Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for October 2021

Key ChallengesTo Inhibiting BTK

Bruton's tyrosine kinase (BTK) promotes the growth and survival of malignant B cells1 Sustained inhibition of BTK must be maintained at therapeutic...

Bruton's tyrosine kinase (BTK) promotes the growth and survival of malignant B c...

Tupelomojo

•3 years ago

Be the first to reply

Post Vaccine Lung Function

Upon receiving my second Pfizer shot in Feb I began noticing my lung capacity was reduced when performing any exercise or work-related activity. My Fitbit...

Upon receiving my second Pfizer shot in Feb I began noticing my lung capacity wa...

StobiMan

•3 years ago

13 Replies

Psoriasis post-treatment

Hi all, it's been awhile...I've been out enjoying life since hitting remission and getting fully vaccinated (we still have enough restrictions here in Germany...

Hi all, it's been awhile...I've been out enjoying life since hitting remission a...

jijic

•3 years ago

12 Replies

Want to take advantage of all our features? Just log in!

"Boo"b's

I had a scare w/ mammo and imaging, but thank goodness lymph nodes and CLL related, and not a 2nd kind of cancer. Nothing that I can feel, just in the tissue....

I had a scare w/ mammo and imaging, but thank goodness lymph nodes and CLL relat...

Gardengirl44

•3 years ago

13 Replies

Obinutuzumab and Venetoclax

Hi. I start treatment next week and have been told the drugs I will be having are Obinutuzumab and Venetoclax. I wondered if anyone here had recieved...

Hi. I start treatment next week and have been told the drugs I will be having a...

ChuckyB

•3 years ago

28 Replies

Ironman 70.3 Waco Triathlon with CLL/SLL

Hi all! Raced in Ironman 70.3 Waco yesterday! My 2nd half since being diagnosed with CLL/SLL in 2011. I turn 50 in January. You don’t need to do an Ironman,...

Hi all! Raced in Ironman 70.3 Waco yesterday! My 2nd half since being diagnosed ...

BJollie

•3 years ago

29 Replies

Another topic that we should all already know about

This popped up on today's CNN website. Hopefully we all already know about monoclonal antibody infusions but I thought that I would post this - just in case....

This popped up on today's CNN website. Hopefully we all already know about mono...

hhk50

•3 years ago

4 Replies

Emerging trends in correlating SARS-CoV-2 binding and neutralizing antibody titers

Most commercial antibody binding tests discussed on this site only measure antibody binding to the corona virus Spike protein. They do not test the ability of...

Most commercial antibody binding tests discussed on this site only measure antib...

gardening-girl

•3 years ago

17 Replies

Covid Booster

I am so torn on whether or not to get a booster. I am in the LLS study and one month after my 2nd vaccine I had the antibody test and it was positive with the...

I am so torn on whether or not to get a booster. I am in the LLS study and one m...

Cherieann

•3 years ago

24 Replies

Boosters needed

Many here have already gotten their boosters. If you haven't, I would urge you to get it. Breakthrough deaths are not rare. However, there may be a...

Many here have already gotten their boosters. If you haven't, I would urge you ...

whmk

•3 years ago

1 Reply

Having joined the AF and CLL band can anyone recommend a sensible travel insurance company

Having joined the AF and recently the CLL band of warriors, can anyone recommend a sensible travel insurance company, as we want to continue our lover of...

Having joined the AF and recently the CLL band of warriors, can anyone recommen...

AFLad

•3 years ago

11 Replies

What to expect when starting Acalabrutinib

I am due to start treatment shortly possibly Acalabrutinib because my numbers have just doubled in 6 months. Previously had received one only treatment of BR...

I am due to start treatment shortly possibly Acalabrutinib because my numbers h...

Joffre1

•3 years ago

5 Replies

Question

Does anyone know if one can get disability because of cll?

Createdpath

•3 years ago

3 Replies

Intense exercise

I have early stage CLL diagnosed about a year ago. I am a regular marathon runner and just a week ago ran my first 50 mile run. My hematologist told me not to...

I have early stage CLL diagnosed about a year ago. I am a regular marathon runne...

celticfan

•3 years ago

13 Replies

Calquence and chills

I have been on Calquence for 6 month (previously on Imbruvica for 3.5 years). I frequently get chilled late in the afternoon. Last evening I was really...

I have been on Calquence for 6 month (previously on Imbruvica for 3.5 years). I...

Agatesup

•3 years ago

3 Replies

Over Expressed CD38

My Fish results found a CD 38 (partial) I've read the CD38 indicates a more aggressive disease. Does anyone have any knowledge or literature on this?

My Fish results found a CD 38 (partial) I've read the CD38 indicates a more aggr...

SantaZia

•3 years ago

6 Replies

Curious about any Blood Changes after Vaccine

Just curious if anyone noticed any changes in blood numbers after COVID shots, good or bad. Thanks!

Just curious if anyone noticed any changes in blood numbers after COVID shots, g...

Splash24

•3 years ago

16 Replies

Nov. 1 CLL Webinar: Giving Care to the Caregiver with Allison Applebaum! Become inspired! Bring your caregiver to our Nov. 1 webinar.

Nov. 1 Webinar: Giving Care to the Caregiver with Allison Applebaum! Our caregivers bring us priceless gifts. Their presence grounds us. They share our hope....

