Posts - CLL Support | HealthUnlocked

CLL Support

22,475 members • 38,615 posts

All posts for October 2021

Side effects of Acalabrutanib

Hi I've recently been diagnosed with CLL (March) and chose to start chemo taking Acalabrutinib. After the initial few weeks of nausea things seemed to settle...

Hi I've recently been diagnosed with CLL (March) and chose to start chemo taki...

Tomaljoe69

•2 years ago

15 Replies

J&J shot

I took two Pfizer shots and they produced no antibodies. The one j@j shot did!

I took two Pfizer shots and they produced no antibodies. The one j@j shot did! ...

gogosox59

•2 years ago

3 Replies

Treatment option with del 17 positive but IGHV mutated

I am CLL since 2003 on wait and watch. Now my count has increased to 80000 and platlets fallen to 1 Lakhs. RBC is normal.My spleen is 16.5 cms My FISH report...

I am CLL since 2003 on wait and watch. Now my count has increased to 80000 and p...

Ashwas

•2 years ago

7 Replies

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CLL and vaccine antibodies

Has anyone with CLL had the vaccine & tested positive for the antibodies? Thanks

Has anyone with CLL had the vaccine & tested positive for the antibodies? Thank...

Toothdoctor

•2 years ago

32 Replies

Side effects of Booster for CLL'rs

Hi All, I had my booster, two and a half weeks ago, I had the usual sore and swollen arm, then back to normal. I had my firsf face to face, Bloods, and Lump,...

Hi All, I had my booster, two and a half weeks ago, I had the usual sore and sw...

Vindicatrix

•2 years ago

6 Replies

Vaccine taking

Someone, and I can't remember who, said, possibly, sarcastically, that we should do as we are told, and take it, like good little sheep, In repect of this...

Someone, and I can't remember who, said, possibly, sarcastically, that we should...

Vindicatrix

•2 years ago

32 Replies

Shingrix Vaccination

I had my first Shingrix vaccination on the NHS yesterday, I’m feeling slightly lethargic today but fingers crossed no further reaction. My local GP sidestepped...

I had my first Shingrix vaccination on the NHS yesterday, I’m feeling slightly l...

Richardmint

•2 years ago

13 Replies

Astrazeneca

Hello, I am from Argentina and I have applied the 2 doses of Sinopharm, now I have to apply the 3rd dose and I have the Astrazeneca vaccine. what is your...

Hello, I am from Argentina and I have applied the 2 doses of Sinopharm, now I ha...

Bixilon

•2 years ago

6 Replies

Congratulations 🎊

Just ready for cycle 5 on V O treatment. So encouraging to hear your good news. Celebrate!

Just ready for cycle 5 on V O treatment. So encouraging to hear your good news. ...

Hiker13

•2 years ago

1 Reply

Do you have more energy after treatment?

I'm just wondering. If I have a course of novel agents eg v and I, will I have more energy a few months after finishing it?

I'm just wondering. If I have a course of novel agents eg v and I, will I have m...

Research123

•2 years ago

6 Replies

3rd Jab

Hi I have my 3rd jab booked and have received a letter from my local hospital saying that in preference I should have a third AZ vaccination. I understand...

Hi I have my 3rd jab booked and have received a letter from my local hospital sa...

Happygarden

•2 years ago

7 Replies

UK NHS - Getting its act together?

After a couple of attempts to get my local GP surgery to get me a 3rd primary jab, I gave up as they refused to acknowledge anything other than the 6 month...

After a couple of attempts to get my local GP surgery to get me a 3rd primary ja...

IWVC

•2 years ago

12 Replies

UK National COVID cancer test survey - Any results

Hi. I have just had a negative antibody test result after taking the National COVID cancer survey test. Obviously disappointed after having the 3rd dose of the...

Hi. I have just had a negative antibody test result after taking the National CO...

Strech51

•2 years ago

6 Replies

After Regeneron Drop In Neutrophils? Did I make a mistake?

Update. Husband had 5 months of Gazyva/Venclexta. Had gotten up to 400 mg. of Venclexta when neutrophils started dropping too low. Twice had to hold and get...

Update. Husband had 5 months of Gazyva/Venclexta. Had gotten up to 400 mg. of Ve...

PalmettoMiami

•2 years ago

2 Replies

CALQUENCE (Acalabrutinib) not working right after Covid vaccination?

I was on Acalabrutinib for over two years without any complications or side effects. I was vaccinated in January 2021. About 3 months after that I started to...

I was on Acalabrutinib for over two years without any complications or side effe...

pragnar

•2 years ago

5 Replies

Nov. 1 Webinar: Giving Care to the Caregiver: Dr. Allison Applebaum is the breath of fresh air we caregivers have been waiting for!

CLL Society's Nov. 1 Webinar: Giving Care to the Caregiver with Allison Applebaum! Dr. Allison Applebaum is the breath of fresh air we caregivers have been...

CLL Society's Nov. 1 Webinar: Giving Care to the Caregiver with Allison Applebau...

bkoffman

CLL CURE Hero•2 years ago

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what is your experience of acalabrutinib in CLL

I start acalabrutinib next week. I have been on wait and watch 10 years. 2 months ago I developed a large firm and smooth swelling on my jaw.

