Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for December 2021

4 th jab to soon

Hi starting to feel like a serial poster lol , I've booked my covid jab , phoned my GP surgery they didn't realise the 4 th was available , told me you only...

Hi starting to feel like a serial poster lol , I've booked my covid jab , phoned...

stewie

•2 years ago

11 Replies

Sotrovimab replacing Ronapreve

Hi I informed everyone that my wife and the local IV team had just starting administering Ronapreve at a local community hospital inside a covid pod , this...

Hi I informed everyone that my wife and the local IV team had just starting ad...

stewie

•2 years ago

5 Replies

MONICLONAL ANTIBODY TREATMENT ????

MONOCLONAL ANTIBODY Hi ladies and gents Im wondering if you good people can fill me in about the above. Havent heard about it. Is it an alternative to one...

MONOCLONAL ANTIBODY Hi ladies and gents Im wondering if you good people can fil...

Informationseeke

•2 years ago

13 Replies

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How reliable are covid-19 lateral flow tests for detecting omicron?

According to New Scientist,...

bennevisplace

•2 years ago

7 Replies

Alalabrutinib side effects after 18 months

I have been on acalabrutinib for 18 months. Initially I had the headaches, muscle and joint pain often associated with the drug. These symptoms dissipated...

I have been on acalabrutinib for 18 months. Initially I had the headaches, muscl...

BallyB

•2 years ago

7 Replies

Never heard of Booster 4!

Just phoned the haematology department at King’s College Hospital where I have been a CLL patient since 2017. Unbelievably the person I spoke to had never...

Just phoned the haematology department at King’s College Hospital where I have b...

anapurna

•2 years ago

33 Replies

HELP—Positive COVID test

Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring...

Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment...

DaughterofCLLfighter

•2 years ago

22 Replies

Venetoclax and high total bilirubin?

Hello, I have been reading your posts for the last several months and the time has come to me to write a post as well. My father, 64 years old, has been...

Hello, I have been reading your posts for the last several months and the time ...

Dendi

•2 years ago

2 Replies

Searching the truth

Has anyone read The Real Anthony Fauci on Amazon Kindle? It is eye opening as to how all this began and where it will end. The reviews give a great...

Has anyone read The Real Anthony Fauci on Amazon Kindle? It is eye opening as to...

Roxy101

•2 years ago

40 Replies

Which monoclonal antibody would work with omicron covid 19?

Which monoclonal antibody would work with omicron covid 19? Reposted from CLLSLL@groups.io : https://groups.io/g/CLLSLL/message/32338 with permission from...

Which monoclonal antibody would work with omicron covid 19? Reposted from CLLS...

lankisterguy

Volunteer•2 years ago

12 Replies

new monoclonal antibody therapy for immune compromised people like us now available

The Food and Drug Administration (FDA) authorized Evusheld on December 8 and DeSantis announced on Friday that the state secured 3,100 doses of it. With a...

The Food and Drug Administration (FDA) authorized Evusheld on December 8 and DeS...

craterlake

•2 years ago

43 Replies

Wonder if anyone knows when we will be able to get antibody injection, or when there will be a proposed date announcement in the USA

Covid Antibody Injection

Davidcara

•2 years ago

6 Replies

Declining antibody levels after one month: What now ?

My husband ( with CLL and on acalabrutinib) had his first 2 Moderna shots in Jan and Feb 2021 with no anti spike protein antibody detected. At the end of Sept...

My husband ( with CLL and on acalabrutinib) had his first 2 Moderna shots in Ja...

ikahan

•2 years ago

13 Replies

Cancer again

Has anyone gotten a secondary cancer while on W & W ? I had breast cancer two years ago and had a lumpectomy with no chemo or radiation. My cancer is now back...

Has anyone gotten a secondary cancer while on W & W ? I had breast cancer two y...

1962jns

•2 years ago

12 Replies

Immune kickstart

Hi All, saw my Haemo man on Tuesday, third time in 6 weeks, due to lump under my arm, after Phiser jab. Lump gone, he tells me that it is likely that the...

Hi All, saw my Haemo man on Tuesday, third time in 6 weeks, due to lump under my...

Vindicatrix

•2 years ago

6 Replies

I Got The Monoclonal Antibody Infusion

I posted a couple of days ago about whether or not I should get the Monoclonal Infusion a few days after being exposed to a two year old who had a fever and...

I posted a couple of days ago about whether or not I should get the Monoclonal I...

wizzard166

•2 years ago

5 Replies

Night Sweats

I was diagnosed in March 2020 and have had treatment with both Ibrutinib and Venetoclax. I am currently on no chemo drugs and may restart Venetoclax late...

I was diagnosed in March 2020 and have had treatment with both Ibrutinib and Ven...

Dym230109

•2 years ago

9 Replies

Watch & wait

Hello everyone I’m new to the group. My mum is in the uk, in Bromley. She’s on the watch and wait. If you can give any advice to mum which you wished you...

Hello everyone I’m new to the group. My mum is in the uk, in Bromley. She’s on ...

Aquilo

•2 years ago

6 Replies

Rituximab, given weekly for 4 weeks experiences?

I begin my treatment for cold autoimmune hemolytic anemia, in January 2022 with a single agent of rituximab, given weekly for 4 weeks. This will include...

I begin my treatment for cold autoimmune hemolytic anemia, in January 2022 with ...

SantaZia

•2 years ago

9 Replies

Booster problems - 4 days & counting… .

Booster problems - 4 days and counting… . Hi all, been busy for a while but back on here as I’ve been disabled by the third booster Pfizer (previous two were...

Booster problems - 4 days and counting… . Hi all, been busy for a while but bac...

Petroc

•2 years ago

9 Replies

NHS sending out a PCR test to all CLL patients

I've just read Leukaemia Care's latest email newsletter. In their advice about these new Covid treatments for the likes of us, they say: "If you have symptoms...

I've just read Leukaemia Care's latest email newsletter. In their advice about t...

flyhigher

•2 years ago

87 Replies

Acalabrutinib and dry skin etc

Good morning everyone. I started treatment with Acalabrutinib in September and have been fine, no real side effects. My white blood count is now down to 24.1...

Good morning everyone. I started treatment with Acalabrutinib in September and h...

kitchengardener2

•2 years ago

14 Replies

Covid booster after 3 primary shots

I has my 3rd primary vaccine 17 September and Wednesday I was informed by text from my GP surgery I was due my booster and there were drop clinics Thursday...

I has my 3rd primary vaccine 17 September and Wednesday I was informed by text f...

peghip

•2 years ago

3 Replies

Epidural injection for back pain while on ibrutinib.

Wondering if anyone has had epidural injection for back pain while on ibrutinib. Wondering how long the ibrutinib was held, and any other insights would be...

Wondering if anyone has had epidural injection for back pain while on ibrutinib....

Davidcara

•2 years ago

12 Replies

New person

My husband Richard has CLL is on ibrutinib he has had 2 oxford and 1 pfizer jabs still no antibodies, would molnupiravir the new covid drug, would this drug...

My husband Richard has CLL is on ibrutinib he has had 2 oxford and 1 pfizer jabs...

Windemere

•2 years ago

9 Replies

Support for CLL Patients

This HU site, where we share information, experiences and friendship is a massive support for many and with Christmas approaching and many of us shielding to a...

This HU site, where we share information, experiences and friendship is a massiv...

Jm954

Administrator•2 years ago

19 Replies

Massage with Cll?

This could be a dumb question but do massages negatively impact people with Cll? Thoughts?

This could be a dumb question but do massages negatively impact people with Cll?...

Koda1234

•2 years ago

2 Replies

Experience about taking ibrutinib

Hello friends, my father has been taking ibrutinib for seven months and his WBC has reached 40,000. Does anyone have experience with using ibrutinib ? Thanks...

Hello friends, my father has been taking ibrutinib for seven months and his WBC...

Elnaazz

•2 years ago

8 Replies

Ivermectin and wbc

I am on watch and wait. Fulky vaccinated with pfizer, got covid anyway, and took 3 days of ivermectin 25mg 2x per day. One month later my wbc dropped 10%....

I am on watch and wait. Fulky vaccinated with pfizer, got covid anyway, and took...

mleo123

•2 years ago

17 Replies

Dr. Koffman’s ASH 2021 Day 4 Highlights

Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world...

Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffm...

bkoffman

CLL CURE Hero•2 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2021

4 th jab to soon

Sotrovimab replacing Ronapreve

MONICLONAL ANTIBODY TREATMENT ????

How reliable are covid-19 lateral flow tests for detecting omicron?

Alalabrutinib side effects after 18 months

Never heard of Booster 4!

HELP—Positive COVID test

Venetoclax and high total bilirubin?

Searching the truth

Which monoclonal antibody would work with omicron covid 19?

new monoclonal antibody therapy for immune compromised people like us now available

Wonder if anyone knows when we will be able to get antibody injection, or when there will be a proposed date announcement in the USA

Declining antibody levels after one month: What now ?

Cancer again

Immune kickstart

I Got The Monoclonal Antibody Infusion

Night Sweats

Watch & wait

Rituximab, given weekly for 4 weeks experiences?

Booster problems - 4 days & counting… .

NHS sending out a PCR test to all CLL patients

Acalabrutinib and dry skin etc

Covid booster after 3 primary shots

Epidural injection for back pain while on ibrutinib.

New person

Support for CLL Patients

Massage with Cll?

Experience about taking ibrutinib

Ivermectin and wbc

Dr. Koffman’s ASH 2021 Day 4 Highlights

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