Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for March 2022

Effect of Steroids on WBC

I have been on Imbruvica for two years and two months. I have been responding very well to treatment with my numbers going down to the normal range. Over two...

I have been on Imbruvica for two years and two months. I have been responding ve...

Bowie1957

•2 years ago

2 Replies

chronic lymphocytic leukemia and tooth extraction

hey i am treated with Zanubrutinib (BGB-3111) and have chronic lymphocytic leukemia. Did someone have a tooth pulled out of you during your illness?

hey i am treated with Zanubrutinib (BGB-3111) and have chronic lymphocytic leuke...

BART4

•2 years ago

7 Replies

COVID-19 UPDATES - The latest experimental therapies - not CLL specific, but potential treatment for COVID-19 in many cancer patients

COVID-19 UPDATES Dr. Leyfman Discusses the Increased Risk of COVID-19 and Cancer Patients In our third and final interview with , experimental therapies for...

COVID-19 UPDATES Dr. Leyfman Discusses the Increased Risk of COVID-19 and Cancer...

lankisterguy

Volunteer•2 years ago

1 Reply

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Antibody test

I had my Covid antibodies test done at University of Chicago yesterday and the results came back Positive and a reading of 28.8 U/ ml . Does anyone know what...

I had my Covid antibodies test done at University of Chicago yesterday and the r...

Budd77

•2 years ago

5 Replies

Pfizer Papers Release

Is anyone here, but me reading these papers... I could do with some help.. 55,000 pages per month is somewhat huge..12,000 in first tranche. "A court loss...

Is anyone here, but me reading these papers... I could do with some help.. 55,0...

BladeRunners

•2 years ago

89 Replies

CLL with stomach and kidney issues

Hi everyone, I have CLL and my numbers jump up 1100 points this month. Since they jumped up I've been diagnosed with inflammation of the stomach and stage 3...

Hi everyone, I have CLL and my numbers jump up 1100 points this month. Since th...

Hidden

•2 years ago

3 Replies

CLL and Parotid Node Swelling

Had anyone with CLL experienced swelling of the parotid lymph nodes?

313313

•2 years ago

6 Replies

Northern CA (Bay Area) Evusheld Availability

To those located in the Bay Area who are interested in receiving Evusheld, Total Infusion (https://totalinfusion.com) in Oakland, CA has doses! To receive the...

To those located in the Bay Area who are interested in receiving Evusheld, Total...

OaktownN

•2 years ago

3 Replies

Post Rituximab guidelines

Hi all I’m just seeking a bit of guidance for the future months: I’ve recently completed 4 months of oral chemo and am nearly at the end 6 x 4 weekly...

Hi all I’m just seeking a bit of guidance for the future months: I’ve recently ...

AudeRambler

•2 years ago

12 Replies

Venetoclax Skin Reaction - Late Onset

Has anyone had a late onset skin reaction to Venetoclax? I have been on it for 19 months and the past month and a half my arms, legs and torso are giving me...

Has anyone had a late onset skin reaction to Venetoclax? I have been on it fo...

KevinCLLITP

•2 years ago

7 Replies

Acalabrutinib or Ibrutinib.

Hi, Age is 46. Six cycles of FCR is done in Oct 2019. Latest absolute count of lymphocytes is 6108. But lymph nodes are increasing . Specially under arms the...

Hi, Age is 46. Six cycles of FCR is done in Oct 2019. Latest absolute count of l...

pbaddi

•2 years ago

37 Replies

Evusheld

Evusheld doses are going unused in spite of large supply: https://www.nytimes.com/2022/03/06/us/politics/evusheld-covid-treatment.html?smid=em-share

Evusheld doses are going unused in spite of large supply: https://www.nytimes.co...

francc

•2 years ago

5 Replies

Been on venetoclax 4 days

I have been on venetoclax 4 days and I'm dizzy nauseous have a continuous headache and am sleeping all the time and my dose is going up in 3 days will it get...

I have been on venetoclax 4 days and I'm dizzy nauseous have a continuous headac...

Wiggynugget

•2 years ago

12 Replies

I am new o Cll. Recently diagnosed.

I live in a city with one of the five best cancer hospitals in the world. Princess Margaret in Toronto, Ontario. They have directed me to a hospital that is...

I live in a city with one of the five best cancer hospitals in the world. Prince...

Woman89

•2 years ago

20 Replies

Suddenly enlarged lymph nodes on the back of the neck + evidence of CLL in lungs - newly diagnosed CLL

Hello, My mum was dianogsed with CLL in late Jan following a screening for breast cancer that picked up on enlarged lymph nodes under her arms. Since then,...

Hello, My mum was dianogsed with CLL in late Jan following a screening for breas...

currerbell

•2 years ago

9 Replies

Medication donation

Hi, just along shot but had a thought with some people about to take medication and have to self fund completely, one been myself because of where we live. I...

Hi, just along shot but had a thought with some people about to take medication ...

Driverps1

•2 years ago

4 Replies

Medication

What is your drs regimen for cll? My dr says no chemo when the time comes I will take pills.

What is your drs regimen for cll? My dr says no chemo when the time comes I wil...