I start acalabrutinib next week. I have been on wait and watch 10 years. 2 month...

benchica

•2 years ago

5 Replies

Less than 8 mins to the zoe webinar

https://youtu.be/A6O6kZxqyCg

zaax

•2 years ago

3 Replies

Enlarged spleen

Hi everyone , I think I must have had a feeling something was wrong when I sent best wishes to everyone yesterday. My husband is in A & E at this moment and...

Hi everyone , I think I must have had a feeling something was wrong when I sent ...

Lesley3

•2 years ago

8 Replies

SHINGRIX

Hi I’ve read a few posts where they have been giving the shringrix vaccination. Is this now available on the Nhs , as when I first enquired two years ago it...

Hi I’ve read a few posts where they have been giving the shringrix vaccination....

jane1301

•2 years ago

6 Replies

Early Treatment for Covid-19 with SARS-CoV-2 Neutralizing Antibody Sotrovimab

Just published in the NEJM...

bennevisplace

•2 years ago

1 Reply

PALPITATIONS and CALQUENCE (Alacabrutinib)

Interested in knowing what simple ways you found to deal with palpitations that increase fatigue while on that medication. I'm scheduled to speak to my doctor...

Interested in knowing what simple ways you found to deal with palpitations that ...

unairdefamille

•2 years ago

4 Replies

Venclexta interacts with many meds, including OTC ones and those for AIHA

I am doing some research on medication interactions with Venclexta, and I noticed that it seems to interact with a lot of common medications, including...

I am doing some research on medication interactions with Venclexta, and I notice...

SofiaDeo

•2 years ago

8 Replies

Results of 3rd COVID vaccine

Hi everyone! I got my antibody results back from my 3rd COVID vaccine and it says positive 1.6 and I was negative <0.4 first two times. Does 1.6 = a number of...

Hi everyone! I got my antibody results back from my 3rd COVID vaccine and it say...

JLJC

•2 years ago

12 Replies

People who are moderately and severely immunocompromised and COVID-19 vaccine booster dose

Moderately and severely immunocompromised people aged ≥18 years who completed an mRNA COVID-19 vaccine primary series and received an additional mRNA vaccine...

Moderately and severely immunocompromised people aged ≥18 years who completed an...

wmay13241

•2 years ago

Be the first to reply

SHINGRIX

Good morning all, I am a bit confused. On Monday my husband and I went to our medical centre for our Shingles vaccinations. Hubby had the 'normal ' one but I...

Good morning all, I am a bit confused. On Monday my husband and I went to our me...

kitchengardener2

•2 years ago

49 Replies

Folivane Plus Cap to keep hgb in normal range ?

I am 87, since 3 years on Imbruvica for CLL. My CBC is now always normal, except hgb is slightly below normal. Two month' ago my hgb dropped yet a bit lower...

I am 87, since 3 years on Imbruvica for CLL. My CBC is now always normal, except...

janvog

•2 years ago

4 Replies

Travel insurance.

Travel insurance. I’m currently undergoing venetoklax / Retuxumab. Regime started 8 weeks ago. Looking to hopefully visit relatives overseas next year. Has...

Travel insurance. I’m currently undergoing venetoklax / Retuxumab. Regime starte...

Billys60

•2 years ago

11 Replies

Cll Blood tests and 3rd Covid

I have an appointment for my 3rd covid jab (additional priming covid vacination) tomorrow is it OK to do blood tests a few days later or will it effect the...

I have an appointment for my 3rd covid jab (additional priming covid vacination)...

Safel

•2 years ago

3 Replies

Third primary jab reaction CLL

Hi Received my third primary Pfizer jab 10 days ago initial jabs were AZ After 5 days my armpit lymph nodes became swollen only in the arm that was jabbed. Has...

Hi Received my third primary Pfizer jab 10 days ago initial jabs were AZ After 5...

Barclays

•2 years ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2021

Side effects of Acalabrutanib

J&J shot

Treatment option with del 17 positive but IGHV mutated

CLL and vaccine antibodies

Side effects of Booster for CLL'rs

Vaccine taking

Shingrix Vaccination

Astrazeneca

Congratulations 🎊

Do you have more energy after treatment?

3rd Jab

UK NHS - Getting its act together?

UK National COVID cancer test survey - Any results

After Regeneron Drop In Neutrophils? Did I make a mistake?

CALQUENCE (Acalabrutinib) not working right after Covid vaccination?

Nov. 1 Webinar: Giving Care to the Caregiver: Dr. Allison Applebaum is the breath of fresh air we caregivers have been waiting for!

what is your experience of acalabrutinib in CLL

Less than 8 mins to the zoe webinar

Enlarged spleen

SHINGRIX

Early Treatment for Covid-19 with SARS-CoV-2 Neutralizing Antibody Sotrovimab

PALPITATIONS and CALQUENCE (Alacabrutinib)

Venclexta interacts with many meds, including OTC ones and those for AIHA

Results of 3rd COVID vaccine

People who are moderately and severely immunocompromised and COVID-19 vaccine booster dose

SHINGRIX

Folivane Plus Cap to keep hgb in normal range ?

Travel insurance.

Cll Blood tests and 3rd Covid

Third primary jab reaction CLL

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