Posts - CLL Support | HealthUnlocked

CLL Support

22,616 members • 38,843 posts

All posts for September 2022

bit of a blip for me 🤦🏼‍♀️

my treatment has been delayed for a week my CT has shown an enlarged lymph node in my stomach so my treatment will be discussed and tweaked to ensure it goes...

my treatment has been delayed for a week my CT has shown an enlarged lymph node ...

Hilo13

•2 years ago

12 Replies

New Evusheld (AstraZeneca) Commercial On US National TV

A very subdued, professional TV commercial with one of my favorite movie stars, Jeff Bridges. The commercial was on CBS network US national news directed to...

A very subdued, professional TV commercial with one of my favorite movie stars, ...

DanBro1

•2 years ago

13 Replies

Update on hubby's progress

Yesterday we found out rhat my husband's MRD went from 90% in March to 60% in May to 4 8%! He was accepted in a Dana-Farber study for his particular CLL with...

Yesterday we found out rhat my husband's MRD went from 90% in March to 60% in Ma...

spi3

•2 years ago

5 Replies

Want to take advantage of all our features? Just log in!

I have COVID 😢

I am still in watch and wait with CLL. So after avoiding Covid for over 2.5 years I traveled to the Tennessee mountains with my daughter and her family. I...

I am still in watch and wait with CLL. So after avoiding Covid for over 2.5 year...

BlueJk

•2 years ago

8 Replies

possible use of prednisone

I have inflamed sinuses and have taken short term prednisone before. If I were to do this again would it complicate or damage things? I was just diagnosed with...

I have inflamed sinuses and have taken short term prednisone before. If I were t...

DianeSH

•2 years ago

11 Replies

See a Dermatologist On a Regular Basis, if possible.

Once I was diagnosed with cll 8 years ago (in my mid-60’s), I was advised to see a dermatologist on a regular basis. I was lucky that my family physician’s...

Once I was diagnosed with cll 8 years ago (in my mid-60’s), I was advised to see...

Vizilo

•2 years ago

31 Replies

Scientists hail autoimmune disease therapy breakthrough - implications for CLL patients?

Yesterday it was reported that five young patients, who had suffered with systemic lupus erythematosus, are in remission after CAR-T-cell therapy, raising...

Yesterday it was reported that five young patients, who had suffered with system...

bennevisplace

•2 years ago

11 Replies

Doctor cannot fully diagnose without bone marrow biopsy and PET scan?

Update Results: Hello i did have the cyclometery test done, but i didnt put it here before. Is thaat the same as a FISH test? Here are my results: An...

Update Results: Hello i did have the cyclometery test done, but i didnt put it ...

SunCalifornia

•2 years ago

47 Replies

Problems with Venetoclax & Obinutuzumab-feeling low about the future

I started V& O in the Royal Marsden, London back in June, and the first few days which I spent as an inpatient were pretty tough. I have had about 4 O...

I started V& O in the Royal Marsden, London back in June, and the first few days...

ornstin

•2 years ago

16 Replies

here I go 🤞

I am due to start my O and V treatment Wednesday ( should have been Tuesday but delayed 24hours because of funeral .. God bless the Queen .. quite a lady ....

I am due to start my O and V treatment Wednesday ( should have been Tuesday but...

Hilo13

•2 years ago

37 Replies

I have ragweed allergy since a child. Food sensitivity to wheat.

Stage 0 CLL, trisomy 12, diagnosed 2018. I always got post nasal drip with my ragweed allergy as a teen till 1999. Did bee pollen cure for awhile. I think...

Stage 0 CLL, trisomy 12, diagnosed 2018. I always got post nasal drip with my r...

MamaAlto2

•2 years ago

1 Reply

IGG infusion

Hi team - my cll Dr called me to tell me that my IGG levels are too low and i need monthly transfusion / iv at the hospital Anyone had experience with this...

Hi team - my cll Dr called me to tell me that my IGG levels are too low and i ne...

Brucex100

•2 years ago

23 Replies

imbrutinib side effects

Taking maintenance dose about 5 years. Leg pain in summer the last 4 years I just realized is due to the meds. Any advice on managing the misery? I take 2(140)...

Taking maintenance dose about 5 years. Leg pain in summer the last 4 years I jus...

RVcll

•2 years ago

12 Replies

Is pain to be expected with CLL?

Hi everyone! I am starting to get a very painful but occasional burning ache in my upper arms and pelvis - so far only when in lying in bed at night or early...

Hi everyone! I am starting to get a very painful but occasional burning ache in...

Handley

•2 years ago

14 Replies

Bearing up.

Coming to terms with the recent loss of my mother and moving forward. Latest blood counts. Hb 131, WBC 7.6, Platelets 220 & Lymphocytes 1.74. My abscess has...

Coming to terms with the recent loss of my mother and moving forward. Latest blo...

Jacksc06

•2 years ago

31 Replies

Whats your story

cajonjeff in cll support

maryjean0209

•2 years ago

1 Reply

Children’s live flu nasal spray

Morning, my Granddaughters are about to have their annual flu jab, which here in the UK is a live nasal spray. I know I need to keep away from them for a...

Morning, my Granddaughters are about to have their annual flu jab, which here in...

Dyzzie22

•2 years ago

5 Replies

Calquence not really working

I somewhat expected this result but still disappointed. After additional blood tests, my ALC stayed around 60 and is trending upward albeit slowly. My...

I somewhat expected this result but still disappointed. After additional blood t...

Alex830

•2 years ago

9 Replies

NAGGING POST-COVID COUGHS

I was diagnosed with COVID sixteen days ago. My second time this year (2022) but not requiring seven days in hospital as I did last January. I took Paxlovid...