Createdpath

•2 years ago

13 Replies

Update on lymphocyte count after Moderna Vaccine

So just to update - the uptick in lymphocytes 10 days after my second dose of the Moderna vaccine was just that - a temporary increase. It has returned to its...

So just to update - the uptick in lymphocytes 10 days after my second dose of th...

SunnyCA

•2 years ago

4 Replies

Night sweat relief?

I am new to CLL having been diagnosed in Jan. 2022. I had no symptoms until recently experiencing night sweats. I am wondering if there is any treatment for...

I am new to CLL having been diagnosed in Jan. 2022. I had no symptoms until rece...

9RGBZ

•2 years ago

46 Replies

Working with CLL!

Hello all, I'm new to this site but have already gained a vast amount of knowledge and feel a sense of support from reading the posts and engaging with your...

Hello all, I'm new to this site but have already gained a vast amount of knowled...

MDcard

•2 years ago

21 Replies

What does curing CLL mean?

This is a question I often wonder about but have never asked my doctor. When we hear about a cure for CLL what we really mean is a way to live with it,...

This is a question I often wonder about but have never asked my doctor. When we...

CoCoLuna11

•2 years ago

11 Replies

Venclexta and achey legs

I just started Venclexta and my legs are really achey have anyone experienced this do you think it's related to this drug

I just started Venclexta and my legs are really achey have anyone experienced th...

Wiggynugget

•2 years ago

15 Replies

"Sailing with CLL" - a sense of humor may help....

"Aboard" and "Port" are two terms which I heard in past days during my medical care: Routinly I am asked by the Cancer Clinic lab technician: "Do you have a...

"Aboard" and "Port" are two terms which I heard in past days during my medical c...

janvog

•2 years ago

19 Replies

Ibrutinib, Acalabrutinib, or Zanubrutinib

If you had your choice, for initial treatment in low risk CLL, which would you choose Ibrutinib, Acalabrutinib, or Zanubrutinib ? I ask because, some health...

If you had your choice, for initial treatment in low risk CLL, which would you c...

Davidcara

•2 years ago

14 Replies

From monotherapy Ibrutinib to monotherapy Venetoclax

Hello, How is the process of switching Ibrutinib to Venetoclax? Is there any person who has that experience?

Hello, How is the process of switching Ibrutinib to Venetoclax? Is there any per...

Green202

•2 years ago

28 Replies

Evusheld Shots:

Evusheld shots: are Oncology Doctors recommending this newer “two shot” to CLL patients, especially those on Ibrutinib?

Evusheld shots: are Oncology Doctors recommending this newer “two shot” to CLL p...

Tapps

•2 years ago

12 Replies

Finished 1 year V&O

Started V&O last february after 6 years of watch and wait. Had profound fatigue at that time and work was difficult. In the beginning, I had one or two...

Started V&O last february after 6 years of watch and wait. Had profound fatigue...

jjaarons

•2 years ago

15 Replies

Combination Trials for those on from Mono Therapy

Had anyone heard of trials being considered for those currently on monotherapy (BTK's) to move onto combination treatments (BTK+BCL2)? My consultant mentioned...

Had anyone heard of trials being considered for those currently on monotherapy (...

MovingForward4423

•2 years ago

1 Reply

Anyone have experience with Molnupiravir?

I was diagnosed with CLL in 2013. Commenced Acalabrutinib in a clinical trial August 2020. Progress going reasonably well. I am triple vaccinated against...

I was diagnosed with CLL in 2013. Commenced Acalabrutinib in a clinical trial A...

spanish36

•2 years ago

8 Replies

Replacement of Ibrutinib with other medicines in case of no effect in patients with CLL?

Hi, My brother has been taking Ibrutinib for more than 1 year but his lymph nodes in his stomach have gotten bigger now while he was taking Ibrutinib. It seems...

Hi, My brother has been taking Ibrutinib for more than 1 year but his lymph node...

Green202

•2 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2022

Effect of Steroids on WBC

chronic lymphocytic leukemia and tooth extraction

COVID-19 UPDATES - The latest experimental therapies - not CLL specific, but potential treatment for COVID-19 in many cancer patients

Antibody test

Pfizer Papers Release

CLL with stomach and kidney issues

CLL and Parotid Node Swelling

Northern CA (Bay Area) Evusheld Availability

Post Rituximab guidelines

Venetoclax Skin Reaction - Late Onset

Acalabrutinib or Ibrutinib.

Evusheld

Been on venetoclax 4 days

I am new o Cll. Recently diagnosed.

Suddenly enlarged lymph nodes on the back of the neck + evidence of CLL in lungs - newly diagnosed CLL

Medication donation

Medication

Update on lymphocyte count after Moderna Vaccine

Night sweat relief?

Working with CLL!

What does curing CLL mean?

Venclexta and achey legs

"Sailing with CLL" - a sense of humor may help....

Ibrutinib, Acalabrutinib, or Zanubrutinib

From monotherapy Ibrutinib to monotherapy Venetoclax

Evusheld Shots:

Finished 1 year V&O

Combination Trials for those on from Mono Therapy

Anyone have experience with Molnupiravir?

Replacement of Ibrutinib with other medicines in case of no effect in patients with CLL?

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