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CLL Support

22,532 members • 38,709 posts

All posts for November 2021

immunostimulant / bacterial lysate tablets?

I've recently learnt about "immunostimulant tablets" and I was wondering if this is anything for people with CLL. I won't give any brand names, but in...

I've recently learnt about "immunostimulant tablets" and I was wondering if this...

mantana

•2 years ago

13 Replies

CD49d

CD49d Is there anything new on the CD49d+ front (treatments, does it still matter, etc.)? It’s been said that “cd49d + makes it more difficult for ibrutinib...

CD49d Is there anything new on the CD49d+ front (treatments, does it still matte...

Lavinia-Blue

•2 years ago

4 Replies

Is strength training helpful?

Hi Everyone, I have just joined and also recently diagnosed with cll. I have learned that diet and exercise is very helpful with controlling cll. I just...

Hi Everyone, I have just joined and also recently diagnosed with cll. I have lea...

arsenal0

•2 years ago

20 Replies

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….Result

Hi everyone, Three doses of vaccine, two negative antibody results. But - just got a text about my NHS test. “ Antibodies were identified in your blood...

Hi everyone, Three doses of vaccine, two negative antibody results. But - just...

skytortoise

•2 years ago

18 Replies

increasing lymphocytes

hi all just had my bloods results back friday ,,iam a bit concerned ,,lymphocytes,,7.10 ....hb 120,,,wbc 9.4,,,plts 60,,,,, nuets,,,1.80....iam 10 months...

hi all just had my bloods results back friday ,,iam a bit concerned ,,lymphocyt...

kel555

•2 years ago

3 Replies

Great Antibodies after 3rd Primary Dose of Pfizer

Hi, I was diagnosed with CLL in September 2019 and am on watch and wait. Six weeks after my second Astra Zeneca vaccination I took a Covid Antibody test from...

Hi, I was diagnosed with CLL in September 2019 and am on watch and wait. Six wee...

1Surfer9

•2 years ago

4 Replies

LLS (USA) Answers to COVID-19 questions based on trials with CLL and NHL patients in USA

The LLS clinical trials have yielded excellent data regarding the experience of 7000 Lymphoma patients. Here are links to the most recent 2 Videos....

The LLS clinical trials have yielded excellent data regarding the experience of ...

lankisterguy

Volunteer•2 years ago

Be the first to reply

Night sweats - coping strategies

Hi All, I have Relapsed CLL - ALC probably in 70’s + by now (bloods next week). I am now starting to get night sweats for the first time ever (I...

Hi All, I have Relapsed CLL - ALC probably in 70’s + by now (bloo...

Rich316

•2 years ago

2 Replies

Treatment

Hi. This is Rosa. I've been posting questions for some time now and appreciate the responses. Apparently, upon further research and notes from my...

Hi. This is Rosa. I've been posting questions for some time now and appreciate...

brooklyn7672

•2 years ago

3 Replies

Don’t forget to look at the lunar eclipse tonight. Peak is at 1:00 am PST California, or wait 580 years.

https://earthsky.org/astronomy-essentials/partial-lunar-eclipse-november-19-2021/

https://earthsky.org/astronomy-essentials/partial-lunar-eclipse-november-19-2021...

Pinecrest

•2 years ago

7 Replies

MULTI COLLAGEN PROTEIN POWDER ?

MULTI COLLAGEN PROTEIN POWDER: Does it produce beneficial effects ? What are precautions and for whom and with what conditions ?

MULTI COLLAGEN PROTEIN POWDER: Does it produce beneficial effects ? What are...

janvog

•2 years ago

28 Replies

Weight loss with Venclexta

I am taking 600mg of Venclexta daily and am loosing weight. Is anyone taking this and how do I gain the weight back.

I am taking 600mg of Venclexta daily and am loosing weight. Is anyone taking th...

brooklyn7672

•2 years ago

14 Replies

The anti-Covid monoclonals market hots up a bit more

This is an update to my previous post giving results for the phase 3 trial (COMET-ICE) of monoclonal antibody cocktail Sotrovimab administered by intravenous...

This is an update to my previous post giving results for the phase 3 trial (COME...

bennevisplace

•2 years ago

6 Replies

COVID-19 PrEP A single dose of Regen-Cov® may be effective for pre-exposure prophylaxis (PrEP) without needing

COVID-19 PrEP A single dose of Regen-Cov® (Casirivimab and Imdevimab) may be effective for pre-exposure prophylaxis (PrEP) without needing the present...

COVID-19 PrEP A single dose of Regen-Cov® (Casirivimab and Imdevimab) may be ef...

bkoffman

CLL CURE Hero•2 years ago

23 Replies

Monoclonal Antibody Efforts

See more @ https://www.bmj.com/content/374/bmj.n2319

Tupelomojo

•2 years ago

2 Replies

Antibody treatment for COVID-19 approved for use in UK

In case you have not seen this, there has been approval for the first monoclonal antibody treatment for the prevention and treatment of COVID-19 in the UK. The...

In case you have not seen this, there has been approval for the first monoclonal...

Tupelomojo

•2 years ago

4 Replies

Pain in legs and arms

Hello, I was diagnosed last year with cll and currently on w&w. My wbc has gone from 10 to 17k and lymphocytes from 7 to11k in one year. I recently have become...

