Posts - CLL Support | HealthUnlocked

CLL Support

22,609 members • 38,830 posts

All posts for September 2023

Anyone has followed Rituxan -Venetoclax treatment with good results?

I am terrified to start new treatment because of afib due to Calquence (Alcalabrutinib). Thank you for any reassurance and bless you all. 🙏🏼💚

I am terrified to start new treatment because of afib due to Calquence (Alcalabr...

unairdefamille

•8 months ago

14 Replies

Traveling with early stage CLL

My husband (77) was recently diagnosed with early CLL. So treatment is not needed. He feels mostly fine and is not getting sick more than a healthy person. We...

My husband (77) was recently diagnosed with early CLL. So treatment is not need...

KYOTOLOVER

•8 months ago

34 Replies

Brukinsa/Zanubrutinib slow working at present time

I started treatment in early May with Zanubrutinib but because of severe stomach pain with it and acyclovir stopped it after 6 weeks so that an endoscopy could...

I started treatment in early May with Zanubrutinib but because of severe stomach...

Bethsaida

•8 months ago

2 Replies

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started venetoclax 200 mg and ibruvica 420mg

Hello Everyone!’ First I want to thank all of you from the bottom of my heart for listening to my worries Update on my mom she started therapy again today...

Hello Everyone!’ First I want to thank all of you from the bottom of my heart f...

Eirinik

•9 months ago

1 Reply

Life expectancy question

The time for me to apply for my social security benefits has come. In the United States you can defer benefits after you become eligible up to age 70 or so....

The time for me to apply for my social security benefits has come. In the Unite...

cajunjeff

•9 months ago

58 Replies

Diagnosed with CLL in October 2022 W&W

Hello. I am recently diagnosed with CLL (10/22, 13q/mutated) with current WBC of 15k and Lymphs at 10k. I've always had pretty good body weight but since...

Hello. I am recently diagnosed with CLL (10/22, 13q/mutated) with current WBC o...

Spike62

•9 months ago

3 Replies

CLL History

When I was first diagnosed the names we followed with great care were Dr Kanti Rai, Dr Terry Hamblin, and Dr Michael Keating. These men were the true...

When I was first diagnosed the names we followed with great care were Dr Kanti R...

Kwenda

•9 months ago

11 Replies

Update.

Just arrived home from having my Blood transfusion. Breathing less laboured already. Two bags infused. Hopefully things will pick up now love and strength to...

Just arrived home from having my Blood transfusion. Breathing less laboured alre...

Jacksc06

•9 months ago

36 Replies

Diet and CLL

I have always thought I have a healthy diet but yesterday when speaking to the doctor after a blood test to confirm that I was no longer neutropenic, I queried...

I have always thought I have a healthy diet but yesterday when speaking to the d...

Adlucy

•9 months ago

15 Replies

Ist treatment

Just had first Ibrutinib this morning. 20 mins in no side effects yet. 😀👍

Guinness4822

•9 months ago

10 Replies

swollen armpit prevnar 20

hello group, I’m relatively newly diagnosed with SLL (June 2022). Mild disease so far; watch and wait. Favorable genetic markers so far (t12/18 mutated). 46...

hello group, I’m relatively newly diagnosed with SLL (June 2022). Mild disease s...

Capecodlover34

•9 months ago

7 Replies

COVID mortality rate

Does anyone know what the current mortality rate is for CLL patients on V + O who get COVID? Thx

Does anyone know what the current mortality rate is for CLL patients on V + O wh...

skipro

•9 months ago

16 Replies

COLONOSCOPY

Gooday, I have been short listed for a colonoscopy to exclude bowel cancer. The first step is to speak with the surgical consultant. I believe a...

Gooday, I have been short listed for a colonoscopy to exclude bowel c...

fossicker

•9 months ago

6 Replies

vaccinations

Hi good people, I’m 5 mos into Acalabrutinub and finally WBCs are coming down, but still pretty high. It’s time for a flu vaccine and soon the next Covid shot...

Hi good people, I’m 5 mos into Acalabrutinub and finally WBCs are coming down, b...

Islandjewel23

•9 months ago

10 Replies

Ibrutinib and Cataract surgery

I have been on Ibrutinib for 4 years and need to do cataract surgery for both eyes . I am worried about the bleeding because of Ibrutinib. Anyone else...

I have been on Ibrutinib for 4 years and need to do cataract surgery for both ey...

ANA4

•9 months ago

15 Replies

Is it or ain't it?

It's very nearly 5 years since I was diagnosed with CLL or SLL (hospital never bothered to see which it was). Counts moving very slowly in a 'getting worse'...

It's very nearly 5 years since I was diagnosed with CLL or SLL (hospital never b...

niceone01

•9 months ago

6 Replies

3rd Rituxin infusion completed.

Had my 3rd infusion today. Feeling generally burned out but determined to fight on. Blood transfusion on Thursday and final infusion next Tuesday. Love and...

Had my 3rd infusion today. Feeling generally burned out but determined to fight ...

Jacksc06

•9 months ago

24 Replies

Treatment

I have been recommended Ibrutinib and Venetoclax on the first drug tommorow.

Guinness4822

•9 months ago

4 Replies

lymph nodes swelling

Hi, just curious if any of you have had lymph node seedling without it being CLL? I got sick a few weeks back and my nodes are swelling and I now have a few...

Hi, just curious if any of you have had lymph node seedling without it being CL...

Tchapman

•9 months ago

5 Replies

Covid finally caught me!

After being so careful for over 3years Covid finally caught me! My husband tested positive last Monday and despite keeping well away from him tested positive...

After being so careful for over 3years Covid finally caught me! My husband teste...

Elizabetha

•9 months ago

65 Replies

ME/CFS and CLL

Hello, I was diagnosed with CLL 3 months ago, currently on watch and wait. I also have moderate/severe chronic fatigue syndrome and feel I am getting worse,...

Hello, I was diagnosed with CLL 3 months ago, currently on watch and wait. I a...

tinglyfingers

•9 months ago

14 Replies

Choice of CLL Treatment

HI all, I’m 53 and after 5 years I’m nearing the end of W&W and my oncologist is suggesting I start treatment due to expanding nodes in my neck. He’s offered...

HI all, I’m 53 and after 5 years I’m nearing the end of W&W and my oncologist is...

Murphy63

•9 months ago

43 Replies

Lifestyle

Think I'll be on O and V treatment from next week. A few questions for those more in the know than me. Can I still work? Do I need to give up alcohol? I also...

Think I'll be on O and V treatment from next week. A few questions for those mor...

Guinness4822

•9 months ago

24 Replies

Apologies to all.

I wish to express my most sincere apologies for my mis-spelling in my previous post. I was enquiring about kefir and wrote kafir. This is a highly offensive...

I wish to express my most sincere apologies for my mis-spelling in my previous p...

Cheltman

•9 months ago

9 Replies

Live yoghurt or kefhir ok?

Hi all Could someone advise if live yoghurt/kafir is ok to have? I feel as though my gut microbiome is struggluning as I’m experiencing constipation and bad...

Hi all Could someone advise if live yoghurt/kafir is ok to have? I feel as thou...

Cheltman

•9 months ago

42 Replies

My Stem Cell Journey so far.

Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral...

Hi everyone just thought I’d share my experience of STC with you. I began the pr...

Billarina

•9 months ago

22 Replies

Calquence & Mole Removal ?

I have a small skin growth that needs to be removed to be sure it's not cancerous. A minor procedure with local anaesthetic and maybe 1 or 2 stitches. One...

I have a small skin growth that needs to be removed to be sure it's not cancerou...

Amberesque

•9 months ago

7 Replies

Started Zanabrutinib

I had my pharmacy Dr appt where they tell you all about the drug (zanabrutinib). I've taken 2 doses so far and no issues. I do have some questions for the...

I had my pharmacy Dr appt where they tell you all about the drug (zanabrutinib)....

MyCLLJourney

•9 months ago

11 Replies

SLL / CLL & Hives

I'm 48 years old, have unmutated "accelerated" SLL diagnosed January 2021, been on BTK (acalabrutinib) since then. Periodically I experience awful outbreaks of...

I'm 48 years old, have unmutated "accelerated" SLL diagnosed January 2021, been ...

Amberesque

•9 months ago

10 Replies

The D. Word

Depression-- I am half way through my V&ORegime. It has been unfortunately rough. My biggest fear is the depression I am falling into. I have good Doctors...

Depression-- I am half way through my V&ORegime. It has been unfortunately roug...

Lisbon2022

•9 months ago

14 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2023

Anyone has followed Rituxan -Venetoclax treatment with good results?

Traveling with early stage CLL

Brukinsa/Zanubrutinib slow working at present time

started venetoclax 200 mg and ibruvica 420mg

Life expectancy question

Diagnosed with CLL in October 2022 W&W

CLL History

Update.

Diet and CLL

Ist treatment

swollen armpit prevnar 20

COVID mortality rate

COLONOSCOPY

vaccinations

Ibrutinib and Cataract surgery

Is it or ain't it?

3rd Rituxin infusion completed.

Treatment

lymph nodes swelling

Covid finally caught me!

ME/CFS and CLL

Choice of CLL Treatment

Lifestyle

Apologies to all.

Live yoghurt or kefhir ok?

My Stem Cell Journey so far.

Calquence & Mole Removal ?

Started Zanabrutinib

SLL / CLL & Hives

The D. Word

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