Posts - CLL Support | HealthUnlocked

CLL Support

22,676 members • 38,921 posts

All posts for October 2023

V+O treatment

Hi I am here posting to find out information about V+0 for my husband who has CLL delection 13. His WBC count keeps on going higher and higher. It is currently...

Hi I am here posting to find out information about V+0 for my husband who has CL...

Cosby

•8 months ago

11 Replies

Some Potentially Alarming Changes to Blood

Hi All, CLL Diagnosed less than a year ago. 13 Q del. I am/was hoping for a slow progression of this disease, but my recent blood work is worrying me. I'll...

Hi All, CLL Diagnosed less than a year ago. 13 Q del. I am/was hoping for a sl...

Horsechestnut

•8 months ago

15 Replies

Bloods today

Well bloods today and both lympcyites and Whites are rising, been steadily increasing all year, decided to now see me every 10 weeks to keep an eye on things...

Well bloods today and both lympcyites and Whites are rising, been steadily incre...

cartwheels

•8 months ago

3 Replies

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Update.

Latest blood results Hb - 119, WBC - 5.9. Plts- 293. I am starting to feel a bit better of late. The steroids I am on has have improved my haemoglobin and I am...

Latest blood results Hb - 119, WBC - 5.9. Plts- 293. I am starting to feel a bit...

Jacksc06

•8 months ago

13 Replies

SORE AT CORNER OF MOUTH

Hello friends, I terminated a round of antibiotics to clear a sinus infection. Now I have dry mouth and a sore in one corner of my mouth. Is this something any...

Hello friends, I terminated a round of antibiotics to clear a sinus infection. N...

unairdefamille

•8 months ago

2 Replies

Evusheld replacement?

does anyone know if a prophylactic like Evusheld is being developed that will work on the new variants?

does anyone know if a prophylactic like Evusheld is being developed that will wo...

ElMaga

•8 months ago

2 Replies

detailed lecture on why t-cell response to covid or other pathogens can be more important then antibodies

Hi everyone , i posted a link to a dr. campbell recently about a new experimental vaccine for skin cancer etc. ... just for the record ; he is not someone i...

Hi everyone , i posted a link to a dr. campbell recently about a new experimenta...

craterlake

•8 months ago

2 Replies

Covid Vax when Sick?

Does anyone know whether it's advisable to get vaccinated when you're ill with something else? For the last week I've been laid out with either a cold or...

Does anyone know whether it's advisable to get vaccinated when you're ill with s...

Amberesque

•8 months ago

6 Replies

Sending love to all affected by the war in Israel

Strength and courage, Israel. May Adonai protect you. And bless too, all those in Gaza who would coexist with Israel in peace. May you have clean air and...

Strength and courage, Israel. May Adonai protect you. And bless too, all those ...

mdsp7

•8 months ago

11 Replies

CLL and SLL Medication Side Effects

Interesting information on managing common side effects of CLL drugs. See link:...

Interesting information on managing common side effects of CLL drugs. See link...

Katie-LMHC-Artist

•8 months ago

2 Replies

The CLL Medicine Cabinet - Choosing the Right Treatment for You

The CLL Medicine Cabinet- Choosing the Right Treatment for You - https://cllsociety.org/cll-medicine-cabinet/ - There are several factors your...

The CLL Medicine Cabinet- Choosing the Right Treatment for You - https://c...

lankisterguy

Volunteer•8 months ago

1 Reply

new info on booster shots affecting the immune system in a negative way and an alternative shot is available

hi everyone . fire season officially over in southern oregon today which is a relief ... i am still doing well on O+V ..🙂. started a year ago after major...

hi everyone . fire season officially over in southern oregon today which is a re...

craterlake

•8 months ago

34 Replies

hu CAR-T 19 IL-18 TRIAL 14 DAY BMB REPORT AND DR. VISIT DAY 21

I knew it was coming, a going away gift for being such a great patient. A BMB is ordered at day 14 of this clinical trial, groggy from 1mg of atavan earlier...

I knew it was coming, a going away gift for being such a great patient. A BMB is...

steve5441

•8 months ago

53 Replies

The more symptoms the better? Covid-19 vaccine side effects and long-term neutralizing antibody

I've just read the extensive discussion about post-vaccination side effects initiated by Sharastani "After COVID vaccination, when do ‘side effects’ become an...

I've just read the extensive discussion about post-vaccination side effects init...

gardening-girl

•8 months ago

21 Replies

Sotrovimab-Acalabrutinib

Hi everyone I have been triaged to receive Sotrovimab. I envision it will be tomorrow now. I have a couple of questions. First, do I need to stop...

Hi everyone I have been triaged to receive Sotrovimab. I envision it will be to...

jonathan7176

•8 months ago

9 Replies

Melatonin

Hi, I'm on Ibrutinib and have been for 5 weeks now, no side effects. I take melatonin each night along with cannabis oil which helps me sleep ( I've always...

Hi, I'm on Ibrutinib and have been for 5 weeks now, no side effects. I take mela...

Guinness4822

•8 months ago

10 Replies

After COVID vaccination, when do ‘side effects’ become an ‘adverse reaction’?

Hi I just had my regular seasonal COVID vaccination and with my previous 3 vaccinations my side effects have been awful. I purposely book them for a Friday...

Hi I just had my regular seasonal COVID vaccination and with my previous 3 vacc...

Sharastani

•8 months ago

17 Replies

Ventoclax and obinutuzumab versus acalabrutinib

I was diagnosed with stage C CLl in August with 2 treatment options. V+O for one year or Acalabrutinib for ever. Any views on the above or is it just the...

