaccine inequities this fall

Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28...

lankisterguy

Volunteer•5 months ago

5 Replies

blood test

all good apart from one box === igG range meant to be 6 to 16 mine is 1 Anyone else had this

all good apart from one box === igG range meant to be 6 to 16 mine is 1 Anyon...

Jsk1950

•5 months ago

7 Replies

Atorvastatin and Ibrutinib?

I asked the group about a month ago if it was OK to take Atorvastatin and Ibrutinib, several members came back and said they have been on the combination....

I asked the group about a month ago if it was OK to take Atorvastatin and Ibrut...

RobertCLL

•5 months ago

27 Replies

R-CHOP Treatment

After FCR chemo 15 years ago and numerous oral medications since I am in chemo again. They tried a milder chemo to reduce my lymph nodes (they were huge)....

After FCR chemo 15 years ago and numerous oral medications since I am in chemo a...

scorpio74944

•5 months ago

16 Replies

secondary cancers

Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract...

Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20%...

skipro

•5 months ago

46 Replies

Bruising

Hi All,I was diagnosed 11 years ago - now 73 years old. I've never had any treatment for my CLL and bloods are pretty stable. I've always had bruising to my...

Hi All,I was diagnosed 11 years ago - now 73 years old. I've never had any trea...

is-sul

•5 months ago

7 Replies

Gazyva and Ventalox

I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and...

I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. N...

CityL

•5 months ago

8 Replies

dry cough

I am on Q &V treatment for CLL but I seem to have a perpetual dry cough. Is this a side affect.

I am on Q &V treatment for CLL but I seem to have a perpetual dry cough. Is this...

Farleytiff

•5 months ago

5 Replies

Smelly sweats

I have been on wait and watch for over 10 years and though constantly reading views of all of you, I haven't felt the need yet to post anything because there...

I have been on wait and watch for over 10 years and though constantly reading vi...

Marthand

•5 months ago

7 Replies

Hiccups!!

My dad has just started treatment this week Mon and Tues ( obinutuzumab and ventoclax) and he has started to complain about never ending hiccups. I thought I...

My dad has just started treatment this week Mon and Tues ( obinutuzumab and vent...

CBJC8552

•5 months ago

15 Replies

CLL and now very elevated Monocytes

I am under treatment for CLL using Venetoclax. It has been going well and my lymphocytes are controlled with a minimal dosage of Venetoclax of 50 mg.I just had...

I am under treatment for CLL using Venetoclax. It has been going well and my lym...

ralphfelo

•5 months ago

10 Replies

Thank you all for your words.

I am in the hospital now, my neutrophils are at zero! I am getting pumped up, so hopefully this will help. I have an infection going on, so we are attacking...

I am in the hospital now, my neutrophils are at zero! I am getting pumped up, s...

Lisbon2022

•5 months ago

12 Replies

Infections

I have been on O/V for almost six months. One O infusion to go. My problemIs I think my anemia is becoming severe. I am really. Exhausted most of the time and...

I have been on O/V for almost six months. One O infusion to go. My problemIs I t...

Lisbon2022

•5 months ago

6 Replies

Due to start on Ventoclax

Hi All, 3 months since first treatment of Ibrutinib and due to have 1st Venetoclax dose next week. Did anyone have any side effects with this combination. I...

Hi All, 3 months since first treatment of Ibrutinib and due to have 1st Venetocl...

Guinness4822

•5 months ago

30 Replies

CLL investigation

I am on wait and watch for 2 years. I have changed my haematologist. New haemo has asked for again FISH. In addition he has asked full body CT scan and...

I am on wait and watch for 2 years. I have changed my haematologist. New haemo h...

Wimco

•5 months ago

23 Replies

Easy to understand info on shingles and treatments

https://www.theepochtimes.com/health/the-essential-guide-to-shingles-herpes-zoster-symptoms-causes-treatments-and-natural-approaches-5523997?utm_source=Health&s

https://www.theepochtimes.com/health/the-essential-guide-to-shingles-herpes-zost...

craterlake

•5 months ago

2 Replies

atrial fibrillation and shortness of breath

I was diagnosed back in February of 2021 with CLL and almost immediately went on Calquence twice a day 100 mg. It took approximately 3-4 months for numbers to...

I was diagnosed back in February of 2021 with CLL and almost immediately went on...

Flip123

•5 months ago

7 Replies

Canadian SCIG and IVIG study

Many us have what is called Secondary Antibody Deficiency. It can be diagnosed via low Total IgG (ImmunoGlobulin G), and often low IgA and IgM, too, as well...

Many us have what is called Secondary Antibody Deficiency. It can be diagnosed v...

SeymourB

•5 months ago

14 Replies

Hi.good to be back

hi , I haven’t been on here for about 6 months: I have been in hospital for most of that time . I started getting headaches which were getting progressively...

hi , I haven’t been on here for about 6 months: I have been in hospital for most...

9876

•5 months ago

26 Replies

shingles vaccine

Hi folks This is a brilliant site has keep me steady since my husband’s diagnosis of SLL now CLL. My Husband had been W&W for 6 years, now on acalabrutinib...

Hi folks This is a brilliant site has keep me steady since my husband’s diagnos...

Charles4

•5 months ago

32 Replies

O&V treatment

Hello all Some good news . I took my last Venetoclax on Wed . My oncologist is happy that it's stable . In will always have Laeukemia his words. That goes...

Hello all Some good news . I took my last Venetoclax on Wed . My oncologist is...

Stavrou1

•5 months ago

30 Replies

Shingrix Second Dose

l had my second jab on Thursday. Side affects are not as bad as the first, but I spent most of the night awake with shivers, aches and a horrible headache....

l had my second jab on Thursday. Side affects are not as bad as the first, but I...

MovingForward4423

•5 months ago

2 Replies

Advise on CLL Treatment Options - UK

Hi Everyone In January 2024 I will be seeing my CLL specialists to discuss the treatment options now available for me in the UK. This will be my second...

Hi Everyone In January 2024 I will be seeing my CLL specialists to discuss the ...

Ageon

•5 months ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2023

FLC Serum

Drugs.com FDA Investigating Serious Risk of T-cell Malignancy Following BCMA-Directed (CAR) T cell Immunotherapies

insect bite infections

Hair Loss with Acalabrutinib

FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks

Results for fatty kidney

Feeling very cold

Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 Data is starting to roll in on Covid-19 vaccine inequities this fall

blood test

Atorvastatin and Ibrutinib?

R-CHOP Treatment

secondary cancers

Bruising

Gazyva and Ventalox

dry cough

Smelly sweats

Hiccups!!

CLL and now very elevated Monocytes

Thank you all for your words.

Infections

Due to start on Ventoclax

CLL investigation

Easy to understand info on shingles and treatments

atrial fibrillation and shortness of breath

Canadian SCIG and IVIG study

Hi.good to be back

shingles vaccine

O&V treatment

Shingrix Second Dose

Advise on CLL Treatment Options - UK

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