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CLL Support

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All posts for September 2021

Ronapreve approved for CEV patients in UK

From the GOV.UK website Thousands of vulnerable NHS patients in hospital due to COVID-19 are set to benefit from a groundbreaking new antibody treatment, the...

From the GOV.UK website Thousands of vulnerable NHS patients in hospital due to ...

Jm954

Administrator•3 years ago

25 Replies

Update O and V No More

Sadly I was right I'm posting this to the person who asked me what the final decision would be by our oncologist after husbands neutrophils crashed along with...

Sadly I was right I'm posting this to the person who asked me what the final de...

Palmetto

•3 years ago

6 Replies

iwCLL video presentations available on vjheonc

The biennial International Workshop on Chronic Lymphocytic Leukemia (XIX iwCLL 2021) was held from 17-20 September 2021 as a virtual meeting. The most recent...

The biennial International Workshop on Chronic Lymphocytic Leukemia (XIX iwCLL 2...

Jm954

Administrator•3 years ago

3 Replies

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Vaccine safety, Boosters and the Third dose of COVID Vaccine explained for UK patients

CLL Support, the parent charity of this site, has posted very useful information about the difference between a booster and a third dose. There's also a lot...

CLL Support, the parent charity of this site, has posted very useful information...

Jm954

Administrator•3 years ago

32 Replies

Getting another LabCorp antibody test

I have now had the 3rd shot, and had hoped to get a LabCorp test again. However, I no longer have the order I used in April (from the doctor who was doing the...

I have now had the 3rd shot, and had hoped to get a LabCorp test again. However...

diorio

•3 years ago

11 Replies

LLS Ciitizen USA Study Shows Most Blood Cancer Patients Benefit from an Additional (3rd) COVID-19 Vaccine Dose

The LLS National Patient Registry & The Leukemia & Lymphoma Society® (LLS) is a global leader in the fight against cancer....

The LLS National Patient Registry & The Leukemia & Lymphoma Society® (LLS) is ...

lankisterguy

Volunteer•3 years ago

13 Replies

Ricther Transformation

After overcoming the Ricther Transformation and removing the port last week, fear returns and many questions. Will it come again? Why was it transformed? Why...

After overcoming the Ricther Transformation and removing the port last week, fea...

Priss69

•3 years ago

8 Replies

Positive Results from Pfizer Booster fir COVID

I wanna shout from the rooftops but I will post here and from my Facebook perch. After what i termed disastrous results after my second dose, I am happy to...

I wanna shout from the rooftops but I will post here and from my Facebook perch....

KevinCLLITP

•3 years ago

3 Replies

Starting a new chapter in life

Starting calquence Thursday, I guess no more vaccines, was really wanting that 3rd covid shot. And about that diarrhea I'm a little worried since I'm a truck...

Starting calquence Thursday, I guess no more vaccines, was really wanting that 3...

Tgw61

•3 years ago

6 Replies

Itchy Skin

I’m on Ibrutinib, 10 months in. Normal bloods, although platelets have dived from 160 to 111 in a week. Also my Lymphocytes also dropped from 2.7 to 1.8....

I’m on Ibrutinib, 10 months in. Normal bloods, although platelets have dived fro...

MovingForward4423

•3 years ago

2 Replies

MRD blood tests post FCR

As I was part of the Flair trial here in the UK, I see the trial team every six months for monitoring. Today, for the first time the consultant said they are...

As I was part of the Flair trial here in the UK, I see the trial team every six ...

Mandy56

•3 years ago

9 Replies

3rd Doses of COVID vaccines starting for UK NHS Patients

I was pleased to get an invitation for my 3rd booster dose of the COVID vaccine this morning. Now scheduled for this Saturday morning. I had AZ the first time...

I was pleased to get an invitation for my 3rd booster dose of the COVID vaccine ...

FairweatherSailor

•3 years ago

7 Replies

Travel insurance information for anyone taking statins

Thank you to everyone who has sent me suggestions on travel insurance. I have managed to get full cover with Avanti including heart and CLL. AS a matter of...

Thank you to everyone who has sent me suggestions on travel insurance. I have ma...

Hidden

•3 years ago

2 Replies

THE THIRD SHOT

... is not the same as a booster shot. See...

bennevisplace

•3 years ago

78 Replies

I have antibodies after third shot.

After I received my second Pfizer shot 3-1-21, I was tested twice for antibodies. The second test was early June. I did not have any antibodies. I received a...

After I received my second Pfizer shot 3-1-21, I was tested twice for antibodies...

DUKELAXDAD

•3 years ago

4 Replies

Wait 3 months before second dose?

There is evidence now that one can achieve a greater immune response by receiving the second jab after 3 months and that this approach might make a third...

There is evidence now that one can achieve a greater immune response by receivin...

Luap001

•3 years ago

6 Replies

COVID-19 Virtual Community Meeting: The Delta Variant and Staying Protected is taking place this week! Friday, September 24th at Noon ET

CLL Society COVID-19 Virtual Community Meeting The Delta Variant and Staying Protected is taking place this week! - Friday, September 24th at 9:00 AM PT. Noon...

CLL Society COVID-19 Virtual Community Meeting The Delta Variant and Staying Pro...

lankisterguy

Volunteer•3 years ago

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Update on Hubby after Regeneron infusion

He responded almost immediately to the Regeneron. Infusion was on Wednesday and Thursday we saw significant improvement. By day 2 after the infusion no cough,...

