Posts - CLL Support | HealthUnlocked

CLL Support

22,688 members • 38,932 posts

All posts for August 2023

CLL itching

I am convinced that my constant itching problem is a direct result of my condition. Itching has increased over the years and now constant . My only relief is...

I am convinced that my constant itching problem is a direct result of my conditi...

Romeo22

•10 months ago

10 Replies

congrats

Congratulations. Wish that it lasts forever!!!

AllanJardin

•10 months ago

5 Replies

Calquence and AFib

2 weeks ago I received the wonderful news that I was in remission; something I never thought would happen. Bad news is 2 days later I was in hospital with A...

2 weeks ago I received the wonderful news that I was in remission; something I n...

nanasu

•10 months ago

4 Replies

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venting post - vaginal bleeding

I have not been around this site for a while as I have been cruising along not really thinking about CLL. But last week I experienced some post menopausal...

I have not been around this site for a while as I have been cruising along not r...

CoCoLuna11

•10 months ago

33 Replies

Nature Therapy

Awe I am always lifted and strengthened physically, mentally and spiritually in the mountains. Here are some of the wall to wall wild flowers after a 900...

Awe I am always lifted and strengthened physically, mentally and spiritually in ...

skipro

•10 months ago

38 Replies

Once a day acalabrutinib

No worries. One tablet a day will work perfectly. Well done!!!

Louis33

•10 months ago

6 Replies

O+V treatment in Canada after Calquence

I'm still not sure of the whole protocol with the Obinutuzumab +Venetoclax treatment. My oncologist is vague, or perhaps, my mind is not focused when I am in...

I'm still not sure of the whole protocol with the Obinutuzumab +Venetoclax treat...

unairdefamille

•10 months ago

11 Replies

acalabrutinib and tegretol

Hi everyone My 70-year-old father had FCR five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen...

Hi everyone My 70-year-old father had FCR five years ago, with great results....

MelaniePet

•10 months ago

6 Replies

zanubrutinib

hi has anyone had Zanubrutanib . I have been on Ventaclax but had a lot of trouble with my kidneys , Uric acid very high in 500s due to being allergic to...

hi has anyone had Zanubrutanib . I have been on Ventaclax but had a lot of troub...

mush56

•10 months ago

8 Replies

Venclexta mono therapy vs Venclexta plus gazyva

I was treated with Ibrutinib for five years until resistance developed.Following with venclexta mono therapy for about a year, stopped due to pandemic....

I was treated with Ibrutinib for five years until resistance developed.Following...

ralphfelo

•10 months ago

4 Replies

Coping with isolation due lower immunity system

Hi, I was diagnosed with HC MBL (CLL Phenotype) at the age of 53. In the past three years my lymphocytes count has gone from 5300 to 7100 (fluctuating) and my...

Hi, I was diagnosed with HC MBL (CLL Phenotype) at the age of 53. In the past t...

Blueslipper

•10 months ago

36 Replies

Mosquito bites while on Acalabrutinib

My husband has been on Acalabrutinib for CLL for 3 years. We walk about 4 -5 times a week and have lunch in the park. Recently he has been getting 2-3 mosquito...

My husband has been on Acalabrutinib for CLL for 3 years. We walk about 4 -5 tim...

ikahan

•10 months ago

5 Replies

Moving to Australia from NZ

Here’s one for our Aussie members. I am considering ‘a shift across the ditch’ probably to Victoria because I have immediate family there. I have been on W&W...

Here’s one for our Aussie members. I am considering ‘a shift across the ditch’...

Kiwidi

•10 months ago

7 Replies

Wearing a mask!

My wife has cll diagnosed in June of 2012. She is currently on Venclexta. My question I am sure has been discussed before. She goes in frequently for some...

My wife has cll diagnosed in June of 2012. She is currently on Venclexta. My qu...

Ecalv

•10 months ago

38 Replies

Acalabrutinib treatment going well

I have been on one dose daily of Acalabrutinib for 4 weeks now and am doing quite well. The fatigue has improved quite a lot, although I won't be running any...

I have been on one dose daily of Acalabrutinib for 4 weeks now and am doing quit...

sandybeaches

•10 months ago

14 Replies

Remission after 2 months?

My consultant told me that I am in complete remission because of my very good blood results. But he also said that the treatment with chemotherapy...

My consultant told me that I am in complete remission because of my very good bl...

MalcT

•10 months ago

33 Replies

Venetoclax and blood sugar

hi everyone, I have been on “V” since the end of last August. In the last five months, I’ve been experiencing severe hypoglycemic attacks: however, my blood...

hi everyone, I have been on “V” since the end of last August. In the last fiv...

