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CLL Support

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All posts for May 2022

Correct link for Imbruvica treatment

https://www.statnews.com/sponsor/2022/03/30/examining-cll-personal-connection-driving-treatment-research/?utm_source=STAT+Newsletters&utm_campaign=7ebf4d67de-MR

https://www.statnews.com/sponsor/2022/03/30/examining-cll-personal-connection-dr...

Yuck

•2 years ago

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Has my guardian angel gone off Evusheld?

Rabbie Burns framed it better, but sometimes fate just steps right in to deal a mortal blow to your best laid plans. It happened on Sunday evening 6:15 pm....

Rabbie Burns framed it better, but sometimes fate just steps right in to deal a ...

bennevisplace

•2 years ago

48 Replies

MY JOURNEY: COVID, EVUSHELD, PAXLOVID and CLL

I am sorry this is so long. I really wanted to document and share my journey and remind everyone to be very careful, thoughtful and educated. COVID is no......

I am sorry this is so long. I really wanted to document and share my journey and...

SandiC

•2 years ago

29 Replies

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Canadian Access to COVID-19 Treatments for Persons Living with CLL

Each province and territory in Canada has its own set of rules and procedures to access treatments for COVID 19, both preventative treatments (Evusheld) and...

Each province and territory in Canada has its own set of rules and procedures to...

CLL_Canada_Group

•2 years ago

2 Replies

Evusheld and Booster

What is the current protocol for booster shots after having received the final prescribed dose of evusheld. I had taken it in 2 divided doses.

What is the current protocol for booster shots after having received the final p...

desti

•2 years ago

6 Replies

Possible causes that could have triggered my CLL

I'm trying to figure out what was the cause for my CLL. It's not a sort of why me? Or what I did wrong?...

I'm trying to figure out what was the cause for my CLL. It's not a sort of why ...

Nikotati

•2 years ago

28 Replies

Waiting for Pirtobrutinib

My husband has been on venetoclax for 3 years and a recent bone marrow biopsy shows cancer is growing and is up to 60%. His oncologist wants to put him on...

My husband has been on venetoclax for 3 years and a recent bone marrow biopsy sh...

KLWC

•2 years ago

9 Replies

Tooth extraction Ibrutinib

Hi all! Has anyone had a tooth extraction whilst taking Ibrutinib? Did you have to pause medication for a few days?

Hi all! Has anyone had a tooth extraction whilst taking Ibrutinib? Did you have...

Suzanne1970

•2 years ago

12 Replies

Antibiotics with Venetoclax

Hi all! I’m on Venetoclax and Rituxan for NHL. I need to go to the dentist. I think it’s a cavity but my luck, a root canal. What is a good antibiotic to take...

Hi all! I’m on Venetoclax and Rituxan for NHL. I need to go to the dentist. I th...

difor29

•2 years ago

14 Replies

Hernia surgery and CLL.

I am scheduled for laproscopic inguinal hernia repair next week. Has anybody had it? How was the recovery? Anything to be aware of with my CLL?

I am scheduled for laproscopic inguinal hernia repair next week. Has anybody had...

Claybuster

•2 years ago

12 Replies

Any experience with norovirus?

Hello All! I am one year off trial drugs and my MRD remains undetectable. In the fall of 2020 I contracted a gut virus that most people recover from in 24...

Hello All! I am one year off trial drugs and my MRD remains undetectable. In th...

mouseandchair

•2 years ago

12 Replies

Evusheld in the UK .

Just for interest I am posting a copy of my latest e-mail to my MP. It is ridiculous that the UK govt. which was so quick to recognise the importance of...

Just for interest I am posting a copy of my latest e-mail to my MP. It is ridicu...

RogerPinner

•2 years ago

6 Replies

EvuSheld in the Uk

Dear All, After six emails I got a response from my MP ... nothing spectacular but nonetheless helpful. However, the apparent preference to depend on treatment...

Dear All, After six emails I got a response from my MP ... nothing spectacular b...

Me2AsWell

•2 years ago

15 Replies

Considering treatment with Imbruvica?

Here is what the company advertises on an iPhone via STAT which is free to those who sign up: https://apple.news/A22g2vedgS-ygvzv1g_Y93g Best to all, ~ Yuck

Here is what the company advertises on an iPhone via STAT which is free to those...

Yuck

•2 years ago

1 Reply

Can anyone help me to understand the results of flowcytometry?

I live abroad and the doctor that ordered this test didn't tell me much, except that it confirms I have CLL. How severe is it? I don't have a clue from this...

I live abroad and the doctor that ordered this test didn't tell me much, except ...

Nikotati

•2 years ago

3 Replies

Extremely scared and anxious

Is CLL genetic? My 24 year old son has been having borderline high Uric Acid. So we were getting it tested periodically. His current uric acid level is in...

Is CLL genetic? My 24 year old son has been having borderline high Uric Acid. So...

nuji

•2 years ago

10 Replies

Ibrutnib, side effects

I have had to stop taking Ibrutnib as I had a bad side effects to my eyes I got irisitis and my pupils got stuck to my irises and now I need surgery to repair...

I have had to stop taking Ibrutnib as I had a bad side effects to my eyes I got ...

