Posts - CLL Support | HealthUnlocked

CLL Support

22,514 members • 38,671 posts

All posts for October 2023

fatigue

I was just changed from monthly blood tests to 6 months and 6 month check ups....the doc said I was stable and there was a good chance i would never need...

I was just changed from monthly blood tests to 6 months and 6 month check ups......

DianeSH

•6 months ago

19 Replies

Update re ASCT relapse

Due to my cll returning and having had several new lines of treatment my consultants both my Cll specialist and my transplant specialist have offered me Rchop...

Due to my cll returning and having had several new lines of treatment my consult...

Kraskie1915

•6 months ago

7 Replies

problems with Venetoclax ramp up

Hi, has anyone experienced problems with the ramp up of Venotoclax? I have been on the 400 now for a few weeks and am still having issues with gastro...

Hi, has anyone experienced problems with the ramp up of Venotoclax? I have...

puppy43

•6 months ago

26 Replies

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low iron

hi group, I am having trouble with low iron levels while on Ibrutinib. Is anyone else having issues? Regards Viv

hi group, I am having trouble with low iron levels while on Ibrutinib. Is anyon...

Tomich1949

•6 months ago

8 Replies

Help with frequent chest infection

Hi there, I’m new to this group and wonder if there’s anyone out there who can offer me some help and advice? I was diagnosed with CLL three years ago I am...

Hi there, I’m new to this group and wonder if there’s anyone out there who can ...

Graya1

•6 months ago

31 Replies

Zanubrutinib and ACE inhibitors

I am approaching the start of treatment for the first time. I have for many years been taking an ACE inhibitor (perindropril) for high blood pressure, which is...

I am approaching the start of treatment for the first time. I have for many year...

Fogey

•6 months ago

8 Replies

Fatigue

Good Day Everyone My question is, should I be feeling fatigued with lymphocytes around 43 and haemoglobin at 12.1 g/dl or could the fatigue be caused by...

Good Day Everyone My question is, should I be feeling fatigued with lymphocyte...

Buttons42

•6 months ago

20 Replies

Combining the Influenza and COVID-19 vaccines.

I have read of some people who got both vaccines at the same time, and their experience was not good. However perhaps a different kind of Influenza vaccine...

I have read of some people who got both vaccines at the same time, and their exp...

Kwenda

•6 months ago

9 Replies

CLL - Joint pain, loss of range of motion

Hi I’m 54, 3 years with CLL, 2 years on Acalabrutinib, suffering badly from fatigue and aching limbs. Recently developed pain in my right shoulder, and some...

Hi I’m 54, 3 years with CLL, 2 years on Acalabrutinib, suffering badly from fa...

Tomaljoe69

•6 months ago

18 Replies

B CELL lymphoma

Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol...

Hello friends, Question- had a fish test done and the test revealed negative f...

Tchapman

•6 months ago

2 Replies

? RSV vaccine

Hi folks, I seem to remember a mention of the RSV shot not being great for CLL pts? Anyone have info or thoughts on this? And another question: I got my...

Hi folks, I seem to remember a mention of the RSV shot not being great for CLL p...

Islandjewel23

•6 months ago

15 Replies

teardrop cells?

Hey, gang, I am in W&W. I had blood tests taken by my GP for a non-CLL reason, but it showed details I have not seen before on the blood results from my...

Hey, gang, I am in W&W. I had blood tests taken by my GP for a non-CLL reason, ...

Vlaminck

•6 months ago

10 Replies

Is there a risk of IGG atrophy when getting regular IVIG transfusions?

I know that there are some substances you can ingest, that might make your body atrophy when it comes to producing it on its own. For example, I have heard...

I know that there are some substances you can ingest, that might make your body ...

Kvb-texas

•6 months ago

11 Replies

Switching from acalabrutinib to ibrutinib

After 1 year 3 month of acalabrutinib, now lymph nodes are increasing. So our doctor suggested to shift from acalabrutinib to ibrutinib. Anyone here who did...

After 1 year 3 month of acalabrutinib, now lymph nodes are increasing. So our do...

pbaddi

•6 months ago

21 Replies

Low Blood Sugar

Anyone know of receiving 5Mg / day of folic acid due to the findings below From My Haematologist to my Dr which is the usual 4 weekly report he sends'...

Anyone know of receiving 5Mg / day of folic acid due to the findings below From...

uide3095

•6 months ago

4 Replies

Adding Venetoclax to BTKi

What about patients having been stable on BTK inhibitorsi for years? Would they be eligible to add Venetoclax, now that the combination is approved by FDA?...

What about patients having been stable on BTK inhibitorsi for years? Would they...

antonb

•6 months ago

4 Replies

University of Surrey study

Not sure if I mentioned this before, but I signed up for this study whilst under treatment. I was asked to await the end of treatment, then start the study...

Not sure if I mentioned this before, but I signed up for this study whilst under...

Dawson21

•6 months ago

43 Replies

What High and Low Immunoglobulin G Levels Mean for People With Cancer - A Review from the Patient Power Information Resource

An interesting review focused on IgG that is clear, concise and simple. Click on the link -...