Hello, I was diagnosed last year with cll and currently on w&w. My wbc has gone ...

Arnon

•2 years ago

6 Replies

COVID POSITIVE looking for information

Hi everybody in CLL land. I am looking for your help and information on what its like getting COVID. Is the outcome for us always severe or critical or do some...

Hi everybody in CLL land. I am looking for your help and information on what its...

Strech51

•2 years ago

68 Replies

Why have a Flu jab?

I was diagnosed with CLL in 2003 and have neither had nor needed treatment so far. However I have had 3 Pfeizer jabs and still have no antibodies. I am now...

I was diagnosed with CLL in 2003 and have neither had nor needed treatment so fa...

stavropigio

•2 years ago

69 Replies

The FDA has authorized the Emergency use of REGEN-COV for the treatment of COVID-19

For those who don't know; The FDA has authorized the emergency use of REGEN-COV for the treatment of COVID-19 and the post-exposure prevention of COVID-19...

For those who don't know; The FDA has authorized the emergency use of REGEN-COV ...

Tupelomojo

•2 years ago

9 Replies

Has anybody had any experience with Venetoclax and obinutuzumab?

Hiall, I'm going to be treated for my CLL (first treatment in the 13 years that I've had it)with Venetoclax and obinutuzumab. Has anybody had any experience...

Hiall, I'm going to be treated for my CLL (first treatment in the 13 years that ...

Curious12

•2 years ago

8 Replies

Wrong Post???

I was diagnosed Lymphoma of the Marginal Zone. Am I at the good site? Thanks.

doc1947g

•2 years ago

10 Replies

COVID Antibodies

After recently having my 3rd COVID vaccination I have now received results from an antibody blood test (National CLL survey) and the result is that there are...

After recently having my 3rd COVID vaccination I have now received results from ...

SAJ1214

•2 years ago

39 Replies

GAZYVA and COVID19 antibody tests

I have CLL. 5 years ago I had FCR treatment and my blood markers had become normal. Last October unfortunately my lymphocyte count started rising and my...

I have CLL. 5 years ago I had FCR treatment and my blood markers had become nor...

hasta

•2 years ago

8 Replies

I'm new here - (UK based) carer for CLL husband who has just commenced treatment with obinutuzumab & Venetoclax - not going great

My husband is into his 2nd week of treatment - currently obinutuzumab but will commence venetoclax in a few weeks (this is a 52 week programme). After his...

My husband is into his 2nd week of treatment - currently obinutuzumab but will c...

craigydon

•2 years ago

25 Replies

Molnupiravir

Molnupiravir has anyone in the uk had this new game changing treatment.

wmrxg08

•2 years ago

40 Replies

Increased symptoms

I've been diagnosed with CLL for 5 years now. No treatment other than supplements. I've been having overwhelming nausea every morning. Lightheadedness. Also...

I've been diagnosed with CLL for 5 years now. No treatment other than supplement...

MDINATL

•2 years ago

4 Replies

Covid booster shot and flu shot more or less at same time safe for CLL patients?

About to get my Covid booster shot in Ontario, Canada. Already double-dosed. About to get my flu shot at the same time. I am assuming that doing so is safe if...

About to get my Covid booster shot in Ontario, Canada. Already double-dosed. Abo...

leopardo

•2 years ago

11 Replies

Case Report

I came across this interesting case report today. Basically looking at lifestyle changes of a patient who lived an unexpectedly long time. I have already...

I came across this interesting case report today. Basically looking at lifestyl...

Rando21

•2 years ago

26 Replies

Advantage of Acalabrutinib over Ibrutinib?

Doc may want my husband to change to Calquence after 7.5 years on ibrutnib, due to afib. What are the advantages of acalabrutinib? Disadvantages? Has anyone...

Doc may want my husband to change to Calquence after 7.5 years on ibrutnib, due ...

Ibru

•2 years ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2021

immunostimulant / bacterial lysate tablets?

CD49d

Is strength training helpful?

….Result

increasing lymphocytes

Great Antibodies after 3rd Primary Dose of Pfizer

LLS (USA) Answers to COVID-19 questions based on trials with CLL and NHL patients in USA

Night sweats - coping strategies

Treatment

Don’t forget to look at the lunar eclipse tonight. Peak is at 1:00 am PST California, or wait 580 years.

MULTI COLLAGEN PROTEIN POWDER ?

Weight loss with Venclexta

The anti-Covid monoclonals market hots up a bit more

COVID-19 PrEP A single dose of Regen-Cov® may be effective for pre-exposure prophylaxis (PrEP) without needing

Monoclonal Antibody Efforts

Antibody treatment for COVID-19 approved for use in UK

Pain in legs and arms

COVID POSITIVE looking for information

Why have a Flu jab?

The FDA has authorized the Emergency use of REGEN-COV for the treatment of COVID-19

Has anybody had any experience with Venetoclax and obinutuzumab?

Wrong Post???

COVID Antibodies

GAZYVA and COVID19 antibody tests

I'm new here - (UK based) carer for CLL husband who has just commenced treatment with obinutuzumab & Venetoclax - not going great

Molnupiravir

Increased symptoms

Covid booster shot and flu shot more or less at same time safe for CLL patients?

Case Report

Advantage of Acalabrutinib over Ibrutinib?

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