He responded almost immediately to the Regeneron. Infusion was on Wednesday and...

Dice70

•3 years ago

16 Replies

T-cell /Cellular Immune Responses in Patients with CLL from the Pfizer-BioNTech COVID-19 Vaccine (BNT162b mRNA Covid19 Vaccine)

From Dr Tamar Tadmor, Head of the Israeli CLL study group at iwCLL. Patients with CLL suffer from varying degrees of immune deficiency, either due to their...

From Dr Tamar Tadmor, Head of the Israeli CLL study group at iwCLL. Patients wit...

Jm954

Administrator•3 years ago

40 Replies

LAMP test for SARS-CoV-2 being Piloted in UK Hospitals and students to reduce asymptomatic transmission.

"A technical and clinical evaluation has confirmed OptiGene RT-LAMP tests to be accurate and sensitive enough to be used for COVID-19 testing, including for...

"A technical and clinical evaluation has confirmed OptiGene RT-LAMP tests to be ...

Jm954

Administrator•3 years ago

15 Replies

Travel insurance experience

I recently needed travel insurance to travel to Portugal so I did the usual comparison web sites and eventually went for Saga travel insurance as the both...

I recently needed travel insurance to travel to Portugal so I did the usual comp...

Padelking

•3 years ago

3 Replies

Are constantly enlarged but pain free tonsils a symptom of Cll?

Hi everyone. I am 44 and been on watch and wait for nearly 6 years now. What I would like to know is are constantly swollen tonsils a usual symptom of Cll?...

Hi everyone. I am 44 and been on watch and wait for nearly 6 years now. What I...

ChuckyB

•3 years ago

23 Replies

Clinical Trials explained

Most of us have heard conflicting comments about Clinical Trials, the good, the bad and the just plain ugly. But where can you find expert help and...

Most of us have heard conflicting comments about Clinical Trials, the good, the...

lankisterguy

Volunteer•3 years ago

3 Replies

Is shingrix with live bacteria safe?

I'm not sure, but believe shingrix comes in both live and dead virus versions. If so, is one better than the other for less side effects and long term...

I'm not sure, but believe shingrix comes in both live and dead virus versions. ...

CCgroup

•3 years ago

15 Replies

Travel insurance

I want to travel widely and am having trouble getting travel insurance. They will cover me for my heart condition but not CLL. Any ideas?

I want to travel widely and am having trouble getting travel insurance. They wil...

Hidden

•3 years ago

19 Replies

Influenza (flu) vaccine?

Some facts about influenza vaccine and influenza (the way I understand it at least): - the vaccine protects against 3-4 strains of influenza, depending on...

Some facts about influenza vaccine and influenza (the way I understand it at lea...

mantana

•3 years ago

21 Replies

Enlarged spleen and high cost of calquence

hi, i forgot to ask my oncologist if the calquence he prescribed would make my spleen return to normal size even if it is as large as mine .. my spleen is...

hi, i forgot to ask my oncologist if the calquence he prescribed would make my s...

craterlake

•3 years ago

46 Replies

New Comer

Hello everyone I'm new to this site but not to cll diagnosed in 2013.

Tgw61

•3 years ago

7 Replies

Mask Wars

This Graphic Perspective explores the fraught history of masking as a preventive intervention in public health crises. Masks themselves have evolved, but the...

This Graphic Perspective explores the fraught history of masking as a preventive...

bennevisplace

•3 years ago

6 Replies

Monoclonal infusions post covid.

Hi all, has anyone got an update on 'Monoclonal Infusions' Post Covid relating to CLL sufferers, in the UK.

Hi all, has anyone got an update on 'Monoclonal Infusions' Post Covid relating t...

Vindicatrix

•3 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2021

Ronapreve approved for CEV patients in UK

Update O and V No More

iwCLL video presentations available on vjheonc

Vaccine safety, Boosters and the Third dose of COVID Vaccine explained for UK patients

Getting another LabCorp antibody test

LLS Ciitizen USA Study Shows Most Blood Cancer Patients Benefit from an Additional (3rd) COVID-19 Vaccine Dose

Ricther Transformation

Positive Results from Pfizer Booster fir COVID

Starting a new chapter in life

Itchy Skin

MRD blood tests post FCR

3rd Doses of COVID vaccines starting for UK NHS Patients

Travel insurance information for anyone taking statins

THE THIRD SHOT

I have antibodies after third shot.

Wait 3 months before second dose?

COVID-19 Virtual Community Meeting: The Delta Variant and Staying Protected is taking place this week! Friday, September 24th at Noon ET

Update on Hubby after Regeneron infusion

T-cell /Cellular Immune Responses in Patients with CLL from the Pfizer-BioNTech COVID-19 Vaccine (BNT162b mRNA Covid19 Vaccine)

LAMP test for SARS-CoV-2 being Piloted in UK Hospitals and students to reduce asymptomatic transmission.

Travel insurance experience

Are constantly enlarged but pain free tonsils a symptom of Cll?

Clinical Trials explained

Is shingrix with live bacteria safe?

Travel insurance

Influenza (flu) vaccine?

Enlarged spleen and high cost of calquence

New Comer

Mask Wars

Monoclonal infusions post covid.

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