Posts - CLL Support | HealthUnlocked

CLL Support

22,616 members • 38,845 posts

All posts for March 2022

Living with CLL AND Something Else

I am hosting a live webinar next week with a CLL specialist, Dr. Tara Graff. We'll discuss how to get quality care when you have more than CLL. And how do you...

I am hosting a live webinar next week with a CLL specialist, Dr. Tara Graff. We'...

andrewschorr

•2 years ago

1 Reply

Does CLL CAUSE skin cancer? bone loss? pneumonia? skin issues? low Vitamin D3? Autoimmune issues like AIHA & ITP ?

The title above is click bait and I hope you will forgive me for using it. - The answers from many CLL experts would be that causation has not been proven by...

The title above is click bait and I hope you will forgive me for using it. - T...

lankisterguy

Volunteer•2 years ago

8 Replies

Advances in Targeted Therapy for R/R CLL OncLive videos & transcripts by Nirav Shah MD & Nicole Lamanna MD

Advances in Targeted Therapy for R/R CLL (These OncLive presentations are intended for medical professionals, so reading the provided transcripts and using...

Advances in Targeted Therapy for R/R CLL (These OncLive presentations are in...

lankisterguy

Volunteer•2 years ago

10 Replies

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COVID-19 hospitalizations soaring in England.

The UK is assuming that COVID-19 is endemic and that Omicron is mild. But the confluence of BA.2 subvariant rising and waning booster effectiveness is causing...

The UK is assuming that COVID-19 is endemic and that Omicron is mild. But the c...

whmk

•2 years ago

23 Replies

Evusheld

I've yet to read fully, but Evusheld has been approved for use in the UK Discussion on this topic can be found on this previous post: ...

I've yet to read fully, but Evusheld has been approved for use in the UK Discuss...

Clairdensheil

•2 years ago

NIGHT SWEATS, LUNG INFECTION, AND IMMUNE SYSTEM

I realize there are multiple issues here, but I was wanting some input. Feb 4 I tested positive and had been sick with sore throat and bad head cold for three...

I realize there are multiple issues here, but I was wanting some input. Feb 4 I ...

wizzard166

•2 years ago

11 Replies

ibrutinib side effects and their duration

just started 3 days ago ibrutinib 140 mg capsules x 3 daily . day 1 no issues. day 2 mild dizziness. day 3 dizziness worse. is this just an introduction of...

just started 3 days ago ibrutinib 140 mg capsules x 3 daily . day 1 no issues. ...

Dyba

•2 years ago

7 Replies

Newspaper article

Good morning, very dull. I did an interview with the Yorkshire Post yesterday about how the clinically vulnerable are coping after the removal of covid rules....

Good morning, very dull. I did an interview with the Yorkshire Post yesterday a...

kitchengardener2

•2 years ago

6 Replies

CLL and Diverticulitis

Hi everyone, I just turned 70 yrs old and started the O and V treatment at the end of Sept 2021. I found out I had cll Feb 2019 when I had surgery for...

Hi everyone, I just turned 70 yrs old and started the O and V treatment at the e...

Gman2

•2 years ago

7 Replies

I got Covid

16/3 I just wanted to update you here on my experience of Covid. So after feeling a little unwell for a few days, yesterday the symptoms really hit. It's very...

16/3 I just wanted to update you here on my experience of Covid. So after feelin...

MovingForward4423

•2 years ago

17 Replies

Weight Gain Acalabrutinib?

Hi Fellow Acalabrutinib Friends Since beginning to participate in a Acalabrutinib clinical trial several months ago, I have experienced a slow but steady...

Hi Fellow Acalabrutinib Friends Since beginning to participate in a Acalabrutini...

spanish36

•2 years ago

30 Replies

Acalabrutinib

Hi everyone, I'm new here. I started on Acalabrutinib in February 2022 after being in remission for 12 years. Unfortunately I started getting awful headaches,...

Hi everyone, I'm new here. I started on Acalabrutinib in February 2022 after bei...

BethIlia

•2 years ago

22 Replies

Venetoclax & fainting?

Hi everyone, I joined a few weeks ago and have found the reading enlightening , thank you. This is my first post , seeking some info about your experiences...

Hi everyone, I joined a few weeks ago and have found the reading enlightening , ...

Moggn

•2 years ago

22 Replies

CLL and abdominal pain or digestive issues

Does anybody has any abdominal pain and or digestive issues and even lower back pain related to CLL?. I started having these symptoms recently and after 6...

Does anybody has any abdominal pain and or digestive issues and even lower back ...

Astonmartin

•2 years ago

25 Replies

Fever

Hi not treated yet but soon to be. Got fever tonight , 100.5 and my spleen is achy. I’m good to wait for a.m. right? I know this is probably a silly...

Hi not treated yet but soon to be. Got fever tonight , 100.5 and my spleen is a...

Gardengirl44

•2 years ago

4 Replies

Medication issues

I have had CLL FOR 8 years, was on Imbruvica for six years, off now. But my platelets were down 33 , went on Prednisone for two weeks, platelets up to 129. ....

I have had CLL FOR 8 years, was on Imbruvica for six years, off now. But my plat...

