Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for April 2023

Relapsed CLL: New Approaches Prolong Survival

Dr Furman says that genetically unstable CLL patients need a combination therapy approach to treatment irrespective of MRD assessment results. This is only...

Dr Furman says that genetically unstable CLL patients need a combination thera...

Jm954

Administrator•1 year ago

19 Replies

CDC OKs COVID-19 vaccine, allows older adults and immunocompromised adults to get second dose Bi Valent vaccine on Wednesday, April 19, 2023

CDC simplifies COVID-19 vaccine recommendations, allows older USA adults and immunocompromised adults to get second dose of the updated vaccine U.S....

CDC simplifies COVID-19 vaccine recommendations, allows older USA adults and imm...

lankisterguy

Volunteer•1 year ago

7 Replies

Neutrophiles

Since 2019 i am treated with ibrutinib, with very good results up to now. Today I got the results of my last check. Neutrophiles are close to zero, and I am...

Since 2019 i am treated with ibrutinib, with very good results up to now. Today ...

grazia50

•1 year ago

15 Replies

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Expression of TCL1A gene is found to drive onset of blood cancer

One of the causes of blood cancer is non-inherited mutations in blood stem cells that can lead to the cancerous growth of abnormal cells. Reporting in...

One of the causes of blood cancer is non-inherited mutations in blood stem cells...

bennevisplace

•1 year ago

2 Replies

wild temperature fluctuations

Starting 10 months after beginning Venetoclax / obinutuzamab I started to suffer fever of some kind. My temperature would spike and then sometimes reduce to...

Starting 10 months after beginning Venetoclax / obinutuzamab I started to suffer...

nigeldodd

•1 year ago

4 Replies

bone pain - is it related to CLL

Dear members. My mum(67y) has been initially diagnosed with CLL ( Based on basic blood results). We are still waiting for hematologist appointment ( it’s...

Dear members. My mum(67y) has been initially diagnosed with CLL ( Based on basi...

Catalinapl

•1 year ago

8 Replies

CLL blog to encourage others

Thought I'd get brave and share this with you all... I'm newly diagnosed 40yr old mother of 3 young boys and I've started a blog to document my CLL journey and...

Thought I'd get brave and share this with you all... I'm newly diagnosed 40yr ol...

Courage_Love_Legacy

•1 year ago

3 Replies

A more reliable source for our diets from MDAnderson and notice the short video at the bottom of the article

https://www.mdanderson.org/publications/focused-on-health/36-foods-that-can-help-lower-your-cancer-risk.h12-1592991.html

https://www.mdanderson.org/publications/focused-on-health/36-foods-that-can-help...

craterlake

•1 year ago

2 Replies

T-CELLs Collected

Firstly, may I thank everyone for their good wishes and interest in my first post concerning my CAR-T journey.Well, after a rocky start searching for suitable...

Firstly, may I thank everyone for their good wishes and interest in my first pos...

casanova

•1 year ago

22 Replies

Grand Kids and viruses/bugs

I know this has been discussed but it seems the last few visits with our Grand Kids, both my wife who is not immunocompromised and myself have got quite sick...

I know this has been discussed but it seems the last few visits with our Grand K...

Par3

•1 year ago

9 Replies

Aetna has approved me for Zanubrutinib 80mg Tabs, 4 per day, either 2 twice a day or all 4 at once.

I am the CLL Leukemia patient from 2009 who had no treatment until now. I was stable for 10yrs until 2020 when Covid hit the world & then my WBC started...

I am the CLL Leukemia patient from 2009 who had no treatment until now. I was st...

CoachVera55

•1 year ago

18 Replies

Norweigen Crusted

I was put in St Micheals Hospita;l from a infection of my coplon. stayed 5 days then sent to St Micheals rehab and was there for 6 days. They came in and told...

I was put in St Micheals Hospita;l from a infection of my coplon. stayed 5 days...

Lostgoose

•1 year ago

6 Replies

dental work while on V + O

As a result of the issues below, it looks like my only strictly dental salvage is 1. Having 3 molar implants Plus 2. A major bridge reconstruction for my...

As a result of the issues below, it looks like my only strictly dental salvage i...

skipro

•1 year ago

12 Replies

PSA: Medication Tracking App

Having been in a clinical trial these past four months, two things have been a problem: 1) I have to take several medications a day, some with varying doses...

Having been in a clinical trial these past four months, two things have been a p...

scryer99

•1 year ago

4 Replies

Dr. John Allan - Chronic Lymphocytic Leukemia (CLL) Patients @Undetectable Measurable Residual Disease (MRD) after Ibrutinib Plus Venetoclax

ASH 2022: Dr. John Allan on Outcomes for Chronic Lymphocytic Leukemia (CLL) Patients with Undetectable Measurable Residual Disease (MRD) After Treatment with...

ASH 2022: Dr. John Allan on Outcomes for Chronic Lymphocytic Leukemia (CLL) Pati...

lankisterguy

Volunteer•1 year ago

12 Replies

COVID positive 21 days

Hi there, Brief History: I am currently being treated for relapsed CLL. A year into a 2 year course of Venetoclax and already had 6 months of...

Hi there, Brief History: I am currently being treated for relapsed CLL....

Rich316

•1 year ago

53 Replies

Hi,Just joined! hope to get some good info and chat!

Was diagnosed only last week,so its still a blur in my head what is happening,think every pain is connected. Have had pain in my neck area for a good while,is...

Was diagnosed only last week,so its still a blur in my head what is happening,th...

Bankiedonnie67

•1 year ago

17 Replies

Pulmonary Embolism

Hi all, recently blacked out twice. The second time i was stood up and i've some facial and dental injuries from the fall over the weekend. Diagnosed lung...

