Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for July 2023

constantly have UTI

I’m constantly have UTI. My doctor switch me from Imbruvica to Calqune , but still the same issue. Do not know what to do. Any advise ?

I’m constantly have UTI. My doctor switch me from Imbruvica to Calqune , but sti...

•10 months ago

facial rash after starting Venetoclax 50mg

After I increased the Venetoclax to 50mg I developed a nasty itching spotty face... mainly on forehead and down to nose ... This increased further as I...

After I increased the Venetoclax to 50mg I developed a nasty itching spotty face...

•10 months ago

Prednisolone

Hi all, I have yet again been prescribed a new medication, (Above) this time for 'Bells Palsy' . 12 pills per day for 5 days, then 10,8,6,4,2 daily thereafter....

Hi all, I have yet again been prescribed a new medication, (Above) this time for...

•10 months ago

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Living abroad a few months a year or permanent with visits back.

Hi all Hope you are all having a good weekend . Am just wondering how other people thoughts would be . Do I , don't I . Was on W&W for 2 and half years....

Hi all Hope you are all having a good weekend . Am just wondering how other peo...

•10 months ago

Venetoclax for dummies

Venetoclax owes its origin to a lady named Eliza Hall, I bet AussieNeil has heard of her. Eliza was a lady from Melbourne Australia who married an Englishman...

Venetoclax owes its origin to a lady named Eliza Hall, I bet AussieNeil has hear...

•10 months ago

Strategic Masking to Protect Patients from All Respiratory Viral Infections

https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course...

https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public hea...

Volunteer•10 months ago

low neutrophils

Monday I had what I thought would be a routine blood draw, doctor visit, and final Gayzva infusion. When the NP came in she told me my neutrophils were too low...

Monday I had what I thought would be a routine blood draw, doctor visit, and fin...

•10 months ago

Swollen Lymph Glands

Hi folks,I’ve had lymph nodes up approximately the size of a hazelnut forever really,none painful,until recently,then one on my neck is swollen to about...

Hi folks,I’ve had lymph nodes up approximately the size of a hazelnut forever re...

•10 months ago

Lymph Node Resurgence

Hello Everyone! I started my treatment last December. Completed my last Gazyva in June and am still on my Venetoclax through the end of the year. Some of my...

Hello Everyone! I started my treatment last December. Completed my last Gazyva ...

•10 months ago

Being Positive and Supportive

As I read all the kind responses to my post about finally feeling better I realize the best way to support this group and the best medicine for me and my...

As I read all the kind responses to my post about finally feeling better I reali...

•10 months ago

Ibrutinib and Hepatitis B

Hello, my 72yo dad was recently diagnosed and he’s supposed to start treatment with Ibrutinib today. He had HepB as a child and I know that is a major red...

Hello, my 72yo dad was recently diagnosed and he’s supposed to start treatment w...

•10 months ago

Calquence and decreased hemoglobin

Hi Everyone! I have been on Calquence for just about a month and had my first labs yesterday. Neuts were normal. Platelets were steady at 120. My absolute...

Hi Everyone! I have been on Calquence for just about a month and had my first l...

•10 months ago

Progress update - Pirtobrutinib triple trial for treatment naive

I finished Cycle 4 of the fixed duration Pirtobrutinib combo trial at M.D. Anderson for Pirtobrutinib, Obinutuzumab, and Venetoclax on June 13, 2023....

I finished Cycle 4 of the fixed duration Pirtobrutinib combo trial at M.D. Ander...

•10 months ago

celebrating

Celebration in order I've started feeling better than I have for the past 15 months, like a new life! 👍😀 I'm getting my second to last infusion of O and...

Celebration in order I've started feeling better than I have for the past 15 mo...

•10 months ago

MRD blood test after Venetoclax treatment

I finished Venetoclax treatment last year in the uk. My haematologist is awaiting the result of a MRD blood test and if negative then he tells me I will be...

I finished Venetoclax treatment last year in the uk. My haematologist is awaitin...

•10 months ago

Help needed please

Please can anyone post us an idiots guide to the types of CLL treatments in the UK? There are infusions of Obinutuzumab then Venetoclax mentioned on here....

Please can anyone post us an idiots guide to the types of CLL treatments in the ...

•10 months ago

Liver enzymes

I’ve been taking Ibrutinib for three years with wonderful results…however, my liver enzymes have been elevated consistently. I would appreciate any experience...

I’ve been taking Ibrutinib for three years with wonderful results…however, my li...

•10 months ago

STEP ONE OF MY THIRD CLINICAL TRIAL huCAR-T19 IL-18

With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have...

With the ink barely dry on my clinical trial consent forms, it was back up to Pe...

•10 months ago

Ven + Holiday Plans

Hi All, I’m in the middle of Ven ramp up, going well so far. Any advice from fellow travellers about planning holidays in Sept?

Hi All, I’m in the middle of Ven ramp up, going well so far. Any advice from f...

•10 months ago

CLL and Hyperthroid

I was treated for CLL in 2018 - chlorambucil and Gazyvaro. No problems at all until last month a random blood test indicated an over active thyroid, for...

I was treated for CLL in 2018 - chlorambucil and Gazyvaro. No problems at all...

•10 months ago

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