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CLL Support

22,532 members • 38,709 posts

All posts for January 2023

Is anyone taking Zetia and Calquence? Have your cholesterol counts (LDL) gone down?

Calquence and Zetia

Newny

•1 year ago

1 Reply

Cancer link to nuclear base

It seems that the US Space Force as found that "The disproportionate number of missileers presenting with cancer; specifically lymphoma" is concerning. "There...

It seems that the US Space Force as found that "The disproportionate number of m...

SERVrider

•1 year ago

7 Replies

Results on triple combination (A+V+O) for high risk patients -with-chronic-lymphocytic-leukemia-or-small-lymphocytic-lymphoma-cll

The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib, venetoclax, and obinutuzumab is highly active. Thus far this drug...

The Bottom Line: In this ongoing trial, the triple combination therapy using ac...

spi3

•1 year ago

7 Replies

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Water intake

I'm taking my Imbruvica at 7 PM with my last cup of water for the day.I make certain that I drink 12 cups of water during the day....half of it during the...

I'm taking my Imbruvica at 7 PM with my last cup of water for the day.I make cer...

Hidden

•1 year ago

9 Replies

Antineoplastons

Hello all. I recently came across information regarding Dr Stanislaw Burzynski and his "successful" treatment of cancer patients by use of Neoplastons. Is...

Hello all. I recently came across information regarding Dr Stanislaw Burzynski a...

Floydpup

•1 year ago

6 Replies

Prescription Charges

Hi A local Pharmacist told me, when collecting a ‘one off’ prescription, that I should be entitled to free prescriptions. I have always been of the...

Hi A local Pharmacist told me, when collecting a ‘one off’ prescription, that ...

Juliette02

•1 year ago

10 Replies

Is there anything that helps you with inflamed lymph nodes in the neck and abdomen?

Hello All, Update on my mom's case. It has been 2 weeks since the doctor prescribed her the treatment, her lymph nodes are growing by the hour and she lost...

Hello All, Update on my mom's case. It has been 2 weeks since the doctor prescr...

paula_dae

•1 year ago

19 Replies

1st Bone Marrow Biopsy

Hi all. I just had my first bone marrow biopsy yesterday. I have been dealing with MBL / CLL over the last decade and my count is around 50. I do not really...

Hi all. I just had my first bone marrow biopsy yesterday. I have been dealing w...

Billy_Oz

•1 year ago

25 Replies

Interesting article in the news ,NHL diagnosis for military personnel

i thought this was a rather interesting article about the officers working at the Montana nuclear site getting Leukemia . here is a portion of the...

i thought this was a rather interesting article about the officers working at ...

craterlake

•1 year ago

4 Replies

Lymphodema

Haven't been on a while. Happy to say I've been off the Imbruvica for 9 months. In Remission. YEAH. HOWEVER, have really bad edema, now in both legs and...

Haven't been on a while. Happy to say I've been off the Imbruvica for 9 months....

duffymcgrif

•1 year ago

4 Replies

Husband FINALLY got last O infusion after Neutro bump in the road!

Promised update! Husband's Neutrophils went up to 5.38 after 4 GCSF injections, so last week he received his LAST infusion! Party time??? Not so much. My...

Promised update! Husband's Neutrophils went up to 5.38 after 4 GCSF injections, ...

lisakc1

•1 year ago

4 Replies

I have been wondering how many miles it takes to "run in" a new knee...

I will write about the op soon in more detail for those who are yet to face what I did on November 24th 2022. Meanwhile, now that I can sit comfortably long...

I will write about the op soon in more detail for those who are yet to face what...

JigFettler

Volunteer•1 year ago

16 Replies

Boost Hemoglobin and Venetoclax coverage in Ontario

Hi all, Hope you’re well Had a follow up with my Oncologist last week, He suggested starting treatment in 3 months as Hemoglobin is 104, palettes count 150...

Hi all, Hope you’re well Had a follow up with my Oncologist last week, He sugg...

Sunny-planet

•1 year ago

25 Replies

Paxlovid and Imbruvica

I had to stop Imbruvica on Tuesday so I could take Paxlovid for Covid from Wednesday-Sunday. These two meds shouldn’t be taken together. I just took my last...

I had to stop Imbruvica on Tuesday so I could take Paxlovid for Covid from Wedne...

DogmomLM

•1 year ago

4 Replies

Acetaminophen and Immunotherapy

Has anyone else heard of this? Does is have any bearing on CLL patients on BTK inhibitors?...

Has anyone else heard of this? Does is have any bearing on CLL patients on BTK ...

210savannah

•1 year ago

7 Replies

Obinutuzumab & Venetoclax - tired & weak all the time

Hello, I’m appr. 6 weeks into the teatment. - Is it normal to feel very tired and weak during treatment? I am at a point where even sittings with ‘m’y legs...

Hello, I’m appr. 6 weeks into the teatment. - Is it normal to feel very tired...

Mumu1

•1 year ago

11 Replies

Travel Insurance for Kiwis ( New Zealander) with CLL

Hi I have CLL (diagnosed 2007 male age 53) and have been on Ibrutinib since September 2018 which is still working fine. Associated high blood pressure and...

Hi I have CLL (diagnosed 2007 male age 53) and have been on Ibrutinib since Se...

Moorsa

•1 year ago

4 Replies

High IGM Low IGA and Low IGG

In my recent blood test showed low iron, excessively high IGM 1127, IGA 14, lGG 674I takeTylenol at least 4/5 times in a week because of either a back pain or...