Hi all, recently blacked out twice. The second time i was stood up and i've so...

C0llin

•1 year ago

12 Replies

Anxious & scared

Hi all CLL folk , I had my yearly ultra scan 2 weeks ago. And they want me to have a CCT Scan for my kidneys. I will have the dye injected and also have to...

Hi all CLL folk , I had my yearly ultra scan 2 weeks ago. And they want me to ha...

Pekingese

•1 year ago

26 Replies

erythema nodosum after recast infusion cll numbers increased

I have an unusual situation. i had a recast infusion for osteoporosis. I developed a couple of bumps on my legs that were diagnosed as erythema nodosum. I'm...

I have an unusual situation. i had a recast infusion for osteoporosis. I devel...

elm1

•1 year ago

4 Replies

Platelet count

I just had a bi-yearly checkup and my platelet count went down Can anyone tell me if a persons platelet counts can go up? and if so, how did you make that...

I just had a bi-yearly checkup and my platelet count went down Can anyone tell m...

BePositive22

•1 year ago

11 Replies

Sanofi - Not for us

I think I read somewhere (in the last month) that the COVID vaccine, as part of the spring booster programme, was not to offered to compromised patients, as it...

I think I read somewhere (in the last month) that the COVID vaccine, as part of ...

RobertCLL

•1 year ago

15 Replies

Rising white cells

Now that my White Cell Count is rising (34.6) 12/4/2023 what should happen to my Red cell count. I have been diagnosed since 2017. My GP is going to speak to...

Now that my White Cell Count is rising (34.6) 12/4/2023 what should happen to my...

Ellim

•1 year ago

7 Replies

NMN supplements

hello team, Is anyone taking NMN supplements with Imbruvica ? I was recommended this stuff Thank you, Nataliya

hello team, Is anyone taking NMN supplements with Imbruvica ? I was recommended...

farber

•1 year ago

11 Replies

Anyone have CLL get 'jumpstarted / activated' by undergoing unrelated surgery?

Just met with my Oncologist today who said my 'wait and watch' status can be affected for any number of unknown reasons. He has shorted the period between my...

Just met with my Oncologist today who said my 'wait and watch' status can be aff...

ElliptiGOuser

•1 year ago

20 Replies

Haemosiderin Staining Lower legs

I have a problem with haemosiderin staining in my lower right leg. Blood work shows a normal INR and APTT range and the CBC & Auto differential is normal....

I have a problem with haemosiderin staining in my lower right leg. Blood work sh...

Drago1941

•1 year ago

10 Replies

Throat issues

Has anyone had a sore throat for over six weeks I have been to Dr twice, first time she give me antibiotics second time I got a different Dr who gave me a...

Has anyone had a sore throat for over six weeks I have been to Dr twice, first ...

Kiwi77

•1 year ago

14 Replies

Spotlight on CLL - Nicole Lamanna, MD Wednesday May 24, 2023 1:00 PM to 2:30 PM EDT- sponsored by LLS- USA but open to all

Unlike other webinars I have posted recently, this should be easy to understand, especially for newly diagnosed and those not familiar with Med-Speak. Dr....

Unlike other webinars I have posted recently, this should be easy to understand,...

lankisterguy

Volunteer•1 year ago

2 Replies

Advances in Chronic Lymphocytic Leukemia: A Master Class for the Community Multidisciplinary Team Open Registration April 27 12:00-1:00PM ET

Advances in Chronic Lymphocytic Leukemia: A Master Class for the Community Multidisciplinary Team Live Simulcast | Register now for this interactive...

Advances in Chronic Lymphocytic Leukemia: A Master Class for the Community Mul...

lankisterguy

Volunteer•1 year ago

Be the first to reply

Making Ibrutinib + Venetoclax available as a first line treatment in Canada

If you have CLL and have been treated with a combination of Ibrutinib + Venetoclax as your first treatment, you can help by completing our survey. The results...

If you have CLL and have been treated with a combination of Ibrutinib + Venetocl...

CLL_Canada_Group

•1 year ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2023

Relapsed CLL: New Approaches Prolong Survival

CDC OKs COVID-19 vaccine, allows older adults and immunocompromised adults to get second dose Bi Valent vaccine on Wednesday, April 19, 2023

Neutrophiles

Expression of TCL1A gene is found to drive onset of blood cancer

wild temperature fluctuations

bone pain - is it related to CLL

CLL blog to encourage others

A more reliable source for our diets from MDAnderson and notice the short video at the bottom of the article

T-CELLs Collected

Grand Kids and viruses/bugs

Aetna has approved me for Zanubrutinib 80mg Tabs, 4 per day, either 2 twice a day or all 4 at once.

Norweigen Crusted

dental work while on V + O

PSA: Medication Tracking App

Dr. John Allan - Chronic Lymphocytic Leukemia (CLL) Patients @Undetectable Measurable Residual Disease (MRD) after Ibrutinib Plus Venetoclax

COVID positive 21 days

Hi,Just joined! hope to get some good info and chat!

Pulmonary Embolism

Anxious & scared

erythema nodosum after recast infusion cll numbers increased

Platelet count

Sanofi - Not for us

Rising white cells

NMN supplements

Anyone have CLL get 'jumpstarted / activated' by undergoing unrelated surgery?

Haemosiderin Staining Lower legs

Throat issues

Spotlight on CLL - Nicole Lamanna, MD Wednesday May 24, 2023 1:00 PM to 2:30 PM EDT- sponsored by LLS- USA but open to all

Advances in Chronic Lymphocytic Leukemia: A Master Class for the Community Multidisciplinary Team Open Registration April 27 12:00-1:00PM ET

Making Ibrutinib + Venetoclax available as a first line treatment in Canada

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