Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for October 2023

Has there been a change in the access to previous posts?

I tried looking up a post on uMRD and was not able to get access. I live in Germany.

I tried looking up a post on uMRD and was not able to get access. I live in Germ...

mickimauser11

•7 months ago

1 Reply

CT Scan

I had one last week, dont know the results yet. I asked the technician if I could play the piano straight away after the scan. She gave me one of those...

I had one last week, dont know the results yet. I asked the technician if I c...

andysnat

•7 months ago

9 Replies

Online Ordering of COVID LFTs to Stop in November

COVID 19 Lateral Flow test kits are to be collected from a community pharmacy if the pharmacy chooses to sign up for the service from November 6th. From...

COVID 19 Lateral Flow test kits are to be collected from a community pharmacy if...

MickUK

•7 months ago

33 Replies

Want to take advantage of all our features? Just log in!

UMRD redults

I just received my results from the uMRD test that I had this week at MDAnderson. My results from 3 months ago went from 0.01 to 0.007 I have been treated...

I just received my results from the uMRD test that I had this week at MDAnderso...

DGG1931

•7 months ago

6 Replies

WBC count technical q

when we get our WBC count, will it pick up and count WBC storing in lymph nodes and spleen or would these be additional to the blood count? Thanks, hope that...

when we get our WBC count, will it pick up and count WBC storing in lymph nodes ...

Lawand1

•7 months ago

5 Replies

Treatment for life?

Hello. First time posting here. Diagnosed with CLL in July by flow test and Fish test. Although still technically in lymphocytosis. My chart says diagnosis:...

Hello. First time posting here. Diagnosed with CLL in July by flow test and Fish...

Quiltingone

•7 months ago

5 Replies

Medicare Drug Plan D cost

My understanding is the max out-of-pocket for 2023 is around $7400 for 2023. Does this max apply to Imbruvica ? If not, then is there a max for Specialty...

My understanding is the max out-of-pocket for 2023 is around $7400 for 2023. Do...

Monetfan2017

•7 months ago

2 Replies

Unsure

I have been on an ‘urgent’ list for haematology consultation since February 2023. I got a call from GP on June 20th to say CLL is confirmed - but I was still...

I have been on an ‘urgent’ list for haematology consultation since February 2023...

RKGM17

•7 months ago

7 Replies

Brukinsa

The oncologist prescribed this for me. My WBC is high but he’s mostly concerned with my anemia plus one lymph node has swollen more and is sore. Has anybody...

The oncologist prescribed this for me. My WBC is high but he’s mostly concerned ...

Silvafoxe

•7 months ago

17 Replies

CLL and Hip Replacement Surgery

I have CLL 17p deletion. Been on Ibrutinib since February 2019 and have done great! I had hip replacement surgery before I was diagnosed with CLL and now find...

I have CLL 17p deletion. Been on Ibrutinib since February 2019 and have done gre...

210savannah

•7 months ago

16 Replies

CLL V & O

Hello friends Feeling very confused ! I started treatment last December on V& O. I have had a few problems and side effects throughout . Not being easy at...

Hello friends Feeling very confused ! I started treatment last December on V& O...

Stavrou1

•7 months ago

39 Replies

venetoclax dose change

Hello my fellow cll friends I took my mom to the hematologist and while we were expecting her to go back to 400mg of venetoclax from being on 200mg for a while...

Hello my fellow cll friends I took my mom to the hematologist and while we were ...

Eirinik

•7 months ago

3 Replies

Introduction & a quick question...

Greetings all! I was diagnosed back in late 2018 and have been on a W+W approach till mid-this year when my doctor suggested we start looking at treatment due...

Greetings all! I was diagnosed back in late 2018 and have been on a W+W approac...

kbondale

•7 months ago

7 Replies

Medicare Open Enrollment. Oct. 15-Dec. 7 Time to compare coverage options.

Medicare Open Enrollment. Oct. 15-Dec. 7 There are 23 Medicare drug plans available in your area . Now's the time to compare all your options and find the...

Medicare Open Enrollment. Oct. 15-Dec. 7 There are 23 Medicare drug plans ava...

lankisterguy

Volunteer•7 months ago

17 Replies

neutrphils

I started O and V last year I have one week left on Venetoclax. I’ve had sepsis twice and been an in patient to get it sorted . About 5 months ago my...

I started O and V last year I have one week left on Venetoclax. I’ve had sepsis ...

jillybird13

•7 months ago

5 Replies

Obinituzimab and Port

Do you recommend a port with Obinituzimab infusions?

DrLV

•7 months ago

16 Replies

Calquence break for Surgery

wondering if anyone on BTKi's, especially the newer Calquence tab, has had stomach problems while taking time off of it for surgery. I had horrible side...

wondering if anyone on BTKi's, especially the newer Calquence tab, has had stoma...

lindalou5

•7 months ago

7 Replies

Has anyone on this site had any experience with Cold Plunge therapy?

