Posts - CLL Support | HealthUnlocked

CLL Support

22,661 members • 38,891 posts

All posts for November 2022

Any recent experiences of AIHA developing in progressive CLL - particularly in those treated with or awaiting Venetoclax treatment?

Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp...

Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbe...

jibs60

•2 years ago

25 Replies

CLL Advocates Network upcoming webinars. 6th December 1800 to 1930 GMT CLL treatment in the relapsed-refractory

This educational session will discuss advances in how relapsed/refractory CLL patients and those who fail a treatment are treated today.6 December 2022 – CLLAN...

This educational session will discuss advances in how relapsed/refractory CLL pa...

Irishcll

•2 years ago

2 Replies

CLL Advocates Network upcoming webinars. This one 7th of December 17:00 - 18:00 GMT

Join us for the second webinar on the 7th December. Moderator Pierre Aumont and the panelists are Prof. Chris Pepper, Prof. Chris Fegan and CLL patient Jan...

Join us for the second webinar on the 7th December. Moderator Pierre Aumont and ...

Irishcll

•2 years ago

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Rash?

Woke up this morning with a rash on the inside of my arm from elbow down. Small bumps a little bit itchy. Last Gazyva treatment was a week ago today and I am...

Woke up this morning with a rash on the inside of my arm from elbow down. Small ...

Gradyboy

•2 years ago

7 Replies

IgHV - unmutated and Acalabrutinib

Saw my CLL specialist yesterday and he had the results of the IgHV testing he requested. It seems I am unmutated status which isn't great news. At the time of...

Saw my CLL specialist yesterday and he had the results of the IgHV testing he re...

Eucalyptus22

•2 years ago

6 Replies

shingrix and booster shots.

shingrix Just had my second shingrix vaccination and two days later still getting better. Very sore hot arm swollen and now today very itchy. Not my favourite...

shingrix Just had my second shingrix vaccination and two days later still getti...

Qualicum

•2 years ago

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W&W for 2yrs: Congested sinuses, heavily congested ear, partial deafness.

Hi all! First thanks to AussieNeil, NewDawn, et al, for their incredibly well informed contributions. Indeed, thank-you to all contributors for making this...

Hi all! First thanks to AussieNeil, NewDawn, et al, for their incredibly well i...

Petroc

•2 years ago

39 Replies

Covid no 2nd treatment

Tested positive for covid 2/11/22, via 111 went through to Covid Medicine Delivery Unit at St Georges Hospital at Stafford. They prescribed molnupiravir...

Tested positive for covid 2/11/22, via 111 went through to Covid Medicine Delive...

clifflee

•2 years ago

6 Replies

Vaccinations and bloodwork

I have a checkup coming soon at MD Anderson and want to get my flu shot. Would the vaccination affect my bloodwork before my visit? I typically get sick with...

I have a checkup coming soon at MD Anderson and want to get my flu shot. Would ...

FloridaGal2

•2 years ago

11 Replies

Delayed Reaction to Covid Vaccination

I had my 6th booster COVID vaccination , Pfizer bivalent version just over a week ago (8 days ago). I was fine in the days that followed, just a soar arm....

I had my 6th booster COVID vaccination , Pfizer bivalent version just over a we...

RobertCLL

•2 years ago

10 Replies

Survival Outcome Observation

An interesting publication offer relative to recent survival outcome data provided by CLL Society from ASCO 2022 -...

An interesting publication offer relative to recent survival outcome data provid...

Smakwater

•2 years ago

7 Replies

New to this and very afraid

Hello folks...My GP feels my bloods indicate CLL...PANIC. Referring me to a Haematology Doctor 58 with dependent kids and mortgage Any information re the...

Hello folks...My GP feels my bloods indicate CLL...PANIC. Referring me to a Haem...

Stew64

•2 years ago

39 Replies

A class of targeted protein degraders offers a possible strategy to overcome BTK inhibitor resistance in chronic lymphocytic leukemia

A research article published in the journal Blood this week reports on a possible way forward for those with CLL who develop BTK inhibitor resistance...

A research article published in the journal Blood this week reports on a possibl...

CLLerinOz

Administrator•2 years ago

2 Replies

Swollen Face Nodes?

Is it a thing? Has anyone experienced it? Just above the jawline near the ear? I've done some googling and it appears possible. I've never seen anyone in...

Is it a thing? Has anyone experienced it? Just above the jawline near the ear?...

wellbeingwarrior

•2 years ago

18 Replies

ON CALQUENCE FOR 37DAYS

I have been on Calquence for 37 days, and I have developed a cough for four days now. My nurse thinks it is a virus, has anyone developed a cough. I have no...

I have been on Calquence for 37 days, and I have developed a cough for four days...

helenolton

•2 years ago

4 Replies

My MD Anderson doctor is leaving

I received a letter on Saturday that my oncologist at MD Anderson, Dr. Philip Thompson, is leaving effective January 3, 2023. Nooooooooo! Dr. Thompson is...

I received a letter on Saturday that my oncologist at MD Anderson, Dr. Philip Th...

Lisa-1959

•2 years ago

33 Replies

Working out your ALC

During my last telephone appointment I was told that my ALC had doubled since initial diagnosis. How do I work out from my blood test results what my ALC is?...

During my last telephone appointment I was told that my ALC had doubled since in...

Adlucy

•2 years ago

3 Replies

Starting treatment

Hello everyone, I've been on W&W Since Jan 2020. Two weeks ago at my consultation my consultant said its time for treatment, that week I had a CT scan, blood...

