Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for October 2023

high WBC count with Brukinsa

My Partner’s white blood cell count has continued to grow since he started Brukinsa. The count has increased from around 25,000 to over 72,000. The doctor...

My Partner’s white blood cell count has continued to grow since he started Bruki...

1955Leilani

•7 months ago

11 Replies

The dreaded covid

Hi Having recently come home from a holiday, both my husband and I have tested positive for covid. He’s never had it so he’s been quite poorly, I’m the one on...

Hi Having recently come home from a holiday, both my husband and I have tested ...

robertsw

•7 months ago

2 Replies

In ER for low HGB

This is my first time posting since diagnosis in September 2022. I am a 63-year-old female, who has otherwise been healthy. I presented with just the higher...

This is my first time posting since diagnosis in September 2022. I am a 63-year-...

Goopteal

•7 months ago

11 Replies

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Massages

hello! Does anyone know if massages are contraindicated when you have CLL? Greetings and thanks

hello! Does anyone know if massages are contraindicated when you have CLL? Gre...

Bixilon

•7 months ago

9 Replies

Cure Magazine (Special Issue) Leukemia/Lymphoma 09.2023

I just received my latest Cure Magazine by mail. The magazine can be accessed online and if you live in the states you can subscribe to have the magazine...

I just received my latest Cure Magazine by mail. The magazine can be accessed on...

Katie-LMHC-Artist

•7 months ago

2 Replies

Indolent CLL

If you have indolent CLL. Do you really have CLL?

emg112253

•7 months ago

14 Replies

FIRST IVIG

I just had my first IVIG infusion, and thought it would be useful to others to report on my esperience. I'll be six years in Watch and Wait this coming March,...

I just had my first IVIG infusion, and thought it would be useful to others to r...

wizzard166

•7 months ago

18 Replies

Shinrex vaccine

Hi everyone, would anyone know in this knowledge site know how often you have the Shinrex vaccine? Is it for life or does it last a few years.

Hi everyone, would anyone know in this knowledge site know how often you have th...

Pekingese

•7 months ago

6 Replies

Shingrix availability on PBS in Australia from 1 November has been confirmed

SEE THIS REPLY for the latest update to this post:...

CLLerinOz

Administrator•7 months ago

3 Replies

Anybody BRCA2 positive?

Hi everyone,I was diagnosed with high count MBL (pre-CLL) last Spring, and have recently found out that my father and all his living siblings (all elderly now)...

Hi everyone,I was diagnosed with high count MBL (pre-CLL) last Spring, and have ...

MizLeelee

•7 months ago

6 Replies

I've got Covid and the NHS system fails to work

I started showing symptoms Sunday. I took my first test early on Monday morning and the second two hours later. Both showed positive in less than 3 minutes/...

I started showing symptoms Sunday. I took my first test early on Monday morning ...

Harvist

•7 months ago

21 Replies

Viral infection to Covid and Flu booster gap.

Diag 2015. FCR 2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate...

Diag 2015. FCR 2018, 2023 still in full remission (FISH), My Lymphocyte count is...

JigFettler

Volunteer•7 months ago

13 Replies

Side effects of both chemotherapy and radiation to treat CLL and lymphoma

I’m addressing seoul1949 here. First diagnosed with CLL in 2002 and then more recently with non-Hodgkin’s lymphoma. Over the last five years I’ve had two...

I’m addressing seoul1949 here. First diagnosed with CLL in 2002 and then mor...

leopardo

•7 months ago

1 Reply

Plain English Translation for "Of Interest to US CLLers Getting Financial Assistance for Meds" [a bit convoluted, confusing "Plain English"]

[translation: In the example cited below, the patient would save about $11 each day for a year.] ***** While many patients rely on drugmakers’...

[translation: In the example cited below, the patient would save about $11 each ...

70s-80s-overlander

•7 months ago

5 Replies

110,000 white blood cell count

white blood count 110,000 is it time for treatment?