I was diagnosed with stage C CLl in August with 2 treatment options. V+O for on...

Farleytiff

•8 months ago

5 Replies

Covid, Flu and RSV vaccines

I’m looking for advice on spacing vaccines. I received the newest Covid vaccine on Sept 20. Is it best to space out the flu and RSV vaccines or receive them...

I’m looking for advice on spacing vaccines. I received the newest Covid vaccine ...

BlueJk

•8 months ago

15 Replies

contraindications of BTKI and osteopenia/Osteoporosis drug?

Does anyone in the active treatment of Lymphoma, with BTKI need treatment for osteoporosis or osteopenia has been warned by the Oncologist or a pharmacist...

Does anyone in the active treatment of Lymphoma, with BTKI need treatment for os...

sunsetssr

•8 months ago

17 Replies

WHEN YOUR CLINICAL TRIAL FAILS, WHAT DO YOU DO NEXT ?

Except for a monthly neulasta injection, my Nurex 2127 trial had been going pretty well. My blood counts were good, 13ish HGB 1,80 ALC 150 Plat ANC...

Except for a monthly neulasta injection, my Nurex 2127 trial had been goin...

steve5441

•8 months ago

30 Replies

Accidently took 2 Calquence tablets last night instead of one

I've been on Calquence for about 1.5 years. Started with 1 pill 2x daily and eventually cut back to just the evening dose. The morning dose was more than I...

I've been on Calquence for about 1.5 years. Started with 1 pill 2x daily and ev...

rwsehorn

•8 months ago

13 Replies

Anyone know any thing about clinical trial BMF-219 a covalent,mein inhibitor

I have been in Loxo clinical trial at MSK for 40 mo and have begun to slowly progress. I have been exploring options for next treatment plan.Have been seen at...

I have been in Loxo clinical trial at MSK for 40 mo and have begun to slowly pro...

Osprey69

•8 months ago

2 Replies

Another CLL ‘wobble’, seems like I’m ‘losing it’ slightly.

Hi all, and once more I am looking for information from the vast well of expertise which is out there. Recently I ‘wobbled’ about being in subset 6. The thing...

Hi all, and once more I am looking for information from the vast well of experti...

Petroc

•8 months ago

23 Replies

I'm back to whine about clavicle lump

I have another account here called Hollywollydoodle, depending on which device I log in with, sorry. The good news now is that my next appt with hema/onca is...

I have another account here called Hollywollydoodle, depending on which device I...

Blueberrytoast

•8 months ago

3 Replies

New ER for low hemoglobin

I am preaching to the choir to tell you that the US healthcare is a mess. I still do not have answers or a transfusion. My hem/onc wanted me back in the ER,...

I am preaching to the choir to tell you that the US healthcare is a mess. I stil...

Goopteal

•8 months ago

16 Replies

Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD- replay, slides and transcript

Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD...

Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD....

lankisterguy

Volunteer•8 months ago

2 Replies

LET'S TALK CLL- Patients & Doctors Discuss the Latest Live! SATURDAY, OCTOBER 14, 2023 Virtual program starts at 10am CDT 11am EDT

LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Latest Live! DATE: SATURDAY, OCTOBER 14, 2023 LOCATION: MD ANDERSON CANCER...

LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Lat...

lankisterguy

Volunteer•8 months ago

Be the first to reply

struggling

just finishing month 5 of ibrutinib and. Ventoclax does things improve along the way, had a good day yesterday today feeling decidedly under the weather....

just finishing month 5 of ibrutinib and. Ventoclax does things improve along the...

Givemestrength23

•8 months ago

7 Replies

COVID!

After a couple of days feeling under the weather, I (finally) tested positive for COVID this morning. I have a headache, and stuffy nose, nothing else. My...

After a couple of days feeling under the weather, I (finally) tested positive fo...

jonathan7176

•8 months ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2023

V+O treatment

Some Potentially Alarming Changes to Blood

Bloods today

Update.

SORE AT CORNER OF MOUTH

Evusheld replacement?

detailed lecture on why t-cell response to covid or other pathogens can be more important then antibodies

Covid Vax when Sick?

Sending love to all affected by the war in Israel

CLL and SLL Medication Side Effects

The CLL Medicine Cabinet - Choosing the Right Treatment for You

new info on booster shots affecting the immune system in a negative way and an alternative shot is available

hu CAR-T 19 IL-18 TRIAL 14 DAY BMB REPORT AND DR. VISIT DAY 21

The more symptoms the better? Covid-19 vaccine side effects and long-term neutralizing antibody

Sotrovimab-Acalabrutinib

Melatonin

After COVID vaccination, when do ‘side effects’ become an ‘adverse reaction’?

Ventoclax and obinutuzumab versus acalabrutinib

Covid, Flu and RSV vaccines

contraindications of BTKI and osteopenia/Osteoporosis drug?

WHEN YOUR CLINICAL TRIAL FAILS, WHAT DO YOU DO NEXT ?

Accidently took 2 Calquence tablets last night instead of one

Anyone know any thing about clinical trial BMF-219 a covalent,mein inhibitor

Another CLL ‘wobble’, seems like I’m ‘losing it’ slightly.

I'm back to whine about clavicle lump

New ER for low hemoglobin

Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD- replay, slides and transcript

LET'S TALK CLL- Patients & Doctors Discuss the Latest Live! SATURDAY, OCTOBER 14, 2023 Virtual program starts at 10am CDT 11am EDT

struggling

COVID!

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