I have healthy friends that swear by the benefits that they receive from cold plunges. This is where they submerse their entire body for 2-3 minutes in 50...

I have healthy friends that swear by the benefits that they receive from cold pl...

Kvb-texas

•7 months ago

15 Replies

Vitamins/supplements for cll?

I found out AFTER I was diagnosed with CLL that low vitamin D is a risk factor for getting CLL. I have had chronically low vitamin D even though I worked...

I found out AFTER I was diagnosed with CLL that low vitamin D is a risk factor f...

Vivikaye1

•7 months ago

22 Replies

Prescription

Can anyone tell me if there is a way to get help for medication if your insurance does not cover it? I'm suppose to start treatments that my copay is $1000.00...

Can anyone tell me if there is a way to get help for medication if your insuranc...

Rick1388

•7 months ago

19 Replies

CLL / SLL & Autoimmune Disease ???

Recently I've had very bad fatigue, hives, joint pain/swelling, and high white cell counts indicative of inflammation. Have SLL and been on BTKs for 2.5 years...

Recently I've had very bad fatigue, hives, joint pain/swelling, and high white c...

Amberesque

•7 months ago

15 Replies

8CT Scan Protocol

I have SLL, been on BTKs for 2.5 years. I still have a lot of disease symptoms + drug side effects. It's been 2 years since my last CT scan and hematologist...

I have SLL, been on BTKs for 2.5 years. I still have a lot of disease symptoms +...

Amberesque

•7 months ago

6 Replies

No Symptoms Yet...

[I'm cross posting this from the American Support site.] I was diagnosed with CLL in 2011. Recently I have had a dramatic increase in my white cell count,...

[I'm cross posting this from the American Support site.] I was diagnosed with C...

lednar

•7 months ago

19 Replies

Not a CLL thing, just a 63 years ago today bit.

https://youtu.be/65Og0gUKfvc?feature=shared

Lavinia-Blue

•7 months ago

5 Replies

Pain in the spleen/splenomegaly

Hello, maybe someone has an idea. After 5 years w&w my spleen has now enlarged (splenomegaly). I've also been having pain on my left side for a few days now....

Hello, maybe someone has an idea. After 5 years w&w my spleen has now enlarged...

Omaschnabel

•7 months ago

33 Replies

Currently in treatment

Diagnosed in 2018 with CLL after two enlarged lymph nodes were excised. Wait and watch phase until 2020 when my numbers keep increasing. In 2022, WBC climbed...

Diagnosed in 2018 with CLL after two enlarged lymph nodes were excised. Wait and...

Birdlover12

•7 months ago

1 Reply

medicare

Hi y’all I am still in weight and watch but I am curious if Medicare with a supplement pays for most of the drugs that people are using with this cancer thank...

Hi y’all I am still in weight and watch but I am curious if Medicare with a supp...

Txsgrl

•7 months ago

21 Replies

Mutation Levels

I have seen other discussions re bad mutations , on my regular letter to my doctor from my haematologist it states : Chronic Lymphocytic Leukemia associated...

I have seen other discussions re bad mutations , on my regular letter to my doct...

uide3095

•7 months ago

5 Replies

Wonky CBC after flu and rsv shots

Stupidly I got a flu and rsv shot together. I had a regular yearly appointment with my primary care doctor. She expected my CBC to be out of the norm because...

Stupidly I got a flu and rsv shot together. I had a regular yearly appointment ...

elm1

•7 months ago

Be the first to reply

Drs. Susan O'Brien and Catherine Wu Presented the Binet-Rai Medal at 20th International Workshop on Chronic Lymphocytic Leukemia

Two doctors who have spent many many hours helping the CLL community. I FEEL SURE THAT WE ALL EXPRESS OUR MANY THANKS. THIS IS AN AWARD THAT IS...

Two doctors who have spent many many hours helping the CLL community. I FEEL...

Kwenda

•7 months ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2023

Has there been a change in the access to previous posts?

CT Scan

Online Ordering of COVID LFTs to Stop in November

UMRD redults

WBC count technical q

Treatment for life?

Medicare Drug Plan D cost

Unsure

Brukinsa

CLL and Hip Replacement Surgery

CLL V & O

venetoclax dose change

Introduction & a quick question...

Medicare Open Enrollment. Oct. 15-Dec. 7 Time to compare coverage options.

neutrphils

Obinituzimab and Port

Calquence break for Surgery

Has anyone on this site had any experience with Cold Plunge therapy?

Vitamins/supplements for cll?

Prescription

CLL / SLL & Autoimmune Disease ???

8CT Scan Protocol

No Symptoms Yet...

Not a CLL thing, just a 63 years ago today bit.

Pain in the spleen/splenomegaly

Currently in treatment

medicare

Mutation Levels

Wonky CBC after flu and rsv shots

Drs. Susan O'Brien and Catherine Wu Presented the Binet-Rai Medal at 20th International Workshop on Chronic Lymphocytic Leukemia

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive