Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for February 2023

Does anyone have any insight on how or if V +O treatment affects insulin sensitivity?

My husband is on V+O treatment, on cycle 7, he also is type 2 diabetic. Ever since starting treatment, he has had to add fast-acting insulin after meals to his...

My husband is on V+O treatment, on cycle 7, he also is type 2 diabetic. Ever sin...

•1 year ago

Richters and DLBCL after CLL in 2013

After CLL diagnosed in 2013, unmutated, Trisomie 12, CD 38 neg., started FCR 6 cycles in Uni Clinic Cologne (Prof Hallek) up to 4/2014. MRD neg and CR. Then 9...

After CLL diagnosed in 2013, unmutated, Trisomie 12, CD 38 neg., started FCR 6 c...

•1 year ago

IVIG dose

Hi,, please guide me about the starting dose of IVIG injection and its maintenance dose?

Hi,, please guide me about the starting dose of IVIG injection and its maintenan...

•1 year ago

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Cll/ richters

6 rounds RCHOP addition venotoclax treatment was only choice and apparently correct one for my diagnosis! Have been treated at MD Anderson Just putting this...

6 rounds RCHOP addition venotoclax treatment was only choice and apparently cor...

•1 year ago

Staying well with Covid fatigued spouse

I was diagnosed with CLL one year ago, but have had lifelong autoimmune disease issues and POTs that becomes disabling when I get any type of infection. I was...

I was diagnosed with CLL one year ago, but have had lifelong autoimmune disease ...

•1 year ago

LLS.ORG (USA) WHAT ARE YOUR TOP PRIORITIES FOR 2023?

Dear Advocate, Whether it’s making sure every patient can afford health insurance that works for them or advancing better treatments, LLS is committed to...

Dear Advocate, Whether it’s making sure every patient can afford health insura...

Volunteer•1 year ago

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Best Treatment for CLL

Is Zanubrutinib a better treatment than Acalabrutinib for CLL because it is the newest approved version for BTK drugs.

Is Zanubrutinib a better treatment than Acalabrutinib for CLL because it is the ...

•1 year ago

Imbruvica side effects

I'm looking to see if anyone else that is taking imbruvica has cuts and sores on their fingers. How does anyone or is there any remedy. I've used a lot of...

I'm looking to see if anyone else that is taking imbruvica has cuts and sores on...

•1 year ago

Fascinating: Development of Venetoclax

For a few years, I've taken a breather from HU while focusing on full life rather than my CLL. I'm stepping up to post a new podcast from Dana Farber Hospital,...

For a few years, I've taken a breather from HU while focusing on full life rathe...

•1 year ago

Can someone help me to understand my blood results. Seems I will need treatment soon

After 5 years of W&W the consultant at Marsden is now of the opinion that now would be a good time to start treatment. He is, I believe, recommending O&V...

After 5 years of W&W the consultant at Marsden is now of the opinion that now wo...

FairweatherSailor

•1 year ago

Genomic testing and clinical decision making in CLL from the (European) ERIC 2022 Meeting

Genomic testing and clinical decision making in CLL- These videos are from European CLL experts intended for medical professionals and presented at or...

Genomic testing and clinical decision making in CLL- These videos are from Eur...

Volunteer•1 year ago

muscle and joint pain

Is muscle and joint pain after a month of starting acalabrutinib the cause of the acalabrutinib side effect or is it still the result of your body getting rid...

Is muscle and joint pain after a month of starting acalabrutinib the cause of th...

•1 year ago

Should a patient starting a 'brutunib also take Allopurinol?

Just curious. I know Allopurinol is a required pre-treatment for V+O, but I can't find any mention of it being required for Acalabrutunib or Zanubrutunib, ......

Just curious. I know Allopurinol is a required pre-treatment for V+O, but I can...

•1 year ago

spreadsheet Ranges

does anyone know if the ranges are different in the UK then the US? My HO dr does not agree with the ranges on the spreadsheet.

does anyone know if the ranges are different in the UK then the US? My HO dr doe...

•1 year ago

Geography and profiles

Dear all, A post about insurance made me think about something I had mentioned several times in the past, pre-COVID I think. Insurance for travel and...

Dear all, A post about insurance made me think about something I had mentioned s...

•1 year ago

Facing the New Covid-19 Reality Dr. Wafaa El-Sadr comments -current Covid-19 pandemic and learning lessons from past successes and missteps

Facing the New Covid-19 Reality Wafaa M. El-Sadr, M.D., M.P.H., M.P.A., Ashwin Vasan, M.D., Ph.D., and Ayman El-Mohandes, M.B., B.C.H., M.D., M.P.H....

Facing the New Covid-19 Reality Wafaa M. El-Sadr, M.D., M.P.H., M.P.A., Ashwin...

Volunteer•1 year ago

Insurance question

I am currently in treatment for CLL with Gazyva and Venclexta. I just was looking at my explanation of benefits and it looks like my copay for the Venclexta...

I am currently in treatment for CLL with Gazyva and Venclexta. I just was looki...

•1 year ago

Time to write in

and let everyone know how wonderful it has been reading these posts why determining my steps in the CLL process. I started Ibrutinib in October (had other...

and let everyone know how wonderful it has been reading these posts why determin...

•1 year ago

A new Study: Study Understanding Pre-Exposure pRophylaxis of NOVel Antibodies (SUPERNOVA) (SUPERNOVA)

The aim of this worldwide study is to assess the safety and neutralizing activity of AZD5156 for prevention of COVID-19 in immunocompromised individuals...

The aim of this worldwide study is to assess the safety and neutralizing activit...

Administrator•1 year ago

Travel insurance covering chronic lymphocytic leukemia

Is there any affordable traveling insurance covering chronic lymphocytic leukemia CLL?

Is there any affordable traveling insurance covering chronic lymphocytic leukemi...

•1 year ago

Zanubrutinib

Hello I found this yesterday it’s a website that describes articles as being ‘ fact checked’ ? Zanubrutinib Is A New and Improved Medication For CLL...

Hello I found this yesterday it’s a website that describes articles as being ...

•1 year ago

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Stopping Imbruvica before going to the dentist

Good day to all. Why shall I stop Imbruvica before going to the dentist to clean the gum? Is it for fear of bleeding?For how long before going? Why it is...

Good day to all. Why shall I stop Imbruvica before going to the dentist to clea...

•1 year ago

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