An interesting review focused on IgG that is clear, concise and simple. Click ...

Smakwater

•6 months ago

16 Replies

Petechia

I have been treated with Ibrutinib for 16 months and have responded to treatment really well. My white blood count was 148.7 when I started treatment now I am...

I have been treated with Ibrutinib for 16 months and have responded to treatment...

Glasstop

•6 months ago

2 Replies

RNA Test Outperforms the Fecal Immunochemical Test for Detection of Colorectal Cancer

In the United States, colorectal cancer (CRC) is the second most common cause of cancer deaths when numbers for men and women are combined. It's expected to...

In the United States, colorectal cancer (CRC) is the second most common cause of...

bennevisplace

•6 months ago

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Daily HealthUnlocked emails have stopped

About a month ago, I stopped receiving my daily HealthUnlocked emails. All of my settings apprear ok.

About a month ago, I stopped receiving my daily HealthUnlocked emails. All of my...

wmay13241

•6 months ago

3 Replies

Injection of Rituxan

I spent 9 days in the hospital after developing hemolytic anemia after one year W&W. A blood transfusion helped, but not enough. I had my first of four Rituxan...

I spent 9 days in the hospital after developing hemolytic anemia after one year ...

Goopteal

•6 months ago

20 Replies

Ibrutinib dose reduction

after 5 years on Ibrutinib I have higher blood pressure and arthralgia. Will dose reduction to 280 or 140 mg be safe to try before switching to Calquence?

after 5 years on Ibrutinib I have higher blood pressure and arthralgia. Will dos...

Radarrick

•6 months ago

4 Replies

Bruised and swollen arm from Calquence.

My husband started Calquence several months ago. Soon after that his left arm became swollen and turned black and blue from the wrist to the shoulder. Not...

My husband started Calquence several months ago. Soon after that his left arm be...

QueenBees

•6 months ago

5 Replies

CLL/SLL and ischemic bowel death

My brother had untreated SLL. He died March 2022, after a week of omicron Covid infection that seemed to pass mid January of that year. We have heard rumors...

My brother had untreated SLL. He died March 2022, after a week of omicron Covid...

prichman

•6 months ago

4 Replies

Efficacy and safety of new‑generation BTKis (primarily acalabrutinib and zanubrutinib) in CLL/SLL: a systematic review and meta‑analysis

The meta-analysis of 20 studies on CLL/SLL patients treated with new-generation BTKis was based on papers selected from "A comprehensive search on PubMed,...

The meta-analysis of 20 studies on CLL/SLL patients treated with new-generation ...

AussieNeil

Administrator•6 months ago

17 Replies

Celiac testing and Obinutuzumab

So I am getting tested for celiac disease. I've known I had issues with gluten for years, and my grandma had it, but it never got that bad. Now I've had...

So I am getting tested for celiac disease. I've known I had issues with gluten f...

Greenbunnies

•6 months ago

11 Replies

Heart Issues and Venclexta?

Has anyone had problems with their heart racing on Venclexta? My husband was diagnosed with CLL 17p deletion 53 mutation In 2018. Over the past 5, almost 6...

Has anyone had problems with their heart racing on Venclexta? My husband was di...

KKwtx

•6 months ago

10 Replies

heart slowing down

has anyone found they have a much slower heart rate after treatment? My heart is slowing down - 42-37 - looking at pacemaker options

has anyone found they have a much slower heart rate after treatment? My heart is...

Sepsur

•6 months ago

20 Replies

This was published this week in Hematon's Dutch magazine.

Still strange that it is thought differently worldwide. s the combination of chemo- and immune therapy outdated? 'In my eyes, and now also that of the...

Still strange that it is thought differently worldwide. s the combination of c...

Renefaassen

•6 months ago

16 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2023

fatigue

Update re ASCT relapse

problems with Venetoclax ramp up

low iron

Help with frequent chest infection

Zanubrutinib and ACE inhibitors

Fatigue

Combining the Influenza and COVID-19 vaccines.

CLL - Joint pain, loss of range of motion

B CELL lymphoma

? RSV vaccine

teardrop cells?

Is there a risk of IGG atrophy when getting regular IVIG transfusions?

Switching from acalabrutinib to ibrutinib

Low Blood Sugar

Adding Venetoclax to BTKi

University of Surrey study

What High and Low Immunoglobulin G Levels Mean for People With Cancer - A Review from the Patient Power Information Resource

Petechia

RNA Test Outperforms the Fecal Immunochemical Test for Detection of Colorectal Cancer

Daily HealthUnlocked emails have stopped

Injection of Rituxan

Ibrutinib dose reduction

Bruised and swollen arm from Calquence.

CLL/SLL and ischemic bowel death

Efficacy and safety of new‑generation BTKis (primarily acalabrutinib and zanubrutinib) in CLL/SLL: a systematic review and meta‑analysis

Celiac testing and Obinutuzumab

Heart Issues and Venclexta?

heart slowing down

This was published this week in Hematon's Dutch magazine.

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