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CLL Support

22,610 members • 38,830 posts

All posts for November 2022

arthritis with CLL/SLL

Is arthritis symptoms, osteoporosis, or tears to muscles , more prone to patients with CLL/SLL. I definitely feel like I’m having more trouble with bones,...

Is arthritis symptoms, osteoporosis, or tears to muscles , more prone to patient...

Gino23

•2 years ago

5 Replies

Dysport and swollen lymph nodes

Has anyone experienced swollen lymph nodes after getting dysport? I have one that has popped up in my groin the day after I had cosmetic dysport injected and...

Has anyone experienced swollen lymph nodes after getting dysport? I have one tha...

StrengthHopeLove

•2 years ago

3 Replies

1st treatment of bendamustine. Side Effects Help

1st week after 1st treatment of bendamustine. Is diarrhea normal side effect? Seems like a stomach bug but stool is oily. Thanks for help

1st week after 1st treatment of bendamustine. Is diarrhea normal side effect? S...

LarryJM

•2 years ago

26 Replies

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Itchy scalp and dry cracking finger nails

I have been on ibrutinib for about 8 months . has anyone had these problems ? any solutions? Thank you ....

I have been on ibrutinib for about 8 months . has anyone had these problems ? an...

Dyba

•2 years ago

6 Replies

CLL Society’s COVID-19 Update for the Week of November 7th, 2022

https://cllsociety.org/2022/11/cll-societys-covid-19-update-for-the-week-of-november-7th-2022/ As the world has seemingly moved on from COVID-19 and appears...

https://cllsociety.org/2022/11/cll-societys-covid-19-update-for-the-week-of-nove...

lankisterguy

Volunteer•2 years ago

17 Replies

Collagen

Good Day All I am 80 years old and have been on W & W for 5 years. I am considering taking a collagen supplement for joint pain in my knee. Does anyone...

Good Day All I am 80 years old and have been on W & W for 5 years. I am cons...

Buttons42

•2 years ago

9 Replies

Father of two, cll diagnosed three years ago and the unknown

For the past 6 weeks I've been unwell with what seem to be the flu. Not knowing that everyday for the past 2 weeks I've had constant nose bleeds and vomiting...

For the past 6 weeks I've been unwell with what seem to be the flu. Not knowing ...

FoxAngelus

•2 years ago

11 Replies

My background Intro

Born in NYC. Spend entire career in International Human Resources. Retired 13 years ago. Have been a volunteer since retirement with the National Park Service...

Born in NYC. Spend entire career in International Human Resources. Retired 13 y...

Balcutha

•2 years ago

5 Replies

Internet censorship?

Internet censorship of medical information? As I mentioned before, I had anaphylactic shock during first infusion with obinutuzumab, which does not appear to...

Internet censorship of medical information? As I mentioned before, I had anaphy...

Big_Dee

•2 years ago

9 Replies

Zanubrutnib

Has anyone experience of zanubrutnib? It appears to have virtually no hair loss, with positive results.

Has anyone experience of zanubrutnib? It appears to have virtually no hair loss,...

Fwanni

•2 years ago

14 Replies

APDS Study - USA - Connecting with APDS Patients/Caregivers

Hi Everyone, Hope you had a great weekend! Introducing I am Thomas Raymond from The Insights Shop (TIS), a global market research agency specialized in...

Hi Everyone, Hope you had a great weekend! Introducing I am Thomas Raymond...

ThomasRaymond

•2 years ago

8 Replies

Thank you

Dear lovely people I usually like to respond to each reply I get on health unlocked. However I have been overwhelmed by the number of best wishes I have...

Dear lovely people I usually like to respond to each reply I get on health unlo...

Fowey2009

•2 years ago

8 Replies

Chronic Lymphocytic Leukemia patient survey points to a need for better patient education

The interim report of an ongoing survey of CLL patients demonstrates that over 60% of respondents were unaware of different CLL risk groups and that about 20%...

The interim report of an ongoing survey of CLL patients demonstrates that over 6...

CLLerinOz

Administrator•2 years ago

12 Replies

Medicare plans

I will be turning 65 this month and have been looking into different Medicare plans...original Medicare and adding a Medicare supplemental plan plus part D;...

I will be turning 65 this month and have been looking into different Medicare pl...

kesslm

•2 years ago

17 Replies

CLL, Imbuviva and AFIB

I am 81. Two years ago I started on imbrubica and about a year in I had afib which is a known risk for this drug. I was advised to and did consult with my...

I am 81. Two years ago I started on imbrubica and about a year in I had afib wh...

BobTerry62

•2 years ago

8 Replies

Ibrutinib

hello. Here in Argentina it is late. Thus. good evening! I have a concern that perhaps someone else has experienced. After 3 years of using 3 ibrutinib...

hello. Here in Argentina it is late. Thus. good evening! I have a concern th...

