Posts - CLL Support | HealthUnlocked

CLL Support

22,514 members • 38,670 posts

All posts for November 2022

fasting for blood work??

I am going for my six month blood work, does anyone fast before their bloodwork?

I am going for my six month blood work, does anyone fast before their bloodwork?...

Gino23

•1 year ago

20 Replies

Stopped using Evusheld

I received this message from UCSF. I believe, soon they will stop using it everywhere else too. In recent weeks, California has seen a rapid increase and...

I received this message from UCSF. I believe, soon they will stop using it every...

shazie

•1 year ago

3 Replies

My wife and I both got covid

Being very careful, wearing masks all the time except a few times when we went out to eat and took off only to eat. Sadly we got covid. I called my...

Being very careful, wearing masks all the time except a few times when we went o...

Bill1288

•1 year ago

30 Replies

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should I have my covid booster now

Hello Everyone, I wonder if any of you would have an opinion on the following. I have had 5 vaccinations and boosters for Covid. And although I had no...

Hello Everyone, I wonder if any of you would have an opinion on the following. ...

Provence

•1 year ago

19 Replies

post Venetoclax treatment

Problems after finishing my treatment for CLL. I took Covid in July that resulted in a Lung infection I was admitted to hospital and stayed there for 10 weeks...

Problems after finishing my treatment for CLL. I took Covid in July that result...

Alma555

•1 year ago

3 Replies

Promising research is currently underway to use humanized bispecific single-domain antibodies

I was wondering if anyone has seen this new trial for applicable candidates...

spi3

•1 year ago

4 Replies

You are invited to join us for our UK Birmingham conference. Our keynote speaker will be Prof. Paul Moss.

Following the success of our recent Glasgow conference, CLL Support are pleased to announce that our next conference will be in Birmingham on Saturday 3...

Following the success of our recent Glasgow conference, CLL Support are pleased ...

pkguk2

Partner•1 year ago

3 Replies

Swollen Lymph Nodes

Wondering if anyone else is experiencing this journey: feeling fine, all blood numbers are great, so no treatment at this point although in December of 2021 a...

Wondering if anyone else is experiencing this journey: feeling fine, all blood ...

StrengthHopeLove

•1 year ago

5 Replies

Mexican sarsaparilla ( Smilax aristolochiifolia) for anaemia, CLL

Has anyone heard about this herb for anemia or blood cancer

Family2017

•1 year ago

5 Replies

Hope this isn't Covid!

Sunday I had very sore throat and took some Night Nurse cold remedy before I went to bed. Tested clear for Covid. I slept well but my throat was still sore. I...

Sunday I had very sore throat and took some Night Nurse cold remedy before I wen...

kitchengardener2

•1 year ago

24 Replies

Betcha your doubling rate is lower than mine :-)

After recent posting on spleen laceration and a weekend ER visit, I spent most of today in scheduling a blizzard of follow-on appointments. First one was with...

After recent posting on spleen laceration and a weekend ER visit, I spent most o...

scryer99

•1 year ago

9 Replies

Has anyone been able to go down to 140mg ibrutinib due to side effects? What was the result of this descent? Thx.

140 MG Ibrutinib

Denisguay

•1 year ago

66 Replies

Medicare Part D for 2023 - USA open enrollment until 7 Dec 2022 to check your costs and change plans

For all Medicare participants in the USA- please check your costs for next year by going to https://www.medicare.gov/plan-compare/#/?year=2023&lang=en...

For all Medicare participants in the USA- please check your costs for next year ...

lankisterguy

Volunteer•1 year ago

9 Replies

Need fellow Cllers help.

So I have a question for those of you have had CLL for awhile. Does there ever come a time that you actually go through a day or more that it doesn't consume...

So I have a question for those of you have had CLL for awhile. Does there ever c...

Gradyboy

•1 year ago

37 Replies

calquence

my wife has to start ob calquence. She has WellCare part D for prescriptions. They approved it then we were told it was $4,000 a month. Her cll doctor...

my wife has to start ob calquence. She has WellCare part D for prescriptions. ...

Skidog

•1 year ago

40 Replies

Prostate therapy for CLL patient?

I was diagnosed with CLL in February and have been on Acalbrutinib since April. Lumps in my neck have gone and my bloods are all normal apart from slightly low...

I was diagnosed with CLL in February and have been on Acalbrutinib since April. ...

JIDD

•1 year ago

7 Replies

VJ Hem Onc podcast 11/2022 Key Updates in CLL Strategy

https://podcasts.apple.com/us/podcast/vjhemonc-podcast/id1315632132?i=1000587487667

https://podcasts.apple.com/us/podcast/vjhemonc-podcast/id1315632132?i=1000587487...

db601

•1 year ago

2 Replies

New to treatment

Began treatment of calquence one month ago with no bad side effects but my doctor wants to add gazya in 10 days. I have responded quite well with most of the...

Began treatment of calquence one month ago with no bad side effects but my docto...

buglin

•1 year ago

20 Replies

STATIC now beginning to open at sites in the UK

The long awaited successor to FLAIR for patients randomised to one of the Ibrutinib arms is finally ready to open at sites in the UK. When each site is ready...

The long awaited successor to FLAIR for patients randomised to one of the Ibruti...

Jm954

Administrator•1 year ago

10 Replies

Raynaud's disease and Gazyva and Raynaud's remission

Hello everyone .. my wife and i had a peaceful thanksgiving at home . at our old age we really miss spending time with our loved ones during the holidays ,,,...

Hello everyone .. my wife and i had a peaceful thanksgiving at home . at our o...

craterlake

•1 year ago

20 Replies

FLAIR trial. What comes next?

the FLAIR trial lasts for 6 years. I’m currently on my 5th year and although it hasn’t been perfect I’d rather continue my medication once my trial time is...

the FLAIR trial lasts for 6 years. I’m currently on my 5th year and although it...

Flabal

•1 year ago

6 Replies

NUREX - 2127 ONE YEAR ANNIVERSARY STARTING CYCLE 14

Here's an update of my second clinical trial. I started this BTK degraeder November 11, 2021, now here I am, over a year later and doing really well. Other...

Here's an update of my second clinical trial. I started this BTK degraeder Nove...

steve5441

•1 year ago

26 Replies

Paxlovid side effects?

I have just tested positive for COVID, eleven months after the last time. That time I had the sotrovimab infusion in hospital, and now I'm being given paxlovid...

I have just tested positive for COVID, eleven months after the last time. That t...

Shadowwings

•1 year ago

7 Replies

Am Iwell?

I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell...

I have my bi-monthly consultant review next week, which always starts with the q...

Dawson21

•1 year ago

8 Replies

Itchy knots under skin

I've been experiencing painful, itchy knots on my arms and legs that turn to blisters. Even worse when I scratch them. It's the same experience I have when I...

I've been experiencing painful, itchy knots on my arms and legs that turn to bli...

scorpio74944

•1 year ago

6 Replies

Happy Thanksgiving CLLers

Great Thanksgiving. Wifie and I had swiss cheese fondue with a side of venetoclax and washed down with pine float of 56 oz of water. :)

Great Thanksgiving. Wifie and I had swiss cheese fondue with a side of venetocla...

Big_Dee

•1 year ago

5 Replies

UK members - Act now to stop the proposed withdrawal of vital COVID medicines!

Harvist and others reported a few days ago the announcement by NICE of a cull in the various COVID medicines approved for NHS use. As a result, the options...

Harvist and others reported a few days ago the announcement by NICE of a cull in...

bennevisplace

•1 year ago

9 Replies

He’s home! Hurrah!

After 7 weeks in hospital my husband is home. Initially they were treating him for an infection and no antibiotics were touching it. It was only when they...

After 7 weeks in hospital my husband is home. Initially they were treating him ...

Fowey2009

•1 year ago

19 Replies

Cart t cell trial

Anyone doing the car t cell trial? Response to it?

Pat351vd

•1 year ago

5 Replies

Saw the Cardiologist today!

Regulars will know that I have been having investigations for possible AFIB since an accident at home in June. So today I finally got to see Cardiologist....

Regulars will know that I have been having investigations for possible AFIB sinc...

kitchengardener2

•1 year ago

17 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2022

fasting for blood work??

Stopped using Evusheld

My wife and I both got covid

should I have my covid booster now

post Venetoclax treatment

Promising research is currently underway to use humanized bispecific single-domain antibodies

You are invited to join us for our UK Birmingham conference. Our keynote speaker will be Prof. Paul Moss.

Swollen Lymph Nodes

Mexican sarsaparilla ( Smilax aristolochiifolia) for anaemia, CLL

Hope this isn't Covid!

Betcha your doubling rate is lower than mine :-)

Has anyone been able to go down to 140mg ibrutinib due to side effects? What was the result of this descent? Thx.

Medicare Part D for 2023 - USA open enrollment until 7 Dec 2022 to check your costs and change plans

Need fellow Cllers help.

calquence

Prostate therapy for CLL patient?

VJ Hem Onc podcast 11/2022 Key Updates in CLL Strategy

New to treatment

STATIC now beginning to open at sites in the UK

Raynaud's disease and Gazyva and Raynaud's remission

FLAIR trial. What comes next?

NUREX - 2127 ONE YEAR ANNIVERSARY STARTING CYCLE 14

Paxlovid side effects?

Am Iwell?

Itchy knots under skin

Happy Thanksgiving CLLers

UK members - Act now to stop the proposed withdrawal of vital COVID medicines!

He’s home! Hurrah!

Cart t cell trial

Saw the Cardiologist today!

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