Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for August 2023

CAR-T CELLS and CLL

Has anyone had this treatment done. Would be exciting to hear the results

Freckles54

•9 months ago

4 Replies

Has anyone started V-0 treatment recently with positive results?

I am due to start OBIMUTUZUMAB & VENETOCLAX it next week after Acalabrutinib caused afib and I am on it 1/2 dose with 1 beta blocker and blood thinner that...

I am due to start OBIMUTUZUMAB & VENETOCLAX it next week after Acalabrutinib cau...

unairdefamille

•9 months ago

39 Replies

Thanks

Saw the haemo today, and wanted to thank everyone who said not to be alarmed by the doubling of the wbc count. As they foretold, he is not worried, as all the...

Saw the haemo today, and wanted to thank everyone who said not to be alarmed by ...

Guffy

•9 months ago

2 Replies

Want to take advantage of all our features? Just log in!

Pirtobrutinib(loxo-305) Interesting study

Hi All, If you haven’t seen it, here is a interesting study done at the James Center at Ohio State University. Dr. Woyach co-led the study and is also...

Hi All, If you haven’t seen it, here is a interesting study done at the James C...

Varney

•9 months ago

15 Replies

Getting IVIG prophylactically?

Hi, everyone - My husband has been on Calquence since April 2021 and responding well. Unfortunately, between that and the CLL it's managing, his compromised...

Hi, everyone - My husband has been on Calquence since April 2021 and responding...

OaktownA

•9 months ago

16 Replies

Thank you everyone

who helped me with my questions about how to prepare for starting my treatment with Obinutuzumab and Venetoclax and about driving. I haven't been able to...

who helped me with my questions about how to prepare for starting my treatment w...

Adlucy

•9 months ago

4 Replies

Hello strangers.

Hello, just thought that having been banned from the Cllforum years ago for no good reason, I would catch up with what has been happening to some of the people...

Hello, just thought that having been banned from the Cllforum years ago for no g...

andysnat

•9 months ago

8 Replies

Rising lymphocyte levels

Hi, I've had my 6-month check-in blood test. Levels seem to be normal all round or just starting to slip into abnormal range (e.g. platelets, wbc). My...

Hi, I've had my 6-month check-in blood test. Levels seem to be normal all round...

SAT_poet

•9 months ago

12 Replies

Sudden painful lymphnode on neck

Hi all,I have been on W&W for a couple of years now and all good for now in terms of b symptoms with only slight enlarged lymphnodes. However, a few days ago a...

Hi all,I have been on W&W for a couple of years now and all good for now in term...

Titian72

•9 months ago

2 Replies

ygtgo

ygto, As you requested, here is the only pic that hasn't been deleted from my phone. I'll try to get some better ones. God Bless

ygto, As you requested, here is the only pic that hasn't been deleted from my p...

skipro

•9 months ago

13 Replies

donating blood with CLL

I have been taking Imbruvia for the past 2 years. Have been diagnosed with CLL for 3. For many years before this diagnosis I would donate blood. Can I still...

I have been taking Imbruvia for the past 2 years. Have been diagnosed with CLL ...

Ebenezer68

•9 months ago

6 Replies

Blood Test

Hi friends, I've just had a look at my latest complete blood examination, before a scheduled visit to the haemo on Wednesday. Now, I'm beyond worrying about...

Hi friends, I've just had a look at my latest complete blood examination, befor...

Guffy

•9 months ago

10 Replies

Iron Supplements

Good Day Everyone Does taking iron supplements increase red blood cells in CLL patients ? Thanks Ken

Good Day Everyone Does taking iron supplements increase red blood cells in CLL ...

Buttons42

•9 months ago

11 Replies

Why Won't My Dr. Write a Work Note for CLL Fatigue so I Can Work from Home Because she States that my Bloodwork is "Normal"?

**Please Help - CLL Fatigue - Bloodwork Normal - Need to Work from Home Hello everyone. I was diagnosed Thanksgiving of 2021 with CLL when I was 50 yrs old....

**Please Help - CLL Fatigue - Bloodwork Normal - Need to Work from Home Hello e...

HeatherW71

•9 months ago

48 Replies

Yearly check

My anxious wait for my first yearly check ended this week. I was well prepared, having obtained a copy of my blood test results and posted them here for...

My anxious wait for my first yearly check ended this week. I was well prepared,...