In my recent blood test showed low iron, excessively high IGM 1127, IGA 14, lGG ...

Family2017

•1 year ago

4 Replies

Both me and my husband ( CLL) have Covid

I got it first about 10 days ago and my husband got it a few days later from me. We both started Paxlovid within a day of symptoms. Symptoms were relatively...

I got it first about 10 days ago and my husband got it a few days later from me....

ikahan

•1 year ago

10 Replies

When you finally DO get Covid...

Very simple question: We immune-compromised people are bad at making antibodies via vaccinations and boosters. Are we JUST as bad at making them after we've...

Very simple question: We immune-compromised people are bad at making antibodies...

mouseandchair

•1 year ago

9 Replies

CLL / Skin Cancer - getting it checked in the UK

Just saw another post about the risks of exposure to the sun. We spend a lot of our summer sailing around the Brittany coast of France, which is beautiful and...

Just saw another post about the risks of exposure to the sun. We spend a lot of ...

FairweatherSailor

•1 year ago

14 Replies

Nice post about cleaner indoor air standards

https://thegauntlet.substack.com/p/billionaires-at-davos-dont-think The Gauntlet Billionaires at Davos don't think COVID is a cold A few weeks ago, the New...

https://thegauntlet.substack.com/p/billionaires-at-davos-dont-think The Gauntle...

Classicaljazz

•1 year ago

5 Replies

Zanu vs Acala, Round 1! (Question)

Hi y'all, Just wondering, seeing as Zanubrutunib is now FDA approved in the USA, if one were to be starting a BTKi drug, having never been on one before,...

Hi y'all, Just wondering, seeing as Zanubrutunib is now FDA approved in the USA...

DRM18

•1 year ago

14 Replies

CLL and skin cancer

The CLL webinar yesterday was all about various skin cancers and early warning signs. With blood cancer, we are more vulnerable. It was very interesting with...

The CLL webinar yesterday was all about various skin cancers and early warning s...

kitchengardener2

•1 year ago

24 Replies

FDA Approves Zanubrutinib for Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphom

FDA Approves Zanubrutinib for Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma Jan 19, 2023 By Caroline Seymour...

FDA Approves Zanubrutinib for Chronic Lymphocytic Leukemia or Small Lymphocytic ...

lankisterguy

Volunteer•1 year ago

16 Replies

How to remove salt from canned beans ?

Food prices and the price of energy for cooking will increase. Canned vegetable is considered acceptable for a reasonable diet, but obviously not optimal....

Food prices and the price of energy for cooking will increase. Canned vegetabl...

janvog

•1 year ago

22 Replies

How to Keep your Hands Warm with Chemical Heat Packs

<<< This item first posted in HU Community Scleroderma & Raynaud's UK (SRUK) >>> Of course we must layer up in the cold to maintain core body...

<<< This item first posted in HU Community Scleroderma & Raynaud's UK (SRUK) >>...

Ernest2

•1 year ago

11 Replies

After 2 weeks of COVID you are not infectious

I just had a conversation with the Haematology unit of my hospital. I was told that after 2 weeks of COVID you are not infectious. Is that still correct if...

I just had a conversation with the Haematology unit of my hospital. I was told ...

RobertCLL

•1 year ago

5 Replies

Ibrutnib, HBP, RLS, and insomnia issues

I'm an 80 year old male and have been on ibrutinib for the past 18 months. The ocologist approved my request to reduce my treatment to 2 doses per day but has...

I'm an 80 year old male and have been on ibrutinib for the past 18 months. The ...

sportage21

•1 year ago

11 Replies

MRD question

quick question… I’m in a trial- taking V exclusively and completed Obin phase . Finished cycle 7 and was tested for MRD. I had 9 cells which sounded pretty...

quick question… I’m in a trial- taking V exclusively and completed Obin phase ....

Gardengirl44

•1 year ago

8 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2023

Is anyone taking Zetia and Calquence? Have your cholesterol counts (LDL) gone down?

Cancer link to nuclear base

Results on triple combination (A+V+O) for high risk patients -with-chronic-lymphocytic-leukemia-or-small-lymphocytic-lymphoma-cll

Water intake

Antineoplastons

Prescription Charges

Is there anything that helps you with inflamed lymph nodes in the neck and abdomen?

1st Bone Marrow Biopsy

Interesting article in the news ,NHL diagnosis for military personnel

Lymphodema

Husband FINALLY got last O infusion after Neutro bump in the road!

I have been wondering how many miles it takes to "run in" a new knee...

Boost Hemoglobin and Venetoclax coverage in Ontario

Paxlovid and Imbruvica

Acetaminophen and Immunotherapy

Obinutuzumab & Venetoclax - tired & weak all the time

Travel Insurance for Kiwis ( New Zealander) with CLL

High IGM Low IGA and Low IGG

Both me and my husband ( CLL) have Covid

When you finally DO get Covid...

CLL / Skin Cancer - getting it checked in the UK

Nice post about cleaner indoor air standards

Zanu vs Acala, Round 1! (Question)

CLL and skin cancer

FDA Approves Zanubrutinib for Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphom

How to remove salt from canned beans ?

How to Keep your Hands Warm with Chemical Heat Packs

After 2 weeks of COVID you are not infectious

Ibrutnib, HBP, RLS, and insomnia issues

MRD question

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