I was diagnosed with COVID sixteen days ago. My second time this year (2022) but...

Irishgreek

•2 years ago

11 Replies

CLL SOCIETY: THIS WEEK September 13, 2022 (Newsletter)

ALL of the following should be available and of interest USA & worldwide: CLL SOCIETY: THIS WEEK September 13, 2022 (Newsletter)...

ALL of the following should be available and of interest USA & worldwide: CLL ...

lankisterguy

Volunteer•2 years ago

Be the first to reply

Do I go back to the main stream Covid vaccines now that my V+O treatment has ended?

Do I go back to the main stream Covid vaccines now that my V&O treatment has ended? I had two doses of Evusheld within the last 12 months. Just wondering what...

Do I go back to the main stream Covid vaccines now that my V&O treatment has end...

Test_Tech

•2 years ago

14 Replies

How fake science websites hijack our trust in experts to misinform and confuse

The subject of misinformation comes up regularly on this forum. This is a small sample...

The subject of misinformation comes up regularly on this forum. This is a small ...

bennevisplace

•2 years ago

4 Replies

USA government Approves Evusheld but UK still waiting

Latest tweet from @johnidavies Never thought I would say this but would be better off under US system -...

Latest tweet from @johnidavies Never thought I would say this but would be bet...

JIDD

•2 years ago

18 Replies

Reduced ibrutinib by 140 mg per day

I put in a post about four months ago about having uncomfortable side effects from my 3 capsules of 140 mg per day, so I reduced it to two capsules per day....

I put in a post about four months ago about having uncomfortable side effects fr...

CCgroup

•2 years ago

15 Replies

Is There A 2nd-Generation Venetoclax in the Pipeline?

Hi folks, Title about says it all. Just curious! —Dave!

DRM18

•2 years ago

29 Replies

Blood test spots multiple cancers without clear symptoms, study finds

https://www.theguardian.com/science/2022/sep/11/galleri-blood-test-multiple-cancers-before-clear-symptoms-study...

https://www.theguardian.com/science/2022/sep/11/galleri-blood-test-multiple-canc...

zaax

•2 years ago

2 Replies

acalabrutinib

after years of watch and wait I am now about to start acalabrutinib ….. can you tell me what side effects to expect and how it is

after years of watch and wait I am now about to start acalabrutinib ….. can you ...

Grad99

•2 years ago

7 Replies

timing of evushield and vaccines

i was in treatment for CLL - most of 2021. Got Covid end of December - very sick - multiple hospital stays, acute respiratory distress syndrome, heart issues-...

i was in treatment for CLL - most of 2021. Got Covid end of December - very sic...

RuthBorch

•2 years ago

4 Replies

order of vaccinations

I had a relatively mild form of COVID in August which cleared up in a week with Paxlovid. My surgery is doing the flu vaccination on 8 Oct and I can have the...

I had a relatively mild form of COVID in August which cleared up in a week with ...

RZ8983DV

•2 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2022

bit of a blip for me 🤦🏼‍♀️

New Evusheld (AstraZeneca) Commercial On US National TV

Update on hubby's progress

I have COVID 😢

possible use of prednisone

See a Dermatologist On a Regular Basis, if possible.

Scientists hail autoimmune disease therapy breakthrough - implications for CLL patients?

Doctor cannot fully diagnose without bone marrow biopsy and PET scan?

Problems with Venetoclax & Obinutuzumab-feeling low about the future

here I go 🤞

I have ragweed allergy since a child. Food sensitivity to wheat.

IGG infusion

imbrutinib side effects

Is pain to be expected with CLL?

Bearing up.

More Post V+O Questions

Whats your story

Children’s live flu nasal spray

Calquence not really working

NAGGING POST-COVID COUGHS

CLL SOCIETY: THIS WEEK September 13, 2022 (Newsletter)

Do I go back to the main stream Covid vaccines now that my V+O treatment has ended?

How fake science websites hijack our trust in experts to misinform and confuse

USA government Approves Evusheld but UK still waiting

Reduced ibrutinib by 140 mg per day

Is There A 2nd-Generation Venetoclax in the Pipeline?

Blood test spots multiple cancers without clear symptoms, study finds

acalabrutinib

timing of evushield and vaccines

order of vaccinations

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Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2022

bit of a blip for me 🤦🏼‍♀️

New Evusheld (AstraZeneca) Commercial On US National TV

Update on hubby's progress

I have COVID 😢

possible use of prednisone

See a Dermatologist On a Regular Basis, if possible.

Scientists hail autoimmune disease therapy breakthrough - implications for CLL patients?

Doctor cannot fully diagnose without bone marrow biopsy and PET scan?

Problems with Venetoclax & Obinutuzumab-feeling low about the future

here I go 🤞

I have ragweed allergy since a child. Food sensitivity to wheat.

IGG infusion

imbrutinib side effects

Is pain to be expected with CLL?

Bearing up.

More Post V+O Questions

Whats your story

Children’s live flu nasal spray

Calquence not really working

NAGGING POST-COVID COUGHS

CLL SOCIETY: ﻿THIS WEEK September 13, 2022 (Newsletter)

Do I go back to the main stream Covid vaccines now that my V+O treatment has ended?

How fake science websites hijack our trust in experts to misinform and confuse

USA government Approves Evusheld but UK still waiting

Reduced ibrutinib by 140 mg per day

Is There A 2nd-Generation Venetoclax in the Pipeline?

Blood test spots multiple cancers without clear symptoms, study finds

acalabrutinib

timing of evushield and vaccines

order of vaccinations

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

CLL SOCIETY: THIS WEEK September 13, 2022 (Newsletter)