Thursday45

•9 months ago

27 Replies

pain throughout body

is pain through out the body something that happens when Cll seems to be acting up. I’m not on any meds

is pain through out the body something that happens when Cll seems to be acting ...

annabelle63

•10 months ago

3 Replies

Taking Venetoclax am/ pm

Hi all. Sorry if this has already been discussed. I've been on Venetoclax since last May. I've been taking it in the morning with food and do ok, but about 1-2...

Hi all. Sorry if this has already been discussed. I've been on Venetoclax since ...

Packrat

•10 months ago

23 Replies

Lymph Nodes

Good Day Everyone I am an 80 year old male living in South Africa. I was diagnosed with CLL through a routine blood test in 2019 although I already had it...

Good Day Everyone I am an 80 year old male living in South Africa. I was diag...

Buttons42

•10 months ago

10 Replies

Reduced acalabrutinib

I started August 1st 2022 my treatment with two tablets a day . Within a month it was reduced to one a day as my liver could not handle it. 11 months later,...

I started August 1st 2022 my treatment with two tablets a day . Within a month i...

Louis33

•10 months ago

3 Replies

Intro

I am 75 years old and has been diagnosied with CLL. My WBC is around 17000 a and am on wait and watch. Can I go for tooth extraction

I am 75 years old and has been diagnosied with CLL. My WBC is around 17000 a and...

Wimco

•10 months ago

4 Replies

First IVIG infusion

I've learned so very much here in this group, from so many here, Thank you all. Although I post very little and do read and am concerned for everyone. I want...

I've learned so very much here in this group, from so many here, Thank you all....

Lo16

•10 months ago

22 Replies

What does bone pain feel like?

My bf keeps having this recurrent pain in his elbow. I know CLL can cause bone pain but how would he know if that’s what he’s experiencing?

My bf keeps having this recurrent pain in his elbow. I know CLL can cause bone p...

karmacrepe

•10 months ago

13 Replies

Insurance

Hi there, I have had MBL since 2021, I'm 43. I've been trying to take out life insurance however the first one I applied for (Legal and General) turned me...

Hi there, I have had MBL since 2021, I'm 43. I've been trying to take out life i...

Silversmithmonkey

•10 months ago

11 Replies

Driving while on treatment

Cancer does not have to be reported to DVLA as I understand it but the possible side effects of CLL treatments to me suggest that driving is not advisable....

Cancer does not have to be reported to DVLA as I understand it but the possibl...

Adlucy

•10 months ago

5 Replies

Constant Light-Headedness and Dizziness.

I’ve been taking 560mg/daily Imbruvica since 2016 for mantle cell lymphoma. Through 2021 there were no side effects to speak of. Beginning mid-2022 I’ve...

I’ve been taking 560mg/daily Imbruvica since 2016 for mantle cell lymphoma. Thro...

LarryK

•10 months ago

2 Replies

Night sweats

This morning I woke up under light covers, soaked with sweat. Curious if I had a fever, I was surprised it was only 96.3. Only had a few minutes to google,...

This morning I woke up under light covers, soaked with sweat. Curious if I had ...

Blueberrytoast

•10 months ago

7 Replies

Bone Marrow Biopsy and pain management

Can we talk about BMB and what we where given to manage the pain of it. I'm about to have my first and they have said I get a local in the injection site and...

Can we talk about BMB and what we where given to manage the pain of it. I'm abou...

GhostOfHarrow

•10 months ago

29 Replies

arthralgia

what is it ?

willie11

•10 months ago

1 Reply

neuropathy

anyone with severe neuropathy in feet ?

willie11

•10 months ago

12 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2023

CAR-T CELLS and CLL

Has anyone started V-0 treatment recently with positive results?

Thanks

Pirtobrutinib(loxo-305) Interesting study

Getting IVIG prophylactically?

Thank you everyone

Hello strangers.

Rising lymphocyte levels

Sudden painful lymphnode on neck

ygtgo

donating blood with CLL

Blood Test

Iron Supplements

Why Won't My Dr. Write a Work Note for CLL Fatigue so I Can Work from Home Because she States that my Bloodwork is "Normal"?

Yearly check

pain throughout body

Taking Venetoclax am/ pm

Lymph Nodes

Reduced acalabrutinib

Intro

First IVIG infusion

What does bone pain feel like?

Insurance

Driving while on treatment

Constant Light-Headedness and Dizziness.

Night sweats

Bone Marrow Biopsy and pain management

arthralgia

neuropathy

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive