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CLL Support

22,532 members • 38,709 posts

All posts for October 2022

irutinib plus venetoclax

Would love to hear from anyone that has been doing the fixed duration treatment with irutinib plus venetoclax or accalabrutinib plus venetoclax. What has...

Would love to hear from anyone that has been doing the fixed duration treatment...

111853

•2 years ago

10 Replies

Chronic kidney disease 3 and Calquence

iI'm about to start treatment with Calquence,and noticed on my last blood test thatI have ckd 3. My consultant never mentioned it, and I'm a bit concerned...

iI'm about to start treatment with Calquence,and noticed on my last blood test...

PACWOMAN

•2 years ago

6 Replies

ALC Doubling Time 1 year

Friends, If your lymphocyte count doubles within 1 year, it is typically an indication to begin treatment? or just more frequent monitoring? My ALC hasn't...

Friends, If your lymphocyte count doubles within 1 year, it is typically an in...

Cave123

•2 years ago

35 Replies

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15th day on Calquence muscle pain.

On my 15 day of Calquence, went for a walk and had a hard time walking. I think this drug is effecting my muscles in my legs.

On my 15 day of Calquence, went for a walk and had a hard time walking. I think...

helenolton

•2 years ago

14 Replies

Test Before Treat?

I recall from last year's ASH conference several of the experts saying "test before treat". I understand that this was to make sure the treatment matched the...

I recall from last year's ASH conference several of the experts saying "test bef...

JustAGuy

•2 years ago

11 Replies

Has anyone had to go on chemo even after using Calquence?

Has anyone gone back on chemo after Calquence... I have been on it for over 5 years

Has anyone gone back on chemo after Calquence... I have been on it for over 5 ...

Newny

•2 years ago

2 Replies

side effects severe after 1year on Calquence

Severe headaches with nausea and fever lastung for days. Had to stop medication.anybody else have this problem?

Severe headaches with nausea and fever lastung for days. Had to stop medication...

denmanjemima

•2 years ago

1 Reply

Looking for CLL help

What are the best clinics in the USA for CLL testing and treatment

bjsint

•2 years ago

13 Replies

Iron Pill and side effects

Hello....13 day on Calquence, pain is easing up. My iron is low does anyone have any suggestions on taking some kind of foods to prevent side effects from...

Hello....13 day on Calquence, pain is easing up. My iron is low does anyone ha...

helenolton

•2 years ago

13 Replies

infected insect bites

I've had some bites on my back and they've gone septic,not responding to the first lot of antibiotics. is this a standard problem for Cllers ,ie they've...

I've had some bites on my back and they've gone septic,not responding to the f...

Research123

•2 years ago

11 Replies

Help Please! Took Extra dose by mistake

I just realized I mistakenly took an extra dose of acalabrutinib today. I’m traveling and not on my normal schedule. Concerned and not sure what to do. Thank...

I just realized I mistakenly took an extra dose of acalabrutinib today. I’m trav...

rggerlac

•2 years ago

9 Replies

Is there a Difference?

I have "Total Loss of ATM Function." Is this the same thing as the ATM Deleted/Mutated that is being referenced here or do I have something different with...

I have "Total Loss of ATM Function." Is this the same thing as the ATM Deleted/...

Floydpup

•2 years ago

2 Replies

Covid, the latest booster and Evusheld...

On September 27th,2022, I had the Evusheld injections...I was really excited about having antibodies and some sort of protection from covid. My husband and...

On September 27th,2022, I had the Evusheld injections...I was really excited a...

hayleym1004

•2 years ago

40 Replies

Lots of flu going around!

My neighbor who is a nurse practitioner told me she has never seen so many flu cases this early in the season. She saw 21 patients on Wednesday and 11 tested...

My neighbor who is a nurse practitioner told me she has never seen so many flu c...

Alex830

•2 years ago

6 Replies

Seasonal Allergies

Hi! On V and O treatment plan and can feel it's seasonal allergies - backdrip and swollen glands but all clear no covid and no white gunk or anything. So...

Hi! On V and O treatment plan and can feel it's seasonal allergies - backdrip a...

Gardengirl44

•2 years ago

3 Replies

ibruvinib.

my husband been on ibruvinib for 5 year's,but he never had any nasty side effects. His hair gone more like a silver fox, and nails get dry and brittle. He's...

my husband been on ibruvinib for 5 year's,but he never had any nasty side effec...

BayfieldAnnette

•2 years ago

3 Replies

Curious about the clock for O + V treatment

Dumb question... does anyone know when the one-year clock starts for the O+V treatment? Does it begin with the first O infusion, first V dose, or when both...

Dumb question... does anyone know when the one-year clock starts for the O+V tre...

lisakc1

•2 years ago

14 Replies

My COVID experience has been pretty easy with Test-to-Treat

Hi everyone: I am writing to share how grateful I am that my first "official" COVID infection has been mild and easy to treat. I am watch-and-wait and...

Hi everyone: I am writing to share how grateful I am that my first "official" CO...

mbbinbrooklyn

•2 years ago

8 Replies

Protection & treatment effectiveness for new Omicron sub variants

https://apple.news/A33SwZoDDTBOIxHnuJIYkqA Best, Yuck

Yuck

•2 years ago

1 Reply

Five-year results for the iFCG regimen: first-line treatment of CLL patients with mutated IGHV and without del(17p)/TP53 mutation

Published 4 months ago, https://journals.lww.com/hemasphere/Fulltext/2022/06003/S149__LONG_TERM_OUTCOMES_OF_IFCG_REGIMEN_FOR.50.aspx is an update of the Phase...

Published 4 months ago, https://journals.lww.com/hemasphere/Fulltext/2022/06003/...

bennevisplace

•2 years ago

16 Replies

New Vaccine vs Evusheld

I have CLL and am still on watch and wait. After being extremely careful and escaping Covid for 2.5 years, I had a mild case in mid September. According to CDC...

I have CLL and am still on watch and wait. After being extremely careful and esc...

BlueJk

•2 years ago

18 Replies

Rising Lymphocytes

About 6 months back I asked that a steroid be administered prior to IVIG that I receive every 4 weeks. Coincidentally, my lymphocytes began to rise and are now...

About 6 months back I asked that a steroid be administered prior to IVIG that I ...

Fant1924

•2 years ago

1 Reply

Feeling Kinda Down About ATM Deletion (or Something)

Hi everybody, I was diagnosed several years ago; you can read all about it in my posts, if you want. (Don't blame you if you don't ;-) However, recently,...

Hi everybody, I was diagnosed several years ago; you can read all about it in m...

DRM18

•2 years ago

26 Replies

Homeopathic approach to preventative care

I am interested in hearing if anyone is using a homeopathic approach for preventative care or actual care of CLL. I am trying to reduce counts by trying this...

I am interested in hearing if anyone is using a homeopathic approach for prevent...

BePositive22

•2 years ago

45 Replies

green tea

I was told to drink lots of green tea when I was first diagnosed with CLL 9 months ago.But it seems like my spleen hurts more when I drink a cup of green tea...

I was told to drink lots of green tea when I was first diagnosed with CLL 9 mont...

Nugent666

•2 years ago

5 Replies

Ano regrets?

I was diagnosed with cll earlier this year,with bizarrely high wbc,but still really enjoy an active life. I'm reluctant to take treatment as it seems to...

I was diagnosed with cll earlier this year,with bizarrely high wbc,but still...

PACWOMAN

•2 years ago

54 Replies

Flu Vaccine

Regular dose or high dose of flu vaccine; any thoughts?

Davidcara

•2 years ago

15 Replies

Oncology Learning Network CME- Emerging Treatments for CLL / SLL included in NCCN and ESMO guidelines

This video and most on the Oncology Learning Network CME are intended for trained medical professionals, but those comfortable with MedSpeak can sign up for an...

This video and most on the Oncology Learning Network CME are intended for traine...

lankisterguy

Volunteer•2 years ago

Be the first to reply

Patient Power CLL & Fatigue 2022-10-19.

Fatigue is a side effect shared by just about every patient with chronic lymphocytic leukemia (CLL). In this replay of a recent CLL Answers Now program, CLL...

Fatigue is a side effect shared by just about every patient with chronic lymphoc...

lankisterguy

Volunteer•2 years ago

6 Replies

Calquence ringing in my ears

I have ringing in my ears every time I take a capsule of Calquence. Does anyone else have these symptoms?

I have ringing in my ears every time I take a capsule of Calquence. Does anyone...

helenolton

•2 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2022

irutinib plus venetoclax

Chronic kidney disease 3 and Calquence

ALC Doubling Time 1 year

15th day on Calquence muscle pain.

Test Before Treat?

Has anyone had to go on chemo even after using Calquence?

side effects severe after 1year on Calquence

Looking for CLL help

Iron Pill and side effects

infected insect bites

Help Please! Took Extra dose by mistake

Is there a Difference?

Covid, the latest booster and Evusheld...

Lots of flu going around!

Seasonal Allergies

ibruvinib.

Curious about the clock for O + V treatment

My COVID experience has been pretty easy with Test-to-Treat

Protection & treatment effectiveness for new Omicron sub variants

Five-year results for the iFCG regimen: first-line treatment of CLL patients with mutated IGHV and without del(17p)/TP53 mutation

New Vaccine vs Evusheld

Rising Lymphocytes

Feeling Kinda Down About ATM Deletion (or Something)

Homeopathic approach to preventative care

green tea

Ano regrets?

Flu Vaccine

Oncology Learning Network CME- Emerging Treatments for CLL / SLL included in NCCN and ESMO guidelines

Patient Power CLL & Fatigue 2022-10-19.

Calquence ringing in my ears

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2022

irutinib plus venetoclax

﻿Chronic kidney disease 3 and Calquence

ALC Doubling Time 1 year

15th day on Calquence muscle pain.

Test Before Treat?

﻿Has anyone had to go on chemo even after using Calquence?

﻿side effects severe after 1year on Calquence

Looking for CLL help

Iron Pill and side effects

﻿infected insect bites

Help Please! Took Extra dose by mistake

﻿Is there a Difference?

﻿Covid, the latest booster and Evusheld...

Lots of flu going around!

Seasonal Allergies

﻿ibruvinib.

Curious about the clock for O + V treatment

My COVID experience has been pretty easy with Test-to-Treat

Protection & treatment effectiveness for new Omicron sub variants

Five-year results for the iFCG regimen: first-line treatment of CLL patients with mutated IGHV and without del(17p)/TP53 mutation

New Vaccine vs Evusheld

Rising Lymphocytes

Feeling Kinda Down About ATM Deletion (or Something)

Homeopathic approach to preventative care

green tea

﻿Ano regrets?

Flu Vaccine

Oncology Learning Network CME- Emerging Treatments for CLL / SLL included in NCCN and ESMO guidelines

Patient Power CLL & Fatigue 2022-10-19.

Calquence ringing in my ears

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

Chronic kidney disease 3 and Calquence

Has anyone had to go on chemo even after using Calquence?

side effects severe after 1year on Calquence

infected insect bites

Is there a Difference?

Covid, the latest booster and Evusheld...

ibruvinib.

Ano regrets?