Happydazs

•2 years ago

1 Reply

Natural way that may help to keep Absolute Lymphocytes Count low

Hello all, I want to share with you my method to keep Lymphocytes count at bay. I am a sport man 57 years old living in Malaysia (Italian citizen)...

Hello all, I want to share with you my method to keep Lymphocytes count at bay....

Nikotati

•2 years ago

13 Replies

Cart - T UK

Do we have Cart - T treatment in UK?

al444

•2 years ago

8 Replies

Going away whilst on treatment or getting close..

Hi everyone one hope your all well and those who are struggling , sorry . I don't post often as struggle still reading some post ,, I know there are many...

Hi everyone one hope your all well and those who are struggling , sorry . I don...

Stavrou1

•2 years ago

12 Replies

Safe to have kittens?

We are contemplating enriching our lives with two yellow kittens. I have high-risk cll, successfully treated with daily ibrutrinib and an ivig every 4 weeks....

We are contemplating enriching our lives with two yellow kittens. I have high-ri...

Splashes

•2 years ago

33 Replies

I wonder if anybody got Evusheld in the UK.

I am immunocompromised. I am on ibrutinib for 9 years and although I am progression free, my immunoglobulins have declined to a point that I needed IV IG....

I am immunocompromised. I am on ibrutinib for 9 years and although I am progress...

vepiskop

•2 years ago

33 Replies

The battles we fight

The incurable disease CLL, silently creeps into our bodies, and gently starts launching an attack on the bone marrow. Wait and watch says the doctor, we can...

The incurable disease CLL, silently creeps into our bodies, and gently starts la...

AmCLL

•2 years ago

48 Replies

Is a Clinical Trial Right for You?

Hi, Have you ever considered participating in a clinical trial? Join CLL Society on Monday, May 16 at 11am PT / 2pm ET for our webinar: Is a Clinical Trial...

Hi, Have you ever considered participating in a clinical trial? Join CLL Society...

bkoffman

CLL CURE Hero•2 years ago

7 Replies

CLL's affect on dental implants

Recently I had a dental implant suddenly fall out. Has anyone else with CLL had this problem or have heard of this problem?

Recently I had a dental implant suddenly fall out. Has anyone else with CLL had...

Exce11entBEF

•2 years ago

8 Replies

Pneumovax

I had a Pneumovax vaccination in 2011 when I was 64. I was diagnosed with CLL in 2017. Should I ask my doctor for another one or is one enough? Many thanks.

I had a Pneumovax vaccination in 2011 when I was 64. I was diagnosed with CLL in...

shornoff

•2 years ago

12 Replies

V&O treatment in ‘The Kitchen’

I’m moving onto the next stage of treatment on Monday…it all starts with a quick trip to Guy’s on Monday to pick up my Venetoclax from one of the lovely...

I’m moving onto the next stage of treatment on Monday…it all starts with a quick...

Miu48

•2 years ago

2 Replies

Post on behalf of my mom : CLL Diagnosed 2021 , Mutated , Trisomy 12 - W&W for now

Hello everyone, I joined this community , acting as a primary care giver for my Mom . Mom is 71 Years old going to be 72 in a month ... She has a history of...

Hello everyone, I joined this community , acting as a primary care giver for my ...

gopalansree

•2 years ago

5 Replies

Confused

Hi All, I was diagnosed in June 2018, and I am still on W&W. I am however, a Tad confused re the levels and progress of my crucial Blood Counts. For instance...

Hi All, I was diagnosed in June 2018, and I am still on W&W. I am however, a Tad...

Vindicatrix

•2 years ago

10 Replies

Squamous Cell Carcinoma: recurrence after Mohs

My dad, 84 yo, Dx with CLL 10 years ago, had a recurrence of a Squamous Cell Carcinoma on his scalp after the Mohs surgery last year. The recurrent carcinoma...

My dad, 84 yo, Dx with CLL 10 years ago, had a recurrence of a Squamous Cell Car...

MikeOr

•2 years ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2022

Correct link for Imbruvica treatment

Has my guardian angel gone off Evusheld?

MY JOURNEY: COVID, EVUSHELD, PAXLOVID and CLL

Canadian Access to COVID-19 Treatments for Persons Living with CLL

Evusheld and Booster

Possible causes that could have triggered my CLL

Waiting for Pirtobrutinib

Tooth extraction Ibrutinib

Antibiotics with Venetoclax

Hernia surgery and CLL.

Any experience with norovirus?

Evusheld in the UK .

EvuSheld in the Uk

Considering treatment with Imbruvica?

Can anyone help me to understand the results of flowcytometry?

Extremely scared and anxious

Ibrutnib, side effects

Natural way that may help to keep Absolute Lymphocytes Count low

Cart - T UK

Going away whilst on treatment or getting close..

Safe to have kittens?

I wonder if anybody got Evusheld in the UK.

The battles we fight

Is a Clinical Trial Right for You?

CLL's affect on dental implants

Pneumovax

V&O treatment in ‘The Kitchen’

Post on behalf of my mom : CLL Diagnosed 2021 , Mutated , Trisomy 12 - W&W for now

Confused

Squamous Cell Carcinoma: recurrence after Mohs

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