Bixilon

•2 years ago

8 Replies

Poorly with the flu

My husband got diagnosed with stage 1 CLL about a month ago. He has since caught a horrible virus, probably the flu. It's been going around, but with how...

My husband got diagnosed with stage 1 CLL about a month ago. He has since caught...

Thebutterfly

•2 years ago

5 Replies

wasp stings

I never post ,I usually just read through messages.I have had CLL for 4 yrs now and am taking Imbruvica.all is well but recently had very bad reaction to wasp...

I never post ,I usually just read through messages.I have had CLL for 4 yrs now ...

Matt917

•2 years ago

9 Replies

Need help with understanding SARS antibody test results.

Hi, can anyone explain what this antibody test result means? Thank you 🙏🏻 © SARS-CoV-2 S Antibody U/mL Value Positive Standard Range Non Reactive......

Hi, can anyone explain what this antibody test result means? Thank you 🙏🏻 ...

SeaChanty

•2 years ago

7 Replies

Calquence changed from capsules to tablets.

Recent change of Calquence from capsules to tablets caused an interruption in my husband who has CLL receiving his medication on time as the pharmacy did not...

Recent change of Calquence from capsules to tablets caused an interruption in my...

linnylee

•2 years ago

15 Replies

Venetoclax and back ache

Since starting Venetoclax in April 2022, back ache and sciatica has got progressively worse. X-rays reveal spondylolisthesis and cauda equina syndrome. I...

Since starting Venetoclax in April 2022, back ache and sciatica has got progress...

nigeldodd

•2 years ago

8 Replies

Long Covid research and immunocompromise

https://www.washingtonpost.com/health/2022/11/04/chronic-covid-uk-cure-genomic/ Based on research in the UK, it turns out that long COViD cases, which...

https://www.washingtonpost.com/health/2022/11/04/chronic-covid-uk-cure-genomic/ ...

scryer99

•2 years ago

3 Replies

living with cll

I am trying to deal with my disease every day. I was always very active person walking every day. I still walk but get tired fast, and experience dizziness. I...

I am trying to deal with my disease every day. I was always very active person w...

Bradjase

•2 years ago

17 Replies

Checking in

hi all received letter ( patient copy) still in remission MRD - although, during our consultations, I have noticed phrases like “well hopefully this will...

hi all received letter ( patient copy) still in remission MRD - although, duri...

Sepsur

•2 years ago

12 Replies

Diagnosis from blood work

Hello! My father was diagnosed with CLL after going to the ER for something unrelated. While there he was told he has CLL. I'm curious if this could be...

Hello! My father was diagnosed with CLL after going to the ER for something unre...

Kittykat97

•2 years ago

1 Reply

Ibrutnib versus acalabrutnib

I was on ibrutnib over 3 years, great blood results. The only issue was severe bone, joint pain esp in my right hand, feet. Off it 4 months, with low joint...

I was on ibrutnib over 3 years, great blood results. The only issue was severe b...

Fwanni

•2 years ago

7 Replies

atorvastain side affects

Have people and bad Side affects and been unwell when taking atorvastatin when on itruibuib

Have people and bad Side affects and been unwell when taking atorvastatin when o...

Duder

•2 years ago

3 Replies

A cold that does not want to go away

Friends, I have had a cold for three weeks now. Not COVID, I got tested several times. This cold gives me congestion, cough, body aches and on top of all...

Friends, I have had a cold for three weeks now. Not COVID, I got tested several...

hasta

•2 years ago

31 Replies

CLL and coughing

What are Cll patients doing to control the coughing

Lindaan

•2 years ago

6 Replies

Itchy skin on Ibrutinib

Has anyone had good luck with terrible itchy skin outbreak: Does triamcinolone acetonide help?

Has anyone had good luck with terrible itchy skin outbreak: Does triamcinolone a...

Tapps

•2 years ago

29 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2022

arthritis with CLL/SLL

Dysport and swollen lymph nodes

1st treatment of bendamustine. Side Effects Help

Itchy scalp and dry cracking finger nails

CLL Society’s COVID-19 Update for the Week of November 7th, 2022

Collagen

Father of two, cll diagnosed three years ago and the unknown

My background Intro

Internet censorship?

Zanubrutnib

APDS Study - USA - Connecting with APDS Patients/Caregivers

Thank you

Chronic Lymphocytic Leukemia patient survey points to a need for better patient education

Medicare plans

CLL, Imbuviva and AFIB

Ibrutinib

Poorly with the flu

wasp stings

Need help with understanding SARS antibody test results.

Calquence changed from capsules to tablets.

Venetoclax and back ache

Long Covid research and immunocompromise

living with cll

Checking in

Diagnosis from blood work

Ibrutnib versus acalabrutnib

atorvastain side affects

A cold that does not want to go away

CLL and coughing

Itchy skin on Ibrutinib

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