WittyApricot

•10 months ago

6 Replies

EBV vaccine on the horizon

A vaccine has induced antibodies and other immune cells against the Epstein-Barr virus (EBV) in mice. EBV can cause flu-like symptoms but is also increasingly...

A vaccine has induced antibodies and other immune cells against the Epstein-Barr...

MovingForward4423

•10 months ago

2 Replies

Update treatment

it’s been about, half a year since i thought i had some options for the treatment i needed I posted this dilemma here, and got a lot of responce to...

it’s been about, half a year since i thought i had some options for the treatmen...

Renefaassen

•10 months ago

7 Replies

Choice to not treat at 88yrs old

My Mom is considering stopping all medications and going to hospice as she is kinda ready to go. It's sad but I want to respect her wishes as long as they are...

My Mom is considering stopping all medications and going to hospice as she is ki...

SME35

•10 months ago

10 Replies

Financial assistance for drugs

I am wondering if anyone in Ontario Canada has applied to the company that manufactures Zanubrutinib for financial assistance in covering the cost. Because...

I am wondering if anyone in Ontario Canada has applied to the company that manuf...

Seaperson

•10 months ago

7 Replies

Lymphoma or unconnected New Tumour.

Hi All, further to my recent 'post' re the Bells Palsy' that never was, I want to thank you all for your support and advice. I am still waiting on a...

Hi All, further to my recent 'post' re the Bells Palsy' that never was, I want ...

Vindicatrix

•10 months ago

18 Replies

mlus returns

I posted a while back that my mlus had spontaneously disappeared. Six months later it showed up again on flow cytometry. The first time it was 2% of cells now...

I posted a while back that my mlus had spontaneously disappeared. Six months lat...

Msmilley

•10 months ago

3 Replies

Can allergies lead to fever?

Hi, I have a strange situation that has happened 3 times since May. I am sick, with chills, fever, headache, general achiness, sore throat, fatigue… fever...

Hi, I have a strange situation that has happened 3 times since May. I am sick, ...

NaturalWaze

•10 months ago

13 Replies

Wrinkly hands

Hi. Diagnosed with CLL just over 6 months ago and coming up for my second Heamatolgist appointment (on W&W) Has anyone noticed that their hands go wrinkly...

Hi. Diagnosed with CLL just over 6 months ago and coming up for my second Heamat...

davjb15121

•10 months ago

3 Replies

Age and Calquence

Is anyone in their 80s and taking Calquence?

Mamagriz

•10 months ago

23 Replies

Gods gift of nature

here is another great hike pic from last night I was so tired, went anyway angle had a great boost to spirits mind and body the day after my Obin infusion...

here is another great hike pic from last night I was so tired, went anyway ang...

skipro

•10 months ago

31 Replies

CLL Questions

My Dad has been diagnosed with CLL and CML at 86. He has become more symptomatic and they want to give him Calquence. He already has afib, bruising, COPD,...

My Dad has been diagnosed with CLL and CML at 86. He has become more symptomatic...

Mamagriz

•10 months ago

18 Replies

Bells Palsy that never was

Hi all, I mentioned a few weeks ago that I was diagnosed with Bells Palsy', and put on prednisolone for 10 days, it didn't work, and I was sent to an ENT man,...

Hi all, I mentioned a few weeks ago that I was diagnosed with Bells Palsy', and ...

Vindicatrix

•10 months ago

9 Replies

blood results

hello everyone , I’m On w&w 4 years now my clinical nurse rang me with my 6 Monthly blood results . My Hemoglobin is 121 the last time I had my bloods taken...

hello everyone , I’m On w&w 4 years now my clinical nurse rang me with my 6 Mon...

Pekingese

•10 months ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2023

CLL itching

congrats

Calquence and AFib

venting post - vaginal bleeding

Nature Therapy

Once a day acalabrutinib

O+V treatment in Canada after Calquence

acalabrutinib and tegretol

zanubrutinib

Venclexta mono therapy vs Venclexta plus gazyva

Coping with isolation due lower immunity system

Mosquito bites while on Acalabrutinib

Moving to Australia from NZ

Wearing a mask!

Acalabrutinib treatment going well

Remission after 2 months?

Venetoclax and blood sugar

EBV vaccine on the horizon

Update treatment

Choice to not treat at 88yrs old

Financial assistance for drugs

Lymphoma or unconnected New Tumour.

mlus returns

Can allergies lead to fever?

Wrinkly hands

Age and Calquence

Gods gift of nature

CLL Questions

Bells Palsy that never was

blood results

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