Createdpath

•7 months ago

21 Replies

Richters Transformation

I recently informed here that after nine therapy free years since 2014 (FCR) my CLL bounced back in 10/2022 with an DLBCL and a suspicion of Richters. Biopsy...

I recently informed here that after nine therapy free years since 2014 (FCR) my ...

seoul1949

•7 months ago

13 Replies

Of interest to US CLLers getting financial assistance for meds

Change in US coverage laws may benefit those getting copay or discount assistance from drug makers and nonprofits....

Change in US coverage laws may benefit those getting copay or discount assistanc...

scryer99

•7 months ago

7 Replies

Choice of Covid Vaccine?

In Scotland at the moment, due to a severe reaction to my 5th and 6th Phizer jabs, my Haematologist has told me to press for an alternative. I have called the...

In Scotland at the moment, due to a severe reaction to my 5th and 6th Phizer jab...

Vindicatrix

•7 months ago

11 Replies

I’m a microbiologist and here’s what (and where) I never eat

I'm not really a microbiologist, but the author of this article is https://theconversation.com/im-a-microbiologist-and-heres-what-and-where-i-never-eat-213404...

I'm not really a microbiologist, but the author of this article is https://theco...

bennevisplace

•7 months ago

2 Replies

Face to face consultation

So I am to see my consultant in a face to face consultation this afternoon. I have telephone consultations for the last three years. My doctor said she isn't...

So I am to see my consultant in a face to face consultation this afternoon. I ha...

kitchengardener2

•7 months ago

19 Replies

CLL and Lupus labs

on 9/22/23 i had labs as follows : Blood sodium was low at 132 (was 122 when I was critical in mid July ) Chloride 99 WBC 39.69 RBC 2.66 Hemoglobin 10.0...

on 9/22/23 i had labs as follows : Blood sodium was low at 132 (was 122 when I ...

JerrysGirl3

•7 months ago

10 Replies

Herb-Drug Interaction with Acalabrutinib and Boswellia Serrata

Looking for information to see if there is a herb-drug interaction between Acalabrutinib and Boswellia. Boswellia is an herb that is good for joint pain and...

Looking for information to see if there is a herb-drug interaction between Acala...

Katie-LMHC-Artist

•7 months ago

23 Replies

How Long for BTK Inhibitor to Reduce WBC.

I started Brutkinsa Aug 28. On Sept 12th, my Dr visit showed that my WBC doubled from 14K to 28K (I should note that the reason I was started on it so early is...

I started Brutkinsa Aug 28. On Sept 12th, my Dr visit showed that my WBC doubled...

MyCLLJourney

•7 months ago

10 Replies

Acalabrutinib before Colonoskopy

Does anyone know if it is necessary to depose Acalabrutinib before a colonoscopy? If so, for how long?

Does anyone know if it is necessary to depose Acalabrutinib before a colonoscopy...

joerg

•7 months ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2023

high WBC count with Brukinsa

The dreaded covid

In ER for low HGB

Massages

Cure Magazine (Special Issue) Leukemia/Lymphoma 09.2023

Indolent CLL

FIRST IVIG

Shinrex vaccine

Shingrix availability on PBS in Australia from 1 November has been confirmed

Anybody BRCA2 positive?

I've got Covid and the NHS system fails to work

Viral infection to Covid and Flu booster gap.

Side effects of both chemotherapy and radiation to treat CLL and lymphoma

Plain English Translation for "Of Interest to US CLLers Getting Financial Assistance for Meds" [a bit convoluted, confusing "Plain English"]

110,000 white blood cell count

Richters Transformation

Of interest to US CLLers getting financial assistance for meds

Choice of Covid Vaccine?

I’m a microbiologist and here’s what (and where) I never eat

Face to face consultation

CLL and Lupus labs

Herb-Drug Interaction with Acalabrutinib and Boswellia Serrata

How Long for BTK Inhibitor to Reduce WBC.

Acalabrutinib before Colonoskopy

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