Dummer70

•2 years ago

6 Replies

CLL with Anaemia

I am 77 years old and on W/W. Currently my wbc 61, lymph124, haemo has dropped over the last 3 months 132 to 59- I have no loss of weight, no night sweats...

I am 77 years old and on W/W. Currently my wbc 61, lymph124, haemo has droppe...

terryo55terry

•2 years ago

6 Replies

Cll

It's been 6 rears that I an on w&w with CLL. Does anybody knows if CLL will affect your liver? Recently I had a Ct scan and found few lesions on my liver....

It's been 6 rears that I an on w&w with CLL. Does anybody knows if CLL will affe...

Astonmartin

•2 years ago

11 Replies

Received My Evusheld Injections This Week

As I previously posted, I completed my 12 month Obinutuzumab/Venclexta CLL treatment regimen March 1st. Because I tested "No detectable antibodies..." after...

As I previously posted, I completed my 12 month Obinutuzumab/Venclexta CLL treat...

DanBro1

•2 years ago

5 Replies

Changing from ibrutinib to acalabrutinib

I have been on ibrutinib for two years and the results have been amazing - no lymph nodes, blood work within limits. However, I am getting rashes regularly,...

I have been on ibrutinib for two years and the results have been amazing - no ly...

CCgroup

•2 years ago

19 Replies

Alcohol

How does alcohol affect if on Imbrevia?

Hildebs

•2 years ago

6 Replies

BRUISING AFTER SUBCUTANEOUS INJECTION OF IMMUNOGLOBIN

Hello, friends, I have been on Acalabrutinib for 6 months now, and on Immunoglobin for 2 years. I wonder if any of you get bruising at the site of the...

Hello, friends, I have been on Acalabrutinib for 6 months now, and on Immunoglob...

unairdefamille

•2 years ago

14 Replies

CoQ10 dosage and when to take ?

I have CLL and my hematologist approved CoQ10. CoQ10 is recommended in Mayo litererature, for those with no counter-indications. But I lack good...

I have CLL and my hematologist approved CoQ10. CoQ10 is recommended in Mayo li...

janvog

•2 years ago

11 Replies

Ppreauricular Lymph Nodes

Thank you for all the important information you have responded with. However, I see that I mistakenly wrote hyperechoic my results were hypoechoic which is not...

Thank you for all the important information you have responded with. However, I ...

313313

•2 years ago

1 Reply

To remove my port or not?

Hello, I am a 66 year old male, CLL for about 10 years, was in W &W until Feb, 2021, then completed 6 months treatment with Bendamustine and Rituximab in July...

Hello, I am a 66 year old male, CLL for about 10 years, was in W &W until Feb, 2...

napa

•2 years ago

9 Replies

Evusheld in the United Kingdom

Does anyone have any information about whether or when Evusheld may become available? Many thanks.

Does anyone have any information about whether or when Evusheld may become avail...

Clairdensheil

•2 years ago

11 Replies

Help with Imbruvica

The best thing about turning 65, is that you can get insurance through Medicare. I have CLL and take Imbruvica The cost of Imbruvica is so high Medicare...

The best thing about turning 65, is that you can get insurance through Medicare....

Sbestgen

•2 years ago

5 Replies

Zoe COVID study funding stopped.

Sorry I am not technical enough to post the email but the hugely useful Zoe study has lost its government funding. Yet another kick in the teeth for CEV. They...

Sorry I am not technical enough to post the email but the hugely useful Zoe stud...

mrsjsmith

•2 years ago

15 Replies

Parotid Node Swelling

Thank you to all that responded to my inquiry about parotid swelling. I went for an Ultrasound and the results came back as 2 perauricular hyperecholic nodules...

Thank you to all that responded to my inquiry about parotid swelling. I went for...

313313

•2 years ago

7 Replies

Causes of cramps

I’m a 73 YO male on Ibrutinib successfully since 2017 Recently I’ve finally been experiencing some of the side-effects that I was initially warned about -...

I’m a 73 YO male on Ibrutinib successfully since 2017 Recently I’ve finally been...

BSMI

•2 years ago

14 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2022

Living with CLL AND Something Else

Does CLL CAUSE skin cancer? bone loss? pneumonia? skin issues? low Vitamin D3? Autoimmune issues like AIHA & ITP ?

Advances in Targeted Therapy for R/R CLL OncLive videos & transcripts by Nirav Shah MD & Nicole Lamanna MD

COVID-19 hospitalizations soaring in England.

Evusheld

NIGHT SWEATS, LUNG INFECTION, AND IMMUNE SYSTEM

ibrutinib side effects and their duration

Newspaper article

CLL and Diverticulitis

I got Covid

Weight Gain Acalabrutinib?

Acalabrutinib

Venetoclax & fainting?

CLL and abdominal pain or digestive issues

Fever

Medication issues

CLL with Anaemia

Cll

Received My Evusheld Injections This Week

Changing from ibrutinib to acalabrutinib

Alcohol

BRUISING AFTER SUBCUTANEOUS INJECTION OF IMMUNOGLOBIN

CoQ10 dosage and when to take ?

Ppreauricular Lymph Nodes

To remove my port or not?

Evusheld in the United Kingdom

Help with Imbruvica

Zoe COVID study funding stopped.

Parotid Node Swelling

Causes of cramps

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