Hello everyone, I've been on W&W Since Jan 2020. Two weeks ago at my consultatio...

mfc86

•2 years ago

9 Replies

Specialist has downgraded my father's CLL to MBL, but his lymphocytes has increased in the 3 months?

A Haematologist 3 months ago told him he had CLL when his lymphocytes was at 6000. Now a different Haematologist has just recently downgraded his condition to...

A Haematologist 3 months ago told him he had CLL when his lymphocytes was at 600...

Malonsy

•2 years ago

4 Replies

CLL and Thyroid

Good morning. I was diagnosed with hypothyroidism a few years before CLL and have been taking levothyroxine [175mcg], I am currently on Acalabruitnib and at my...

Good morning. I was diagnosed with hypothyroidism a few years before CLL and hav...

rafew

•2 years ago

16 Replies

start of treatment

I am diagnosed with CLL in 2003 and has been on wait and watch. Del 17 but mutated IGHV. WBC count and platlets are stable for last 6 months with around 1...

I am diagnosed with CLL in 2003 and has been on wait and watch. Del 17 but mutat...

Ashwas

•2 years ago

9 Replies

Chronic Lymphocytic Leukemia Information & Resources Around the World

This pinned post replaces our earlier reference post about sources of helpful information and support for those with CLL/SLL (hereafter referred to as CLL)....

This pinned post replaces our earlier reference post about sources of helpful in...

CLLerinOz

Administrator•2 years ago

7 Replies

Our 2022 Christmas Donations Appeal Will you help us to reach and support more CLL patients this Christmas?

This year has been another difficult year for everyone, especially for the vulnerable and the charities that support them, like CLL Support UK, the charity...

This year has been another difficult year for everyone, especially for the vulne...

AussieNeil

Administrator•2 years ago

15 Replies

Breakthrough in laboratory production of red blood cells towards saving lives of those with Chronic Lymphocytic Leukaemia in the future

One of the triggers for starting treatment for CLL is haemoglobin dropping below 100. The most common use of donated blood is transfusions for those undergoing...

One of the triggers for starting treatment for CLL is haemoglobin dropping below...

AussieNeil

Administrator•2 years ago

5 Replies

Bleeding from Acalabrutinib

Good morning, i woke up today at 4am with a bad taste in my mouth and spit in the sick and noticed some blood. I did not notice any cuts in my mouth or...

Good morning, i woke up today at 4am with a bad taste in my mouth and spit in ...

Tofa80

•2 years ago

19 Replies

Good News - Novag-111 trial success!

Hello folks - just to let you know I've completed the treatment phase of the trial and - alleluia - I'm clear of cancerous cells in bone marrow and blood. To...

Hello folks - just to let you know I've completed the treatment phase of the tri...

thelutondodger

•2 years ago

39 Replies

Flu and COVID 4th booster

My hubby had both yesterday and is feeling week today. He is resting but his temp is at 100.3. He just took 2 Tylenols (1000 mg) - can anyone advice me when...

My hubby had both yesterday and is feeling week today. He is resting but his te...

spi3

•2 years ago

3 Replies

Immuncompromised after Fixed Duration Therapy?

My specialist and I were discussing the pluses and minuses of my beginning a fixed duration therapy. I am currently four years into Ibrutinib with successful...

My specialist and I were discussing the pluses and minuses of my beginning a fix...

hhk50

•2 years ago

15 Replies

O & V treatment and lymph nodes

Please can someone who has CLL and swollen neck nodes tell me how long into treatment with Gazyva and Venclexta does it take for nodes to shrink and stay...

Please can someone who has CLL and swollen neck nodes tell me how long into trea...

Gradyboy

•2 years ago

41 Replies

Itching article

I recently saw a reply to someone’s post that had a link to an abstract/article about itching with CLL. I think it was a pub med publication. I emailed it to...

I recently saw a reply to someone’s post that had a link to an abstract/article ...

Cornhusker

•2 years ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2022

Any recent experiences of AIHA developing in progressive CLL - particularly in those treated with or awaiting Venetoclax treatment?

CLL Advocates Network upcoming webinars. 6th December 1800 to 1930 GMT CLL treatment in the relapsed-refractory

CLL Advocates Network upcoming webinars. This one 7th of December 17:00 - 18:00 GMT

Rash?

IgHV - unmutated and Acalabrutinib

shingrix and booster shots.

W&W for 2yrs: Congested sinuses, heavily congested ear, partial deafness.

Covid no 2nd treatment

Vaccinations and bloodwork

Delayed Reaction to Covid Vaccination

Survival Outcome Observation

New to this and very afraid

A class of targeted protein degraders offers a possible strategy to overcome BTK inhibitor resistance in chronic lymphocytic leukemia

Swollen Face Nodes?

ON CALQUENCE FOR 37DAYS

My MD Anderson doctor is leaving

Working out your ALC

Starting treatment

Specialist has downgraded my father's CLL to MBL, but his lymphocytes has increased in the 3 months?

CLL and Thyroid

start of treatment

Chronic Lymphocytic Leukemia Information & Resources Around the World

Our 2022 Christmas Donations Appeal Will you help us to reach and support more CLL patients this Christmas?

Breakthrough in laboratory production of red blood cells towards saving lives of those with Chronic Lymphocytic Leukaemia in the future

Bleeding from Acalabrutinib

Good News - Novag-111 trial success!

Flu and COVID 4th booster

Immuncompromised after Fixed Duration Therapy?

O & V treatment and lymph nodes

Itching article

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