Nov. 1 Webinar: Giving Care to the Caregiver with Allison Applebaum! Our caregiv...

bkoffman

CLL CURE Hero•3 years ago

Be the first to reply

Revolution of Chronic Lymphocytic LeukemiaTherapy: the Chemo-Free Treatment Paradigm

[Here is some info that may be useful to read - or again go over again . . . ] Annika Scheffold1 & Stephan Stilgenbauer1,2 Published online: 5 February 2020 #...

[Here is some info that may be useful to read - or again go over again . . . ] A...

Tupelomojo

•3 years ago

12 Replies

Acalabrutinib Plus Venetoclax and Obinutuzumab Achieves High Bone Marrow uMRD Rate in Chronic Lymphocytic Leukemia - CLL

Great news from this long awaited first published phase 2 study reporting the efficacy of this AVO triplet, which are the most active new drugs approved for...

Great news from this long awaited first published phase 2 study reporting the ef...

AussieNeil

Administrator•3 years ago

23 Replies

Medicare Open Enrollment for 2022 Part D drug plans- CLL patients can change plans despite pre existing conditions

This post is for USA - Medicare eligible patients. The open enrollment period for 2022 Medicare is now through Dec 7, 2021 Those of us with CLL on...

This post is for USA - Medicare eligible patients. The open enrollment period...

lankisterguy

Volunteer•3 years ago

Be the first to reply

Alterations of the immune system caused by CLL B‐cells

Abstract: Here, we review the current understanding of the underlying interplay between the malignant CLL cells and non‐malignant immune cells that may promote...

Abstract: Here, we review the current understanding of the underlying interplay ...

gardening-girl

•3 years ago

10 Replies

Waiting for diagnosis

Hello I'm 61 and haven't yet been diagnosed with CLL although my GP has suggested I have it. I'm waiting for my haematology appointment but have been triaged...

Hello I'm 61 and haven't yet been diagnosed with CLL although my GP has suggeste...

Stitcher100

•3 years ago

8 Replies

Rib issue

Having some left rib pain. Thought I was having spleen enlargement but my MSK doc said I am too early in CLL for that to happen and had me go to a PCP. PCP...

Having some left rib pain. Thought I was having spleen enlargement but my MSK do...

Mend123

•3 years ago

5 Replies

Ibrutinib

I have been on Ibrutinib now for 3 months, and although my swollen lymph glands have gone down completely, at times I do not feel well. I get headaches and...

I have been on Ibrutinib now for 3 months, and although my swollen lymph glands...

flippingnora1

•3 years ago

26 Replies

Still unable to access third dose covid vac

The computer 119 and call are still saying no to me. I am in a rabbit hole. Evidently this is happening to many. Doc and consultant can’t help. Mal

The computer 119 and call are still saying no to me. I am in a rabbit hole. Evid...

Mal42

•3 years ago

8 Replies

3rd Primary dose vs Booster

My GP practice, who I usually trust, is Islington Central. However when my nurse specialist at McMillan Cancer, UCLH, asked them to organise a third primary...

My GP practice, who I usually trust, is Islington Central. However when my nurse...

JIDD

•3 years ago

21 Replies

Cancer experts offer guidance on COVID-19 vaccination for patients with blood cancer, including Chronic Lymphocytic Leukaemia (CLL)

While not CLL specific, there shouldn't be any surprises here. However it is still worth repeating in an unlocked post for anyone with CLL looking for...

While not CLL specific, there shouldn't be any surprises here. However it is sti...

AussieNeil

Administrator•3 years ago

6 Replies

A 4th Moderna shot for the Immunocompromised?

A March 2016 CAR-T treatment permanently damaged my wife's bone marrow such that she does not produce immunoglobulins. She gets an IVIG infusion every 2...

A March 2016 CAR-T treatment permanently damaged my wife's bone marrow such that...

wmay13241

•3 years ago

4 Replies

Don't Worry

Are there any drugs to take that help to postpone the toxic CLL treatments. I heard of one shot that you can take twice a month that will work for a year. Now...

Are there any drugs to take that help to postpone the toxic CLL treatments. I h...

Tupelomojo

•3 years ago

19 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2021

Key ChallengesTo Inhibiting BTK

Post Vaccine Lung Function

Psoriasis post-treatment

"Boo"b's

Obinutuzumab and Venetoclax

Ironman 70.3 Waco Triathlon with CLL/SLL

Another topic that we should all already know about

Emerging trends in correlating SARS-CoV-2 binding and neutralizing antibody titers

Covid Booster

Boosters needed

Having joined the AF and CLL band can anyone recommend a sensible travel insurance company

What to expect when starting Acalabrutinib

Question

Intense exercise

Calquence and chills

Over Expressed CD38

Curious about any Blood Changes after Vaccine

Nov. 1 CLL Webinar: Giving Care to the Caregiver with Allison Applebaum! Become inspired! Bring your caregiver to our Nov. 1 webinar.

Revolution of Chronic Lymphocytic LeukemiaTherapy: the Chemo-Free Treatment Paradigm

Acalabrutinib Plus Venetoclax and Obinutuzumab Achieves High Bone Marrow uMRD Rate in Chronic Lymphocytic Leukemia - CLL

Medicare Open Enrollment for 2022 Part D drug plans- CLL patients can change plans despite pre existing conditions

Alterations of the immune system caused by CLL B‐cells

Waiting for diagnosis

Rib issue

Ibrutinib

Still unable to access third dose covid vac

3rd Primary dose vs Booster

Cancer experts offer guidance on COVID-19 vaccination for patients with blood cancer, including Chronic Lymphocytic Leukaemia (CLL)

A 4th Moderna shot for the Immunocompromised?

Don't Worry

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive